Tuesday, November 8, 2011

CDH Newsletter - November, 2011

CDH News & Events

Dear CHERUBS Members & Supporters,

We have quite a few amazing things going at CHERUBS to help families affected by Congenital Diaphragmatic Hernia!

2011 CDH Awareness CalendarGet your cherub's photo to us by NOVEMBER 12th to be included in the 2012 CDH Awareness Calendar!   Submit your cherub's photo to membership@cdhsupport.org along with his/her name.  ALL cherubs are welcome to participate - survivors, non-survivors and those yet to be born.  Only 1 photo per cherub will be included.  Photos submitted for previous years will automatically be included unless an updated photo is sent in.  Last year we included over 800 cherubs!

Charity News
  • We have a lot of events and deadlines coming up in the next few weeks.  Please check the calendar to the right so you don't miss out on anything!
  • Welcome to our new intern, Holly!  Holly will be volunteering with us at our main office several times a week to help us become more efficient and more productive at helping CDH families.
  • As always, donations are very much needed and appreciated.  CHERUBS subsists off of donations, fundraisers and the rare contest.  All donations are tax-deductible and help us to help families affected by CDH.
THANK YOU to the following for their wonderful fundraisers and all their hard work:
  • Our Masquerading Angel Ball went very well and so did our UK Monster Ball!  KUDOS to  Ashley Barry, Melissa Larrison, Lizz Lopez, Heidi Pehrson, Jacquetta Taborn-Moses, Shannon Flynn, Dawn Williamson and all of our wonderful volunteers for the night.
  • Clair Maher for the CDH Monster Ball in the UK in honor of Princess Charley Stanfield-Maher.
  • Donna Warchol for the CDH Horse Racing Night in Scotland in memory of Alfie John Black.
  • Sara Nadratowski & Lauren Anthony for the Bike Ride in memory of Braiden Shiloh Anthony.
  • Family and friends of Brielle Santos who ran in the Atlantic City Marathon in her memory.
  • Sara Givent, Allison Wood, Jill Gibson and their kids and all the families who participated in Trick-or-Treat for CHERUBS.
  • All of our event sponsors, attendees and donors!

Congenital Diaphragmatic Hernia Research





  • The above video was sent to us by the wonderful staff at the Mass General CDH Genetic Study lab in response to the $10,000 grant that we awarded them in October.
  • Have you signed the petition?  We are 1300 signatures on our way to our goal of 2000 by Thanksgiving.  Please sign and forward to your family and friends. 
  • CDH Research Bill - Our CDH Research Bill has been delayed by the national budget crisis.  We hope to have introduced as soon as possible next year.   Senator Jefferson Sessions from Alabama, a grandfather of a CDH survivor, is sponsoring our CDH Research Bill for $50,000,000 for research through NIH.    
  • Current Studies - Are you participating in the CDH genetic studies?  It's free, easy and can help cherubs of the future and help us to find the cause of CDH. 
CHERUBS in the 2010 Raleigh Christmas Parade
Congenital Diaphragmatic Hernia Awareness
  • 2012 CDH Calendar - Get your cherub's photo to us by NOVEMBER 12th to be included!   Submit your cherub's photo to membership@cdhsupport.org along with his/her name.  ALL cherubs are welcome to participate - survivors, non-survivors and those yet to be born.
  • Cherubs On Parade - Join in your local holiday parade and raise CDH Awareness!   Or join us on our float in the televised Raleigh Christmas Parade on November 19th.
  • Goodshop & Goodsearch for CHERUBS - You already shop and search on-line, right?  Why not do both through Goodshop and Goodsearch, who have all the top stores you already shop at and who will donate to CHERUBS!  It cost you nothing to participate!
  • CDH Awareness Shop - new CDH Awareness bracelets, new CDH Awareness ribbons, holiday ornaments, jewelry and more!
  • Save the Cherubs - Our CDH Awareness campaign is full force and we have over 100 posters created!  We are currently seeking funding to distribute the posters nationally.

Congenital Diaphragmatic Hernia Support
  • Volunteers Needed - We have many spots available to volunteer at CHERUBS, especially State Representatives (manage CHERUBS groups within your state) and Hospital Angels (on-call to families locally).  Please contact Tracy at volunteer@cdhsupport.org if you'd like to give back and help other CDH families
  • New Forums - Our new forums are finally live!  Please follow directions on the page to log into the new software.  
  • CDH HOPE Totebags - We are currently very low on the following totebag supplies; baby blankets, hats, booties, children's books, disposible cameras, newborn shirts, soft photo frames and teddy bears.  Collecting totebag items is a great project for kids, schools, scout troops and families.  You can also hope a CDH HOPE Totebag Baby Shower fundraiser in honor or in memory of your cherub.
  • Financial Assistance - CHERUBS has a small fund available to help families with travel costs to be with their cherubs in the hospital.  For more information, please e-mail us at membership@cdhsupport.org
  • 2012 CDH Conference - We are currently planning our 2012 conference for June in California.   Planning help is greatly appreciated.  volunteer@cdhsupport.org
  • Unsubscribing - Unsubscribing from our e-newsletter will also unsubscribe you from our forums.  If you would like to still be a part of the forums but not receive the newsletter, please contact us at login@cdhsupport.org
     

Donate


Claire Giany
Donate to CHERUBS to help babies like Claire fight CDH.   Donations are tax-deductible and greatly needed.

Upcoming Events & Deadlines
2012 CDH Awareness Calendar - Get your photo in by November 12th!

CHERUBS Silpada Fundraiser -  Oct 23 - Nov 11th.  Order gorgeous jewelry on-line or hold your own party!

Christmas With Kasey - Christmas vendor show in Aurora, CO on November 12th in memory of Kasey Colvin.

CHERUBS 2011 Christmas Vendor Show - on November 13th in Wake Forest, NC

CHERUBS in the Raleigh Christmas Parade - November 19th in Raleigh, NC.  All cherubs and sibling welcome to ride on the float!

CHERUBS Holiday Ebay Auction - November 20-30th on Ebay.  All members are welcome to sell items and raise shopping  money for yourselves while donating a portion to CHERUBS.

CHERUBS in the Calremont, NC Christmas Parade - December 3rd or 4th.  Contact Katie for info.

Amanda Kubus Memorial Bake Sale - December 22-23rd in Mayfield, PA.

Holiday Shopping


Silpada

CHERUBS Silpada Fundraiser -  Order gorgeous jewelry on-line or hold your own party!  All proceeds donated to  Fundraiser ends on November 11th!

CDH Awareness Shop - Order CDH awareness kits, bracelets, ribbons and more!   1000's of items with all proceeds going to CHERUBS to help further our work.
NEW!  Enamel CDH Awareness Ribbons on informational card.  Great stocking stuffers and gift tags!

CDH Awareness Bracelets

NEW!  Yellow CDH Awareness Braclets.  Sets of all braclets now being sold!
CDH Awareness Kit
CDH Awareness Kits

Personalized Ornaments:
10% goes to CHERUBS!
CHERUBS On-LINE
    

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