Change.org is MySpace's new non-profit organization / causes portal. CHERUBS is proud to be one of the first non-profits in this new site! Please show your support in the fight against CDH by visiting and joining in!
Change Page - http://www.change.org/changes/change_page/2087
Non-Profit Page - http://www.change.org/nonprofit_page/nonprofit_home/77822
There will *never* be a cure for CDH - it is not something that a pill can fix. Lung function is just *one* factor in the survival of CDH babies - more babies die from, or stay in the hospital longer, because of infections and side effects than lack of lung function. The way to stop CDH is to find the cause and prevention of this horrible birth defect. The way to do that is to raise awareness and to promote more research for CDH! But we can't forget the families already affected by CDH and we must *always* promote support first!
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org
Please forward this on to family and friends!
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Tuesday, January 15, 2008
Monday, January 14, 2008
Calling All Artists and Musicians for CDH Families!
CHERUBS is looking for musicians to donate songs (original only please) for an upcoming fundraising CD. One song will be chosen as the theme to our CDH Educational Video, which will go out to hospitals around the country. Family and friends encouraged to join in too!
We are also looking for artists to donate items to our Angel Ball Silent Auction in July. Again, family and friends encouraged to join in too!
Each submission can be made in honor / memory of a cherub and will be featured on our site and in publications.
Please visit our site for more information. http://www.cdhsupport.org/members
We are also looking for artists to donate items to our Angel Ball Silent Auction in July. Again, family and friends encouraged to join in too!
Each submission can be made in honor / memory of a cherub and will be featured on our site and in publications.
Please visit our site for more information. http://www.cdhsupport.org/members
CHERUBS & Diaphragmatic Hernia Babies on YouTube
CHERUBS is now on YouTube! We are an official YouTube charity (which isn't easy to do!) and we are trying to set our profile up there. We also are working on a one hour informational and educational Congenital Diaphragmatic Hernia video and would love to feature as many cherubs as possible!
If you have a video or are already on YouTube, please make sure to link to CHERUBS!
http://www.youtube.com/profile?user=cdhsupport
If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!
http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=
Please forward this to any other CDH parent that you may know that would want to participate! :)
If you have a video or are already on YouTube, please make sure to link to CHERUBS!
http://www.youtube.com/profile?user=cdhsupport
If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!
http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=
Please forward this to any other CDH parent that you may know that would want to participate! :)
Congenital Diaphragmatic Hernia Awareness Day / Breath of Hope, Inc / CDH Awareness Trademark Issues
From our site:
CHERUBS Board Members have decided to move the threads that address the Congenital Diaphragmatic Hernia Awareness / Breath of Hope, Inc. / Elizabeth Doyle-Propst controversy to a more private forum. We all agree that we feel it is detrimental to new CDH families to be exposed to this drama.
But this does *not* mean that we have given up the fight against the attacks and slander and we will continue to pursue actions against this behavior - to protect CHERUBS, myself and all CDH parents. We also do not believe in allowing this type of behavior to proliferate in the dark so any member who wants to read about what is going on on the private forum can gain access by simply asking to be authorized. Those who already posted on this topic are already authorized to this new forum.
However, we also believe that as members of CHERUBS, each of you have every right to know about the attacks that are threatening our organization and so we will keep the timeline updated and available for viewing at http://www.cdhsupport.org/elizabeth so that you may know what is going on if you chose to. This timeline is also used to build a case against Elizabeth Doyle-Propst for all the actions and slander against our charity.
Please rest assured that CHERUBS welcomes all Breath of Hope, Inc members with open arms and that you are safe here and can continue to give and receive support with other families affected by Congenital Diaphragmatic Hernia. We also realize that many of you are deeply emotionally invested in the Congenital Diaphragmatic Hernia Awareness Day campaign and there is no legal reason why you can't continue to promote CDH Awareness in other, just as active ways that will make more of an impact - by yourselves or with an organization that has no alterior motives. CHERUBS only inspiration is honoring the lives and memories of our babies.
For clarification:
Congenital Diaphragmatic Hernia Awareness is *not* trademarked and it is *not* owned by Breath of Hope, Inc. or Elizabeth Doyle-Propst or anyone else. Nor should it be.
The CDH Awareness Ribbon is not the turquoise ribbon stolen from Rainbow of Hope. CDH families voted on the baby blue, pink and pale yellow ribbon with clouds as is represented on Wikipedia and numerous other sites.
March 31 is significant because it is the date of the filing of the false charge that Elizabeth Doyle-Propst filed against CHERUBS in 2007 to try to get CHERUBS shut down. This is stated on documents and the audio transcript found at the address above.
No governors have proclaimed March 31 "Breath of Hope Awareness Day" or even specified that day can only be used by Breath of Hope members. If CDH families want to participate in activities on that day then there is no legal reason why they can not.
CHERUBS Board Members have decided to move the threads that address the Congenital Diaphragmatic Hernia Awareness / Breath of Hope, Inc. / Elizabeth Doyle-Propst controversy to a more private forum. We all agree that we feel it is detrimental to new CDH families to be exposed to this drama.
But this does *not* mean that we have given up the fight against the attacks and slander and we will continue to pursue actions against this behavior - to protect CHERUBS, myself and all CDH parents. We also do not believe in allowing this type of behavior to proliferate in the dark so any member who wants to read about what is going on on the private forum can gain access by simply asking to be authorized. Those who already posted on this topic are already authorized to this new forum.
However, we also believe that as members of CHERUBS, each of you have every right to know about the attacks that are threatening our organization and so we will keep the timeline updated and available for viewing at http://www.cdhsupport.org/elizabeth so that you may know what is going on if you chose to. This timeline is also used to build a case against Elizabeth Doyle-Propst for all the actions and slander against our charity.
Please rest assured that CHERUBS welcomes all Breath of Hope, Inc members with open arms and that you are safe here and can continue to give and receive support with other families affected by Congenital Diaphragmatic Hernia. We also realize that many of you are deeply emotionally invested in the Congenital Diaphragmatic Hernia Awareness Day campaign and there is no legal reason why you can't continue to promote CDH Awareness in other, just as active ways that will make more of an impact - by yourselves or with an organization that has no alterior motives. CHERUBS only inspiration is honoring the lives and memories of our babies.
For clarification:
Congenital Diaphragmatic Hernia Awareness is *not* trademarked and it is *not* owned by Breath of Hope, Inc. or Elizabeth Doyle-Propst or anyone else. Nor should it be.
The CDH Awareness Ribbon is not the turquoise ribbon stolen from Rainbow of Hope. CDH families voted on the baby blue, pink and pale yellow ribbon with clouds as is represented on Wikipedia and numerous other sites.
March 31 is significant because it is the date of the filing of the false charge that Elizabeth Doyle-Propst filed against CHERUBS in 2007 to try to get CHERUBS shut down. This is stated on documents and the audio transcript found at the address above.
No governors have proclaimed March 31 "Breath of Hope Awareness Day" or even specified that day can only be used by Breath of Hope members. If CDH families want to participate in activities on that day then there is no legal reason why they can not.
Friday, January 11, 2008
Grey's Anatomy and Diaphragmatic Hernia Awareness
Last night's episode of Gray's Anatomy featured a child with DH. You can view it on ABC's web site.
We're asking all CDH parents, family and friends to please post to Gray's Anatomy's message board to try to bring more awareness to CDH:
http://abc.go.com/primetime/greysanatomy/index?pn=mb&tsn=-1&cat=30931&tid=181433
Please, go, post your story, post the link to CHERUBS (http://www.cdhsupport.org) so other parents can find support too and please, most importantly, help us to raise awareness!
Please forward this all your MySpace Friends!
Thank you all!
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org
We're asking all CDH parents, family and friends to please post to Gray's Anatomy's message board to try to bring more awareness to CDH:
http://abc.go.com/primetime/greysanatomy/index?pn=mb&tsn=-1&cat=30931&tid=181433
Please, go, post your story, post the link to CHERUBS (http://www.cdhsupport.org) so other parents can find support too and please, most importantly, help us to raise awareness!
Please forward this all your MySpace Friends!
Thank you all!
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org