Prayers & Quotes for March 12, 2010

Prayers & Quotes for March 12, 2010

If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

Please keep the following in your thoughts and prayers:

Newborn cherub Jayden G. arrived 2/19! He has been on ECMO and came off successfully on the first try. His kidneys are now not functioning like they should and he has been put on kidney dialysis and improvement needs to be seen soon. He has not had his CDH repair.

Newborn cherub Kellan V. arrived 2/14! He is working on coming off the vent, for he has had his CDH repair and is going strong!

Cherub Kiyari M. recently had her PDA closed, however this closure was acting like a pop off valve and now with it being closed as caused her to pass out multiple times, she has had a seizure and a stroke. They removed the plug in her heart on 3/6 and now is on the road to recovering. Please pray doctors are able to find what is happening with Kiyari and the best course of treatment for her pulmonary hypertension.

Angel cherub Caleb has a new sister Ashlynn C. Ashlynn arrived just shy of 36 weeks. Prayers for mom Shandi and baby Ashlynn.

Cherub Nicole T. is had surgery on March 9th to place growing rods, to help fix her scoliosis. She is on the road to recovering.

Cherub Jacob G. has had reoccurring pneumonia and has been in the hospital several times. He is home again, but needs our prayers that doctors can figure out the best course of treatment for Jacob and his lungs.

Cherub Jaxson R. is recovering from RSV, but he is finally home from the hospital.

Cherub Keith H. reherniation surgery went well! He came off the vent after surgery and is recovering.

Cherub Owain P. has reherniated for a 3rd time...surgery is pending.

Cherub Clodagh D. is having a CDH repair to fix her eventration....surgery date is pending.

Cherub Alexander H. is finally coming home! Hopefully he is home for his 2nd birthday!

Newborn cherub Gage H. arrived 3/9 and is fighting!

Cherub Chase K. is having seizure activity and will be put on medication. They are waiting in the hospital for an eeg to be done.

Newborn cherub Micah P. is still in the hospital and needs our prayers and thoughts.

Cherub Scarlette is having a g-tube/fundo/appendectomy and stomach biopsy on 3/22.

Cherub Navaeh is ill and needs our prayers to figure out the cause.

Cherub Carter A. is struggling with a bad cold.

To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


Cherubs on Their Way:

Cherub Mekhaai R., due 3/17

Cherub Jeremiah M., due 3/30

Cherub Austin M., due 3/30

Cherub "baby girl J"., second CDH child born into this family

Cherub Joshua C., due 6/4

Cherub Noah A., due 5/30

Cherub Ian H., due 4/26

Cherub "baby boy" K., due 4/16

Cherub "baby girl" A. due 5/20

Cherub Elijah V. due 7/12

Cherub due in about 9 weeks to Shea, Josh & Janzen

All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


Newly Grieving Families:

To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


Today’s Quotes:

"Learn to get in touch with the silence within yourself, and know that everything is life has purpose. There are no mistakes, all events are blessing given to us to learn from." - Elisabeth Kubler-Ross

"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." - Leo. F. Buscaglia

"Nobody grows old merely by living a number of years. We grow old by deserting our ideals. Years may wrinkle the skin, but to give up enthusiasm wrinkles the soul." - Samuel Ullman

"Nurses dispense comfort, compassion, and caring without even a prescription." - Val Saintsbury

Important Update On The Trademark On Congenital Diaphragmatic Hernia Awareness

Dear CHERUBS Members, Fan, Family and Friends,

Though paperwork has not been filed officially with the USPTO (you can stay updated through their site at http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2 ), Breath of Hope has posted the following:

http://breath-of-hope.blogspot.com/2010/03/statement-on-trademark-congenital.html

Tuesday, March 9, 2010

Statement on Trademark Congenital Diaphragmatic Hernia Awareness

In light of the ruling regarding the trademark for Congenital Diaphragmatic Hernia Awareness, Breath of Hope has decided to cancel the registered mark. While we feel that the ruling was unfavorable, the Board of Directors at Breath of Hope has decided that we need to move forward in other areas concerning awareness, helping families with this truly horrible diagnosis, and raising money towards research.

Our intentions of trademarking Congenital Diaphragmatic Hernia Awareness were never to stop others from raising awareness, create lawsuits, or negatively impact the CDH community. Instead, we were attempting to protect what we perceive as our intellectual property. It also should be stated there are literally thousands of health conditions as registered trademarks in use today, including Prematurity Awareness Day®, which does not impede anyone from raising awareness or conducting research.

We, the Board of Directors, are saddened by the misleading, incorrect, and negative information that has been advertised all over the internet by others. We have no intentions of slandering any individuals or other organizations, we feel strongly that this is immature behavior and it is a deterrent from what our goals really are. We will continue to strive to support parents and families, the medical community and other CDH groups and nonprofits.

- Breath of Hope Board of Directors

We are very, very glad that they intend to remove the trademark. It would be an answer to prayers said by 1000's in the CDH community for many years. I hope and pray that this post is truthful and that BoH is quick about filing to remove this trademark. This would be a great relief to all the CDH community and CDH Awareness would be returned where it belongs - to ALL families and researchers affected by Congenital Diaphragmatic Hernia.

However, I'm sad that it's taken so much time, effort, resources and conflict in the CDH community to deal with this trademark from the start. Several years, over 6500 signatures from CDH families from around the world, lawyers and a very firm letter from the USPTO itself to let Breath of Hope know that they indeed, had no hope in this case to get them to remove the trademark... all of it needless and negative and not serving the CDH community in any positive way. None of this should have happened.

I also feel that the inaccuracies in that statement and blatant lies that it was never used to harm others (there are court records in 2 different courts plus IRS records to prove otherwise) and there are other trademarked cases of awareness on the books (yes on diseases - but not 1 on awareness of a cause except this one) are just further needless attacks on others who spoke up against this behavior.

I hope and pray that the attacks and false filings against CHERUBS and other stop and that ALL CDH charities focus on their own services and members and work towards a more positive CDH community like the one we had before all this started.

Our babies deserve that.

On behalf of CHERUBS and CDH families in 38 countries, I say to Breath of Hope, Incorporated... "Thank you for doing the right thing by our children".

This is a GLORIOUS day for ALL the Congenital Diaphragmatic Hernia Community!!!!!! Through the hard work, dedication and commitment of several CDH organizations, 1000's of families, 100's of researchers and our amazing pro bono attorneys, Breath of Hope has finally made the right decision CDH awareness will be restored. Way to go everyone - we have done our children proud!!!!!

Dawn M. Torrence Williamson
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Volunteer run 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org
http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

831 Philanthropy Project - Photographer donates portion of sales to CHERUBS for the month of March!

8 3 1 Photography is donating a portion their profits for March to CHERUBS in memory of Jana Moldenhauer Lewallen's adorable son Drew. 

Thank you 8 3 1 and Jana! :)


http://mim.io/310b2

831 Philanthropy Project

To Whom Much is Given, Much is Expected!

We here at 831 Photography have been blessed! We firmly believe that "To whom much is given, much is expected!" and so we started the 831 Philanthropy Project!


Each month, we choose a cause or organization that we believe in and we donate a percentage of our sales to them.


This is not a percentage of profit, this is a percentage of TOTAL SALES!


March's Project: CDH Awareness


The following was written by my friend Jana. The picture above is her son Drew. It is a long passage, but please take the time to read it and you will understand why this cause is so near to my heart. Drew would have turned 4 years old this month and that is why I am dedicating March's donations to him!

I discovered that I was pregnant in July 2005. In October of that same year, my husband and I went for the routine ultrasound given mid-pregnancy. The hospital staff acted strangely but would only tell us that we could not see all four chambers of the heart. We thought it curious because we could clearly see them. Three days later, we found ourselves in the office of a perinatologist receiving a level II ultrasound.


The doctor entered the room and bluntly told us that our son had a condition known as a congenital diaphragmatic hernia (CDH) and had a 50% chance of survival. I was offered the option to terminate the pregnancy but, in conjunction with my husband, I declined. What followed was an anxiety filled pregnancy, multiple frequent ultrasounds, biophysical profiles and stress tests. I also did extensive research on the condition and what I found was not promising.


Congenital diaphragmatic hernia affects approximately 1 in every 2,000 to 3,000 pregnancies. There is no known cause and little research being done on the defect and its cause(s). Outcomes depend on the severity of the defect. Simply put, a congenital diaphragmatic hernia is when the diaphragm does not completely form during weeks 7-10 of development. This lack of complete formation of the diaphragm allows the stomach, intestines, liver, etc. to migrate into the chest cavity. This in turn stunts lung development. Children born with CDH are almost always placed on a ventilator to assist in breathing.


One of the biggest problems with CDH is known as persistent pulmonary hypertension of the newborn (PPHN). This is when the heart and lungs cannot adequately oxygenate the blood. In severe cases, the child will need to be put on extended heart/lung bypass known as ECMO (extra corporeal membrane oxygenation). If this happens, the chance of survival decreases drastically.


It was decided that labor would be induced on March 7, 2006, in order to allow the full medical team needed to be present at the birth. The induction did not work and Raymond “Drew” Lewallen was born via c-section on at 11:58 a.m. March 8, 2006. Drew weighed in at a strapping 7 lbs. 10 oz. He let out two weak cries before he was intubated and rushed out of the room. A doctor pulled my husband out into the hallway to tell him that things did not look good at all. It was then left to my husband to tell me.


After his birth, doctors were able to definitively see Drew’s lung tissue and what organs were in his chest (the fewer, the better). ALL of his abdominal organs were in his chest and he had 85% of a right lung and a left lung “bud.” Approximately 30 hours after birth, Drew was placed on ECMO. He remained on ECMO for 15 days and was successfully weaned off of it.


He underwent extensive repair surgery, moving his organs back to his abdomen and patching the hole in his diaphragm. Drew did well through surgery and thereafter. However, while on ECMO, his kidneys were irreparably damaged and he suffered kidney failure. We were told this heart failure would happen fairly quickly.


On April 16, 2006, Easter Sunday, my husband and I made the decision to discontinue support for our son. Drew passed away in my arms at 3:29 p.m., never having taken a breath on his own. He lived and fought for 5 weeks and 4 days.


Drew’s father, older sister and I were blessed to have him in our lives, even for such a brief period of time. His little brother was born 1 year and 3 days after his death. Drew remains a daily presence in our lives. I founded an informational website called CDH Rainbows for families dealing with CDH and work with CHERUBS, a non-profit, to continue to raise awareness of this devastating condition. Over the past couple of years, more and more research has begun to discover the causes of CDH and the best way to treat CDH. CHERUBS is on the front lines fighting for such research on a daily basis.


We will be donating 5% of our sales in March to CHERUBS in honor of Drew

If you have a cause or organization you believe in, feel free to submit it to us! You can email: Stephanie@831Photography.com and submit your idea, cause or organization.

Cherubs are proclaimed the international symbol of Congenital Diaphragmatic Hernia Awareness

Long before there were "awareness ribbons" and "awareness bracelets", long before it was fashionable to wear a color for a cause - there was CHERUBS.  In 1995, with the creation of the world's first CDH non-profit, cherubs were proclaimed the international symbol of Congenital Diaphragmatic Hernia Awareness.   Most CDH families refer to their CDH patients as "cherubs".

Cherubs are baby angels, symbols of hope, faith, miracles for newborn cherubs and survivors.  They are a symbols of those babies lost to CDH as well.  This symbol was carefully chosen to represent all families affected by this devastating birth defect and CHERUBS was named for 2 babies in particular;  Preston Montague and Andrea Jones, both lost to CDH and both hospital roommates of our founder's cherub, Shane Torrence.   There could not be a more accurate or special symbol for babies affected by Congenital Diaphragmatic Hernia than cherubs.

Since 1995, the word "cherub" has raised such CDH Awareness on the internet!   Do a search for "cherub" or "cherubs" on any major search engine and you will find CHERUBS in the top 10 - raising CDH awareness along the way!  In fact, several CDH families found our organization accidentally by searching for baby angels on-line.   Even Wikipedia has included our charity on their page about cherubs. 

Look at all the wonderful CDH awareness we are raising on-line every time someone does a search for "cherub" or "cherubs".   These ranks are out of the millions of web sites that feature angels and cherubs.

Google - Ranked #2, behind Wikipedia's page where we are also included
Yahoo - Ranked #2, #5, #8 and #9
Bing - Ranked #3
Ask.com - Ranked #1, but that has nothing to do with sharing Wendy Petty as a spokesperson for Ask.com and CHERUBS!  :)
Altavista - Ranked #2, #5, #7 and #8
Dogpile - Ranked #6
Goodsearch -  Ranked #2, #5, #8 and #9 but they pull from Yahoo.com

 

In celebration of 15 years of serving the Congenital Diaphragmatic Hernia community and in celebrating our unique symbol of hope, miracles, faith, kindness and compassion, we will be soon adding more "cherubs" into our sites, projects, and the CDH Awareness Shop!

Prayers & Quotes for February 18, 2010

Prayers & Quotes for February 18, 2010

If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

Please keep the following in your thoughts and prayers:

Cherub Keith H. has reherniated. His surgery repair is scheduled for next week.

Cherub Owain P. has reherniated for a 3rd time...surgery is pending.

Cherub Jim Beau R. is having a VSD repair on 3/9.

Cherub Clodagh D. is having a CDH repair to fix her eventration....surgery date is pending.

Newborn cherub Molly G. is still in the hospital. She is coming off her paralyzers and starting to move and open her eyes.

Cherub Nicole T. is having surgery on March 9th to place growing rods, to help fix her scoliosis.

To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


Cherubs on Their Way:

Cherub Noah A., due 5/30

Cherub Ian H., due 4/26

Cherub Jayden G., due 3/18

Cherub Jeremiah M., due 3/30

Cherub Mekhai R., due 3/17

Cherub "baby boy" K., due 4/16

Cherub Austin M., due 3/30

Cherub "baby girl" A. due 5/20

All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


Newly Grieving Families:

Newborn cherub Ruben A. was born 2/17 at 10:40am and grew his wings at 3:15pm. Please keep this precious family in your thoughts and prayers in the days to come.

To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


Today’s Quotes:

"Time is too slow for those who wait, too swift for those who fear, too long for those who grieve, too short for those who rejoice, but for those who love, time is eternity. " -Henry Van Dyke

"Life is a great big canvas, and you should throw all the paint on it you can." -Danny Kaye

"Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies." -Erich Fromm

"My attitude is that if you push me towards something that you think is a weakness, then I will turn that perceived weakness into a strength." - Michael Jordan

Congenital Diaphragmatic Hernia Awareness Ribbon - http://www.cdhawarenessribbon.org

http://www.cdhawarenessribbon.org

Official Congenital Diaphragmatic Hernia Awareness Ribbon

The official CDH Awareness Ribbon is recognized in 38 countries and all 50 states and by many non-profit organizations, groups and hospitals.   It was voted on by CDH parents, is trademark and copyright free and is not used by any other cause.  

The Congenital Diaphragmatic Hernia Awareness Ribbon is as unique as the babies born with CDH.  The awareness colors for birth defects are pink and baby blue, so they were incorporated into our ribbon.   The official Congenital Diaphragmatic Hernia Awareness Ribbon is pink, baby blue and light yellow, with white clouds to represent the 50% of babies born with CDH who do not survive.  It is original, not used by and doesn't infringe upon any other cause - yet, it also signifies that CDH is a birth defect. The baby colors truly keep the meaning of the cause - helping CDH babies - close to heart.

This is the Congenital Diaphragmatic Hernia Awareness Ribbon recognized by the members of the Alliance of Congenital Diaphragmatic Hernia Organizations. Is it recognized by CHERUBS, the world's first and largest CDH organization with over 3000 members in 38 countries. It is the ribbon associated with the Congenital Diaphragmatic Hernia Research Study and the CDH Research Congressional Bill.   Wikipedia recognizes this ribbon. There is even a postage stamp with this ribbon, created February 12, 2008.  Not to mention 1000's of items with this ribbon available on our stores and various other sites.

If you have a child born with CDH, make sure to request a free personalized Congenital Diaphragmatic Hernia Awareness Ribbon.

CDH Awareness Ribbons

• Official CDH Awareness Ribbon
• CDH Ribbon History
• CDH Awareness Shop
• Request A Free Personalized CDH Awareness Ribbon
• Personalized Ribbons On Cafepress
  
• What is CDH?
• Contact Us
• CHERUBS

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia (CDH) occurs when the diaphragm fails to fully form, allowing abdominal organs to move into the chest cavity and preventing the lungs from having enough room to grow. CDH occurs in 1 in every 2500 babies. 1600 babies in the US every year. Over a half million babies around the world since 2000. Every 10 minutes a baby is born with CDH.

CDH is as common as Cystic Fibrosis and Spina Bifida but there is little research and awareness and virtually no media coverage.   At CHERUBS, e are working hard to change that.

Babies born with CDH undergo surgeries and long hospitalizations. 50% of babies born with CDH do not survive. The cause is not known.

Please join us in learning about CDH and raising awareness so that more research may be done and more babies saved.

For more information about CDH, you can visit www.cdhsupport.org

Some of the wonderful items available on Cafepress with personalized Congenital Diaphragmatic Hernia Awareness ribbons:

Congenital Diaphragmatic Hernia - CDH HOPE Totebag Program - http://www.cdhhope.org

 http://www.cdhhope.org

 CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Delivery of the first CDH HOPE Totebag to the Hobbs family at Duke University Medical Center

CDH HOPE Totebag Project

• CDH HOPE Totebags Homepage
• Project Mission
• Hold A Cherub Shower
  
• Project History
• Participants
• Families Assisted
• How You Can Help
• Wish List
  
• Recent Donors
• Contact Us
• CHERUBS

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers.  Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia.

Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies.   CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.  The cause is not known.  

50% of babies diagnosed with CDH do not survive.   Of those that do survive, sometimes long hospitalizations and other issues occur.  It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care.  Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family.   Our CDH Baby Book is over 200 pages of valuable CDH information and advice.

Over 100 new and expectant CDH parents join CHERUBS each year.   This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia. 

These bags will ONLY go to families affected by Congenital Diaphragmatic Hernia.   They will be sent out  to families in the United States as they join CHERUBS membership.

http://www.cdhhope.org

For more information on CDH and CHERUBS, you can visit our site at http://www.cdhsupport.org

If you would like to make a tax-deductible donation of items or money, you can mail it to:

CHERUBS
3650 Rogers Rd #290
Wake Forest, NC 27587

 

Project Participants:   All CDH families and friends can participate in this project to honor your cherub and to help other CDH famililes.  Each donated item is labeled with the donor's name and the name of the cherub honored.   No member is required to fill entire bags or hold events.  Simply donate what you can, when you can!  

Congenital Diaphragmatic Hernia Hospitals - http://www.cdhhospitals.org

CHERUBS new web site:

http://www.cdhhospitals.org

includes: our Adopt A Hospital Program, a list of CDH clinics, ECMO Center, Fetal Center and members of the International CDH Study Group

CDH Adopt A Hospital Program

• Program Mission

• Current Adoption List
  

• ACDHO Listed CDH Research Hospitals

• ECMO Centers

• Adopt A Hospital Now

CHERUBS Adopt A Hospital Program

Provide Information & Support To Families Affected By Congenital Diaphragmatic Hernia

Would you like to help families affected by Congenital Diaphragmatic Hernia? Would you like to do something in honor or in memory of a cherub? CHERUBS has created a new program that will soon be helping CDH families across the country.

How does it work?  You make a $100 donation to CHERUBS and we order and put together the materials and send them to the hospital in honor / memory of your cherub.


CHERUBS Adopt A Hospital Care Package Includes:

• 1 copy of "Stories of Cherubs" Volume I
• 1 copy of "Stories of Cherubs" Volume II
• 1 CDH awareness mini-poster
• 20 Parent Reference Guides
• 30 CHERUBS CDH Info Brochures
• 40 CDH Awareness Ribbon Pins
• 10 copies of our latest newsletter

Each item (except the CDH ribbon pins) is labeled with a sticker that says "Donated in honor of ________" or "Donated in memory of _________"

These items are then available to all CDH parents admitted into these hospitals. Upon joining CHERUBS, new parents will soon receive more information and support through our CHERUBS H.O.P.E. program.

These items are an invaluable source of support and information for families affected by Congenital Diaphragmatic Hernia. Because there are so many hospitals, CHERUBS cannot possibly afford to donate to all hospitals and we are inviting our members and the general public to help us to help CDH families.

Your donation is tax-deductible!

 

Congenital Diaphragmatic Hernia Awareness Day

 http://www.youtube.com/watch?v=U4Unz-z4um4

Petition against the trademark on "Congenital Diaphragmatic Hernia Awareness"

http://www.ipetitions.com/petition/cdhawareness/

Over 6500 signatures of CDH families, doctors, nurses and friends, way to go everyone! Thank you so much for caring about these children and doing what's right. If you haven't signed yet, please do!   Or just take a look at the comments on the signatures or read the blog to learn more about this trademark.

Because of this trademark, CHERUBS does NOT participate in "Congenital Diaphragmatic Hernia Awareness Day" - it's used as "evidence" of why 1 group should own CDH awareness.  It is also why we do not use turquoise.

This is a decision CHERUBS (and several other groups) made to protect our organization and members and to help fight for the right to raise Congenital Diaphragmatic Hernia Awareness freely, without drama or lawsuits or other nonsense that have no place in the CDH community.   It is a decision to take a stand against it and not promote it.

We fully encourage all CDH families to raise awareness in as many ways as possible and will continue to fight for your rights to do so.

This is the ONLY trademark on record at the USPTO on awareness of a health issue.  There are some trademarks on events (for example - "Birth Defects Awareness Day" by the March of Dimes) - but none on generalized awareness of a cause.  Imagine a trademark on "Breast Cancer Awareness" or "Autism Awareness" - it would  never happen.  But because, ironically, there is no awareness on CDH, the attorney at the United States Patent & Trademark Office just approved the application without any research on what Congenital Diaphragmatic Hernia is.   CHERUBS, backed by many other CDH groups, with the blessings of 1000's of CDH families and researchers and with help from 4 pro-bono attorneys - filed a petition to cancel this trademark that is currently in proceedings.   You can read all about it at:

http://www.ipetitions.com/petition/cdhawareness/ 

http://www.ipetitions.com/petition/cdhawareness/blog

http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2


Soon, we will release our Congenital Diaphragmatic Hernia Awareness Congressional Bill - to protect all causes, birth defects and diseases from having awareness hindered by corporate trademarks.   

While we fully encourage all CDH families to raise awareness in as many ways as possible - CHERUBS does not participate or promote in any trademarked activities such asCongenital Diaphragmatic Hernia Awareness Day

 

CDH Awareness Shop - http://www.cdhawarenessshop.org

CHERUBS has been selling CDH Awareness items on-line since 1998, as one of the first non-profits to use PayPal and Cafepress.   With our new site, we have upgraded to a whole CDH Awareness Shop:

http://www.cdhawarenessshop.org

CDH Awareness Shop

Welcome to the home of the Official Congenital Diaphragmatic Hernia Awareness Ribbon and 1000's of official CDH Awareness Items.    CHERUBS CDH Awareness items have been available on-line since 1998, raising awareness in 38 countries making our stores the oldest and largest CDH Awareness shops in the world.    Money raised in these shops goes to help families affected by Congenital Diaphragmatic Hernia through our CDH Research, CDH Awareness and CDH Family Support Funds.

From books, bracelets, ribbons and onesies to totebags, skateboards, awareness walk items - we have it all and more!

To keep prices low we use a variety of manufacturers and also volunteers to create these items.  Some are sold directly by CHERUBS, some by stores such as Cafepress and Zazzle.

CHERUBS CDH Awareness Ribbon Items	Official CDH Awareness Ribbon	Personalized CDH Awareness Items
Awareness Event Items	CDH Awareness Kits	Adopt A Hospital CDH Kits
CDH Awareness Ribbon Buttons	CDH Awareness Bracelets	CDH Awareness Bumper Sticker Magnets
CDH Holiday Ornaments	CDH Baby Book	Stories of Cherubs Books
CDH Cherubs Calendars	CDH Totebags	CDH Awareness Posters & Journals
Congenital Diaphragmatic Hernia Educational Items	I Love C.D.H. Research	CDH Logo Items
CDH Wings Logo	CDH Awareness Victorian Logo	CDH Awareness Flourish Logo
Cherub On Board Maternity T-Shirt	CDH Superhero Logos	Holiday Items
"Ask Me About CDH"	CDH Anatomy Lesson	Anatomy of a Cherub
CHERUBS Logo Items	CHERUBS Pastel Logo	"I Help CHERUBS" for Medical Professionals
CHERUBS Conferences & Get-Togethers	CHERUBS Angel Ball	Drawings by Cherubs
	Cherub Clothing

Some of the wonderful items available on Cafepress with personalized Congenital Diaphragmatic Hernia Awareness ribbons: