Showing posts with label resources. Show all posts
Showing posts with label resources. Show all posts

Thursday, April 30, 2009

Resources for Families Dealing With Congenital Diaphragmatic Hernia

I've been told today in several ways that our resources are hard to find - since so many new and expectant families had no idea we offer so much! So I wanted to make a list of what we offer and a link to the services to make it easier:

Our Web Site - more information about CDH than anywhere on the net with 1000's of pages! http://www.cdhsupport.org

All About CDH - information, diagrams, videos and more. http://www.cdhsupport.org/cdh/index.php

CDH Forums for Families - over 100 posts each day, 100's of topics. Get advice, help, info and support 24/7 from parents who have been in your shoes. Membership is FREE and it is all confidential. http://www.cdhsupport.org/members

CDH Parent Reference Guide - simple, easy to understand information on CDH written for parents whose babies were newly diagnosed. http://cdhsupport.org/members/dload.php?action=file&file_id=32

CDH Brochure - in 4 different languages http://cdhsupport.org/members/dload.php?action=category&cat_id=10

CDH Research - research library, survey results and coming very, very soon an interactive CDH research survey for parents and researchers http://www.cdhresearch.org

Newsletters full of stories, news and much more -http://cdhsupport.org/newsletter/

International CDH Conference - members from several organizations and CDH researchers coming together http://www.cdhconference.org

Congenital Diaphragmatic Hernia Day - May 17, 2009 http://cdhsupport.org/members/portal.php?topic_id=3012

CDH Events - tons and tons of events and get-togethers and fundraisers around the world http://cdhsupport.org/members/viewforum.php?f=184

State & International Representatives - find local support. http://www.cdhsupport.org/volunteers/reps.php

On-Call Parents - need to talk to someone? They are on-call for you. http://www.cdhsupport.org/volunteers/oncall.php

Videos of Cherubs - dozens of videos of cherubs, events, and more. http://www.youtube.com/user/cdhsupport

CDH Photo Albums - 100's of photos of children and adults born with CDH http://cdhsupport.org/members/album.php

CHERUBS Adopt A Hospital Program - help us to help families around the world by adopting a hospital to provide materials to for new CDH families http://cdhsupport.org/members/portal.php?topic_id=3013

Our Blog - http://cdhsupport.blogspot.com

Free On-Line Albums for CDH Families - http://cdhsupport.org/members/album_personal_index.php

Free Blogs for CDH Families - keep your family and friends updated with these free blogs on our CDH informational site so they can also research! http://cdhsupport.org/members/weblogs.php

CDH Blog Ring - group of CDH blogs written by parents http://www.ringsworld.com/cdhblogsring/home.html#2

CDH Awareness Ticker - drop by and see how many babies have been born with CDH since 2000 as a new baby is diagnosed every 6 minutes somewhere in the world. http://cdhsupport.blogspot.com/2009/04/over-half-million-babies-born-with.html

Research Library - add your links or view the links of others to CDH research articles and sites. http://cdhsupport.org/members/links.php

Personalized CDH Awareness Ribbon - Order a personalized ribbon with your cherub's name, date(s) and photo - send them to ribbons@cherubs-cdh.org

"Stories of Cherubs" Vol. I & II - full of stories of 100's of families who have dealt with CDH http://www.cafepress.com/cherubs/6191951

CDH Calender - featuring 100's of faces of children born with CDH http://www.cafepress.com/cherubs.337095355

Congenital Diaphragmatic Hernia Awareness Items - including Clothes, Bibs, Maternity Shirts, Totes, Journals, Posters, Hats, and much, much, much more - http://www.cafepress.com/cherubs

CDH Awareness Ribbon Car Magnets - http://www.supportourribbons.com/m/160153 Also available in a larger size

CDH Awareness Ribbon Buttons - just 18 cents each!!!! http://cdhsupport.org/members/viewtopic.php?t=3001

CDH Awareness Bracelets - pink, blue and yellow silicone bracelets that say "CDH Awareness" http://cdhsupport.org/members/viewtopic.php?t=2436&start=165

CDH Awareness Postage Stamps - http://www.zazzle.com/cherubs

CDH Awareness Mailing Labels - download and print for free! http://cdhsupport.org/members/dload.php?action=category&cat_id=17

Random Acts of Kindness CDH Awareness Cards - there is no nicer way to raise awareness! http://cdhsupport.org/members/dload.php?action=file&file_id=85

CHERUBS Facebook Group - talk to other CDH parents on Facebook http://apps.facebook.com/causes/44070/11273893?m=6d54c0aa

CHERUBS Myspace Page - talk to other CDH parents on Myspace http://www.myspace.com/diaphragmatichernia

More Downloadable Info - info on where donations go, our non-profit paperwork, older newsletters, event brochures and more! http://cdhsupport.org/members/dload.php

This is just a small list of what we offer and doesn't even include most of our awareness activities and projects. Drop on by our site and take a look at how CHERUBS has been helping families deal with Congenital Diaphragmatic Hernia for 14 years.