Tuesday, April 6, 2010

Goodsearch Contest - For 3 days only on April 6 -9, 2010 Goodsearch will donate $1 each time our toolbar is downloaded!

GoodSearch Toolbar features

$5,000 GoodSearch Giveaway - Three Days Only!

Please participate!

GoodSearch will donate a $1 for every toolbar that is downloaded between April 6th at 9am EST and April 9th at 9am EST up to $5,000!! Please download the toolbar right now by following this link - http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

Our new CHERUBS toolbar is free to download and allows you to raise money for our cause every time you search or shop online! Once added to IE or Firefox, each time you shop at more than 1,300 stores (from Amazon to Zazzle!) a percentage of your purchase will automatically be donated to CHERUBS - at no cost to you (and you may even save money as the toolbar provides coupons and deals as well!). The toolbar also has a search box and each time you search the Internet, about a penny is donated to CHERUBS.

It is SAFE, FREE and raises money for a good cause!   In this economy, it's hard to donate and we know that.  Here we have an EASY way to donate without costing you a dime!   

http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

Please hurry and do this now so that we can earn the $1 bonus per toolbar!

And, please pass this along to all of your friends. The two minutes it takes to add this toolbar to your browser can make a lifetime of difference for our cause!

Get the toolbar NOW! 

http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Advocacy and Support

Please show your support by adding our new toolbar to your browser. 

Each time you search the internet or shop online at one of our participating stores,
a donation will be made to us at no cost to you! 

GoodSearch Toolbar features
GoodSearch Toolbar download for IE

Special Needs Children Conference - May 1, 2010 in Hilliard, OH

From Julie Tunnell, CHERUBS member and CDH mom:

Our church is holding a conference on May 1st for mother’s with special needs children, “You are not Alone”.  I am a part of the board planning the event, and speaker on a panel of mother’s talking about how illnesses affect siblings.  My daughter, Jessica, is a twin sister right sided CHERUB that is a survivor.  I will donate money from the conference to CHERUBS.

The website link for this conference is:  http://www.nwbible.org/notalone2010               

Please post on your upcoming events wall.

Name of Event:  You are Not Alone
Date:  May 1, 2010 (9 a.m. to 3:30 p.m.)
Registration starts March 7th
Location:  Northwest Bible Church

6639 Scioto Darby Road
Hilliard, Ohio 43026
(614) 876-7882
info@nwbible.org

Event Benefits: CHERUBS

CDH Awareness Road Rally - April 24, 2010 in Spartanburg, SC

CDH Awareness Event in SC!
My name is Robert Cook, I am a senior at Oakbrook Preparatory School in Spartanburg, South Carolina and a CDH survivor. I have been planning a road rally to raise awareness for CDH.
Name: CDH Awareness Road Rally
Location/Date of Event: Oakbrook Preparatory School Spartanburg, SC- April 24, 2010
Beneficiary of Event: CHERUBS organization (awareness raised about organization and condition)



Monday, April 5, 2010

CHERUBS Pennsylvania Picnic - April 24, 2010

A CHERUBS member picnic will take place at Memorial Park in Quakertown, Pennsylvania (Bucks County) on Saturday, April 24th, 2010. The park is located at 600 Mill St. Pavilion C has been reserved for the event which will take place rain or shine starting at 11am. 

All members in Pennsylvania, New Jersey, and Delaware have been invited but all members willing to make the trip are welcome to join us! 

The picnic will be hosted by Karla and David Holt, parents of CDH survivor Braden Holt. To date, eleven CDH families will be in attendance! 

We will also be collecting items for the CHERUBS HOPE tote bag project

 A photographer will be on hand to take photos for our Save the Cherubs CDH Awareness Campaign.

If you would like to attend please contact Karla as soon as possible. 

Karla is also the captain of team PA CHERUBS and will be walking in the Bucks County March of Dimes Walk with CHERUBS members on Sunday, April 25th, 2010. Please considering joining the team! Karla can be reached at 267-362-5114 for more information.

http://www.panjdecherubs.blogspot.com/

For more information, please e-mail our Pennsylvania State Representative, Karla Holt, at kholt@cherubs-cdh.org

Friday, April 2, 2010

Prayers & Quotes for April 2, 2010

Prayers & Quotes for April 2, 2010

If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

Please keep the following in your thoughts and prayers:

Newborn cherub Mekhaai R. arrived 3/17 and is doing wonderful! He has had his CDH repair and his feeds are going great. Discussion of going home for Easter is a big possibility. He is on oxygen and an NG tube, but is taking his feeds almost completely by mouth.

Newborn cherub Joshua C. arrived 3/26, 10 weeks early. He is fighting for his life and has amazed doctors with his strength. Joshua has an array of medical difficulties and surgeries in front of him. Please pray he continues to get stronger to face his first surgery.

Newborn cherub Kinley J., second CDH child born into this family, arrived 4/1. She is stable and surgery may be as early as Monday.

Newborn cherub Kellan V. is only on oxygen and getting closer to going home!

Cherub Isabel H. is struggling with severe reflux. Pray that doctors and her family find the right direction to help Isabel with her reflux.

Cherub Owain P. has reherniated for a 3rd time and had his surgery on 3/30. Please pray for his healing and strength as he recovers.

Newborn cherub Micah P. is very sick and is back on the vent. His heart is very sick.

Cherub Chandler S., is having fainting spells and fractures on his endplates of his vertebrae T6, T7, and T8.

Cherub Sofia C. was admitted to the hospital for breathing difficulties and is really sick.

Cherub Holly M. is having a fundo and gtube surgery on 4/15. She has a cold and hoping she is well enough to have the surgery soon.

Newborn cherub Mallory G. is still in the hospital, but doing great! She is now off of the vent.

Cherub Julia G., who is a 14 year old survivor of CDH, was admitted today to the hospital, due to complications from her past CDH surgeries.

To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


Cherubs on Their Way:

Cherub "baby boy" K., due 4/16, will be induced 4/9

Cherub Julia H., due 4/22.

Cherub Ian H., due 4/26

Cherub A. due 4/2, (baby's sex is unknown)

Cherub Noah A., due 5/30

Cherub "baby girl" A. due 5/20

Cherub Elijah V. due 7/12

Cherub Owen T., due 6/6

Cherub Adalyn T., due 7/31

All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


Newly Grieving Families:

Newborn cherub Austin "AJ" M. was born on 3/24 and grew his wings on 3/26. Please pray for peace and understanding for this family.

Newborn cherub Joshua E. was born 3/30 at 29 weeks. He went to heaven on 3/31. Please keep this family in your prayers.

Newborn cherub Jayden G. arrived 2/19 and grew his wings on 3/14. Please keep his mom Alicia G. and family in your prayers and thoughts. Alicia has been struggling with blood clots and finding the right blood thinner medications to keep her levels normal, please keep her in your thoughts and prayers.

Tanya & Ruben A. lost their precious cherub Ruben Luis A. on 2/17. Ruben's father passed away suddenly 3/21 from a blood clot and suffered 2 cardiac arrest within minutes. There was nothing the doctors could do. Please pray for comfort and strength for this family.

To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


Today’s Quotes:

"The joyful news that He is risen does not change the contemporary world. Still before us lie work, discipline, sacrifice. But the fact of Easter gives us the spiritual power to do the work, accept the discipline, and make the sacrifice." -Henry Knox Sherrill

"Easter spells out beauty, the rare beauty of new life." -S.D. Gordon

"If Easter says anything to us today, it says this: You can put truth in a grave, but it won’t stay there. You can nail it to a cross, wrap it in winding sheets and shut it up in a tomb, but it will rise!" - Clarence W. Hall

"Let us be grateful to people who make us happy; they are the charming gardeners who make our souls blossom." -Marcel Proust

Thursday, April 1, 2010

Goodsearch Contest - For 3 days only on April 6 -9, 2010 Goodsearch will donate $1 each time our toolbar is downloaded!

GoodSearch Toolbar features


$5,000 GoodSearch Giveaway - Three Days Only!

Please participate!

GoodSearch will donate a $1 for every toolbar that is downloaded between April 6th at 9am EST and April 9th at 9am EST up to $5,000!! Please download the toolbar right now by following this link - http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

Our new CHERUBS toolbar is free to download and allows you to raise money for our cause every time you search or shop online! Once added to IE or Firefox, each time you shop at more than 1,300 stores (from Amazon to Zazzle!) a percentage of your purchase will automatically be donated to CHERUBS - at no cost to you (and you may even save money as the toolbar provides coupons and deals as well!). The toolbar also has a search box and each time you search the Internet, about a penny is donated to CHERUBS.

It is SAFE, FREE and raises money for a good cause!   In this economy, it's hard to donate and we know that.  Here we have an EASY way to donate without costing you a dime!   

http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

Please hurry and do this now so that we can earn the $1 bonus per toolbar!

And, please pass this along to all of your friends. The two minutes it takes to add this toolbar to your browser can make a lifetime of difference for our cause!

Get the toolbar NOW! 

http://www.goodsearch.com/toolbar/cherubs-the-association-of-congenital-diaphragmatic-hernia-research-advocacy-and-support

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Advocacy and Support

Please show your support by adding our new toolbar to your browser. 

Each time you search the internet or shop online at one of our participating stores,
a donation will be made to us at no cost to you! 

GoodSearch Toolbar features
GoodSearch Toolbar download for IE

CDH In The News - "Miracle on Fannin Street"

http://www.myfoxhouston.com/dpp/community/give_miracles/100322-miracle-on-fannin-street



Miracle on Fannin Street

Updated: Tuesday, 23 Mar 2010, 4:34 PM CDT
Published : Tuesday, 23 Mar 2010, 3:49 PM CDT

by MELISSA WILSON

MELISSA WILSON
Health Reporter

HOUSTON - A couple from San Antonio has been living in the Texas Medical Center for half a year, mostly at the bedside of their baby boy. As part of our Children's Miracle Network series, FOX 26 News is providing stories about Houston-area doctors who are saving lives.

The Nichols family decided they would pack up their bags and temporarily move to Houston for specialized care at Texas Children's Hospital. They now know that it was the right thing to do.

Tina Nichols underwent a routine ultrasound, when she was almost six months pregnant. It turned out to be anything but routine for her.

Doctors found a malformation and were extremely concerned about Nichols. They told her that her first option was to terminate her pregnancy. She and her husband refused that and chose to fight for their baby's life.

Now, the couple has a beautiful five-month-old baby boy named James. He was born with a rare condition, called Congenital Diaphragmatic Hernia, or CDH. His case was even more unique, because he was born prematurely and weighed only three pounds.

"Premature babies always have problems with their lungs to start off with, so not only did he have a diaphramatic hernia, but was also born premature. Those combined could've been a fatal combination in his case," says pediatric surgeon Dr. Oluyinka Olutoye.

Dr. Olutoye performed the life-saving surgery on baby James. CDH affects approximately one in 4,000 babies.

"I had never heard of it before, but it's a hole in the diaphragm. His insides, his stomach and his spleen, were all up in his chest," explains James' mother. That makes it hard for his lungs to grow. Approximately 10 days after James was born, he was strong enough for surgery.

Dr. James Adams is a senior neo-natologist at Texas Childrens' Hospital and served as the medical director for more than 30 years. He has been following James and showed images of James' chest to FOX 26 News in order to help people better understand the condition.

Doctors say it was a challenging surgery, because first of all, most diaphragmatic hernias take place on either the left or right side of the chest but James' was right in the middle of his chest. Then, surgeons wanted to live up to the Nichols wishes; they are Jehovah's Witnesses.

"We don't accept blood tranfusions at all. We accept alternatives, safe alternative transfusions, like blood fractions, which we did in his case, to help build up his blood supply," says Tina Nichols.

The Nichols were relieved that surgeons at Texas Children's Hospital respected their wishes.

"We say we chase every red blood cell that tries to escape, so we're very meticulous in terms of that, but it's always nice to have the back-up for blood, should we need it," says Dr. Olutoye. Doctors were able to complete the surgery without a transfusion, but say they're obligated to transfuse for life-threatening conditions.

James is growing stronger every day. Dr. Adams says he's still going to have to be supported with a respirator for awhile to help him breathe. Adams says that means that James will have to be followed by Texas Childrens' sub-specialty groups to monitor his liver function and keep a close eye on his growth and nutrition, and to decide whether he will need additional surgeries.

All of this is just a minor setback for the Nichols. They say they waited 18 years to have their little James, now they are ready to bundle him up and take him home, where he belongs.

"I didn't realize how much you could love a child, until you have your own, but he means everything!" says James' loving mother.

CDH In The News - "Infant's Survival a LeBonheur Miracle"



Infant's Survival a LeBonheur Miracle

Updated: Thursday, 25 Mar 2010, 6:34 PM CDT
Published : Thursday, 25 Mar 2010, 6:07 PM CDT

by Lauren Johnson
MEMPHIS, Tenn. - FOX stations have partnered with the Children's Miracle Network to bring you heartwarming stories from children's hospitals around the country. This month, a family called FOX13 to share their gratitude for one pediatric surgeon at LeBonheur Children's Medical Center.

The doctor, family members say, is the only reason their 3 month old son is still alive.

Serenaded by lullabies, 3 month old Shawn Sheppard, Jr. has spent his entire life in one place.

"It's hard to come in and see your baby laying there, fighting for its life, not knowing one day from the next, you're on pins and needles," said mother Mary Sheppard.

Fear and uncertainty unnerve Mary, as it has since she was 4 months pregnant. The mother went in to see a specialist in Little Rock when an ultrasound detected a diaphragmatic hernia.

"Basically it was a little hole Shawn had developed in his diaphragm that allowed his organs to be able to come up into his chest," explained father Shawn Sheppard.

With no muscle separating his abdominal and chest cavities, his tiny organs were shifting. His heart, lungs, and liver were pulled into the chest.

The high risk pregnancy sent the couple into a panic. Unsure of the baby's health, they needed a children's hospital, and fast.

With several choices from Vanderbilt in Nashville to San Francisco or Boston, they safely set on LeBonheur Children's Medical Center in Memphis, 180 miles away from their home and two other children back in Batesville, Arkansas.

They are just a loving, caring children's hospital" said Mary. "You're not really dealing with an adult hospital that doesn't know about the children."

Mary Sheppard met with Dr. Max Langham before she delivered Shawn Junior.

Langham knew what was ahead of him with Shawn's birth defect. When he was born, he was sent to the Pediatric Intensive Care Unit. The first 12 days of his life were spent connected to machines that filtered his blood, and helped him breathe. In essence, the technology kept him alive. From there, he was moved to the Neonatal Intensive Care Unit. He's been in Room 4 since January.

"Medically, with medical evidence, he would not likely live," said Shawn. "That's when Dr. Langham had approached us and said 'Can I at least have one try to make this happen?'"

This doctor, they say, went above and beyond his call of duty. They describe him as being different from others.

"He came in when he was off work, on a moment's notice he would come in, console us, and say anytime you need to talk just call me, he was always there and still is."

Langham made a promise to the nervous couple; a pact they say kept their son alive.

"He told us, 'i can't make you any promises but I'm going to do my best,'" said Mary.

"If it wasn't for him, we wouldn't have him...and he's an amazing person," said Shawn.

Langham, a pediatric surgeon at the children's hospital, is modest about the high praises from the family, calling it a team effort at LeBonheur.

"LeBonheur is a special place; it's been my privilege to work here," said Dr. Langham. "I think its a great children's hospital, and we really have all the bells and whistles to take care of very sick children who would not survive in a general hospital."

Langham believes real advances in healthcare are often done in specialty-specific places, like children's hospitals.

"I think having a team that's dedicated to specific problems allows you to get better at doing that."

A team that's saving lives, and creating miracles, for parents like Shawn and Mary.

"My child wouldn't be alive today if it wasn't for this doctor, or this hospital."

For Shawn Sheppard and his family, LeBonheur is more than a hospital in Memphis, it's a place where miracles happen, and lives are changed.

Videos of Cherubs - Payton Sanderson

In honor of Payton Sanderson


Videos of Cherubs - Alicia Rose Curwain

Video made in memory of Cherub Alicia Rose Curwain