Showing posts with label cdh song. Show all posts
Showing posts with label cdh song. Show all posts

Monday, March 29, 2010

New CDH Awareness Song and Video! "I'll Never Let You Go" by The Jammies

 
New CDH Awareness Song and Video!




"I'll Never Let You Go" by The Jammies

Available on iTunes soon. Proceeds donated to CHERUBS to help raise CDH Awareness

http://itunes.apple.com/us/artist/the-jammies/id289127263

Featuring 736 children and adults born with Congenital Diaphragmatic Hernia, affectionately known as "cherubs". Members of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support http://www.cdhsupport.org

The Jammies - http://www.thejammiesmusic.com/

CHERUBS - http://www.cdhsupport.org

Save the Cherubs CDH Awareness Campaign - http://www.savethecherubs.org

Congenital Diaphragmatic Hernia

CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.

Thursday, September 3, 2009

New CDH Kid's Song

Some of the kid's at our 2009 CHERUBS International Congenital Diaphragmatic Hernia conference performed for us.



Lyrics to "I'm a Real Live Cherub":

I'm a real life cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
The doctor put it all back and here's where he fixed me!


We would love to compile lots of videos of cherubs, siblings, cousins, friends (anyone!) who wants to video singing this song! You can submit your videos to membership@cdhsupport.org

Special thanks to Brandon and Alysha for organizing that and thank you to Ian, Alysha, Brooke, Brandon, Alyssa and Brandon for performing!!

Stay tuned for the kid's CDH book coming soon and the CDH song "I'll Never Let You Go" by The Jammies!!!

For more information on CDH, you can visit http://www.cdhsupport.org