April 19, 2014:
Showing posts with label Louisiana. Show all posts
Showing posts with label Louisiana. Show all posts
Tuesday, April 29, 2014
Light Up for CDH Awareness - Superdome in New Orleans
On April 19, 2014 the Superdome in New Orleans, Louisiana lit up for Congenital Diaphragmatic Hernia Awareness!
Labels:
April 19,
Building,
cdh,
cdh awareness,
cdh awareness day,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Awareness,
Light Up,
Lit Up,
Louisiana,
New Orleans,
Superdome
Thursday, April 11, 2013
MEET OUR VOLUNTEERS - Lisa Thibeau
Lisa is mom to Adam Alexander. Adam was born 8/14/2002 with undiagnosed Right sided CDH. He was born in Hammond, Louisiana and transferred by Life-Flight 4 hours later to Ochsner Hospital. He was stable enough for his repair on day 3 and was on ECMO on day 4. He spent 10 days on ECMO, 23 days on a respirator, and 44 days on Oxygen. He had a fundoplication and a g-tube placed (removed at 13 months), and 2 inguinal hernia repairs before coming home on October 17, 2002. Today he is almost 10 years old, he has interstitial lung disease and asthma. His last surgery was January 2010 to repair a patent ductus arterosis. He loves lego, computers, play station and swimming, he is entering the 5th grade this year! Lisa is also the State Representative for CHERUBS in Louisiana. She is married to Dana Thibeau, they also have two amazing daughters Skylar (14) and Katelyn (6), is a stay at home mom, and all of the children are home schooled. She is active in her local home school group, and Bible Drills. |
Labels:
Awareness,
cdh,
Charity,
CHERUBS,
Congenital Diaphragmatic Hernia,
Louisiana,
New Orleans,
Research,
support,
Support group,
volunteer
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