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Wednesday, March 17, 2010

Congenital Diaphragmatic Hernia Forums - http://www.cdhforums.org



Over 100 different forums.  Over 3100 members.  Over 56,000 posts.




CHERUBS CDH Forums are the place to be for Congenital Diaphragmatic Hernia support and information.    Run by and for families affected by CDH, our forums are a 24 hours a day, 7 days a week source of support and friendship for our members.   Parents can learn what to expect while pregnant or learn about different issues and therapies.   100's of families have made friendships within our membership that will last lifetimes and some have taken friendships and information to forum their own groups and charities.  Nowhere else on earth can you find more compassionate, educated and determined CDH families than at CHERUBS where our only mission is to help those affected by Congenital Diaphragmatic Hernia.

Unlike social networking sites like MySpace and Facebook, our forums are 100% confidential.  You can relax and talk and be yourself and cry and vent - without worrying that family, friends or strangers are viewing.   Unlike listservs like Yahoo and Onelist, our forums are 100% safe.   There is no selling of your information, you will not start receiving spam junk mail. New memberships are indivually scanned and approved to keep drama off of our forums.   We provide a safe, comforting, drama-free environment for all CDH families.


With membership, CDH families also receive free on-line photo albums
and blogs to share their cherubs with the world. 
Join Our Forums  - membership is free!
Registration Agreement - there are a few rules everyone must follow to keep the forums safe
Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free. There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members' privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!


All forums are private unless indicated (Public)



Stories of Cherubs (Public)
  • Stories of Survivors (Public) - Stories of surviving CDH patients already printed in our newsletter,
    "The Silver Lining" and our book, "Stories of Cherubs" Please do not
    post your stories here (we'll post them for you after they are
    published) but please feel free to add updates to your stories or
    comment on other stories by using the Reply button on story post.
  • Stories of Cherubs In Heaven (Public) - Stories of CDH patients lost that are already printed in our
    newsletter, "The Silver Lining" and our book, "Stories of Cherubs".
    Please do not post your stories here (we'll post them for you after
    they are published) but please feel free to add updates to your stories
    or comment on other stories by using the Reply button on story post.

  • Introductions - EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.
  • Meet Other Parents Expecting Cherubs -
    Forum for parents Expecting CDH babies
  • Meet Other Parents of Surviving Cherubs -
    Meet the families of other surviving cherubs
  • Older CDH Survivors - Meet other adult survivors of Congenital Diaphragmatic Hernia
  • Meet Other Grieving Parents -
    Forum for those who have lost their cherubs
  • Parents Who Chose To Let Go Early -
    A judgement-free place for those that chose to terminate a CDH pregnancy
  • Dad's Place -
    A place for dad's to talk about CDH or sports or whatever they want.
  • Grandparent's Gathering -
    Grandparents have a double-dose of worry to deal with; worrying and
    sometimes grieving their cherubs and worrying and want to make it all
    ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.
  • Kid's Korner -
    Place for kids 10 and over to talk to other cherubs and siblings.
  • Expecting Babies After CDH -
    Having children after having a child with CDH
  • Trying To Conceive -
    Trying to have another baby after dealing with CDH (survivors & non-survivors)
  • Marriage & Relationship Issues -
    Having and/or losing a very sick child can wreck havoc on even the
    strongest relationships. Here you can talk without judgement and
    hopefully gain some info and support to help .
  • Inspirational Words -
    Inspirational stories, quotes and poetry. Please reference authors!
  • Prayer Requests -
    Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests
  • Non-CDH / Miscellaneous -
    For discussions other than CDH. Laugh about your kids antics, cry about
    losing a loved one, vent about your boss... just respect the site rules
    and you can write about anything here.


  • In Utero Procedures -
    For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures
  • CDH & ECMO -
    Dealing with CDH and Extracorporeal Membrane Oxygenation machines.
  • Feeding Issues -
    Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc
  • Developmental Issues -
    Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues
  • Long Term Pulmonary Issues -
    Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.
  • CDH & Syndromes -
    Dealing with CDH and syndromes or chromosomal abnormalities
  • Multiple Births -
    CDH within mulitples - twins, triplets, quintuplets, etc
  • Other Medical Issues -
    Dealing with chest pectus, scoliosis, allergies or any other medical issue
  • CDH & Growing Pains -
    Growing up after having CDH is still an uncharted territory. Here you
    can talk to other parents about dealing with puberty, playing sports,
    having children of their own and much more.
  • More Than 1 Cherub -
    Families dealing with more than 1 CDH baby (2% odds)
  • Medical Care & Insurance Praises / Comments -
    Parent opinions on hospitals / doctors / nurses and other medical care providers.
  • Other Conferences -
    Medical conferences, grieving parent conferences, etc




United States- For members in the United States





Southern USA - South United States




  • ~ Midwest USA - forum for all members in the Midwestern United States
  • Illinois - forum for members in Illinois
  • Indiana - forum for members in Indiana
  • Iowa - forum for members in Iowa
  • Kansas - forum for members in Kansas
  • Michigan - forum for members in Michigan
  • Minnesota - forum for members in Minnesota
  • Missouri - forum for members in Missouri
  • Nebraska - forum for members in Nebraska
  • North Dakota - forum for members in North Dakota
  • Ohio - forum for members in Ohio
  • South Dakota - forum for members in South Dakota
  • Wisconsin - forum for members in Wisconsin



  • ~ West USA - forum for all members in the Western United States
  • Arizona - forum for members in Arizona
  • California - forum for members in California
  • Colorado - forum for members in Colorado
  • Idaho - forum for members in Idaho
  • Montana - forum for members in Montana
  • Nevada - forum for members in Nevada
  • New Mexico - forum for members in New Mexico
  • Oregon - forum for members in Oregon
  • Utah - forum for members in Utah
  • Washington - forum for members in Washington
  • Wyoming - forum for members in Wyoming




Canada - forum for CHERUBS members in Canada

Mexico - forum for CHERUBS members in Mexico


  • Belgium
    - forum for CHERUBS members in Belgium
  • Denmark
    - forum for CHERUBS members in Denmark
  • France
    - forum for CHERUBS members in France
  • Germany
    - forum for CHERUBS members in Germany
  • Great Britain
    - forum for CHERUBS members in England
  • Greece
    - forum for CHERUBS members in Greece
  • Ireland
    - forum for CHERUBS members in Ireland
  • Spain
    - forum for CHERUBS members in Spain
  • Italy
    - forum for CHERUBS members in Italy
  • Lithuania
    - forum for CHERUBS members in Lithuania
  • The Netherlands
    - forum for CHERUBS members in Holland
  • Northern Ireland
    - forum for CHERUBS members in Northern Ireland
  • Norway
    - forum for CHERUBS members in Norway
  • Romania
    - forum for CHERUBS members in Romania
  • Scotland
    - forum for CHERUBS members in Scotland
  • Australia
    - forum for CHERUBS members in Australia
  • New Guinea
    - forum for CHERUBS members in New Guinea
  • New Zealand
    - forum for CHERUBS members in New Zealand




  • Hong Kong
    - forum for CHERUBS members in Hong Kong
  • India
    - forum for CHERUBS members in India
  • Japan
    - forum for CHERUBS members in Japan
  • Malta
    - forum for CHERUBS members in Malta
  • Singapore
    - forum for CHERUBS members in Singapore
  • Turkey
    - forum for CHERUBS members in Turkey




  • Brazil
    - forum for CHERUBS members in Brazil
  • Chile
    - forum for CHERUBS members in Chile
  • Columbia
    - forum for CHERUBS members in Columbia
  • Peru
    - forum for CHERUBS members in Peru
  • Venezuela
    - forum for CHERUBS members in Venezuela





  • Israel
    - forum for CHERUBS members in Israel
  • Pakistan
    - forum for CHERUBS members in Pakistan
  • Saudi Arabia
    - forum for CHERUBS members in Saudi Arabia




Meet Our Wonderful Volunteers! - Meet our wonderful volunteers and learn how you too can help at CHERUBS!

Volunteer Comments, Recruitment and Information - Want to praise your state rep or find out who to thank for that holiday
card? Want to see what positions need to be filled? Here is the info! :)
at

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You may contact us confidentially at cpab@cherubs-cdh.org