Wednesday, July 27, 2011

CHERUBS H.O.P.E Totebag Project - ITEMS NEEDED

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)




CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers. Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia. 

We are running low on the following:
  • Baby Blankets
  • Booties
  • Cloth Baby Eye Masks
  • Soft Picture Frames
  • CDH Baby Books
  • Disposable Cameras
  • Children's Books
  • Teddy Bears
  • Lock of Hair Holders
  • Journals
  • Preemie Pacifiers
  • Newborn Pillows
  • Baby Angel Wings
  • Pens
 
 

Tuesday, July 26, 2011

Daily CDH Vote Reminder - Meet Cherub Mathew Smith

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:


1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Only 1 month left!  Holding steady in 3rd place nationally and 2nd in our division.

Contest Voter Tip Of The Day How many family members and friends have you gotten to vote in honor / memory of your cherub?  It takes less time to vote than it does to log in to Facebook.  http://www.voteforcdh.org

More Contest Info - visit http://www.voteforcherubs.org/ for information on the contest, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - 144 babies are born with CDH in the world EVERY DAY.  72 do not survive.  Please vote to help end CDH!




Meet Our Cherubs!  - I am definitely one of the lucky ones! Mathew was born with an undiagnosed left sided CDH. At that time, like most, I had never heard of such a thing. He was taken to a hospital 4 hours away because they thought he would need ECMO and that was closest place that offered it. He was there a month and then transferred closer to home, where he spent the next 5 months. On and off the ventilator, endured surgeries for reflux, but he finally came home. Then was back in 2 months later for bowel obstruction. Seems like a different lifetime, he has been well for so long now! Our family is thankful for everything Cherubs does. The support and education offered by them is something I will forever be thankful for.

- Written by Mathew's mom, Michelle Wolfenbarger


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Monday, July 25, 2011

Daily CDH Vote Reminder - Meet Cherub Christopher Braxton Davis

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Over 60,000 votes and help from several celebrities!  Still in 3rd place but doing VERY well!  Keep it up everyone!!!!

Contest Voter Tip Of The Day - This week our members are posting the vote link to 10 facebook friends and telling them about their cherubs and asking them to post to 10 friends, who post to 10 friends, etc.

More Contest Info - visit http://www.voteforcherubs.org/ for information on the contest, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - CDH is often confused prenatally with gastroschisis and omphalocele.

Meet Our Cherubs!  -   On December 14, 2010, My Life changed forever. My husband and I went to our first ultrasound appointment to find out the sex of our baby. We found out we were having a boy, and also found out there was something wrong with our precious baby. All that we were told was our baby's heart was sitting far in the left side of his chest. Two days later, we had an appointment with a high-risk prenatal doctor and that's when Braxton was diagnosed with having a right-sided CDH. Needless to say, my husband and I worried day and night for the next few months. On April 7, 2011 Our beautiful son was born. He fought for his life the first 11 days, then had to be put on ECMO for 3 weeks. He finally had his repair surgery a week after coming off ECMO, at 38 days old. The doctors told us on several occasions that Braxton probably wouldn't survive. Today, he is still in the NICU, but he is doing very well. He is still being weaned off his medications and learning to feed with a bottle. This is the hardest thing we have ever had to go through. I know we are extremely lucky to have Braxton with us and we are so thankful! Please take a few minutes and vote for CHERUBS EVERY day. Speak for the babies who don't have a voice of their own!

Written by Braxton's Mother, Jennifer Davis




Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Friday, July 22, 2011

Daily CDH Vote Reminder & MATCHING DONATIONS DAY - Meet Cherub Gabriel Schuyler Leight

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Today is the last day of the Vivint donation matching!  We're over halfway to the $2500 in donations needed.  Vivint will match up to $2500, raising $5000 for CDH.

Contest Voter Tip Of The Day -  Post on friend's Facebook walls, send them messages, ask them to vote in chat.  99% of Facebook friends do not read all of your status updates so most will not see that you are asking for votes.  It's important to ask directly. 

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - A baby is born with CDH every 10 minutes in the world.  That means that 3 babies die from CDH every hour.

Meet Our Cherubs!  - Gabriel Schuyler Leight

It is often said that the birth days of your children are the happiest days of your life. On December 2, 2009, we joyfully welcomed our second son, Gabriel Schuyler, into the world. He was perfect--all 8 pounds and 5 ounces of him. He eagerly began eating and looking at the world around him, and his daddy and I spoke of introducing him to his grandparents, aunts, uncles, cousins, and especially his big brother. Gabes spent his first day meeting his family, napping and eating. At 10 o'clock, daddy and I dutifully wheeled Gabriel back to the newborn nursery. Daddy went home to be with the newly minted big brother, while I went to bed, knowing that Gabes would be back in a few hours to nurse again. At 12:30 AM, I got the phone call that would forever change our lives.

It was the neonatologist in the NICU. My new son was very sick and I needed to come down immediately. The doctor met me at the entrance to the NICU and began asking a host of questions: did I have any prenatal care? (of course!) were there any ultrasounds done? (yes) did I do drugs while pregnant? (absolutely not) None of these questions made sense. My beautiful new son was perfect when I last saw him...and then she took me to his bedside. It was almost as though someone had punched me in the gut. There is nothing that can ever prepare a parent for seeing their child hooked up to life support machines. Gabriel was intubated, had tubes running down his nose into his stomach, had a central line in his armpit, blood pressure, oxygen and heart monitors plastered to his delicate skin and the nurses were prepping him for an umbilical catheter. The doctor explained to me that he had a birth defect called Congenital Diaphragmatic Hernia and that some of his abdominal organs were in his chest. He would need to have surgery. I asked her to write down the name of the defect because I had never heard of it, and to please call my husband so that he could be with me.

Gabriel had surgery at 48 hours old. His large and small intestine and spleen were in his chest, sitting on top of his left lung. His surgeon hypothesizes that his spleen was in the hernia acting like a cork, which allowed his lungs to develop fully, and that the organs herniated through after he was born, when he began eating and breathing. During the surgery, his collapsed lung re-inflated on its own, and his heart shifted back to its proper place. Eleven days after his operation, his pulled out his respirator, and hasn't looked back since. Gabriel came home with us 20 days after he was born, two days before Christmas.
Gabes is now a very healthy, active, playful and noisy 19-month-old. His scar is the only indication that he was ever sick--that he could have become an angel. Gabriel is why we vote. His daddy and I are only too aware of how lucky we are. We hate CDH. We hate that it takes beautiful babies from their families. We hope that one day CDH will be a thing of the past, and until then, that all families can be as lucky as ours.

Written by Gabes's momma, Alexandra Leight


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Thursday, July 21, 2011

CDH Awareness at Today's American Mrs 2011 Pageant

A HUGE Congratulations and Thank You to Jacquetta Taborn-Moses for winning the Today's American Mrs 2011 national competition and for using CDH & CHERUBS as her pageant platform!   Way to go, Jacquetta!!!!!!

July 20th Proclaimed Congenital Diaphragmatic Hernia Awareness Day in Guam


Governor Eddie Calvo and the Doyle family in Guam, raising some major CDH Awareness! Check out the International Congenital Diaphragmatic Hernia Awareness Ribbon on their shirts with Pia's photo!

You can read more at http://www.kuam.com/story/15112089/2011/07/20/calvo-honors-young-girl-with-rare-birth-defect?redirected=true




* DISCLAIMER - CHERUBS had no prior knowledge of, or involvement in, any activity or proclamation that infringes upon the rights of the trademark on "Congenital Diaphragmatic Hernia Awareness Day" owned by Breath of Hope, Inc.  CHERUBS officially recognizes April 19th as the international day of CDH Awareness and encourages Congenital Diaphragmatic Hernia Awareness Daily.

Save the Cherubs Posters - Osmund "Oz" Wyatt Kidd-Ward

 Meet cherub Oz, a model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!   Today is Oz's Birthday and Angelversary.   Happy Birthday little one, may all the angels sing to you and all the cherubs dance with you on your special day.




Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz22.png
Cafepress Items - http://www.cafepress.com/cherubs/7879409

 

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz24.png
Cafepress Items - http://www.cafepress.com/cherubs/7879462



Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz22.png
Cafepress Items - http://www.cafepress.com/cherubs/7879568

 
 

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz21.png
Cafepress Items - http://www.cafepress.com/cherubs/7879405



Photo by MCate Photography
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz20.png
Cafepress Items - http://www.cafepress.com/cherubs/7879344



Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz20.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879502

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz17.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7879590

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz15.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879504

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz14.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879551

 

Photo by Flippen Photography
Download Full Size Poster - http://www.savethecherubs.org/Savethecherubs-FlippinPhotography-KiddWard-Oz.png
Cafepress Items - http://www.cafepress.com/cherubs/7879481

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz03.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7801407

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz04.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7801406

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz07.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782097

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz12.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782094

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz13.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879608

 
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz01.jpg SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz01.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782086




Daily CDH Vote Reminder - Meet Cherub Osmund "Oz" Wyatt Kidd-Ward

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011




Contest Update - We gotten over 55,000 votes so far!!!!  WTG, everyone! Starting at 2:00 pm EST TODAY -  For the next 48 hours you can donate directly on the on voting page and Vivint Gives Back will match individual donations up to $50 each and total donations up to $2500 per charity so we have a change to raise $5000!   Every single dollar helps and is tax-deductible!  http://www.voteforcdh.org/

Contest Voter Tip Of The Day -  Please donate today when you vote!  Even $1 will help as Vivint Gives Back is DOUBLING donations!  Thank you Vivint!   http://www.voteforcdh.org/

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - There is no official CDH Awareness Day observed by all families, groups and researchers in all countries but people in in 38 countries unofficially celebrate April 19th.  This is the day the trademark on "Congenital Diaphragmatic Hernia Awareness" was removed  and CDH Awareness was given back to the families.  Many families hold events on this day and CHERUBS holds a parade to raise more awareness.




Meet Our Cherubs!  - March 1, 2010 our son, Osmund "Oz" was diagnosed with Congenital Diaphragmatic Hernia (CDH), and a possible heart condition at our 19 week ultrasound. Over the next 20.5 weeks, we were rigorously monitored - a variety of specialists, ECHOs, MRI, numerous ultrasounds and non-stress tests. Thankfully, we lived 3 miles from Wake Forest University Comprehensive Care Center and Brenner Children's Hospital that was able to handle a high-risk CDH infant, and perform the corrective surgeries he would require. During those weeks, we hoped and prayed for Oz to beat the statistics, we planned and prepared for him to come home. Giving up on our son was never an option for us.


He was born July 21, 2010 at 9:05 am via C-section because he was breech. Oz weighed 7 lbs, 13.5 oz, and was 19.7 inches long. His heart was beating, but he was not very responsive. Our cardiologist came to the hospital to perform the ECHO herself, and found that what we had all prayed was a clinical effect of his CDH was in fact a congenital heart condition. His lungs, what little had been allowed to develop, because of his stomach, intestines, liver, etc...pushed into his chest cavity prevented it, had not developed into the tubes and air sacs needed for proper breathing. We were told the news parents should never have to hear: we would not be going home with our son, and he would not survive the day. Our world shattered, and all we wanted to do was be with Oz and enjoy every millisecond that we would have with him.

Our staff that day was an amazing, compassionate group of medical professionals, who made sure that Oz's time with us was maximized, and his pain minimal. He was held by his mom and dad for most of the 10 wonderful hours he graced this world after his birth. We had many visitors rush to the hospital to meet him, including two very special CHERUBS volunteers. We were so blessed to have the prayers and support of 1,000s of CDH families those days and hours leading up to his birth, and their love, understanding and support after we came home, heart-broken, and had to lay our son to rest.

We vote every day for these miracle children, because they are all amazing fighters. We vote everyday to show our solidarity and support of this wonderful, loving community as a way to give back to them.

- Written by Oz's parents, Kaendrah Kidd and Chris Ward


 
Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org
Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/
Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA
photo by MCate Photography

Tuesday, July 19, 2011

Daily CDH Vote Reminder - Meet Cherub Braden Holt

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Only 5 weeks left in the contest!  It's not too late to start voting daily.  Every vote counts!

Contest Voter Tip Of The Day -  Order free "Vote for CDH" t-shirts and other items at Vistaprint.  Details posted on http://www.voteforcherubs.org/

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - Congenital Diaphragmatic Hernia is a birth defect that affects each baby differently.  Some babies have small holes in their diaphragms or no hole at all, just very loose muscle.  Some babies have large holes or no diaphragm muscle at all.  The organs that migrate into the baby's chest cavity varies.  Some babies have just a little stomach above their diaphragm while overs can have stomach, liver, intestines and other organs migrated.  The amount of organs in the chest cavity controls the impairement of lung growth.



Meet Our Cherubs!  - This is Braden and his big sister Brooke.  They are the worst of enemies and the best of friends.  Braden was born with an undiagnosed congenital diaphragmatic hernia on March 13, 2008.  Within an hour of his birth I was told he would require surgery.  He was taken from me and flown to CHOP where he received great care.  He had his repair surgery the day after his birth and was home twelve days later. Braden's journey continues today as he struggles with weight gain and asthma like symptoms.  Please vote so that all mothers can have the benefit of knowing what they are facing before their child arrives.  CDH babies need special attention at the precise moment of their birth! 

- written by Braden's mom, Karla Holt


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Tuesday, July 12, 2011

Daily CDH Vote Reminder - Meet Cherub Joshua Angel Echelbarger

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Holding steady!  WTG everyone!!!!

Contest Voter Tip Of The Day - Though this is a Facebook contest, don't be afraid to use other outlets to ask for votes such as e-mail, text messaging, Myspace, Twitter, chatrooms, etc.

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? -  The official CDH Awareness Ribbon is baby blue, pink and pale yellow with clouds.  It was voted by members of several CDH charities, is recognized in 38 countries, in all 50 states and by members of the U.S. Senate.  It is trademark and copyright free, owned by no one and can be used by anyone who wants to raise Congenital Diaphragmatic Hernia Awareness!  http://www.cdhribbon.org/


Meet Our Cherubs!  - My third baby was diagnosed with Congenital Diaphragmatic Hernia, at 20 weeks gestation.  Joshua not only had CDH, but he also had heart problems (CHD). As a result of heart failure, he was retaining fluid. At 29 weeks, his fluid had increased rapidly - It had reached his chest cavity and need to be delivered as soon as possible.  Joshua Angel was born on March 30th, 2010, weighing 3 lbs 6 oz.  That moment was a very special moment that I will FOREVER cherish. After Joshua's birth, he had two cardiac arrests, persistent hypoxia,  pneumothorax on his right lung, and Pulmonary Hypertension. After a long night of fighting CDH, he passed away at 12 hours old in daddy's arms. He has forever touched our lives, and tough us that we must always be STRONG and COURAGEOUS just as he was.

- written by Joshua's mom, Molly Echelbarger


Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Monday, July 11, 2011

Save the Cherubs Posters - Douglas Collins

Photos created by the Collins family while expecting cherub Douglas, a model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign.

Photo by Tom Nguyen

Daily CDH Vote Reminder - Meet Cherub Ava Elaine Dickerson

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Holding in 3rd with over 40,000 votes!  Only 6 weeks left to win $250,000 for CDH babies! 

Contest Voter Tip Of The Day - Do you have a blog or carepage?  Share information about the contest and ask your followers to vote!

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - CDH can occur alone or with other birth defects.  In a small percentage of cases, CDH occurs with a syndrome such as Fryn's, Trisomy 18 or others.   We encourage all CDH families to seek genetic counseling.

Meet Our Cherubs!  - Ava Elaine was diagnosed with CDH two weeks before birth.  Her valiant fight for life began on 10/22/10 at Children's in Dallas, TX.  Ava went on ECMO on day 2 and a successful had repair surgery on day 7 after overcoming a brain hemorrhage and blood clot.  She Sweet Ava drew a close-knit family even closer, made everyone who knew her want to hold their children tighter and captured the hearts of many.  Ava earned her wings on the 47th day as heaven welcomed a beautiful angel.

"Ava was endowed with a unique grace that those who knew her could feel. Perhaps she was a vehicle for a greater force or maybe she possessed a larger-than-life charisma. Ava made me want to be a better doctor, to push beyond the limits of my usual practice, to find new solutions to intractable problems. She made me want to make others care deeply for her, too. She brought a team closer together than ever in our experience at Children's. Surgeons, pediatricians, ECMO specialists, nurses, and respiratory therapists worked hand in glove to try to save Ava. She was the center of our universe, we mere planets with a skill or two." ~ Dr. Thomas, Children's Medical Center. 

Fly High and Breathe Easy, Sweet Ava.


- written by Ava's mom, Jennifer Rohde Dickerson

Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Saturday, July 9, 2011

Daily CDH Vote Reminder - Meet Cherub Alfie John Black

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:
 

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint

2. Go to http://www.voteforcdh.org/ and click the Vote button

3. Log in through Facebook and Vote!

4. Repeat #2 and #3 daily through August 27, 2011


Contest Update - Over 1500 people are voting every day for our babies!  We are raising CDH Awareness on an astronomical level on Facebook thanks to the Vivint Gives Back contest!

Contest Voter Tip Of The Day -  Share your cherub's story and photo, tell people why CDH research is important to you.  Ask people directly to vote.  Spread the word about CDH and the contest!

More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - Congenital Diaphragmatic Hernia can strike any family.   It has hurt babies of all races and religions, in all countries around the world.   CDH has struck the poor and uneducated, but has also struck families of doctors, lawyers and even a U.S. Senator.   CDH does not discriminate.  The cause is unknown but geneticists are so very close to finding out why CDH happens.  Please vote and please support CDH research!   If your family hasn't been struck by CDH yet, someday it may be!


Meet Our Cherubs!  - Alfie was diagnosed at his 21 week scan with LCDH , he had a great out look and all the doctors were very pleased with his progress .



Alfie was born on the 15th of March 2011, his lungs were severely smaller than anticipated , but he fought and at 9 days old he had his operation to patch his diaphragm, the whole left side of his diaphragm was missing !

He continued to fight but on the 28th of March 2011 Alfie was too tired to fight and sadly grew his wings in his Mummy and Daddy's arms, this was due to severe pulmonary hypertension .

CDH has broke mine and my families hearts! It turn Alfies big sister Nicole's (8) world upside down!

It has been 3 months since my beautiful baby boy grew his wings, but in this short time the pain gets worse the longing to hold him just one last time or to say sorry that i could not save him!

At CHERUBS we are not a statistics we are part of a worldwide community a family filled with love and support !

Please vote, to help CHERUBS help other families like us !

- Written by Donna Warchol

Thank you all for your support and your votes to help CDH babies!

----------------------------------------------------------------------------------------------------------------
Vote for CHERUBS at http://www.voteforcdh.org


Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/



Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org/

http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/

Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA