2014 CHERUBS Annual Congenital Diaphragmatic Hernia Conference
Medical Conference - June 24-27, 2014
Family Conference – June 26-29, 2014
CDH MEDICAL CONFERENCE
This conference includes
all medical specialties that work with CDH patients including pediatric
surgeons, neonatologists, geneticists, dieticians, pediatricians,
pulmonologists and others as well as the patients and families affected
by CDH to come together to search for the cause, prevention and best
treatments of Congenital Diaphragmatic Hernia.
All medical
professionals are welcome to attend both the CDH Medical and CDH Family
Conferences. There is a $150 conference fee for medical professionals.
Tuesday, June 24th - Research Presentations*
• Poster Presentations & Display (submissions can be sent to research@cdhsupport.org)
• Vendors
Wednesday, June 25th - Round Tables / Panels
• Evening Pizza Party at Parent Conference
• Parade of Cherubs
• CDH Research on Capitol Hill
• Vendors
Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party
Friday, June 27th - Conclusion
• Medical Panel at Parent Conference
• Medical Conference Conclusion
• Vendors
Medical Professionals only allowed on Tuesday, June 24th
POSTER AND PAPER SUBMISSIONS
They will be reviewed jointly by your conference hosts.
PAST PRESENTERS
The following have presented at CDH Family Conferences in past years:
• Jay Wilson, MD - Boston Children's Hospital, Harvard University
• Patricia Donahoe, Massachusetts General Hospital
• Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
• David Kays, MD - University of Florida at Gainesville / SHANDS
• Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
• Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
• Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
• Kevin Lally, MD - CDH Study Group
• Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
• Dr. Edmund Yang, St. Louis Fetal Care Institute
• Ruben Quintero, MD - Fetal Treatment Program
• Priscilla Chiu, MD - Sick Children's, Toronto, Canada
• Brenda Slavin, RN - Children's National Medical Center, Washington DC
CDH FAMILY CONFERENCE
Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party
Friday, June 27th - Research Day
• Medical Speakers
• Medical Q&A Panel
• Free Genetic Testing
• CDH Lab & Clinic Tours
Saturday, June 28th - Awareness Day
• CDH Research Bill
• April 19th
• Volunteering
• Fundraisers
Friday, June 29th - Support Day
• Round Table Discussions
• Kids CDH Song Performance
• Family Conference Conclusion
Because
our conferences are confidential to maintain privacy and allow parents
to talk freely about their journeys with CDH, we only allow members of
CHERUBS to attend. This is also to keep our members safe and medical
information private. All CDH parents are invited to join CHERUBS for
free by registering at our site at http://www.cdhboards.org
• 3 half-days so you have time to see local attractions
• Pizza party and parade of cherubs
• World renown guest speakers
• Great round-table discussions for families of survivors and angels
• Participate in CDH Research
• Meet other CDH families
• Kids are always welcome!
• Special needs families often qualify for grants to attend (check with your social worker)
• Our conference makes a wonderful family vacation
About The CDH Family Conference:
• Expect to learn a lot about Congenital Diaphragmatic Hernia!
• Our guestspeakers are always the best in their fields, bringing us new information every year!
• ALL CDH families are welcome to attend! This includes families of survivors, grieving families and expectant families.
•
Our conferences include family introductions, round-table discussions,
research guest lectures, Q&A sessions and much more!
• Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH
Support Day.
• CHERUBS conferences are planned to be educational, supportive and affordable!
• Our conference hotels always offer rooms around $100 per night, breakfasts and parking.
• Meet new friends, see old friends and participate in research for various hospitals.
• Our conferences are always half days so that families can enjoy local tourist attractions.
• Children are welcome and babysitting services will be provided during conference hours.
• Our conferences are held near top rated hospitals for safety.
• We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
• Join in our new Parade of Cherubs at every conference!
• Join in our balloon releases at every conference!
• We have a pizza party on the first night of every conference.
• Kid's get a chance to learn the CDH kids song and perform on the last day of the conference.
• CHERUBS does not charge a conference fee.
• For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You
may register for free at http://www.cherubs-cdh.org/members
• Many families of survivors are eligible for grants to cover travel expenses to medical
conferences. Ask your child's social worker for more information.
Registration for CDH families is just $5.00 per person for the entirety of the conference and includes pizza party.
ACCOMODATIONS
Will be posted soon!
SPONSORSHIP & VENDOR OPPORTUNITIES
Breakfast Sponsorship on Tuesday, Wednesday, Friday, or Saturday: $1500 + Cost of
Food after May 30, $1200 + Cost of Food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website.
Breakfast Sponsorship Thursday- A special opportunity to reach medical professionals,
researchers, and parent participants during the only joint session of the conference! $2000 +
Cost of Food after May 30, $1500 + Cost of food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website.
Pizza
Party- During this session the medical professionals, researchers, and
families will come together for food and fellowship. This is the night
prior to the beginning of the Family Conference, and families introduce
themselves and share their CDH stories.
3 $1000 sponsorships are available.
1 $2500 sponsorship non-competing sponsorship available (No competing companies will be allowed to sponsor)
Kids Entertainment room: Entertainment room with babysitters during parent conference only (Thursday-Saturday 8am-12pm). $2000.
Other Sponsorship Opportunities:
Conference Bags- $2000 Includes sponsor’s logo on one side of bag and CHERUBS logo on
other side of bag. CHERUBS to manage ordering and production of bag, at no additional cost to
sponsor.
Lanyard/ Badge Holder- $1500 Includes sponsor's logo and the CDH awareness
ribbon. CHERUBS to manage ordering and production of lanyard at no additional cost to
sponsor.
Information/Advertisements in bags- $250
Contact Ashley Barry at
abarry@cherubs-cdh.org or 919-624-2883 for more information or
purchase sponsorship on-line at
http://www.cdhconference.org
CHERUBS MEDICAL ADVISORY BOARD
• Patricia Donahue, MD – Massachusetts General Hospital
• David Kays, MD – University of Florida at Gainesville
• Henry Rice, MD – Duke University Medical Center
• Edmund Yang, MD – Fetal Treatment Center of St. Louis
• N. Scott Adzick, MD – Children’s Hospital of Philadelphia
• Kevin Lally, MD, MS - University of Texas Medical School at Houston, CDH Study Group
• Wendy Chung, MD - Columbia Presbyterian, DHREAMS
• Doug Miniati, MD - University of California San Francisco
• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven, Belgium
• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK
• Steadman McPeters, NP - Pediatric Surgery Nurse Practioner, Huntsville
CDH Family Conference:
Because our conferences are confidential to maintain privacy and allow
parents to talk freely about their journeys with CDH, we only allow
members of CHERUBS to attend. This is also to keep our members safe and
medical information private. All CDH parents are invited to join
CHERUBS for free by registering at our site at http://www.cdhboards.org
* 3 half-days so you have time to see local attractions
* Pizza party and parade of cherubs
* World reknown guest speakers
* Great round-table discussions for families of survivors and angels
* Participate in CDH Research
* Meet other CDH families
* Hotel rooms are always affordable for the area
* Kids are always welcome!
* Special needs families often qualify for grants to attend (check with your social worker)
* Our conference make a wonderful family vacation!!!!
2011 Conference
Our 2011 Conference in Orlando, FL
Location: Orlando, FL
Guest Speakers:
Special Events:
- 2nd Annual CDH Balloon Release
- 2nd Annual March of the Cherubs
- CDH Research Day, CDH Awareness Day and CDH Support Day
- Introduced at the APSNA Conference
|
2010 Conference
2009 Conference
Our 2009 Conference in San Antonio, TX
Location: San Antonio, TX
Guest Speakers:
Special Guests:
- Kevin and Brenda Lane - CHERUBS UK
- Julian and Danielle Kessner - CHERUBS Australia
- Kimberly Richards - The Olivia Raine Foundation
- Tim and Michelle Brown - Little Lambs
Special Events:
- Unveiling of the CDH Song, "I'll Never Let You Go" by The Jammies
- 1st Performance of the Kid's CDH Song
Click here to download brochure.
Click here to view lecture videos. |
2008 Conference
Our 2008 Conference in Durham, NC
More Past Event Speakers
Jay M. Wilson, MD - Harvard University / Boston Children’s Hospital
Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
David Kays, MD - University of Florida at Gainesville / SHANDS
Ruben Quintero, MD - Fetal Treatment Program |
