Sunday, April 19, 2015

Alaska Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Mears family! 
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Ohio Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hall family! 
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Bloomdale, Ohio Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!

This proclamation was requested on behalf of the Mitchell family! 
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Friday, April 17, 2015

South Carolina Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Brogdon, Norton & Dampier families! 
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

East Lansdowne Elementary School takes action against Congenital Diaphragmatic Hernia!



Students and staff at East Lansdowne Elementary School in East Lansdowne, Pennsylvania, suburb of Philadelphia, raised $210 for CHERUBS and formed a CDH awareness ribbon on the school's field in honor of Caroline Benson (10 month old RCDH survivor) held by her mother Nancy Benson (a fourth grade teacher at ELES). Caroline was diagnosed with CDH at birth and was transferred from her local hospital to The Children's Hospital of Philadelphia were she spent 84 days in the NICU.

Special thanks to everyone at East Lansdowne Elementary School and CHERUBS member Nancy Benson for taking action against Congenital Diaphragmatic Hernia!

Mike Savage, Mayor of Nova Scotia, Canada's office lights up in support of CDH Action Day!





Mike Savage, Mayor of Nova Scotia, Canada's office lights up blue, pink and yellow in support of Congenital Diaphragmatic Hernia Action Day from April 17th - April 19th.

Special thanks to Mayor Mike Savage and CHERUBS member & CDH survivor herself Heather Rao.


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Hartsville, South Carolina Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Norton & Dampier families! 
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Benton, Kentucky Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Tinley Park, Illinois Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Connecticut Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Webster family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Corinth, Mississippi Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!



This proclamation was requested on behalf of the Floyd family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Thursday, April 16, 2015

Farmington, Utah Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hensley family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

North Baltimore, Ohio Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Bretz family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Orland Park, Illinois Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Cosme family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.


Hickory Hills, Illinois Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Cosme family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.


Caswell Beach, North Carolina Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Moody family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Town of Faith, North Carolina Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Moody family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Middletown, New Jersey Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Goldbach family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Wednesday, April 15, 2015

Illinois Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Holland family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

New Hampshire Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!



This proclamation was requested on behalf of the Cadwell family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Monday, April 13, 2015

Minnesota Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Glennie family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Alabama Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!



This proclamation was requested on behalf of the Sessions & McGilberry families!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Sunday, April 12, 2015

Beverly, Massachusetts Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Gannon and Boyd families!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Tooele City, Utah Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hensley family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Saturday, April 11, 2015

Hudson Falls, New York Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Morehouse family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Louisiana Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Thibeau and Gros families!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Friday, April 10, 2015

Wyoming Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!



This proclamation was requested on behalf of the Meats family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Indiana Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


 
This proclamation was requested on behalf of the Napers family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Clarksville, Tennessee Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Galler family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Huntingburg, Indiana Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!



This proclamation was requested on behalf of the Hays family!
 
Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Thursday, April 9, 2015

Riverton City, Utah Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hensley family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Wednesday, April 8, 2015

New Jersey Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the MacKenzie‎ & Small families!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.


Vermont Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


 
This proclamation was requested on behalf of the Snyder family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Bank of America Plaza in Dallas, Texas Lights Up for CDH Action Day!

Photo courtesy of www.baplaza.com/toc.cfm
At 72 stories, Bank of America Plaza is Dallas' tallest office building and one of the area's most recognized landmarks. By night, the tower's green silhouette lights up the downtown skyline, visible more than 26 miles away.
Bank of America Plaza was developed in 1985 and is part of the premier office portfolio of Metropolis Investment Holdings, Inc. On-site management and leasing is provided by Peloton Commercial Real Estate. With exceptional standards and hands-on expertise, the management and leasing team constantly strive to provide its tenants with the highest quality service.

Special thanks to Bank of America Plaza and CHERUBS members Courtney McKenzie & Brandy Hawkins for supporting Congenital Diaphragmatic Hernia Awareness!

Tuesday, April 7, 2015

Smyrna, Tennessee Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hunt family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Monday, April 6, 2015

Albion, Michigan Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Gonzalez family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

North Dakota April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Lemieux family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Georgia Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Passieu family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Mebane, North Carolina April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

DeWitt, Michigan April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Kentucky Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Hatfield family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Sunday, April 5, 2015

Eastside Cannery Hotel & Casino in Las Vegas, Nevada lights up in support of Congenital Diaphragmatic Hernia Awareness Month!


Eastside Cannery Hotel & Casino in Las Vegas, Nevada lights up blue, yellow and pink for the entire month of April in support of Congenital Diaphragmatic Hernia Awareness Month! Eastside Cannery Casino & Hotel's exterior stands out among the skyline of the Boulder Highway. The most prominent feature of the property is the 16-story bronze hotel tower featuring an exposed structural and decorative element, which is topped off by a saw tooth roofline making it an icon for the Las Vegas Valley. There are an abundance of visual references to the burgeoning industrial era with the use of brick and steel in various aspects, along with cross-braced steel facades and heavy steel open trusses. Murals depicting building amenities in a fun and nostalgic way decorate the outer walls of the property. 

Special thanks to everyone at Eastside Cannery Hotel & Casino & to Patricia Houle for supporting Congenital Diaphragmatic Hernia Awareness Month!

Friday, April 3, 2015

Open Letter to James Warren of the New York Daily News

In response to an opinion piece written in the New York Daily News:

Dear Mr. Warren,

Families affected by Congenital Diaphragmatic Hernia have been fighting for public Congenital Diaphragmatic Hernia Awareness for many years now. On March 25th, 2015, Senator Jefferson “Jeff” Sessions from Alabama, introduced the bill and congress approved the resolution S.Res. 115: A resolution designating April 2015 as “National Congenital Diaphragmatic Hernia Awareness Month” for the 4th consecutive year.


  Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth.
 

   Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.


   Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
   CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
A volunteer at CHERUBS- The Association Congenital Diaphragmatic Hernia Research, Awareness and Support read an article posted by James Warren at New York Daily News on March 29th, 2015 and was in total shock and disbelief that someone would poke fun of such a horrible birth defect leaving affected CDH families in tears.


The article starts off stating...

And closes with...


Comments to the article are even worse. One comment states...

"As I live and breathe! Thank you, GOP controlled Congress, for making April Hernia Awareness Month!" "Let the month of May become Clown Appreciation Month, so giant red shoes will fly off the shelves across the land and we as a nation can bow our heads in solemn prayer and gratitude to the biggest Bozo, Mr. Speaker, John "Bozo" Boehner.".


Thanks James Warren and New York Daily News for making Congenital Diaphragmatic Hernia Awareness Month a mockery. Our families deserve way better than this. These babies need to be heard. Click here to read the full article. To learn more about Congenital Diaphragmatic Hernia visit www.cdhawarenessday.org.

To contact James Warren:
Twitter
Email

To contact New York Daily News:
Facebook
Twitter
Email

Sincerely,
Felecia Woodruff
CHERUBS CDH Awareness Committee Leader
awareness@cherubs-cdh.org 

Wednesday, April 1, 2015

Mebane, North Carolina Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!


This proclamation was requested on behalf of the Lopez family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.