Tuesday, April 15, 2008

CHERUBS Update - Conference, Events, CDH Video and Representatives

Dear Members,

I hope this e-mail finds you well. This note isn't our quarterly e-mail
but rather an e-mail to let you know about some really exciting things we
have going on that we couldn't wait another month to tell you about!


First, we need videos! We are putting together 2 CDH Videos and we have a
submission deadline coming up. If you would like to include video of your
cherub please contact Tania at tswartout@cherubs-cdh.org or Stephanie at
solivarez@cherubs-cdh.org


Second, we need more Representatives! You can see what positions need to
be filled and meet our new State & International Representatives at
http://www.cherubs-cdh.org/volunteers/reps


Third and very important, we have many events going on:

April 18, 2008 - Rat Patrol ATV Rally, Attica, Indiana,
http://www.cdhsupport.org/events/atvrally.php

June 14, 2008 - Michigan Get-Together, Lansing, MI,
http://www.cdhsupport.org/members/viewtopic.php?t=673

June 28, 2008 - CHERUBS UK Conference, Milton Keyes, UK,
http://www.uk-cherubs.org.uk/

July 4, 2008 - Ayda's CDH Awarness Booth, Spirit Lake, ID,
sbrowand@cherubs-cdh.org

June 6-8, 2008 - Informal Camping Retreat, New Stanton, PA,
http://www.cdhsupport.org/members/viewtopic.php?t=1367

July 25-26, 2008 - CHERUBS International Member Conference, Comfort Suites
Conference Hall, RTP / RDU / Durham, NC,
http://www.cdhsupport.org/events/conference

July 26, 2008 - Charity Angel Ball, Sarah P. Duke Gardens, Durham, NC,
http://www.cherubsangelball.org

July 28, 2008 - Charity Golf Tournament, Brier Creek Country Club, Raleigh,
NC, http://www.cherubsgolftournament.org

August 23, 2008 - Ohio Member Picnic, Columbus, OH, thall@cherubs-cdh.org

September 21, 2008 - Happy Birthday Jeremiah Car Show, Columbus, OH,
http://www.cdhsupport.org/members/viewtopic.php?t=1298

October 18, 2008 - CHERUBS Australia Conference, Australia,
http://au.geocities.com/ozcherubs/


And lastly, please make sure to pop over to our site as we're always busy
and our forums are always buzzing! http://www.cdhsupport.org/members
Below is a list of recent posts to try to entice you to come on over and
join in the conversations and give support to other CDH families or get a
little support for yourself. If you have any trouble getting onto the
site, please e-mail Amy at nmc@cherubs-cdh.org

As always, if you have any questions just let us know! I hope to see you
all at our Member Conference in July!

Sincerely,
Dawn M. Torrence
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research,
Awareness and Support
270 Coley Rd, Henderson, NC 27537
252-492-6003
www.cdhsupport.org
dawn_torrence@cherubs-cdh.org




---------------------------------------------------------------------------------


McKenna Varen's Angelversary.... thinking of you Alysssa!!! -
http://cdhsupport.org/members/viewtopic.php?t=1626&highlight=
CDH picture/video DVD -
http://cdhsupport.org/members/viewtopic.php?t=1624&highlight=
New Congenital Diaphragmatic Hernia Awareness Ribbon Items! -
http://cdhsupport.org/members/viewtopic.php?t=1625&highlight=
Memorial Tattoos -
http://cdhsupport.org/members/viewtopic.php?t=1114&highlight=
ATV Ride for CHERUBS -
http://cdhsupport.org/members/viewtopic.php?t=1088&highlight=
Introduction - Lori Leclair -
http://cdhsupport.org/members/viewtopic.php?t=1324&highlight=
Our Cafepress Store! -
http://cdhsupport.org/members/viewtopic.php?t=749&highlight=
Angel Ball Dress Shopping -
http://cdhsupport.org/members/viewtopic.php?t=1182&highlight=
Introduction - Jason and Suzanne Cox -
http://cdhsupport.org/members/viewtopic.php?t=1289&highlight=
CHERUBS CDH Awareness Activities & Events! -
http://cdhsupport.org/members/viewtopic.php?t=1358&highlight=
morgagni hernia -
http://cdhsupport.org/members/viewtopic.php?t=1399&highlight=
Heidi Carlson Mom to Julia Grace -
http://cdhsupport.org/members/viewtopic.php?t=1272&highlight=
Hello from MA -
http://cdhsupport.org/members/viewtopic.php?t=1397&highlight=
Hello - http://cdhsupport.org/members/viewtopic.php?t=1495&highlight=
New here just joined -
http://cdhsupport.org/members/viewtopic.php?t=1431&highlight=
Fight Against Congenital Diaphragmatic Hernia at Change.org -
http://cdhsupport.org/members/viewtopic.php?t=1251&highlight=
We Have A Music Star In Our Midst -
http://cdhsupport.org/members/viewtopic.php?t=1190&highlight=
CHERUBS is given a place in history on Wikipedia! -
http://cdhsupport.org/members/viewtopic.php?t=1437&highlight=
2008 CHERUBS International Member Conference & Events! -
http://cdhsupport.org/members/viewtopic.php?t=1137&highlight=
All New Members & Lurkers - Please Introduce Yourselves! -
http://cdhsupport.org/members/viewtopic.php?t=1278&highlight=
Zazzle.com - http://cdhsupport.org/members/viewtopic.php?t=1278&highlight=
where do i find the maturnity shirt? - h
ttp://cdhsupport.org/members/viewtopic.php?t=1448&highlight=
CHERUBS on Firstgiving! All members can fundraise on-line! -
http://cdhsupport.org/members/viewtopic.php?t=1280&highlight=
Cost effective creative way to use the ribbons -
http://cdhsupport.org/members/viewtopic.php?t=1599&highlight=
Prayer Request from Fernanda Arce -
http://cdhsupport.org/members/viewtopic.php?t=1494&highlight=
The Dill Family -
http://cdhsupport.org/members/viewtopic.php?t=1556&highlight=
HI im new - http://cdhsupport.org/members/viewtopic.php?t=1581&highlight=
Books for siblings -
http://cdhsupport.org/members/viewtopic.php?t=869&highlight=
Jackson McKay -
http://cdhsupport.org/members/viewtopic.php?t=814&highlight=
Parents in illinis -
http://cdhsupport.org/members/viewtopic.php?t=1530&highlight=
Bryston Spohr, Born 4/12/05 -
http://cdhsupport.org/members/viewtopic.php?t=759&highlight=
Virginia/Washington doctors -
http://cdhsupport.org/members/viewtopic.php?t=1109&highlight=
Problem with hiccups -
http://cdhsupport.org/members/viewtopic.php?t=1460&highlight=
Jesse and Prevacid -
http://cdhsupport.org/members/viewtopic.php?t=1267&highlight=
Posting a quick hello -
http://cdhsupport.org/members/viewtopic.php?t=1609&highlight=
I'm Back! -
http://cdhsupport.org/members/viewtopic.php?t=1619&highlight=
Claire -
href="http://cdhsupport.org/members/viewtopic.php?t=1621&highlight=
CDH on the front page of Foxnews.com!!!! -
href="http://cdhsupport.org/members/viewtopic.php?t=1622&highlight=
update - http://cdhsupport.org/members/viewtopic.php?t=1618&highlight=
CDH Awareness -
http://cdhsupport.org/members/viewtopic.php?t=1620&highlight=
Golf Celebrity Auction -
http://cdhsupport.org/members/viewtopic.php?t=1570&highlight=
Bryston Spohr, Born 4/12/05 -
http://cdhsupport.org/members/viewtopic.php?t=759&highlight=
Living a normal life? -
http://cdhsupport.org/members/viewtopic.php?t=1623&highlight=
Gift Baskets For the Angel Ball Auction -
http://cdhsupport.org/members/viewtopic.php?t=1597&highlight=
Posting a quick hello -
http://cdhsupport.org/members/viewtopic.php?t=1609&highlight=
Jeremiah - http://cdhsupport.org/members/viewtopic.php?t=1534&highlight=
Cherubs Australia 2008 Conference -
http://cdhsupport.org/members/viewtopic.php?t=1612&highlight=
Memorial Tattoos -
http://cdhsupport.org/members/viewtopic.php?t=1114&highlight=
Faith's funeral -
http://cdhsupport.org/members/viewtopic.php?t=1591&highlight=
Books for siblings -
http://cdhsupport.org/members/viewtopic.php?t=869&highlight=
CHERUBS Conference Web Site - Register for 2008's conference -
http://cdhsupport.org/members/viewtopic.php?t=1614&highlight=
Book Your Hotel Room by April 30th and save $ on Angel Ball! -
http://cdhsupport.org/members/viewtopic.php?t=1616&highlight=
Cost effective creative way to use the ribbons -
http://cdhsupport.org/members/viewtopic.php?t=1599&highlight=
I remember . . . -
http://cdhsupport.org/members/viewtopic.php?t=1601&highlight=
CHERUBS Australia Official Registration -
http://cdhsupport.org/members/viewtopic.php?t=1617&highlight=
Today was the funeral -
http://cdhsupport.org/members/viewtopic.php?t=1586&highlight=
Birth Announcements after losing a child
http://cdhsupport.org/members/viewtopic.php?t=1611&highlight=
Donations - http://cdhsupport.org/members/viewtopic.php?t=851&highlight=
CHERUBS2008 Charity Golf Tournament Web Site -
http://cdhsupport.org/members/viewtopic.php?t=1615&highlight=
Looking for Prayers -
http://cdhsupport.org/members/viewtopic.php?t=1604&highlight=
Prayers needed for Jasmine -
http://cdhsupport.org/members/viewtopic.php?t=1538&highlight=
Parent Reference Guide - If You Have To Plan A Memorial -
http://cdhsupport.org/members/viewtopic.php?t=799&highlight=
Awareness Events Planned? -
http://cdhsupport.org/members/viewtopic.php?t=1613&highlight=
The Twins -
http://cdhsupport.org/members/viewtopic.php?t=1545&highlight=
Feeding Coordinator appt -
http://cdhsupport.org/members/viewtopic.php?t=1293&highlight=
Question about baby shower this Sunday April 13 -
http://cdhsupport.org/members/viewtopic.php?t=1610&highlight=
CDH Awareness Jewelry? -
http://cdhsupport.org/members/viewtopic.php?t=857&highlight=
Requests For CDH Awareness Ribbons... -
http://cdhsupport.org/members/viewtopic.php?t=1475&highlight=
Angel Ball Dress Shopping -
http://cdhsupport.org/members/viewtopic.php?t=1182&highlight=
Feeding Issues & Reflux -
http://cdhsupport.org/members/viewtopic.php?t=1607&highlight=
We have a conference hotel - you can now book your rooms! -
http://cdhsupport.org/members/viewtopic.php?t=1442&highlight=
I am so lost on Facebook??? Kara?? -
http://cdhsupport.org/members/viewtopic.php?t=1605&highlight=
Please Pray -
http://cdhsupport.org/members/viewtopic.php?t=1588&highlight=
Grieving'stuff' -
http://cdhsupport.org/members/viewtopic.php?t=1587&highlight=
Trach Changes -
http://cdhsupport.org/members/viewtopic.php?t=1608&highlight=
CHERUBS Zoo trip this summer?? -
http://cdhsupport.org/members/viewtopic.php?t=1548&highlight=
6 months - http://cdhsupport.org/members/viewtopic.php?t=1600&highlight=
CHERUBS Camping Retreat -
http://cdhsupport.org/members/viewtopic.php?t=1367&highlight=
Switching Insurance -
http://cdhsupport.org/members/viewtopic.php?t=1606&highlight=
How To Upload A Photo -
http://cdhsupport.org/members/viewtopic.php?t=821&highlight=
Remembering Noah -
http://cdhsupport.org/members/viewtopic.php?t=1598&highlight=
Makayla's Smile -
http://cdhsupport.org/members/viewtopic.php?t=1575&highlight=
National Bowl-A-Thon~interested? Need Feedback! -
http://cdhsupport.org/members/viewtopic.php?t=1576&highlight=
Intimacy issues -
http://cdhsupport.org/members/viewtopic.php?t=1557&highlight=
Even Parents of Survivors Grieve -
http://cdhsupport.org/members/viewtopic.php?t=1584&highlight=
keep my baby in your prayers please!! -
http://cdhsupport.org/members/viewtopic.php?t=1453&highlight=
YouTube& Goodsearch Video Contest to help raise awarene -
http://cdhsupport.org/members/viewtopic.php?t=1500&highlight=
Update- Gabriel Athan -
http://cdhsupport.org/members/viewtopic.php?t=1491&highlight=
Hi - http://cdhsupport.org/members/viewtopic.php?t=1603&highlight=
Hi everyone -
http://cdhsupport.org/members/viewtopic.php?t=1602&highlight=
55 days-feeling overwhelmed -
http://cdhsupport.org/members/viewtopic.php?t=1583&highlight=
any more irish visitors? -
http://cdhsupport.org/members/viewtopic.php?t=1572&highlight=
HI im new -
http://cdhsupport.org/members/viewtopic.php?t=1581&highlight=
Is it wrong? -
http://cdhsupport.org/members/viewtopic.php?t=1595&highlight=
Therapy Question -
http://cdhsupport.org/members/viewtopic.php?t=1594&highlight=
Antenatal Testing -
http://cdhsupport.org/members/viewtopic.php?t=1596&highlight=
Faith Grace Miles -
http://cdhsupport.org/members/viewtopic.php?t=1585&highlight=
Night Waking -
http://cdhsupport.org/members/viewtopic.php?t=1592&highlight=
Landen follow-up appointments -
http://cdhsupport.org/members/viewtopic.php?t=1571&highlight=
Phoenix, AZ local news -
http://cdhsupport.org/members/viewtopic.php?t=1569&highlight=
Graham's story.... -
http://cdhsupport.org/members/viewtopic.php?t=1589&highlight=
Videos of Cherubs ~ CHERUBS Is Now A YouTube Charity!!! -
http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=
pulmonary hypertention...scared -
http://cdhsupport.org/members/viewtopic.php?t=1573&highlight=
My Son Dima -
http://cdhsupport.org/members/viewtopic.php?t=1580&highlight=
Lily's YouTube Video -
http://cdhsupport.org/members/viewtopic.php?t=1578&highlight=
Rotten weather in VIC -
http://cdhsupport.org/members/viewtopic.php?t=1579&highlight=
One step at a time -
http://cdhsupport.org/members/viewtopic.php?t=1561&highlight=
We need HELP!!!!! If you are a Rep or are interested in bei -
http://cdhsupport.org/members/viewtopic.php?t=1434&highlight=
update on Drake -
href="http://cdhsupport.org/members/viewtopic.php?t=1577&highlight=
1 year ago -
http://cdhsupport.org/members/viewtopic.php?t=1582&highlight=
New Fundraising & Awareness Ideas? -
http://cdhsupport.org/members/viewtopic.php?t=1499&highlight=
Drakes chylothorax surgery -
http://cdhsupport.org/members/viewtopic.php?t=1565&highlight=
I dont know what to say -
http://cdhsupport.org/members/viewtopic.php?t=1555&highlight=
WHEN - http://cdhsupport.org/members/viewtopic.php?t=1567&highlight=
How/ When To Contact The Media About Your Cherub -
http://cdhsupport.org/members/viewtopic.php?t=925&highlight=
Funny appointment today -
http://cdhsupport.org/members/viewtopic.php?t=1568&highlight=
Drakes chylothorax surgery -
http://cdhsupport.org/members/viewtopic.php?t=1566&highlight=
Shelby and CHERUBS made our local paper -
http://cdhsupport.org/members/viewtopic.php?t=1559&highlight=
Use of Viagra for CDH babies -
http://cdhsupport.org/members/viewtopic.php?t=1470&highlight=
Letter to Babytalk magazine -
http://cdhsupport.org/members/viewtopic.php?t=1550&highlight=
SPRING SNOW IN NORTHERN IDAHO!!!!! not cool, not cool! -
http://cdhsupport.org/members/viewtopic.php?t=1558&highlight=
Might Finally Get Some Answers -
http://cdhsupport.org/members/viewtopic.php?t=1376&highlight=
Update on Elijah -
http://cdhsupport.org/members/viewtopic.php?t=1563&highlight=
Message from Noah -
http://cdhsupport.org/members/viewtopic.php?t=1483&highlight=
Prayer request for Jolene and Saydie -
http://cdhsupport.org/members/viewtopic.php?t=1564&highlight=
Happy Birthday Graham -
http://cdhsupport.org/members/viewtopic.php?t=1562&highlight=
Shes getting better!!! -
http://cdhsupport.org/members/viewtopic.php?t=1481&highlight=
Drakes Pic -
http://cdhsupport.org/members/viewtopic.php?t=1539&highlight=
Flying with CDH childred -
http://cdhsupport.org/members/viewtopic.php?t=1133&highlight=
Who wants ride?? -
http://cdhsupport.org/members/viewtopic.php?t=1484&highlight=
Wagga newspaper article -
http://cdhsupport.org/members/viewtopic.php?t=1560&highlight=
Need Pictures of CHERUBS!!!! -
http://cdhsupport.org/members/viewtopic.php?t=1533&highlight=
Telling Jack's story. -
http://cdhsupport.org/members/viewtopic.php?t=1535&highlight=
Cdh in 6 month old -
http://cdhsupport.org/members/viewtopic.php?t=1346&highlight=
Trouble Potty training..maybe not related to CDH..maybe is?? -
http://cdhsupport.org/members/viewtopic.php?t=1424&highlight=
Question about leaking mickey -
http://cdhsupport.org/members/viewtopic.php?t=1445&highlight=
Hayden is in Heaven now -
http://cdhsupport.org/members/viewtopic.php?t=1552&highlight=
Parents in illinis -
http://cdhsupport.org/members/viewtopic.php?t=1530&highlight=
Anyone know how I can contact Jennifer Wasik??? -
http://cdhsupport.org/members/viewtopic.php?t=1547&highlight=
Anyone from Pennsylvania -
http://cdhsupport.org/members/viewtopic.php?t=1537&highlight=
Memories - http://cdhsupport.org/members/viewtopic.php?t=1551&highlight=
My Mom is Video Duh! -
http://cdhsupport.org/members/viewtopic.php?t=1549&highlight=
Introduction -
http://cdhsupport.org/members/viewtopic.php?t=853&highlight=
Happy Birthday Cole Campsey!!! -
http://cdhsupport.org/members/viewtopic.php?t=1450&highlight=
Aussie Introduction -
http://cdhsupport.org/members/viewtopic.php?t=850&highlight=
Introduction-Monica Clark mother of Sophia Clark -
http://cdhsupport.org/members/viewtopic.php?t=1546&highlight=
Welcome to our new Aussie Members -
http://cdhsupport.org/members/viewtopic.php?t=1525&highlight=
Media Contacts -
http://cdhsupport.org/members/viewtopic.php?t=1451&highlight=
Addison's Story told by her Mom Andrea from PA -
http://cdhsupport.org/members/viewtopic.php?t=1536&highlight=
Happy Birthday Kimberly Switzer -
http://cdhsupport.org/members/viewtopic.php?t=1541&highlight=
Wicked Local News, Plymouth, MA - Graham is in the news! -
http://cdhsupport.org/members/viewtopic.php?t=1527&highlight=

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