Wednesday, June 29, 2011

Daily CDH Vote Reminder - Meet Cherub Camden James


Please Vote Today http://www.voteforcdh.org
Meet Camden... through his parents words...

Please vote for CHERUBS and help future families. This is Camden James and this was how we got to see him for the first time. The birth was a blur and we had a quick glance and then he went straight on a lung and bypass machine called ECMO. He was on ECMO for 21 days. Then intubated for 7 MORE weeks. Then trached at 9 wks old. As strange as it seems, we were excited to have a trach because that meant closer to home and we got to see his face for the first time. We are so passionate about CHERUBS because the support of course, but it is even more than that. We want to help other families in so many ways. We want to see that orphan with CDH have parents that know CDH. We don't want parents losing their children from CDH. Please help future families. Newborn pictures shouldn't look like this.



Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org




Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Tuesday, June 28, 2011

Daily CDH Vote Reminder - Meet Cherub Chloe Gray

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org
2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011


Contest Update -We are doing great with 23,444 votes as of 9:30 this morning, but still aren't in a position that will give us any money. Please continue to vote, recruit, and spread awareness!

Contest Voter Tip Of The Day - Add a free Vote for CDH Twibbon your Facebook and Twitter profiles by going to http://twibbon.com/cause/Vote-for-CDH/facebook

More Contest Info - visit http://www.voteforcherubs.org for the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - If CHERUBS wins the Vivint Gives Back contest, $5000 will go towards local get-togethers around the country. Many families have never met other CDH families and local get-togethers offer invaluable support and information to those affected by CDH.

Meet Our Cherubs! - My daughter's name is Chloe and she is seven years old. She was born in 2003 with an undiagnosed right sided CDH. She had surgery at three days old and spent three weeks in the intensive care unit. She is going through a tough time at the moment with lots of different problems related to her CDH and it is quite a process to work out what is actually going on. It is being suggested she has a dysautonomia from brain trauma suffered post birth causing issues with anxiety, digestion, fatigue, reflux, overheating and aches/pains. She is a gorgeous little girl with a lovely sensitive personality and is very popular with her friends. We have struggled to fit into the education system but keep working at it. She leads quite a normal life but with lots of small adjustments such as frequent small meals, lots of water, rest breaks at school, reduced sports program etc. There is not one specialised centre in Melbourne so we see lots of different Dr's. I have a few close friends who are very supportive and listen carefully to me when l am talking about Chloe so they can care for her when she visits their house. They really have no idea what we went through or what is actually medically wrong with Chloe in detail but at least they try to understand. I have a wonderful pediatrician and some family members are very supportive. People who l do not see that often are difficult to be around and l find myself in a state of mind at present to connect with other parents who have been through a similar experience to mine. My husband and l have overcome much of the trauma that we experienced in the years following Chloe's birth and now put all of our energies into ensuring she can have as normal a life as possible. I have included a picture of Chloe as the beautiful young girl she is today. The hospital photos of Chloe are similar to the ones l have seen of all the other CDH babies with lots of tubes etc and not a memory l want to revisit.


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Monday, June 27, 2011

Daily CDH Vote Reminder - Meet Cherub Alison Joane Parker

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org
2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011

Contest Update -We have over 21,700 votes. Way to go everyone. We are raising a lot of awareness, which is great! Let's try to kick it up another notch to raise some money for CDH!

Contest Voter Tip Of The Day -Did you know you can buy erasable window chalk/paint? Buy some and ask for votes on your car windows! You can use the www.voteforcdh.org link!

More Contest Info - visit http://www.voteforcherubs.org for information on the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - Diaphragmatic Hernia was first described in 1575 by Pare' in reporting in 2 autopsies of adults who had acquired diaphragmatic hernias by trauma. In 1672, the first description of Congenital Diaphragmatic Hernia was reported by Lazarus Riverius during the autopsy of an adult male. Miraculously, this man lived 24 yrs with CDH in the 17th century. In 1701, Holt reported the first case of CDH in a child.


Meet Our Cherubs! -Alison Joanne Parker



In her mom's words...

This is Alison Joanne Parker at 6 days old, one day before CDH repair. Until she
was born, we had never heard of CDH. Now we know that we are among the lucky 50%
whose babies survive. When this picture was taken, she was on ECMO--full life
support. I didn't get to hold her until she was a month old. But at least I got
to hold her. And 10 years later, I still get to hug her every single day. Vote
for CHERUBS in the Vivint Gives Back Project. Help stop CDH and make it so more
parents can hug their babies every single day!

Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Sunday, June 26, 2011

Daily CDH Vote Reminder - Meet Cherub Ethan Michael Howard

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org
2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011


Contest Update - CHERUBS is holding in 3rd place nationally, and 2nd place in our division. Let's try to get to the money spot! Slow and steady wins the race, so keep voting and looking for more contacts to help vote.

Contest Voter Tip Of The Day - Create a Facebook event in honor / memory of your child. Share your cherub's photo and story and tell people how they can vote. Invite all of your Facebook Friends. This is a great way to raise awareness and votes and get your family and friends to learn about CDH!

More Contest Info - visit http://www.voteforcherubs.org for the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - If CHERUBS wins the Vivint Gives Back contest, $25,000 will go to help families with travel expenses to and from the hospital. Many cherubs spend weeks or months in the hospital, far from home. Parents must afford gas, time off work, dining out and hotel rooms if the local Ronald McDonald House is full. $25,000 will help cover gas cards, grocery store gift cards and hotel rooms for 100's of families affected by CDH.

Meet Our Cherubs! - Ethan Michael Howard born at 31 weeks with Right CDH. He was given a 10% chance of survival after he was diagnosed in-utero at 20 weeks. Ethan was intubated immediately after birth and given surfactant. He was on the vent for 6 weeks, extubated to CPAP, then the high flow cannula and finally regular oxygen. Ethan came home at 3 months old with feeding tube and oxygen. A re-herniation occurred at 14 months of age at which time he was back on the ventilator for three weeks. After a 7 week hospital stay, we had another exciting homecoming with our little man. He remained on oxygen until 22 months of age. Today he is a happy 2 1/2 year old and doing great. He does struggle with severe oral aversions and muscle weakness due to a dystonic reaction to a medication after the second repair. Because of the feeding tube, he is gaining weight and growing at a fast pace. We thank God for sweet, determined, resilient Ethan every single day.




Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Saturday, June 25, 2011

Daily CDH Vote Reminder - Meet Cherub Alexander Glant

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org
2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011


Contest Update -We have 18,700 votes as of 8:15 this morning! We need to keep voting to gain some ground- we are in 3rd place nationally, second in our division. Remember that first place nationally wins $250K, and first place in each division wins $100K. Yesterday Vivint employees donated their day's salary to help fund this contest. All we have to do is click our mouse a few times!

Contest Voter Tip Of The Day - Are you a member of other web sites, groups, fan pages? Post the Vote for CDH video and ask for votes and also raise CDH Awareness! http://youtu.be/b0ZzaLUt6mE

More Contest Info - visit http://www.voteforcherubs.org for he contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - 50% of babies born with Congenital Diaphragmatic Hernia do not survive. Over a quarter million babies have died from CDH since 2000. The cause is not known. Genetic research is very close to finding the cause. If CHERUBS wins the Vivint Gives Back Contest, $125,000 will go towards genetic research of CDH at Mass General hospital.

Meet Our Cherubs! - Alexander was diagnosed having a Congential Diaphragmatic Hernia @ 24 weeks gestation. He was born on October 1, 2010 and lived less than an hour due to his condition. Although he didn't live very long he was able to donate his heart valves! He will always be mommy and daddy's little CHERUB!


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org




Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Friday, June 24, 2011

Daily CDH Vote Reminder - Meet Cherub Shane Torrence

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org
2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011


Contest Update -We have over 17,000 votes from people like you who want to see CDH research and more family support. Let's see how high we can push those numbers today!

Contest Voter Tip Of The Day - Write a Facebook note about your cherub, the contest and how people can vote and tag as many people as possible.

More Contest Info - visit http://www.voteforcherubs.org for the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - If CHERUBS wins the Vivint Gives Back contest, $10,000 will go to fund Congenital Diaphragmatic Hernia HOPE (Helping Other Parents Expecting) Totebags. These care packages include the CDH Baby Book, a baby blanket, personal care items, disposable camera, baby shirt, hat, booties, handprint kit, hairlock holder, teddy bear and more. Many items are donated by other CDH families. These funds will pay for non-donated items, postage and materials such as the canvas totebags, portfolios for materials, newborn wings and more. http://www.cdhhope.org

Meet Our Cherubs! - Shane Torrence was born in 1993 with Left-Sided CDH and multiple other birth defects. He spent his first 10 months in ICU before coming home on a ventilator, oxygen and feeding tube while blind and deaf from lack of oxygen during a bout of pneumonia. By the age of 3, he could see, hear with hearing aids and was trach free. He lost his battle with CDH at age 6 in 1999 due to a one-in-a-million complication called a gastropleural fistula which complicated his 6th CDH repair. But Shane was a very happy little boy who loved Sesame Street, books, matchbox cars and he always had a smile on his face. Shane is the son of CHERUBS founder, Dawn Williamson.





Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org

Join the Raffle and win prizes just for voting at https://www.facebook.com/event.php?eid=232942170052837



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Thursday, June 23, 2011

Daily CDH Vote Reminder - Meet Cherub Adam Thibeau

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.voteforcdh.org/2. Log in through Facebook and vote
3. Repeat daily through August 27, 2011


Contest Update - Holding steady in 3rd place nationally and 2nd place in our division! We have to win 1st place in our division or nationally so let's kick it up a notch for the babies!

Contest Voter Tip Of The Day - Change your Twitter or Blog background to a vote for CDH graphic. Download one for free at http://www.voteforcherubs.org

More Contest Info - visit http://www.voteforcherubs.org/ for the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - If CHERUBS wins the Vivint Gives Back Contest, $10,000 to will be used to reinstate New Member Packets to all new members of CHERUBS who are grieving families or families of older survivors. Our CDH HOPE Totebag project provides New Member Packets to expectant families and families of newborn cherubs. The New Member Packets will include information about Congenital Diaphragmatic Hernia, newsletters, brochures and other materials. The $10,000 will also help to cover the postage costs of mailing out the packets. The New Member Packets are so important to CDH families because often, they feel isolated and alone. The The New Member Packets will bring them information and support.

Meet Our Cherubs! - Adam (8-14-02) was born with right sided CDH. His repair was done when he was 3 days old and placed on ECMO on the 4th day. He spent 10 days on ECMO, 23 on a respirator, and 44 on O2. He brought him home after 63 days in NICU. He has Asthma, Interstital Lung Disease, Patent Ductus Arteriosis (repaired in January 11), and a left nonfunctioning Multi-Cystic Dysplastic Kidney. He is going into 3rd grade and is homeschooled. He loves to play with his friends, ride his bike, play video games, and torture his sisters (the normal 8 yo stuff). Our journey with Adam has been on going, there have been new obstacles throw in his path and he acts like they can't stop him. The spirit of this little boy is so resilient, he doesn't complain when he can't do what he wants because of his conditions, he just finds something else to throw himself into. Adam you are such a blessing and you bring such joy to our family.


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/

Join the Raffle and win prizes just for voting at https://www.facebook.com/event.php?eid=232942170052837



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org. By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129 E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Wednesday, June 22, 2011

Daily CDH Vote Reminder - Meet Cherub Michael "Bryer" Floyd

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:
1.  Go to http://www.voteforcdh.org/
2.  Log in through Facebook and vote
3.  Repeat daily through August 27, 2011

Contest Update - Still in 3rd with over 13,000 votes!  Please vote!

Contest Voter Tip Of The Day - Make a video asking for votes and post it on Facebook and Youtube.  Include photos or videos of your cherub's fight with CDH.

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - If CHERUBS wins the Vivint Gives Back contest, $1000 will be used to purchase wings for the Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign.  The campaign involves putting wings on CDH survivors or siblings (of both survivors and non-survivors) or expectant mothers and putting them in every day situations to show that cherubs are everywhere.  The most common complaint about CDH awareness is that there is none!   Cherubs usually either do not survive or they survive well and you can't tell they ever had major surgeries unless they take their shirts off.  But cherubs are everywhere - in schools, parks, next to you in the grocery store, holding down jobs, going to college, raising children of their own - and we want to bring attention to that and raise CDH awareness.  http://www.savethecherubs.org

Meet Our Cherubs!  - Michael "Bryer" Floyd was born Sept. 8, 2006 with CDH. He stayed the first 8 months of his life in the PICU & TCU where he under went 9 surgeries. He came home with a trach, a ventilator, oxygen, and feeding tube. He was able to come off the ventilator during the day at the age of 3 but still had to have oxygen through his trach. He didn't start walking until he was almost 3 years old, he had to use a peds walker and braces on his feet to help him. By the time he was 3 1/2 he was walking all by his self :) He still has to wear his ventilator and oxygen at night and gets all of his feeds through his feeding tube. Today Bryer is almost 5 years old and he is a happy and loving little boy. He loves to ride 4 wheelers, swim, play with his sister, and watch Sprout.




Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/

Join the Raffle and win prizes just for voting at https://www.facebook.com/event.php?eid=232942170052837



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Tuesday, June 21, 2011

Daily CDH Vote Reminder - Meet Cherub Kennedy Dempsey

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:
1.  Go to http://www.vivint.com/givesbackproject/charity/3
 2 .  Log in through Facebook and vote
3.  Repeat daily through August 27, 2011


Contest Update - holding steady in 3rd place with over 10000 votes

Contest Voter Tip Of The Day - Make a Vote for CDH banner to go across the top of your Facebook page by going to http://fbanners.com/.  Save this graphic, http://www.cdhsupport.org/CDHbanner.png, and then upload it to fbanners.com.  Add text "www.VoteForCDH.org and then add your Facebook account. 

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - CHERUBS was founded in 1995 and is the world's first, oldest and largest charity for Congenital Diaphragmatic Hernia with members in 38 countries.  http://www.cdhsupport.org

Meet Our Cherubs!  - This is Kennedy Dempsey, born 2-14-20 (35 weeks) along with her twin sister  Columbia. She was 3 lbs 12 oz and 17 1/4 inches at birth. Kennedy was an undiagnosed LCDH. She spent 6 1/2 weeks in the NICU and was lucky enough to never be on ECMO. Her repair was done at 4 days and she had a duodenal obstruction at 24 days. She had horrible reflux and went on to have a Nissen  Fundoplication done at 4 months. Now she is a healthy and spunky 16 month old!


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/

Join the Raffle and win prizes just for voting at https://www.facebook.com/event.php?eid=232942170052837



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Monday, June 20, 2011

Daily CDH Vote Reminder - Meet Cherub Leann DeForge

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:
1.  Go to http://www.voteforcdh.org
2.  Log in through Facebook and vote
3.  Repeat daily through August 27, 2011


Contest Update - We have raised almost 10,000 votes for CDH!  We also have celebrities Tweeting for us; LeAnn Rimes, Kathy Ireland, and 8 stars of the Real Housewives show.   This week we are taking the gloves off and fighting like cherubs to zoom back into 1st place.   $250,000 for CDH Research, Support Services and Awareness for our babies is worth fighting for!   Can you hear the theme to Rocky playing in the background?  ;)

Contest Voter Tip Of The Day - Repost the vote link to other Facebook pages and groups, as well as other sites, forums, Twitter and Myspace.  Share your cherub's story and photo and raise votes and awareness!

More Contest Info - visit http://www.voteforcherubs.org for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - that 50% of the money won in this contest will go to pay for lab kits for CDH Genetic Research at Massachusetts General?  The research team at Mass General has the largest genetic research database for CDH and is very close to finding the cause of this birth defect.  They have also been big supporters of CHERUBS and CDH families since our charity began in 1995 and they guest speak at our conferences and draw samples for research from families at our conferences as well.

Meet Our Cherubs!  - Leann has always been a "Tuffy" as her daddy calls her.  Before she was born they said she would spend 6-9 months in the NICU.  We came home after 3.  When her lungs collapsed from pneumonia they said she might go at any time...but she made it.  She has always been a miracle, a cherub for sure.  She is the bravest person I know.  If you have ever met her you would be pleasantly surprised at how social, bright and thoughtful of others she is.  A 4 yr. old who loves to be with other kids and any adult who will take a minute to listen to her questions.  She is an actress, musician, tree hugger, bug lover, and all around awesome hostess to her family and friends. 


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness. 

  CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org

http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Sunday, June 19, 2011

Daily CDH Vote Reminder - Zoe's Story, by her dad, Aaron Fisher

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:
1.  Go to http://www.voteforcdh.org/
2.  Log in through Facebook and vote
3.  Repeat daily through August 27, 2011

Contest Update - We are holding steady with 1700 voters a day but we to make that 2000 to move into 2nd place and back into 1st and stay there.   Please forward this to your family and friends and ask them to vote in honor / memory of your cherub.

Contest Voter Tip Of The Day -  Create a blog or carepage about CDH and ask people to vote.  Post your cherub's story, photos and videos and raise Congenital Diaphragmatic Hernia Awareness.

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - Congenital Diaphragmatic Hernia is as common as Cystic Fibrosis and Spina Bifida, yet has no telethons, massive media campaigns, offices across the country, large staffs of people working full-time to help families, dedicated CDH hospital, large walks, signature colors on millions of products.  CDH has just us - determined parents, grandparents, survivors, family members, friends and researchers trying to get the world to notice, and care about, these babies.

Meet Our Cherubs!  - Meet Zoe Fisher


A Fathers Rebirth
by Aaron Fisher



It was June 03, 2009. My daughter, Zoe Aris, had just been born. What should have been my first chapter in parenting, turned out to be, my first chapter on a whole new life. Zoe suffered from a condition known as CDH (Congenital Diaphragmatic Hernia). Going through the ups and downs with her, threw my world into a blender and hit frappe. What came out has been a change of career and a softer, more caring heart.

It was warm that evening, mild compared to normal North Carolina summer temperatures. Even the mild temperatures didn’t keep my body from pouring sweat. I was on edge, wanted to scream, wanted to be anywhere else but there. I hated hospitals and the people in them. I walked through the darkening parking deck, toward the entrance to Brenner Children’s Hospital.

I had a deep seeded belief, that hospitals were a place to die, a place to escape from life and be free. As I would hear people talk about children being sick and close to death, I would want to tell their parents or family to be happy, not sad. That if their child did not make it, they could smile knowing that they would not have to grow up in this world. All life ends, better sooner rather than later. Now, it was my child in the hospital and I didn’t know how to handle it.

Walking into the hospital was a blur and suddenly I was on the sixth floor, walking down a long hall. The walls were lined with pictures of smiling children. All of them with captions, thanking various people and hospital departments for saving their lives. I imagined that one day my own child would be gracing the hall with her own smiling face and words of thanks.

The reception desk was at the end of the hall, in the corner of a large open waiting room. I did my best to hide any shakiness in my voice as I approached the chest high wall around the desk.

“Aaron Fisher, to see Zoe Fisher.”

Due to my blurring reality, it was a faceless and bodiless entity that answered me. “Mr. Fisher, she has just arrived. Give me just a moment to make sure you can go in.”

I stepped back from the desk to lean against the nearest wall, while I waited. I swallowed hard in a vain effort to push my heart down my throat, where it had lodged itself, back to where it belonged.

“Mr. Fisher, she’s ready. When you hear the buzz, just push the door open.” I nodded my understanding and stepped toward the door.

Buzz. Click.

I pushed open the surprisingly heavy door. Nothing had prepared me for what greeted me. The air smelled clean, not the freshly washed clothes clean, but the absence of smell clean. Darkness from lights turned low. My eyes were slow to adjust. Like turning the dial on a microscope, the room came slowly into focus. Babies in Plexiglas boxes, some so small they could not fill a grown man’s hand. Countless tubes filled with various fluids, attached to arms, feet, and chests of every small child. The sound of clicks, pings, beeps and bells surrounded and assaulted me. I stood still; my feet dug deep roots to support me as they would a mighty oak. Not sure what to do or where to go, my mind told me to run and hide; however, my feet and my heart could not leave my little girl.

A woman in light blue scrubs walked up to me then asked if I was Zoe’s father. All I could manage was a slight nod of my head. She guided me to a wide, open room. There were at least two other babies in the room. Both in their Plexiglas boxes and being attended to by other nurses. My eyes drifted slowly around the room, seeing everything but keeping information as a box with no bottom holds water. Then I saw her, my little Zoe, in her own Plexiglas box. Two nurses were at her side moving lights around, adjusting sensors, and watching monitors that had been placed prior to my arrival.

One of the nurses, feeling my presence, turned to me. She was smiling but the smile felt faked, as if she was just about to pretend to be joyful.

“You must be dad.” Her voice was soft with a strange air of peace within it.

My voice was lost, hiding in the depths of some dark part of me, not wanting to be found. So I just nodded, not allowing my eyes to be drawn away from my daughter.

She told me who she was but all I heard was Zoe’s nurse. She continued to speak; the shock of where I was, as well as, why I was there drowned out all her talking. I do not even know if I spoke to her or just stood, silent and unresponsive.

The nurse turned, spoke to whom she was working with, then walked off. Maybe it was minutes or perhaps hours. I’m not sure but it felt like time stood still while it raced past at the same moment. The nurse returned with a small folding chair under her arm. She set it down telling me to take a seat. I tried to comply but my body stood frozen, not wanting to work. She helped me sit down informing me that Zoe’s doctor would be around shortly to check on Zoe and to speak with me.

As I sat waiting for the doctor, my eyes never left Zoe. I stopped just seeing her and actually saw her. She lay very still, no movement other than her chest moving up and down in rhythm with a pfft, pfft, pfft sound I could hear. White tape, on her chest, holding down wires that ran to a monitor where three lines bounced up and down, while numbers constantly fluctuated. A clear tube had been inserted into the side of her chest. Her arms and legs were blue, from toes and fingertips up to where they joined her body. A tunnel closed around my line of sight so all I could see was her face. No tubes or anything had been attached to it. Zoe’s eyes were closed; she appeared to be sleeping peacefully, unaware of anything going on around her. My heart started to pound; ready to burst out of my chest. I began to cry silently. Trying to be strong, I fought them back allowing only a couple tears to escape my eyes and run down my cheeks. I began to pray.

When Zoe’s doctor, Dr. Petty arrived, he had an entourage of doctors in training with him. They walked past me and straight to Zoe’s side. I couldn’t hear what he was saying, but he was speaking to the group, I assumed about Zoe and her condition. After his apparent lecture was over, he stepped towards where I sat. I wanted to stand but I knew I wouldn’t have the strength to hold myself up.

“Hi Aaron. How are you holding up?” He asked in the friendly, yet serious way he always was. He extended his hand in greeting and compassion. Dr. Petty always carried himself in a caring, serious way. A calm would fall onto any room he walked into, no matter how chaotic or stressful the situation.

I used what little energy I had to shake his hand. “Hey, Dr. Petty. I’m hanging in there I guess.” My voice had a little shake to it. “How does she look?” I readied myself for the worst of news.

“She is a very beautiful little girl. If you remember when we spoke a few months back, I had told you Zoe was very sick. This remains true but we will do everything we can for her. First, we need to get her stabilized. You probably noticed the blue color of her upper and lower extremities.”

I nodded. My body had gone numb while I listened to him speak but the urge to run had abated for the moment.

“She isn’t getting enough oxygen into her blood, to be carried to her arms and legs. That isn’t a surprise, since we already knew she would most likely have just one functional lung. The problem is that that one lung has collapsed two times. We have had to refill it and the ventilator she is on will, I am hopeful, start to deliver the oxygen her body needs.

“She is also having trouble maintaining her body temperature. So, if you look just above her, we have a heater. This should help her stay warm. We also have her getting the basic nutrients she needs through an IV, we don’t want to start any kind of milk or formula till after she has her surgery. Are there any questions or concerns I can answer or address for you?”

I took a deep breath; trying desperately to take in and understand everything he had just told me. I knew there had to more information, more going on with Zoe, but I was grateful he didn’t overwhelm my already troubled mind with everything. After a few seconds I asked the only question I could think of. “Is she feeling any pain?”

In his soft-spoken way he said, “No Aaron. Zoe feels no pain at the moment. We have her on medication to keep her comfortable, so she can focus on resting and getting stronger each day.”

A small relief washed over me knowing that at least she couldn’t feel the pain from the tube in her side or from the IVs that were in her. “Thank you. So what comes next?” I couldn’t seem to remember everything we talked about before.

Dr. Petty looked over his shoulder at Zoe then turned back to look at me. I saw both confidence and concern in his eyes. “Before we start looking down the road, to our next step, she has to stabilize. Zoe needs to get stronger and be able to get oxygen throughout her body. If she can’t we will have to look at giving her a helping hand, by putting her on ECMO. We have a long road ahead of us, there will be ups and downs. What we need is to have more ups than downs. Then we can start looking ahead to the surgery. But, what Zoe needs the most, is for her mom and dad to stay healthy. So you can be with her. You both need sleep.”

“Thank you again Dr. Petty. I’ll try to go take a nap at least. I’ll be back in a few hours.” I felt a sudden fatigue wash over me. I knew she was in good hands. I knew that Dr. Petty would do everything he could to help my baby girl.

“You just go get some real sleep Aaron. I’ll call you if we need anything or just to update you.”

“Okay. I’ll try.” I looked over at Zoe. “Bye my sweet Zoe, Daddy will be back soon and mommy can’t wait to meet you.” With that, I blew her a kiss and headed back to my wife and maybe get a little sleep.

I walked into my wife’s hospital room. Erin was passed out from the pain medication she was on. I sat down onto what had to be the hardest cot known to man, sleeping on a concrete slab would have been softer. I lay there for several minutes, unable to sleep, my mind playing over and over, everything I had just seen. I allowed myself to half cry once again as I slowly drifted off to sleep.

I sat up quickly. Disoriented, groggy and my right hip was playing music very loud. I took my phone and looked at the caller ID, it was Brenner’s. My heart sank; my first thought was she wasn’t doing well and that my baby girl was not going to make it. I didn’t want to answer the phone but I did anyway. “Hello?”

“Hello. Is this Aaron?”

“Yes, this is Aaron.”

“This is Dr. Petty.” He sounded different on the phone, still soft-spoken, still serious, but now there was a caution to his voice.

I started to panic. “Is everything alright? How’s Zoe?” I felt my pulse quicken as my heart went from 0 to 60 in 3.1 seconds.

“We are still having difficulty keeping Zoe’s oxygen level up. I feel that for Zoe, the best option will be to put her on ECMO, which should stabilize her oxygen level enough for her o start getting stronger. I need your authorization to do the operation.”

I tried to be strong, but I did not think I could ever be strong enough. “Okay, what does this mean for Zoe? What should I expect?” I fought back my tears, keeping the floods of Noah from breaking free.

“This is one of those obstacles that we knew was a possibility and had spoken about. I am very confident that ECMO is the right step to take, to give Zoe her best chance to live. I have to tell you, that with this operation, there is a risk of infection or even that Zoe will not survive.”

I understood the legalities of having to hit me with the rocks of possibility but it was still tough to hear. I had to know just one thing, so I asked it. “If we do not put her on ECMO, what are her chances?” I needed to know, even if I would not like the answer.

“In truth, I feel that without ECMO, Zoe may be able to live another few days at the most. Her body is working so hard to try and deliver the oxygen she needs, but like you and Erin, Zoe needs to rest. She needs to get stronger and I feel that ECMO can give her the best chance for long-term survival.” I could feel the truth and conviction behind his words.

Knowing this was Zoe’s best Chance; I gave my consent. Dr. Petty gave the phone to a nurse, who for legal reasons, had to verify my consent. I was told that Dr. Petty would call me as soon as the operation was complete to give me an update.

I sat at my wife’s side, holding her hand and watching the clock, as time slowly clicked by. I prayed, I cried, and I lied about the seriousness of things to my wife. Three grueling and gut wrenching hours passed, before my phone rang again.

I jumped and fumbled with my phone, trying to answer it. “Hello, How is she?” the words came out so fast I was sure it was just one word.

“Zoe is doing well. She is starting to stabilize and her color should be much better when you come see her. Her oxygen levels are up because the ECMO machine is putting the extra oxygen she needs into her blood for her. Also, when you come to see Zoe, we had to move her to the PICU. She has her own room and will be under supervision and care twenty-four hours a day.” Relief washed over me. I told Dr. Petty thank you and that I would be there soon.

The next ten days passed without major incident. Zoe was recovering from the ECMO operation; she was gaining strength and becoming even more stable. I spent every waking moment with her, reading The Hobbit to her, listening to music with her, holding her hand and talking to her. As her strength grew Zoe would grab hold trying to squeeze my finger; I allowed myself to hope. She was now strong enough for the surgery that, could very well, decide the outcome of her life.

The day before her operation Dr. Petty spoke with us. “Zoe has made it through so much already and is ready to take the next big step, to correct the hole in her diaphragm. The procedure on Zoe will be very long. I know we have talked in the past about it, but I want to go over it again now. What we are going to do is move all the organs that moved up into her chest through the hole in her diaphragm, and put them back where they belong. Then we will be using a mesh-like patch to close the hole.”

I nodded understanding as he spoke. All this we had already talked about, but then he hit me with the proverbial two-by-four.

“There is a chance that her abdomen will not have room for us to place all the organs back where they belong and still be able to close her belly around them. If this is the case, we will have to leave some of her intestines on the outside of her, in a protective sack, until her skin has grown enough for us to finish the process. In that situation her risk of infection would increase greatly. My hope is that we won’t have to worry about that and we will be able to just focus on her progression of healing and growing after the surgery.”

I spent the remainder of the time before her surgery, holding her hand and just silently praying over her. That time passed by very quickly and before I was fully ready, it was time for her surgery. As they were finishing preparations to take Zoe to the operating room, I kissed her forehead and told her, “I love you Zoe. I’ll see you soon.” I held back my tears making sure I didn’t sob, at least not in front of Zoe. My inner fear was that I had just said good-bye to my daughter and that I just looked into her eyes for the last time.

I took my wife’s hand and together we walked to the waiting room where our parents were waiting. We told them that Zoe was being taken to the operating room and that we didn’t want to wait here but down the hall in the “Ronald McDonald House” room.

The Ronald McDonald House was a quiet place, similar to how I imagined old libraries would be. We had to sign in and say whom we were visiting in the children’s hospital. When we entered, I noticed no one other than the receptionist was in the room. I was relieved to have the whole large room empty and to ourselves for the moment. The six of us found a secluded corner to sit and wait.

I sat in silence, next to my wife, holding her hand. I didn’t know what to do or say. My mother led us in prayer, for Zoe and for the doctors operating on her. After several minutes passed by I stood up. The uncertainty and fear of never seeing Zoe alive again was eating away at me. I felt bits of myself fall off into an abyss of despair. I walked over to one of the windows and looked out at nothingness. I could no longer see what was in front of me; I was dazed and lost, floating in my own sea of confusion. Even being in the large open room, I could feel the walls closing in around me. I felt the crushing weight of my fear surrounding me, pressing me and trying to squeeze every once of hope out of me. I had to run and hide. I needed air. I needed Zoe. One of our parents approached me putting their hand on my shoulder. I told them I had to go get some air then left the room. I took the closest elevator to the top floor.

The top floor had a way to go outside onto the roof of the hospital. There was a small empty playground with several benches. I found the furthest corner and sat down against it.

I began to talk out loud to myself. “Why is this happening? No child or parent should have to feel this. Why me and why Zoe? Why did Zoe have to be born with CDH?”

What really scared me was when I started to answer myself out loud. “Because you don’t care about others. Because you wished others pain, that they didn’t deserve. Because you stopped trusting in God.” I’m sure if anyone saw me or heard me, they would have had me locked away in an asylum.

I pulled my knees close to my chest, rested my head on them letting the tears flow freely. I cried, I prayed, and I cried some more. I don’t know how long I sat there, but eventually I stood up. I felt a peace and a freedom I had not felt since everything with Zoe began. Refreshed and somehow full of the knowledge that I would see Zoe again, that she would survive the surgery; I went back inside to finish the long wait with my wife and family.

I walked back into the McDonalds House room and back to the secluded corner we had all taken up. Erin asked me if I was okay. I told her I would be fine and gave her a hug. While I held her I told her that Zoe was going to be fine. We both started to cry. My tears were no longer of anything other than relief.

An hour or so later my phone rang. I answered it. The nurse on the other end told me that everything with the surgery went well and that Dr. Petty would be calling me after Zoe was brought back to her room. I told her thank you hanging up the phone.

I looked up and everyone was looking at me, waiting on me for word on how Zoe’s operation had gone. I smiled telling them everything went according to plan and that now we just had to wait for the doctor to call so we could see our precious little Zoe again. We hugged and cried. I even allowed myself to laugh and relax. I felt a renewed sense of hope and allowed myself to look forward to a future with my daughter.

As I have been remembering and writing this, Zoe would have been celebrating her second birthday. Due to the efforts of the children’s hospital, I was able to spend four and a half months with Zoe, when the most likely outcome would have given me a week or less with her. After looking back on her life and asking myself, what could have been? I decided I wanted to be a part of a surgical team. I want to be able to help give parents and loved ones of other sick or hurting children the chance to spend more time with those who are most precious in their lives.



*This is not the complete story of my time with Zoe. Just what I wrote for my Narrative Essay. A lot of events have been left out of the period I wrote about. If i had included everything in this time period my paper would have been over 40 pages. The whole story of my time with Zoe would have been closer to 200 pages.*


Thank you for reading.

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA