Monday, May 31, 2010

CHERUBS Teams with Miche' To Create Designer CDH Awareness Purses

CHERUBS is proud to present our new Miche Bag fundraiser!   These new and very popular bags are catching on everywhere!  They are gorgeous and now they are raising Congenital Diaphragmatic Hernia Awareness!!!!

What Is the Miche Bag?

The Miche Bag presents a new line of designer hand bags like you never seen before! It's chic, fun, stylish and it's all the same bag. With the Miche Bag you can change the look of your handbag by simply changing the shell! Forget all the time and hassle of transfering your things from one bag to another with the Miche Bag you can have a new look in 3 seconds or less!

How do I change shells?

In just 3 easy steps..
Deattch, Attach, Repeat

Below are just a few of the new CDH Awareness Miche bag shells now available!   100% of proceeds from the CDH Awareness Miche bag shells go to CHERUBS!   More designs will be unveiled soon!



Tuesday, May 25, 2010

Avon Fundraiser for CHERUBS!

AVON Fundraiser for CHERUBS!! 

Go to click online events (please register). Place your order and be sure to use CHERUBS as your promotional code.

Cherubs WILL make 20% but could make more!! The more ordered the more CHERUBS makes!! Please pass it on to family and friends!!




SCENTSY Fundraiser for CHERUBS!

CDH mom and CHERUBS Volunteer Barbara Wagner has started another SCENTSY fundraiser for CHERUBS!!  

Simply go to the link and find the CHERUBS party, then click "buy from my party".   All of you that have ordered before please share with the others how great SCENTSY is!! 

Please also share the link with family & friends for a great cause!



CHERUBS Angel Ball Tickets Now On Sale!

Tickets and Sponsorships are now available for our 2010 Angel Ball at the Hilton near Duke in Durham, NC

CHERUBS Masquerading Angels Ball

October 30, 2010
Hilton near Duke, Durham, NC

Formal, black and white masquerade ball to benefit CHERUBS, a 501(c)III non-profit organization founded to help families affected by Congenital Diaphragmatic Hernia through promoting and conducting research, raising awareness and supporting families through dozens of free services.

We have 4 celebrity guests so far!!!   Including a TV star and 3 time Grammy award winning musician. All will be announced soon!  :)

2010 CHERUBS Masquerading Angels Ball

October 30, 2010
6:00 pm - Midnight

Masquerading Angels - CHERUBS Angel Ball - October 30, 2010 Durham, NC

Formal Charity Masquerade Ball on the eve of Halloween

Hiton Durham near Duke University
3800 Hillsborough Road, Durham, NC 22705

Event:  CHERUBS Masquerading Angels Ball

Date:  Saturday, October 30, 2010

Time:   6:00 - 7:00 cocktail hour, 7:00 - Midnight Ball

Location:   Hilton Durham near Duke University, 3800 Hillsborough Road, Durham, NC 22705

Beneficiary:  CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. Money raised from this event will go to CHERUBS to fund services to further help families of children born with Congenital Diaphragmatic Hernia.  CHERUBS is a 501(c)III international children's charity.

Attire:  Our FORMAL black and white masquerade ball encourages men to wear tuxedos and women to wear white.  Dust off your wedding dress ladies, you are encouraged to wear it again or you can opt for a little black dress.   FORMAL period costumes are welcome.   Masks are required, some will be provided.   Not acceptible; typical Halloween costumes and masks.

Tickets:  $50.00.  Tickets include entry to event, casino, auction, ballroom.  It also includes entertainment, hors d'oeuvres, drinks, 2 raffle tickets, 1 bar ticket, 2 casino chips.

Age Requirement:  You must be 21 years old or older to attend.   CHERUBS reserves the right to refuse ticket sales when necessary.

Celebrity Guests:   Will be revealed soon!

Live Band:   Will be revealed soon!

Casino:   Take a spin on the roulette wheel or try your hand at blackjack in our Casino Lounge.

Silent Auction:   Come browse our auction items donated by celebrities, local artists, local businesses and members of the charity.

Photographs:   Have your formal portrait taken, a reminder of a wonderful night.

More details coming soon....

Our 2008 CHERUBS Angel Ball was a success!

The crepe myrles and lilies were gorgeous outside and the flowers were stunning inside.  The food was amazing, created by several local caterers who indeed created "An Angelic Taste of the Triangle".   The band was rock'n!   The Master of Ceremonies was charming.   The hostesses were beautiful.   The volunteers were incredible.   The auction was wonderful and exciting.   The raffles were fun.  The photographs are stunning.   The room was full of angels.

We danced, we ate, we bid on items and we learned about CDH.  All for a great cause and the event was fun and enchanting, thanks to our incredible event planners and the ladies at the Raleigh Junior Women's Club.

The entire night was magical - so magical that we even had a proposal at the event!   What better compliment is there than that?

Save the Cherubs Congenital DIaphragmatic Hernia Awareness Campaign
photo by Mandy Sroka Photography

Our Organization:

CHERUBS is a 501(c)III organization located in North Carolina.   CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH).   As of April 2008, we have over 2250 members in all 50 states and 33 countries.  Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.  We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.     The cause is not yet known.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues.< CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

Thursday, May 20, 2010

CHERUBS Needs Your Help To Win $100,000!!!!

CHERUBS has been nominated for a contest to award $100,000 but we need your help!!!!

The APX Givesback Project needs your help in honoring local charities that are doing heroic work in communities across the United States. Getting involved is quick and easy. Here are the key steps to follow:

Nominate your favorite charity – Beginning May 3, 2010 Facebook users can nominate their favorite local charity. It might be a nonprofit you volunteer with or just one you feel is doing great work in helping others. If your favorite charity has already been nominated, you can endorse them on APX Givesback’s Facebook application. The top 15 charities receiving the most endorsements in each of the 5 regions through June 12th become Regional Finalists.

Vote for your favorite charity – On June 14, 2010 the real fun begins. Facebook users from all over the US and Canada will be able to vote for their top 5 charities who they feel are having the most impact in local communities. The eligible charity receiving the most votes through August 21, 2010 will be named the APX Givesback Project’s top local charity. The top overall charity will receive $100,000. But don’t worry; each of the 5 regions will also have a winner who receives a $30,000 donation.

Please vote for us! All proceeds to benefit CDH Research and Family Support!!!!

or See More

Click the "Like" button, then click to Vote / Nominate. We are listed under Eastern NonProfits. Find us and click on the Endorse button.

Please post and invite friends to vote also! We have a lot of voting to do to catch up in the contest!!!

2010 Congenital Diaphragmatic Hernia Conference

Our 2010 CDH Conference was a huge success!!!!!

The hotel was wonderful, the cherubs miracles and we learned so much from the researchers and each other.  The weather was great.  We truly could not have asked for a better week!!!

The kids were adorable dressed as cherubs for our Save the Cherubs campaign - we got some AMAZING photos, including photos at Disney, with Mickey and Minnie, at the pool and the first Parade of Cherubs and CDH balloon release.  And they sung the CDH Kids Song for us again this year!

We met so many wonderful families!  The pizza party, introductions and each day was wonderful.  CDH Research Day included slide shows, information and research participation.   CDH Support Day included many round-table discussions on every topic dealing with CDH.  CDH Awareness Day included everyone learning about easy and fun ways to raise awareness.  Everyone left the conference with new friends, lots of new information and excited to go home and start working to help other CDH families!  It was an absolute pleasure to meet so many wonderful parents and cherubs (and grandparents and other family members too!) that we talk to on-line all year round.  Good-byes were definitely hard this year!

This was our 10th anniversary of the first international Congenital Diaphragmatic Hernia Conference, also held in Orlando.   We are so proud of our conferences and guest speakers!  Put together by volunteers and medical professionals with CDH experience and built upon 15 years of working together to offer the most services and information and support for families at our conferences - while keeping them fun and affordable. They aren't just CHERUBS members getting together and hanging out, they aren't conferences about CHERUBS at all - they are truly 100% about Congenital Diaphragmatic Hernia!    They have included so many incredible doctors and researchers; 

Dr. Kevin and Pam Lally from the CDH Study Group
Michael Harrison, MD from UCSF (founding father of fetal surgury!)
David Kays, MD from SHANDS (founding father of gentle ventilation)
Jay Wilson, MD (founding father of the CDH clinic!)
Meaghan Russell and Mauro Longoni from Mass General CDH genetic study
Priscilla Chui, MD from Toronto Children's
Marc Arkovitz, MD and Julia Wynn, MS from DHREAMS
Bella Belleza-Bascon Texas Children's Hospital - Fetal Center, Baylor College of Medicine
Daryl Scott and David Pearson from Baylor College of Medicine

We've also had representatives from CHERUBS UK, CHERUBS Australia, the Olivia Raine Foundation, Little Lambs, Real Hope for CDH and other great ACDHO organizations attend our conferences!   Not to mention members from all across the U.S. as well as England, Ireland, Australia, Italy, Mexico and Canada!


Many families participated in CDH genetic studies by giving blood samples at the conference.  We were fortunate to have 5 researchers participate!  Not only did they speak on their research and share new information with us but they sat in on round-table discussions and learned from parents as well.   We will post more about the researchers and research and how you can participate in the next few days!  :)

CHERUBS also participated in 2 medical conferences and we have quite a bit of CDH research and projects going on that we will post about soon!  It was WONDERFUL to see the surgeons wearing our ribbon and buttons, to hear all the lectures on CDH, to talk to them about CDH and share our own information with them.  So many came up to us to thank us for our work, gather materials for their patients' families, to tell us they signed the petition against the trademark and were rooting for us, to ask us questions about how to deal with CDH families.    One conference even had a member wearing wings during their awards ceremony, escorting award winners to the podium.   This same conference had a speech about CDH and recognized CHERUBS and our work - we were even cited as their reference for a lot of their research information.   We even found a few sponsors along the way.   CHERUBS is the first charity to ever attend these events, we are so honored to be a part of both conferences!

It was a wonderful, productive, supportive and very beneficial week for the CDH Community!  More photos, details and videos coming soon!

We hope to see everyone next year!



Tuesday, May 11, 2010

Would you like to hold an event or fundraiser for CHERUBS in honor or in memory of your cherub?

Dear Members,

Many of you have been asking what you can do to help CHERUBS and to also do something special in honor or in memory of your own cherubs.   Our Fundraising Committee has been hard at work creating the following information sheets for many different fundraisers and events.  Some are fundraisers, some are awareness events.  Imagine how much we could do for CDH if each one of us did just 1 thing a year?    The list below has some easy fundraisers, some a little more elaborate - but they are all FUN!   Except maybe the blood drives.  ;)

There is also an opportunity for you to create scholarships in honor or in memory of your cherubs.  If you are interested in sponsoring an annual $1000 scholarship for a deserving and hard-working CDH survivor or sibling or even a parent who wants to go back to school, please contact me.  We would like to set up 10 scholarships for the 2010-2011 school year.

We are also in great need of donations for our many services.  

Congenital Diaphragmatic Hernia Fundraisers & Awareness Events

Congenital Diaphragmatic Hernia Road RallyBelow are detailed brochures on how to hold a CDH Fundraising or Awareness Event for CHERUBS!   Though these brochures are for information on fundraisers that anyone can download and use, we truly hope that you will chose CHERUBS as the beneficiary of your fundraiser.  We have a lot of cherubs to help and we subsist solely on donations and volunteers, offering free services to families in 38 countries with a very small shoe-string budget.

 More will be posted soon!

 CDH & CHERUBS Information for all events

Dawn M. Torrence Williamson
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Volunteer run 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Our Sites:

CDH Research -
CDH Forums -
CDH Conference -
CDH Awareness Shop -
CDH Awareness Ribbon -
Save The Cherubs -
Angel Ball -
Adopt A Hospital -
CDH HOPE Totebags -
CDH Congressional Bills -
CDH Fundraisers -
CDH Event Calendar -
CDH News -
CDH Newsletters -