I hope that this e-mail finds you all well. We have a few very fast approaching deadlines that I want to make sure that none of you miss so that all of our CDH families and medical professionals have the chance to participate:
CHERUBS Congenital Diaphragmatic Hernia Research Site - http://www.cdhresearch.orgCHERUBS Congenital Diaphragmatic Hernia Research Survey is the combined efforts of over 2000 CDH families and medical professionals. It takes information on the medical, family and exposure histories of CDH patients and compares data to look for the cause, prevention and better treatment of Congenital Diaphragmatic Hernia. Participation is voluntary, anonymous and free to all CDH families and medical staff. Data can be tabulated live for research and reference purposes free to all organizations, researchers and the general public. A fund has been set up for raise money for Congenital Diaphragmatic Hernia Research at http://www.firstgiving.com/cdhresearch
"Congenital Diaphragmatic Hernia Awareness" Trademark - http://www.ipetitions.com/petition/cdhawareness/index.htmlAlong with 7 other organizations who have CDH families' and medical professionals' best interests at heart, CHERUBS is petitioning the U.S. Patent & Trademark office to have this trademark removed so that everyone can promote CDH Awareness freely to help these babies. Personalized graphics for this campaign can be done for free by e-mailing either Barb at bwagner@cherubs-cdh.org or Fer at farce@cherubs-cdh.org, as well as personalized Congenital Diaphragmatic Hernia Awareness Ribbons
Stories of Cherubs Vol. II - http://www.cafepress.com/cherubs.91971767
In 2006, CHERUBS published "Stories of Cherubs" with over 300 stories of families dealing with Congenital Diaphragmatic Hernia. The response has been so overwhelming that we are now printing Stories of Cherubs Vol. II. To participate, please e-mail your cherub's story, photo, name and date(s) to membership@cherubs-cdh.org The The submission deadline is October 20, 2008, publish date is November 30, 2008
Cooking with Cherubs Vol. IIIThe 3rd edition of our cookbook is coming out just in time for the holidays! Families, doctors, nurses and friends are welcome to donate recipes for this fun fundraiser! Please e-mail the appropriate section editors below with your recipe, name, state/country and who your recipe is in honor or memory of. The submission deadline is October 20, 2008, publish date is November 30, 2008
Breads & Rolls - Kim Switzer (kswitzer@cherubs-cdh.org)
Appetizers & Beverages - Stephanie Olivarez (solivarez@cherubs-cdh.org)
Soups, Salads & Vegetables - Elaine Moats (emoats@cherubs-cdh.org)
Main Dishes & Casseroles & Crockpot Recipes - Elaine Moats (emoats@cherubs-cdh.org)
Meat, Poultry & Seafood - Sharon Knott (sknott@cherubs-cdh.org)
Cakes, Cookies & Candy - Corin Nava (cnava@cherubs-cdh.org)
Pies, Pasty & Other Desserts - Bethany Gillham (bgillham@penskeautomotive.com)
Hypoallergenic Recipes - Barb Wagner (bwagner@cherubs-cdh.org)
This & That (Misc) - Barb Wagner (bwagner@cherubs-cdh.org)
Household Hints - Barb Wagner (bwagner@cherubs-cdh.org)
CHERUBS 2008 Yearbook and 2009 Calendar
Please get your 2009 Calendar photos in! Our first yearbook is coming out with our cherubs and families photos! Let's watch how our families grow through the years. All families are welcome to participate, with grieving families encouraged to hold a large portrait of their cherub in their family photos. The submission deadline is October 20, 2008, publish date is November 30, 2008
Please submit your photos through our web site at:
Surviving Cherubs - http://cdhsupport.org/members/album_cat.php?cat_id=2
Cherubs with Wings - http://cdhsupport.org/members/album_cat.php?cat_id=3
Family photos / updated photos - http://cdhsupport.org/members/album_cat.php?cat_id=50
CHERUBS 2008 Holiday Cards - http://www.cafepress.com/cherubs/3918237
It's that time of year again, time to get the kids to pull out some paper and crayons and draw pictures of angels for our holiday cards. All submissions will be submitted to our on-line store and the winner will be voted on on our site and printed on holiday postcards that will go around the world. Please submit drawings through our site at http://www.cdhsupport.org/members/album_cat.php?cat_id=53. Siblings and cousins under 18 are welcome to participate. The submission deadline is October 20, 2008, publish date is November 30, 2008
CHERUBS & CDH Awareness Events - http://www.cdhsupport.org/members/viewforum.php?f=184Make sure to keep an eye on the events we have going, including our fundraisers, walks, bowl-a-thon, Angel Ball, Golf Tournaments, state and local get-togethers, and of course, our International Member Conferences.
http://www.cdhsupport.org/awareness has all our info on events. Don't miss our huge t-shirt sale! $5 for adult, $3 for kid's shirts - http://cdhsupport.blogspot.com/2008/09/congenital-diaphragmatic-hernia_29.html
Problems getting onto the forums? - http://www.cdhsupport.org/members
Our forums have 100's of CDH families talking, supporting each other, asking questions and learning and much, much more. At any time, day or night, you can talk 24/7 with another CDH who knows what you're going through. We really are like one big family and the support found and given is just amazing. If you haven't dropped by already, please make sure to do so. The following site administrators can help you if you encounter any problems:
Dawn - dawn_torrence@cherubs-cdh.org
Danielle - dkessner@cherubs-cdh.org
Corin - cnava@cherubs-cdh.org
Stephanie - solivarez@cherubs-cdh.org
Barb - bwagner@cherubs-cdh.org
Tara - thall@cherubs-cdh.org
Free blogs, photo albums and more - http://www.cdhsupport.orgPlease keep in mind that CHERUBS has free blogs, photo albums, Myspace and Blogger templates and much more for our members and the public to use to raise CDH Awareness. Our free blogs and photo albums are especially useful for families as they are on a CDH site - unlike other blog sites who offer no other information about CDH - this allows your family and friends to learn and meet other CDH families when they visit your blog.
Blogs - http://cdhsupport.org/members/weblogs.php
Photo Albums - http://cdhsupport.org/members/album.php
Free Myspace & Blogger Templates - http://cdhsupport.blogspot.com/2008/05/free-cdh-awareness-blogger-templates.html
State & International Representatives - http://cdhsupport.org/volunteers/
CHERUBS has had state and international representatives for 10 years, providing our families with local support and get-togethers. If you would like to volunteer to be a Rep or on a committee, please contact us at volunteer@cherubs-cdh.org
We have a lot more going on at CHERUBS that will be posted in our next newsletter so stay tuned! Thank you all for your continued support of CHERUBS and families affected by Congenital Diaphragmatic Hernia.
Sincerely,
Dawn M. Torrence
President & Founder
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org
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