Tuesday, July 1, 2014

Capitol Hill

At the 2014 CDH Conference, we not only learned about new CDH research, made friends with other CDH families but were able to thank Sen. Jeff Sessions for his good work with Senate Resolution 414 for "Congenital Diaphragmatic Hernia Awareness Month" and meet with Representatives to discuss a Resolution for CDH in the House.  

The 2014 DC Conference accomplished a ton thanks to so many amazing people;

Senator Jeff Sessions and his incredible staff, Patsy Pease, David Kays, Lori and Ashley from CHOP, Julia from DHREAMS, Jessica from Mass General, Joy Perkins, Josh Hensley, Ciarra Joyner for being "Hope", Dakota Jones and Jaden Jones for helping with the kids room, Pat Jones for helping move items and all the many, many others who work so hard to make our events successful even when they can't attend and for those who help up during the event unofficially. Not to mention ALL the amazing people who help plan like Mary Blanche and other aides on Capitol Hill and the wonderful people who help gather permits for us. 

We are truly, truly thankful for everyone who works so hard with us to help CDH babies. Thank you!!!!

Now, let's do it all again in Dublin!

































Tuesday, May 13, 2014

2014 Proclamations



The Final List (we think!) of 2014 Congenital Diaphragmatic Hernia Awareness Proclamations!

Montana came in after April 19th. We are happy to add it to the map

THANK YOU to everyone who helped us gather over 100 proclamations this year! We are excited to raise our goal to 150 next year including all 50 states! More CDH Awareness = More CDH Research!

2014 Proclamations:
States:Towns:
  1. Alabama
  2. Arizona
  3. Arkansas
  4. Colorado
  5. Connecticut
  6. Delaware
  7. Florida
  8. Georgia
  9. Kentucky
  10. Idaho
  11. Illinois
  12. Indiana
  13. Iowa
  14. Louisiana
  15. Maine
  16. Maryland
  17. Massachusetts
  18. Michigan
  19. Minnesota
  20. Mississippi
  21. Missouri
  22. Montana
  23. Nebraska
  24. Nevada
  25. New Hampshire
  26. New Mexico
  27. New York
  28. North Carolina
  29. North Dakota
  30. Ohio
  31. Oklahoma
  32. Oregon
  33. Pennsylvania
  34. South Carolina
  35. South Dakota
  36. Tennessee
  37. Texas
  38. Utah
  39. Vermont
  40. Virginia
  41. Washington
  42. Wisconsin
  43. Wyoming
  1. Haleyville, AL
  2. Gilbert, AZ
  3. Mesa, AZ
  4. Fresno, CA
  5. San Diego, CA
  6. Vero Beach, FL
  7. Sebastian, FL
  8. Loganville, GA
  9. Barrington, IL
  10. East Dundee, IL
  11. Hickory Hills, IL
  12. Homer Glen, IL
  13. Oak Lawn, IL
  14. Orland Park, IL
  15. Peoria, IL
  16. Schaumburg, IL
  17. Tazewell, IL
  18. Washington, IL
  19. LaGrange, KY
  20. Louisville, KY
  21. Alexandria, LA
  22. Baton Rouge, LA
  23. Gretna, LA
  24. Hammond, LA
  25. New Orleans, LA
  26. Thibodaux, LA
  27. Boston, MA
  28. Baltimore, MD
  29. Columbia, MO
  30. Biloxi, MS
  31. Booneville, MS
  32. Corinth, MS
  33. Hollis, NH
  34. Asheboro, NC
  35. Charlotte, NC
  36. Clayton, NC
  37. Gastonia, NC
  38. Hickory, NC
  39. Holly Ridge, NC
  40. Mebane, NC
  41. North Topsail Beach, NC
  42. North Wilksboro, NC
  43. Surf City, NC
  44. Taylorsville, NC
  45. Wake Forest, NC
  46. Wilmington, NC
  47. Winston-Salem, NC 
  48. Lincoln, NE
  49. Henderson, NV
  50. Las Vegas, NV
  51. Reno, NV
  52. Sparks, NV
  53. Warwick, NY
  54. Cincinnatti, OH
  55. Cleveland, OH
  56. Columbus, OH
  57. North Ridgeville, OH
  58. Allengheny County, PA
  59. Hanover, PA
  60. Philadelphia, PA
  61. Pittsburgh, PA
  62. Scranton, PA
  63. Warwick, RI
  64. Sioux Falls, SD
  65. Madison, SD
  66. Conroe, TX
  67. Dallas, TX
  68. Fort Worth, TX
  69. Plano, TX
  70. Portsmouth, VA
  71. Milwaukee, WI
  72. Neenah, WI

 

Tuesday, April 29, 2014

Light Up for CDH Awareness - Superdome in New Orleans

On April 19, 2014 the Superdome in New Orleans, Louisiana lit up for Congenital Diaphragmatic Hernia Awareness!

 

April 19, 2014:



Light Up for CDH Awareness - CN Tower in Toronto

On April 19, 2014 One Liberty Place Building in Philadelphia, Pennsylvania lit up for Congenital Diaphragmatic Hernia Awareness!

 

April 19, 2014:
 





Light Up for CDH Awareness - Wells Fargo Duke Energy Center in Charlotte

On April 19, 2014 the Wells Fargo Duke Energy Center in Charlotte, North Carolina lit up for Congenital Diaphragmatic Hernia Awareness!


April 19, 2014:
 

Light Up for CDH Awareness - Cleveland Terminal Tower

On April 19, 2014 the Cleveland Terminal Tower in Ohio lit up for Congenital Diaphragmatic Hernia Awareness!


April 19, 2014:
 

Light Up for CDH Awareness - One Liberty Place Building in Philadelphia

On April 19, 2014 One Liberty Place Building in Philadelphia, Pennsylvania lit up for Congenital Diaphragmatic Hernia Awareness!


Event - April Showers for CDH Babies in Wake Forest, NC



Our sincere appreciation to everyone who supported this event by attending, donating and sponsoring!

Juan Carlo Briceno at The Modern Portrait Studio - https://www.facebook.com/pages/The-Modern-Portrait-Studio/153650181392097

SteamPro Carpet Cleaning & Power Washing - https://www.facebook.com/steampronc

Bateson Realty - http://www.batesonrealty.com/

Wake Forest Optimist Club - https://www.facebook.com/WakeForestOptimistClub

Socaz Painting - http://www.socazpainting.com/

Corrective Chiropractic - http://www.corrective-chiropractic.com/

Fidelity Bank - http://www.fidelitybanknc.com/

Candy Arrangements By Carla - https://www.facebook.com/pages/Candy-Designs-By-Carla/543544322394604

The Storyteller's Book Store of Wake Forest - http://www.storystorewf.com/

Laura Tomczyk - in memory of Owen Tomcyzk

Lisa Blue - in memory of Owen Tomcyzk

and special thanks to Karla Holt, Jennine Quiles and Logan