Tuesday, July 1, 2014

Capitol Hill

At the 2014 CDH Conference, we not only learned about new CDH research, made friends with other CDH families but were able to thank Sen. Jeff Sessions for his good work with Senate Resolution 414 for "Congenital Diaphragmatic Hernia Awareness Month" and meet with Representatives to discuss a Resolution for CDH in the House.  

The 2014 DC Conference accomplished a ton thanks to so many amazing people;

Senator Jeff Sessions and his incredible staff, Patsy Pease, David Kays, Lori and Ashley from CHOP, Julia from DHREAMS, Jessica from Mass General, Joy Perkins, Josh Hensley, Ciarra Joyner for being "Hope", Dakota Jones and Jaden Jones for helping with the kids room, Pat Jones for helping move items and all the many, many others who work so hard to make our events successful even when they can't attend and for those who help up during the event unofficially. Not to mention ALL the amazing people who help plan like Mary Blanche and other aides on Capitol Hill and the wonderful people who help gather permits for us. 

We are truly, truly thankful for everyone who works so hard with us to help CDH babies. Thank you!!!!

Now, let's do it all again in Dublin!