Prayers & Quotes for December 31, 2009
If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.
Please keep the following in your thoughts and prayers:
Cherub Jacob G. is in the PICU with pneumonia. He is on a vent and needs our prayers.
Newborn cherub Ciaran B. arrived 12/29. Surgery is set for tomorrow.
Newborn cherub baby girl Fuentes, was being induced 12/27.
Newborn cherub Enrique A. had his repair surgery on 12/29.
Newborn cherub Ruby W. had her repair surgery on 12/23.
Cherub Ethan H. is having a rough time recovering from his reherniation surgery on 12/15, still on vent.
Newborn cherub Chase K. spent Christmas at home! He was discharged on 12/24/09.
Newborn cherub Mia M. is home! She was discharged on 12/16/09.
Cherub Alexander H. is in the hospital and having a difficult time recovering from a bowel obstruction surgery.
Cherub John L. is ill with bronchiolitis.
Cherub Addisen C. is recovering from a bone graft surgery.
Newborn cherub Lewis B. is working on feeds, still in the hospital, but making progress towards home.
Newborn cherub Joshua L. will need a gtube, surgery date has not been set. Feeds are the only thing keeping him in the hospital.
Newborn cherub Zoe L. is still in the hospital. Zoe’s twin sister Sadie L. is home.
To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.
Cherubs on Their Way:
Cherub Jeremiah M., due 3/30
Cherub baby boy Ruben, due 2/24
Cherub Jaden M., induction 1/3
Cherub Mekhai R., due 3/17
All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.
Newly Grieving Families:
Cherub Averi G. and family, grew her wings on 12/28
Cherub Briana H. and family, grew her wings on 12/20
To all the families who have loved and lost this past year, our thoughts and prayers go out to each one of you for a peaceful new year. May you find the peace and comfort in the new year and know you are never alone, for so many people care about you.
Today’s Quotes:
"Let this coming year be better than all the others. Vow to do some of the things you've always wanted to do but couldn't find the time." -Ann Landers
"Faith goes up the stairs love has built and looks out the window which hope has opened..." -Charles Spurgeon
"I hope you still feel small when you stand beside the ocean,
Whenever one door closes I hope one more opens,
Promise me that you'll give faith a fighting chance,
And when you get the choice to sit it out or dance...
I hope you dance…" -From the song "I Hope You Dance" by Lee Ann Womack
"When the world says, "Give up," hope whispers, "Try it one more time."" -Author Unknown
Thursday, December 31, 2009
Sunday, December 27, 2009
End of Year 2009 Donations to CHERUBS
Happy New Year!!!!!
As we wrap up yet another year, we would like to remind everyone that it's that time of year again - time to make your end of year donations to receive tax credit on next year's returns!
We know that 2009 has been a very hard year for most financially. We know that donations are hard to make and as such, you should well research every charity that you donate to. Some must knows about CHERUBS as you contemplate which charity to support with your hard earned money:
At CHERUBS, we know there are a lot of charities out there who are equally as worthy of your time and donation. We appreciate your consideration and your support of those affected by Congenital Diaphragmatic Hernia and hope that you will choose CHERUBS as the recipient of your kindness so that we can continue to help CDH families around the world.
As we wrap up yet another year, we would like to remind everyone that it's that time of year again - time to make your end of year donations to receive tax credit on next year's returns!
We know that 2009 has been a very hard year for most financially. We know that donations are hard to make and as such, you should well research every charity that you donate to. Some must knows about CHERUBS as you contemplate which charity to support with your hard earned money:
- All donations made to CHERUBS, both cash and in-kind are tax-deductible. CHERUBS has been a 501(c)III non-profit organization since 1995.
- Donations made by December 31st are tax-deductible for 2009's tax return.
- In-kind donations, including those made to our CDH HOPE Totebag project, are tax-deductible.
- Donations can be made in honor or in memory of someone. Donations made in lieu of flowers at memorial services are also deeply appreciated.
- Donations are listed in our newsletter and families receive donation acknowledgements when someone sends a gift in honor or in memory of their cherub.
- Donations are used to directly assist families affected by CDH through 5 different funds (listed below). Donations made to specific funds can be made by clicking on the fund name below:
- CDH Family Support Fund – this fund covers all support services, including our web sites, newsletters, conferences, New Member Packets, get-togethers and other general operating costs. CHERUBS does a lot for CDH families and the CDH community and we incur quite a few costs during so. Just 1 newsletter mailing is now over $3000 for printing and posting with so many members. Our conferences are also expensive. Our monthly expenses are several hundred dollars for ink, postage, web site hosting fees, etc. It takes a lot to fund an organization with almost 3000 members. Remember, no one at CHERUBS gets paid and we have no office so every penny directly helps CDH families. And all of our services are FREE so we do charge membership fees.
- CDH Research Fund – to pay for the $1000 a year cost of research database hosting, programmer and to raise money for research organizations such as the International CDH Study Group. The CDH Study Group is a collective group of over 30 hospitals around the world specializing in CDH research. We chose to support groups like this one because we know that every cent will go directly to research on Congenital Diaphragmatic Hernia and research will be brooder and more advanced when collaborating with dozens of hospitals and researchers together.
- CDH Family Assistance Fund – A majority of this fund will go to help families with travel expenses such as airline tickets and gas. It will not go to lodging because CHERUBS highly recommends the free lodging available at Ronald McDonald Houses. Families will submit confidential applications to assistance and a committee will consider each request. Our goal is to make sure that all CDH families can afford to get to their cherub’s medical center and have a place to stay so that they can concentrate on their children instead of travel worries. We hope to assist a family through this fund by Spring, 2010. The remaining small percentage of this fund will go to the CDH HOPE Totebag Project, a new program that helps new and expectant families by supplying them with items needed during their cherub's hospital stay.
- CDH Awareness Fund – this fund helps to raise awareness of Congenital Diaphragmatic Hernia through balloon releases, giving away free CDH ribbon buttons and brochures and other items. It will also cover advertising costs, billboards, video production and much more.
- CDH Scholarship Fund – for CDH survivors and siblings. Families can raise money to give scholarships in honor / memory of their cherubs. We hope to award our first scholarship in 2010.
- Donations can be made on-line on our web site through PayPal.com, a secure site that we've used for over 10 years for donations. http://www.cdhsupport.org/donate/index.php PayPal accepts all major credit cards from around the world.
- Donations can be made by mail through check or money order (U.S. currency only please) made out to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587
- CHERUBS never charges families for our services, materials or totebags. Our membership is free and always has been. Against the advice of accountants, auditors and other non-profit leaders, we have resisted mandatory subscription fees or charging for entrance into our forums or events. We have asked for members to make annual donations if they can afford to do so but it is never required. We want every CDH family who needs help to be able to freely access it.
- CHERUBS currently does not receive any grant funding. Our charity subsists solely from donations and fundraisers.
- CHERUBS has very little overhead with no office, donated phone lines and internet and no utility bills. But monthly expenses still add up quickly with 3000 members to serve.
- Only 2% of our members donate annually, with less than .5% volunteering. We depend on public donations greatly to keep our services and charity running.
- Donations make possible our annual CDH Conference, our newsletter, our web sites, our CDH HOPE Totebags, awareness materials, postage fees, awareness events and our 5 Funds. We do a whole lot of good on less than $30,000 a year in donations!
- Your donation will never go to pay anyone's salary. CHERUBS is run solely by volunteers and always has been. Our President has logged over 25,000 hours of volunteer work at CHERUBS in the past 15 years and our other volunteers have donated 1,000's of hours as well to help families affected by CDH.
- We do not pay lawyers, accountants, marketing executives or other 3rd parties and try to find sponsors and volunteers for in house needs such as web design, programming, graphic art, etc. We are blessed to have many amazing volunteers and pro bono professionals who want to help CDH families.
- CHERUBS has been audited and publicly files financial reports every year on our web site as well as with GuideStar.com - so you can rest assured where your donation money goes.
- CHERUBS is a GuideStar Exchange Partner in Trust recognized charity.
- CHERUBS posts our 990 tax returns and our financial reports - to show how much money in donations that we receive - and where your donations are spent. In detail. Very few charities do this, as by law it's only required to show people our tax returns (and only if they ask). CHERUBS has an open book policy when it comes to our financial info and our missions. We believe in high ethics and honesty and making sure that our members, and the public, know what we stand for.
- CHERUBS never "filters" donations. We do not serve as a bank system for donors to channel money to other institutions and use those donations as a marketing ploy for our charity. We encourage members to donate directly to hospitals and other charities themselves - since they are also non-profits. Credit should be given to those who worked hard to fundraise and raise awareness - the families. That said - if you'd like to donate directly to specific CDH center, we highly encourage you to do so and ask that you do not donate to them indirectly through us. That just makes more paperwork for both charities and takes the appreciation from the true donor - you! We would be happy to help you locate a contact person to accept your donation.
- CHERUBS never "banks" donations. Our donations are used immediately to serve the CDH community, instead of sitting in an account doing no one any good except collecting a little bit of interest. By law, charities cannot "save" large amounts of funds as the entire mission of any charity is to serve others.
- CHERUBS has never used a cent of donation money for any lobbying, trademarks, lawyers fees, or other government or legal issues. We make sure that every penny donated to our charity directly helps CDH families, not politics or special interests.
- CHERUBS is a grassroots charity run by a large array of those affected by Congenital Diaphragmatic Hernia. Our Board of Directors includes CDH parents, grandparents, survivors, nurses, doctors and the world's top CDH researchers. No other charity in the world has such a respected, educated or experienced group of leaders who care so much about the CDH community.
- CHERUBS has been a non-profit for 15 years. We are not a fly-by-night organization. We are the world's first and largest charity for Congenital Diaphragmatic Hernia with over 3000 members in 38 countries and all 50 states. We are a trend-setter in the services that help families affected by CDH, leading the way for other groups and newer charities who have followed in our footsteps. We will continue to lead until Congenital Diaphragmatic Hernia is no more. We are devoted to finding the cause, prevention and best treatments for CDH.
- CHERUBS is a founding member of the Alliance of Congenital Diaphragmatic Hernia Organizations, dedicated to work together with integrity on one mission - helping CDH families.
At CHERUBS, we know there are a lot of charities out there who are equally as worthy of your time and donation. We appreciate your consideration and your support of those affected by Congenital Diaphragmatic Hernia and hope that you will choose CHERUBS as the recipient of your kindness so that we can continue to help CDH families around the world.
12 Days of CDH Christmas... to be continued
We hit a little snag with the 12 Days of CDH Christmas. Our President - the person who was putting together the 12 Days of projects and who updates most of the blog - had to take a few weeks off unexpectedly. The 12 Days of CDH Christmas will continue in January as the 7 other projects are posted. Stay tuned!
Tuesday, December 15, 2009
On The Fifth Day of CDH Christmas....
On The Fifth Day of CDH Christmas.... CHERUBS gave the CDH community another conference, another chance to meet other CDH families in person, talk to the world's leading CDH specialists, participate in CDH research and have fun.
CHERUBS 2010 International Member Conference for Families Affected by Congenital Diaphragmatic Hernia will take place on July 8 - 10, 2010 in San Francisco.
This will be our first web conference as well! Members will be able to view the speakers on-line during our conference.
Hotel and speaker details to be posted soon on our conference web site at http://www.cherubsconference.org
Also today, here is the debut of our 2009 CHERUBS International Member Conference video.
http://www.youtube.com/watch?v=gox5BgdkuoM
CHERUBS 2010 International Member Conference for Families Affected by Congenital Diaphragmatic Hernia will take place on July 8 - 10, 2010 in San Francisco.
This will be our first web conference as well! Members will be able to view the speakers on-line during our conference.
Hotel and speaker details to be posted soon on our conference web site at http://www.cherubsconference.org
Also today, here is the debut of our 2009 CHERUBS International Member Conference video.
http://www.youtube.com/watch?v=gox5BgdkuoM
Labels:
Awareness,
cdh,
cdh conference,
CDH summit,
Conference,
Congenital Diaphragmatic Hernia,
Research,
san francisco,
support,
UCSF
Monday, December 14, 2009
Prayers & Quotes for December 14, 2009
Prayers & Quotes for December 14, 2009
If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.
Please keep the following in your thoughts and prayers:
Cherub Ethan H. is having his reherniation surgery tomorrow, 12/15.
Cherub Addisen C. is having a bone graft surgery today for her cleft lip/palate.
Cherub Adam H.’s brother Aaron is undergoing an endoscopy under anesthesia today to see what the cause of his reflux is after dealing with reflux for 6 years (since he was born) and a variety of treatments. Tissue samples will be taken for a biopsy.
Newborn cherub Chase K. is having a Gtube surgery today. Hopefully, if all goes well this week, he should be home for Christmas!
Newborn cherub Mia M. is set to be discharged this Wednesday!
Newborn cherub Averi G. arrived 11/30. She is on ECMO and did have her repair while on ECMO. Prayers she continues moving in the right direction with her healing and being weaned from ECMO.
Newborn cherub Briana H. is off ECMO and expected to have her repair surgery sometime this week, if she remains stable.
Angel cherub Ireland B.’s brother Tristan broke/fractured his arm in wrestling between his elbow and shoulder. Need prayers the break will heal nicely over the next 6 months and he is not in too much pain.
Cherub Caroline K. is having lung issues.
Cherub Ruby S. needs help with eating without using her NG tube. She took 16 oz. by mouth yesterday, the most she has taken!! Keep going Ruby!!
Cherub Nicole T. needs prayers for she is facing a surgery next year to have rods inserted to help with her scoliosis.
Cherub Carter A. had his PICC line removed that was being used to treat his staph infection. He has started seeing his therapists at home to help with PT, OT and ST.
Newborn cherub Lewis B. is now on nasal cannulas. He is having issues with fluid buildup and has had to have his chest drained a couple of times. Mom got to get him dressed for the first time last week!
Newborn cherub Joshua L. no longer has any IV’s. He still is on oxygen and an NG tube. He is working on bottle feeding.
Cherub Adam H.’s grandma has recently been diagnosed with Stage 1 breast cancer. On Christmas Eve she will have a complete mastectomy of the cancerous breast.
Cherub Dylan J. is recovering from his reherniation surgery repair.
Newborn cherub Zoe L. is working on feeds and gaining weight. She is also working on being weaned down on her oxygen. Zoe’s twin sister Sadie L. has been home over a week now and doing well.
Cherub Isabel H. had strabismus surgery last week. Prayers her eyes heal nicely.
Newborn cherub Savannah S. is still in the hospital, working on getting to low flow nasal cannulas and working on feeds. A gtube may be needed.
Angel cherub Jeremiah D.’s mom Sarah is expecting a new baby in January/early Feb. and is also planning Jeremiah’s anniversary in January. Please pray that Jeremiah’s pictures are returned, for she had some of her belongings stolen recently that included pictures of Jeremiah.
We received a prayer thank you/praise report from cherub member, Amy.... "My Cherub, Finley, had his G-tube removed yesterday. By the grace of God, Finn has defied all odds. We were told he would NEVER make it to full-term, they had to induce me to get him out. We were told he’d probably require ECMO due to the severity of his condition and he did nothing BUT improve from the moment he was born. From the Low Point of my entire existence when I was told there was a 50% chance I’d bring my child home (at 30 weeks pregnant…no one saw ANYTHING prior) to the moment when our GI took his G-Tube out, I can offer nothing but thanks for my child’s health, because I KNOW this could have turned out so differently."
To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.
Cherubs on Their Way:
Cherub Jeremiah M., due 3/30
Cherub baby boy Ruben, due 2/24
Cherub Jaden M., due at the beginning of the new year.
All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.
Newly Grieving Families:
To all families affected by CDH and the loss of their precious child, may continued peace and comfort surround them.
From angel cherub Connie E.’s mom Claire: prayers for the grieving parents who are facing their 1sts this Christmas and coming year, including Claire.
Today’s Quotes:
“Some of the secret joys of living are not found by rushing from point A to point B, but inventing some imaginary letters along the way.” -Douglas Pagels
“Never get tired doing little things for others. Sometimes, those little things occupy the biggest part of their hearts.” -Author Unknown
“Have compassion for everyone you meet, even if they don’t want it. What appears bad manners, an ill temper or cynicism is always a sign of things no ears have heard, no eyes have seen. You do not know what wars are going on down there where the spirit meets the bone.” -Miller Williams
“You cannot do a kindness too soon, for you never know how soon it will be too late.” -Ralph Waldo Emerson
If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.
Please keep the following in your thoughts and prayers:
Cherub Ethan H. is having his reherniation surgery tomorrow, 12/15.
Cherub Addisen C. is having a bone graft surgery today for her cleft lip/palate.
Cherub Adam H.’s brother Aaron is undergoing an endoscopy under anesthesia today to see what the cause of his reflux is after dealing with reflux for 6 years (since he was born) and a variety of treatments. Tissue samples will be taken for a biopsy.
Newborn cherub Chase K. is having a Gtube surgery today. Hopefully, if all goes well this week, he should be home for Christmas!
Newborn cherub Mia M. is set to be discharged this Wednesday!
Newborn cherub Averi G. arrived 11/30. She is on ECMO and did have her repair while on ECMO. Prayers she continues moving in the right direction with her healing and being weaned from ECMO.
Newborn cherub Briana H. is off ECMO and expected to have her repair surgery sometime this week, if she remains stable.
Angel cherub Ireland B.’s brother Tristan broke/fractured his arm in wrestling between his elbow and shoulder. Need prayers the break will heal nicely over the next 6 months and he is not in too much pain.
Cherub Caroline K. is having lung issues.
Cherub Ruby S. needs help with eating without using her NG tube. She took 16 oz. by mouth yesterday, the most she has taken!! Keep going Ruby!!
Cherub Nicole T. needs prayers for she is facing a surgery next year to have rods inserted to help with her scoliosis.
Cherub Carter A. had his PICC line removed that was being used to treat his staph infection. He has started seeing his therapists at home to help with PT, OT and ST.
Newborn cherub Lewis B. is now on nasal cannulas. He is having issues with fluid buildup and has had to have his chest drained a couple of times. Mom got to get him dressed for the first time last week!
Newborn cherub Joshua L. no longer has any IV’s. He still is on oxygen and an NG tube. He is working on bottle feeding.
Cherub Adam H.’s grandma has recently been diagnosed with Stage 1 breast cancer. On Christmas Eve she will have a complete mastectomy of the cancerous breast.
Cherub Dylan J. is recovering from his reherniation surgery repair.
Newborn cherub Zoe L. is working on feeds and gaining weight. She is also working on being weaned down on her oxygen. Zoe’s twin sister Sadie L. has been home over a week now and doing well.
Cherub Isabel H. had strabismus surgery last week. Prayers her eyes heal nicely.
Newborn cherub Savannah S. is still in the hospital, working on getting to low flow nasal cannulas and working on feeds. A gtube may be needed.
Angel cherub Jeremiah D.’s mom Sarah is expecting a new baby in January/early Feb. and is also planning Jeremiah’s anniversary in January. Please pray that Jeremiah’s pictures are returned, for she had some of her belongings stolen recently that included pictures of Jeremiah.
We received a prayer thank you/praise report from cherub member, Amy.... "My Cherub, Finley, had his G-tube removed yesterday. By the grace of God, Finn has defied all odds. We were told he would NEVER make it to full-term, they had to induce me to get him out. We were told he’d probably require ECMO due to the severity of his condition and he did nothing BUT improve from the moment he was born. From the Low Point of my entire existence when I was told there was a 50% chance I’d bring my child home (at 30 weeks pregnant…no one saw ANYTHING prior) to the moment when our GI took his G-Tube out, I can offer nothing but thanks for my child’s health, because I KNOW this could have turned out so differently."
To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.
Cherubs on Their Way:
Cherub Jeremiah M., due 3/30
Cherub baby boy Ruben, due 2/24
Cherub Jaden M., due at the beginning of the new year.
All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.
Newly Grieving Families:
To all families affected by CDH and the loss of their precious child, may continued peace and comfort surround them.
From angel cherub Connie E.’s mom Claire: prayers for the grieving parents who are facing their 1sts this Christmas and coming year, including Claire.
Today’s Quotes:
“Some of the secret joys of living are not found by rushing from point A to point B, but inventing some imaginary letters along the way.” -Douglas Pagels
“Never get tired doing little things for others. Sometimes, those little things occupy the biggest part of their hearts.” -Author Unknown
“Have compassion for everyone you meet, even if they don’t want it. What appears bad manners, an ill temper or cynicism is always a sign of things no ears have heard, no eyes have seen. You do not know what wars are going on down there where the spirit meets the bone.” -Miller Williams
“You cannot do a kindness too soon, for you never know how soon it will be too late.” -Ralph Waldo Emerson
Sunday, December 13, 2009
On The Fourth Day of CDH Christmas....
On The Fourth Day of CDH Christmas CHERUBS is trying to give the CDH community hope and peace....
In November CHERUBS trademark and tort attorneys invited the owner of the trademark "Congenital Diaphragmatic Hernia Awareness" to sit down with our organization and our attorneys as a "CDH Summit" of sort to resolve the trademark issue and other issues. Our offer has been accepted and we will meet in January. After 6 years, this is the first time the other party has agreed to a sit down discussion so this is a very positive step for the entire CDH community and hopefully will lead to many new resources for CDH families.
Until the meeting and resolving of the trademark and other issues, CHERUBS will continue to work towards making Congenital Diaphragmatic Hernia Awareness free for everyone again, as well as helping to protect awareness of all causes through our Congressional Bill. The trademark trial will continue until a resolution has been made. Until that time, we would like to remind those of you who are listed as court witnesses that you have legal obligations to avoid communications with parties you are witnesses against and by law and ethics, they should not be contacting you. Hopefully this trademark matter will be resolved soon and we can all put this nonsense behind us and move forward.
We are very excited about this meeting and the opportunity for progress and peace that it brings!!!! We hope and pray that the CDH community returns to how it was 6 years ago when all charities, groups and families worked together and supported each other without conflict or competition. We ask that the entire CDH community pray for an end to the drama so that everyone can go back to focusing solely on helping families affected by Congenital Diaphragmatic Hernia. CHERUBS goal is, and always has been, to work with other CDH organizations and researchers to collectively help CDH families in a professional, respectful manner that always keeps the best interests of CDH families at heart and we are very hopeful and excited that others may join us in this focus.
In November CHERUBS trademark and tort attorneys invited the owner of the trademark "Congenital Diaphragmatic Hernia Awareness" to sit down with our organization and our attorneys as a "CDH Summit" of sort to resolve the trademark issue and other issues. Our offer has been accepted and we will meet in January. After 6 years, this is the first time the other party has agreed to a sit down discussion so this is a very positive step for the entire CDH community and hopefully will lead to many new resources for CDH families.
Until the meeting and resolving of the trademark and other issues, CHERUBS will continue to work towards making Congenital Diaphragmatic Hernia Awareness free for everyone again, as well as helping to protect awareness of all causes through our Congressional Bill. The trademark trial will continue until a resolution has been made. Until that time, we would like to remind those of you who are listed as court witnesses that you have legal obligations to avoid communications with parties you are witnesses against and by law and ethics, they should not be contacting you. Hopefully this trademark matter will be resolved soon and we can all put this nonsense behind us and move forward.
We are very excited about this meeting and the opportunity for progress and peace that it brings!!!! We hope and pray that the CDH community returns to how it was 6 years ago when all charities, groups and families worked together and supported each other without conflict or competition. We ask that the entire CDH community pray for an end to the drama so that everyone can go back to focusing solely on helping families affected by Congenital Diaphragmatic Hernia. CHERUBS goal is, and always has been, to work with other CDH organizations and researchers to collectively help CDH families in a professional, respectful manner that always keeps the best interests of CDH families at heart and we are very hopeful and excited that others may join us in this focus.
2009 International Children's Memorial Day
International Children's Memorial Day
Sunday, December 13, 2009
Candles will be lit at 7:00 pm in all time zones so that there will be constant light around the world in memory of our children in Heaven.
Over a quarter of a million babies have been lost to CDH since the year 2000.
Over 1600 babies are with Congenital Diaphragmatic Hernia each year in the United States alone. Approximately 800 of those babies will not survive. Below is just a small list of babies lost to CDH.
Over a quarter of a million babies have been lost to CDH since the year 2000.
Over 1600 babies are with Congenital Diaphragmatic Hernia each year in the United States alone. Approximately 800 of those babies will not survive. Below is just a small list of babies lost to CDH.
The 2009 National Children's Memorial Day is Sunday, December 13th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost.
Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year.
CHERUBS has participated in NCMD for over a decade. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances.
This week our web site home page will go black in memory of those cherubs lost as we list every child in membership lost to CDH. It remain this way until December 14th. This is our solemn tribute to those cherubs with wings as well as our way to bring awareness to the many children lost to CDH.
If you would like your cherub's name added or removed, please e-mail us at awareness@cdhsupport.org Members names will automatically be included. Please contact us if you do not want your cherub's name listed. Please make sure to have your membership form (profile) updated with your cherub's name and status if you have recently lost your cherubs.
Zoie Katrina Abel Caleb Joseph Acker Virginia "Addison" Acord Aileen Iris Adame Darrian E. Adams Darrian Earl Adams Tarquin Mikhail Adcock Myles Steven Albin Logan Andrew Alexander Sean Michael Alexander Edward Thomas Allen Guage Michael Allen Edyn Grace Allinson Megan Jane Allinson Cloudey Rae Anders Katherine Anderson Jaime Angela Andino Jakob Nelson Andriacchi Dale Linden Appleyard Sergio Salvador Moreno Arana Hunter Arlidge Mahalah Theresa Arnold Philip Meade Austin Tanis Erin Avond Reilly Caleb Ayers Victoria Marie Ayscue Baby B B Isabella Rose B Nathan Presley Bacon Matthew Benjamin Bailey Roslyn Renae Bailey Scarlett Emilie Bailey Joshua Bruce Baker D Vishva Balaji Natalie E. Bankes Chloe' Gabrielle Barbee Kyle James Barbee Nathan Barber Rachel Marie Barragan Conner Blake Bass Skylie Paige Bass Brady Edwin Sundt Baumann Meghan M. Baxter Seth Christopher Bebus Gracie Elizabeth Bell John Brody Bell Garrett Reid Benedict Brodie Mckibbin Bennett Anthony Joseph Bergman Jaila Berrios Nathan Lee Bevan Caylor Rebecca Bird Mena Hany Bishai Jayden Lee Blackshear Kimberly Anne Blackwell Sean Peter Blakeley Joel Archie Jed Abel Blakley Gage William Blalock Aaron Kyle Blank Josiah Stephen Blay Rachel Natalie Bloomfield Zachary Michael Blue Lars Blumenroehr Kyan Andrew Meer Bolin Ali A. Boner Alec Edward Bonser Landon Tyler Boothe Lauren Marie Bower Hannah Kate Bowring John Boydell Amy Marie Boyer Chaia D'Lynn Boyett Mitchell Robert Bracht Madeline Hope Bracken Kaitlyn Michelle Bradburn Jonathan Jeffrey Brandenburg Jr Kalley Madison Bray Serena Grace Brent Kayla Rae Brewer Riley Owen Brewer Madison Brooks Benjamin Joseph Broom Alan James Brown Hayden Isaac Brown Anneliese Mae Browning Nicholas Michael Brucher Jonathan David Bugeya Miller Kassidy Lynn Bumbaugh-Masser Kayci Ann Bunselmeyer Johnathon Patrick Burch Andrew Martin Burdette Layla Mae Burket Nikolas Antonio Burks Thomas Carter Burton Connor Christian Butler Jesse Draper Byington Tia Lillie Byron Mcdonnell Braden Ryan Cahalan William A. Calabria Kaitlyn Elizabeth Calhoun Tony Callejas Victoria M. Calligaris Brady Joseph Campbell Logan James Campbell Joshua Isaiah Candelario Brandon Michael Carman Denver-Wayne Alvin Carr Laila Alana Carrero Laila Alana Carrero Kristian Abel Carrion Maddison Jane Carroll Casey Benjamin Carrow Baby Owen Carter Daniel Paul Cartledge Callie Jane Casadecalvo Alexander Phillip Castaldo Starr Castronova Keira Isabella Caudle Rhyan Andrew Charles Noah Adan Chavez Tracy Eric Chavis Melinda Leigh Cheney Kayla Mae Michele Childress Alisha Lemuela Chiteme Emily Nicole Clark Justis Nathanial Clark Zane Joseph Clark Matthew William Clemens Tyler James Clewes-Pritchard Hunter Thomas Cobb Jaelah Iliana Coello Trinity Ann Coleman Myah Rose Collins Mackenzie Helena Collis Kasey James Colvin Tyler Conry Darrien Jeffrey Cook Amelia M. Coolbaugh Taylor Saige Cooper Wyatt Daniel Corfee Danielle Nicole Cottingham Gregory Zion Couret Christopher Cade Cowling Caleb Ray Cox Alexis Nicole Crane Sarah Jane Crawford Shannon Elizabeth Crawford Grayton Karleigh Creekbaum Hayden Alexander Crites Laura Grace Culler Kelsey Brooke Cunningham Sydney Elise Curlock Cassidy Riley Currence Niall Martin Curry Alicia Rose Curwain Christopher Lloyd Czarnecki Alyssa Murann Czarnecki Tyler Ray Czarnecki Ava Rose Daher Alexandra Clair Damico Isaac Shire Dardzinski Tommy Dennis Dawson Brandon Edward Day Jenna Rose Dayton William Francis Dechary Brian Allen Decker Abigail Nicole Dennis Mikayla Renee Depape Jeremiah Isaac Deskins Cierra Mae Desorcie Nathan Andrew Dewberry Grace Caroline Dill Luke John Ditchfield Nicholas Robert Doades Matthew Frank Doerscheln Ally Rosina Dorrington Jack Arthur Dowling Margaret Kathleen Dowtin Benjamin Required Doyle-Newe Maci Grace Drake Caleb Drew-Jones Ethan Michael Driller Floyd Edward Dubois Alex Firmin Duguay Vincent Steven D'Ulisse Amanda Leigh Durbin Jackson Levi Durst Mikayla Marie Duscher Jennifer Lynn Dyke Emily Elizabeth Templar Earl Christopher B. 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Gaff Cameron Faith Gallegos Nicholas Jacob Gang Gabriel Chance Garrison Steven Tyler Gartman Jake Tyler Gaspard Daniel O. Gates Averi Hope Gaynor Caleb James Bradley Geaghan Jade Alexandra Genys Jack Ryan Gillham Cameron Lamond Gilreath Sarah Kay Gleason Gwendolynn Leigh Glover Ruby Goldblum-Klebe Serra Meghan Golden Annabelle Marie Gomez Juan Pablo None Gonzalez Santiago Gonzalez Callie Grace Gould Christopher John Graepel Avery Lynn Graham Holden Wade Graham Kylee Freedom Green Reece H. Griffith Evan Robert Grisez Kaleb Matthew Groce Olivianna Grace Grover Gunner Alan Grubbs Kelley Gunner Alan Grubbs Kelley Rori Dyan Guerrero Anika Faith Guertin Madison H Joseph Michael Hales Celeste Hall Celeste M Hall Robert Severance Halliday, II Olivia May Halstead Zarek Ryan Halterman Hannah Alysabeth Hamby Nizhoni Lee Hamm Billy Thomas Hampton Rahul Hanabe Jackson David Haney Blake Donald Hanlon Daniel Ray Hardin Jeremy Lason Harer Brooklyn Rae Harker Sean E. Harkins Matthew Allen Harnish Matthew Michael Harper Ellianna Nevaeh Harris Joshua Ethan Harris Bethany Grace Hart Aidan Dominic Hartley Aidan Dominic Hartley Georgia Rose Harvey-Couch Rebecca Faith Havar Brayden Jay Hawkes Jenna Lynn Hawthorne Quincy Thomas Haynes Bryton Daniel Heaton Thomas James Hedrick Sade Hemmekam Ayden Kristopher Henderson Collin Scott-Patrick Hendricks Christopher A. Henricks Madalyn Alizabeth Hensley Adam A. Herrera Ethan Tyler Hess Harry James Hicks Harry James Hicks Adrian Pietro Higueros Megan Iona Hirst Jacob Russell Hitchcock Andrew Weston Hobbs Rebecca Christine Hodson Julia M Hoffman Madison Ann Holiday Hannah Rae Holland John Clinton Deloux Hollingsworth Annie Lee Hollinshead Braeden Ryan Holmes Darren A. W. Honsinger Taylor Louise Hopkins Brandon Dean Hornsby John Connor Hoskin Dylan Isaiah Houck Sylvia Houselog John Jr Tyleigh Peter Howard John Junior Tyleigh Peter Howard Jessica Howell James Patrick Howitt Julien Leroy Howson Jr. Matthew Glenn Hueser Lucas Danial Huether Elizabeth Joy Huffman Ethan Michael Huizenga David Hunter Evelyn Marie Hutchins Evelyn Marie Hutchins Belle Kathleen Hutto Lysa Marie Ienco Ryan Heustess Inman Morgan Marie Jackson Joel Archie Jacobs Ryan Joseph Russell Jaffry Anna Gerise Janousek Derek Quinton Jarvis Destin Constantine Dennis Jaworski Andrew Walter Jenkins Gregory Joseph Jennings Reese Sophia Jimenez Alexandria Katelyn Job Austin Bradley Johnson Matthew Ryan Johnson Nicholas Lee Johnson Samantha D. Johnson Maya Louise Jones Rachel Renee Jones Taylon Mitchell Jones Abigail Elizabeth Joos Findlay Lucas Jordan Morgan S Judd Bridget Hope Jussaume Mohamed Ibrahim Kalmoush Maximillian Gerard Kastner Madeline Jane Kayser Jacob Terence Kevin Keasley Rowan James Keating Kennedy Elaine Keckler Kyra Maxime Keller Gabriel Nicholas Gray Kelly Joshua Kelly Joshua Karl Kemper Kendall Reese Kennedy Cameron Anthony Kennell Christian Damon Keough Alyssa Catherine Kessner Jonathan James Kilby Matthew Taylor Kimberlin Zoe Candice Kiser Raphael Elior Kittel Levi David Klassen Madeline Emiley Klingbell William Gregory Klinzing William Klinzing, Jr Jordan James Knight Allison Ann Koetters Michaela Anne Kokinda Gabriel Joseph Kolacia Denali K. Korb William Anthony Kouskolekas Eli Michael Krejci Jack Lawrence Krueger Alexander Christopher Kruger Brandon Scott Kryk Sarah Belle Kuck Kaden Alex Kuehl Gabriel Robert Kyes Bradley William Labuda Darrin Zach Laengerer Carys Amber Lamb Forrest William Lamberton Sara Hope Lamkin Rachel Patricia Lancellot Colin W. Lansdon Daniel John Latchford Jeremy Ryan Lawrence Aayliah Daijah Lee Kayla Alexandra Lee Mathias Jacob Lehmann Aidan Gustavo Leibe Haines Becca Leighann Darragh Edward Lennon Raymond Drew Lewallen Sarah Christina Lewis Jane Olivia Lignana John W. Livingston Elizabeth Locke Max Matteo Logozzo Abigail Taylor Long Owen Isaac Looney Michael Joseph Lovejoy Sydney Isabella Lund Lamont Maurice Lusby, Jr Sean Matthew Lutz Kahlil Jamal Macklin Jessica Hope Macleod Lilly-Mae Macleod-Mace Jacob Benjamin Maddox Achyut Yogeswar Maganti Kevan Benjamin Mahendran Charley Brooke Zoya Mae Maher Caleb Martin Maldonado Gage Jonathan Manes Carsen Edward Manfull Austin Mangum Ethan William James Marchand Kaylie Kathryn Marczak Christiane Faith Maronyan Jake John Marshall Lewis James Marshall Kala Marti Dawson Gabriel Martie Johnathan Robert Martin Joshua Dylan Martin Mackenzie Anne Martin Pietra Agnelli Martinelli Julian James Martinez Landon E. Massey Elias Robert Massie Clayton Mast Elias Joseph Maté Cameron J Matthews Sam Oliver Matthews Sydney Olivia Matthews Bristol Hollings Mattson Ryan Matzuka Anthony Owen MAYER Tyson Jonathan Mccaffrey Tyson Jonathan Mccaffrey Sterling Bowen Mccaw Shawn Robert Mcdavitt Leon Patrick Mcdermid Jacob Collin Mcdonald Madison Eileen Mcdonough Claude Strother Mcgilberry Quinn Walker Mcginnis Jacob William Mcgrath Maryann -Lexi- Alexis Mckean Anthony Owen Mckenna Marshall James Mclennan Connor Ellis Mcluckie Connor Ellis Mcluckie Rhys Robert James Mcmahon Sarah Ann Mcmerriman Fletcher David Mcneil Joseph Patrick Mcpherson Joseph Patrick Mcpherson Margret Faith Mcswain Christina Medina Sarah Gwen Mehrhoff Rivka Chana Meir Alex Steven Douglas Mendoza Joshua Edward Mercier-Fehr Brandon James Meulebroeck Jacob Travis Meyerson Jacob Travis Meyerson Drake Alexander Michel Drake Alexander Michel Faith Grace Miles Alexyss Jean-Elizabeth Miller Dallas Ann Lynn Miller Gavin Michael Miller Kaleigh Grace Miller Megan Rene Miller Sara Joy Miller Taylor Jean Miller Brianna Marie Mills Hayley Caitlin Mills Elli Mills-Mair Logan Charles Minch Emmanuel Michael Minja Salvador Antonio Miramontes Careena Rose Mitchell Debwewin Mitchell Harold Jennings III Mitchell Chloe Olivia Mitchell-Greenfield Shawn Douglass Mixdorf Maxwell Christopher Mocahbee Jonathan Louis Moehl Mallory Viola Mohr Ryan Edward Mohr Ethan James Moloney Audrey Aileen Monreal Preston Carr Montague James John Patrick Moore Rowan Hale Moore Jack M. 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Nordin Liam Lloyd Nosek Kaiya Marie Nuas Aaron Josef Oakes Matthew Joseph O'Donnell Brendan Michael O'Flynn-Mitchell Kaden Bradley Oldham Gage Richard Ollerenshaw Joseph Macgarvey Olson Joshua Tobechi Onwubuche Gian Matthew Evangelista Ordinario Gian Matthew Evangelista Ordinario Emadeane Rose Owen Corben Hudson Blake Paone Jak Thomas Roy Parsons-Forshaw Aimée Elizabeth Paul Isabella Pavlinac Weslee Raymond Paxson Jadyn Ryanne Paxton Jadyn Ryanne Paxton Christian James Payne Jack Warren Payne Undecided Frederick Payne Isaac Connor Pedler Christian L Penrod Vito Robert Pensavecchia Vito Robert Pensavecchia Mikaihel Enrique Perez Layton Neal Perkins Hunter Blake Perry Devin Scott Person Brandon Daniel Peterson Matthew Ryan Peterson Anna K. 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Roberts Lauren Rose Roberts Nolan Ray Robertson Rhian Ainsley Robilliard Blair Geoffrey Robinson Ian Riley Robinson Wesley Alexander Robinson-Derrick Dominic James Rochon Evan Benjamin Rockwell Brandy Michelle Rogers Jacova Bethann Rogers Hailey Elizabeth Rogula Emma Jean Rollo Keyva Marie Roper Brayden William Ross Kayla Nicole Rubio Taylor Austin Runion-Hintzman Bennett Rezso Russell Jacob Luke Ryan Kaylee Ann Rynders Unknown S S Logan James Samples Oscar Sanchez, III Elizabeth Marie Sanders Louis William Santamore Isaac James Santimaw Mateo Santos Leah Catherine Satelle Haley Rose Saunders Colten Saylor Kaleigh Lynn Schad Blake Eaton Schauermann "Dee" Scheibly Little Dee C Scheibly Ben Schiffbauer Zane Luke Schluer Allison Faith Schmaltz Harrison Gregory Schrand Madison Lillian Schultz Hope Natasha Scott Camdyn Gage Seay Kolton Grayson Seibert Samuel Arthur Seidemann Madeline Sentner Vincent Alexander Serna Parker Daniel Setliff Autumn E. Sewell Charlie Shaheen Nolan Stanton William Sheldon Brittany Cathleen Shilts Billy S Shipp Payton Rose Shoemaker Kyle David Simon Trent Montgomery Sincavage Karan Singh Maya Delaney Sisco Michael Joseph (MJ) Jospeh Skaggs Dylan Palmer Skeer Amanda Brianne Slavin Nicholas Sean Slavin Anthony Bryce Smith Cherylynn Renee' Smith Damien Smith Dylan Joel Smith Ethan Paul Smith Kaitlyn Nichole Smith Aaron Spencer Makenzee Edell Spencer Makenzee Edell Spencer Casey Charles Spiezio Unknown Sponsler Scott William Spudich Joshua Lee Stauring Chase Daniel Steiner Hailey Elizabeth Steiner Marley Jane Steingass Hunter Jeffrey Stevens Ryan Williams Stevens Devon Dean Stevenson Alexandra Lize Steyne Kaylyn Marie Stiner Cody Travis Streetman Christopher Strode Eli Simon Stukalsky Ty Haywood Sudderth Hayley Elizabeth Sum Emily Ruth Surgis Emily Ruth Surgis Angel Sutton-Mcclean Hannah Elizabeth Svoboda Alisha Faith Swartz Eli H Sweigart Asher James Switzer-Mccoy Harry Brian Tabbernal Dylan Seyda Tachman Chance Mckenna Talamantez Jude Marie Cabitingan Tan Chloe Elizabeth Tate Madelyn Barbara Tatum Leslie Nicole Taylor Mersayd Margaret Taylor Sezel Jade Taysi Marco Telesca Skyla Manawa Temaipi Alexander Joseph Terry Alexander Frances Thalmann Mia Anne Thiessen Luke Joseph Thomas Amaiya Annalyce Thompson Amaiya Annalyce Thompson Jacob Wesley William Thompson Jake Andrew Thompson Wendy Thompson Christa Rizpah Thovson Baby Tipton Stephen Andrew Tomes Jeremy “Shane“ Torrence Christopher Michael Toth Jesse Christian Toth Aiden Zach Scott Towner James Garry Townsend Nicholas "Baby Nicky" Walter Treska Autumn Nicole Turner Cade Andrew Turner Jose Rupert Luis Twins Baxcajay Shelly Ann Underkoffler Anastasia Michelle Vallins Gavin Robert Vanbrocklin Angel M. Vanpuymbroeck Mckenna Lynne Varen Lucy Sofia Vaz Marco Vellutini Quinn Michael Verdin Colin Joseph Verwiel Alexis Nicole Vigo James Devin Ritz Vollmer Dakota Mae Vosse Yanis Wesley Vuillard Gabriel Bryson W Judy Keona W Zoe W Aiden Jason Wade Wyatt Walker Wagner Tegan James Walls Joseph Walsh Bailey Jaycob Walters Amy Josephine Warde Zachery Thomas Wasik Callum Philip Weber Shae Ashley Webster James Michael Weires Judy K. Wells Emma Margaret West Matthew Alexander Westpy Leanne Renae Wheatley Chastity Auron White Gunnar Ray White Holly Jane White Andrew Lee Whitten Stephen Lee Will Ashton Lee Williams Jarrod Allen Williams Jack James Willshire Macy Marie Wilson Lily Angel Winsell Michael Tyler Wolfe Lachlan Christopher Matthew Wood Oscar Steven Wood Dorothy Sariah Woods Spencer Allan Workman Daniel John Wright Jaelyn Mariana Sania Wright Nathaniel Martin Wubbels Zachary Yanofsky Isabelle Yap Katie Elizabeth Yerger Janessa Opal Margaret Young Aidan I. O. 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