Tuesday, October 21, 2014

Congenital Diaphragmatic Hernia Action Day

April is Congenital Diaphragmatic Hernia Awareness Month as recognized by Capitol Hill and many governors and mayors.   April 19th has been known as the "International Day of Congenital Diaphragmatic Hernia Awareness".  Until now.

After several years of dedicating one day to CDH Awareness, we have come to the conclusion that it's not enough to just raise awareness.  We need to take action!   Please join us in participating in the very first annual World Congenital Diaphragmatic Hernia Action Day on April 19th.
  • Donate
  • Volunteer
  • Hold a Fundraiser
  • March in a Parade
  • Raise Awareness
  • Share your Story
  • TAKE ACTION!
Together, we can save lives of babies born with Congenital Diaphragmatic Hernia.

http://www.SavetheCherubs.org











Tuesday, October 14, 2014

CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

Join us as we celebrate our charity's 20th year by sailing the seas!  


CHERUBS 20th Anniversary Reunion Cruise & CDH Conference
August 23 - 29, 2015
Sailing from Miami to Cozumel, Jamaica and Grand Cayman

Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!

8/23/15 sailing of the brand new Carnival Breeze!- 6 night sailing arrives back on 8/29/15. Leaves from the port of Miami and visits, Jamaica, Grand Cayman and Cozumel with 3 days at sea.

Register here! 


Make a splash with Carnival cruises to Cozumel, a Caribbean island perched atop a coral reef. Cruises to Cozumel, Mexico, dock at the island’s heart—just minutes from San Miguel’s seafront shops and the white sand beach at Chankanaab National Park. Drift among star corals and sea fans on a Cozumel diving excursion or simply kick back on the beach beneath your own palm palapa as the turquoise waves roll in. Cruise to Cozumel for a scuba diving adventure along the Great Mesoamerican Reef. Enjoy a leisurely day of snorkeling with iridescent fish at Chankanaab National Park. Swim with dolphins at Dolphinaris.
Cruise to Jamaica to discover the historic charms of this former sugar boomtown. The plantation days of Falmouth, Jamaica, are gone, but what remains is the largest collection of intact colonial Georgian architecture in the Caribbean, set on sand-dusted streets and a wind-swept harbor. On Carnival cruises to Falmouth, Jamaica you can kick back on a crescent of white-sand beach and explore the great houses of old sugar plantations. Visit Falmouth’s quaint 18th-century waterfront village. Feel the rush of flowing water in Dunn’s River Falls. Kick back at the ultimate beach bar, Time ‘n’ Place. Swim in the turquoise seas at Jacob Taylor Beach when you cruise to Falmouth. Explore Jamaica’s sugar plantation past at Good Hope Plantation House.

Enjoy laidback British civility in a sun-splashed tropical locale on your Carnival® Grand Cayman cruise. Don’t let the island’s scrubland terrain fool you—a spectacular marine paradise lies just offshore of Grand Cayman, Cayman Islands, where a living undersea wall drops dramatically into the ocean deep. Cruises to Grand Cayman bring you directly to the best scuba diving and snorkeling in the kaleidoscopic Caribbean Sea. Stretch out on the glimmering white sands at Seven Mile Beach. Stroll the shops, cafes, and museums in George Town, Grand Cayman. Swim with gentle stingrays in Stingray City on your Grand Cayman cruise. Dive in the wondrous undersea world along the Cayman Wall. Spot native parrots and lizards in the Queen Elizabeth II Botanic Park.

Pricing:

For 2 people in a cabin; Inside- $1273.06, Balcony- $1773.06
For 3 people in a cabin; Inside- $1619.59, Balcony- $2119.59
For 4 people in a cabin; Inside- $1906.12, Balcony- $2526.12

Pricing includes conference and cruise, all taxes and port charges.  Pricing does not include optional excursions and add-ons.  Insurance is not included and may be purchased at $79.00 per adult and $49 per child. Tips are extra and may be paid on the ship or prepaid if you prefer. Recommended tip is $11.50 per person per day (which is $69 per person for the trip). If you need air, a hotel the night before/after that is additional and I can help you with that. 

There is an initial deposit of $35 per person due to hold each person's berth in the cabin. That is due immediately upon registration to hold the cabin.

Full (non-refundable) deposit of $250 per person is due on 3/27/15 or before. The remaining balance is due on 6/09/2015.   This will go through our event planner, Susie.  Please contact her with any questions about the ship.

Register here!

To make the deposit call Susie Kay, ACC at Piece of Cake Travel at 919-696-3007. I can also be reached at pieceofcaketravel@gmail.com for any additional questions you may have.

Carnival Breeze

Carnival Breeze — Miami’s hottest destination — sails toward islandy hotspots across the Caribbean. Fun-fan favorites like SportSquare and mouth-watering dining spots like Cucina del Capitano are just the beginning of how Carnival Breeze keeps the fun blazing.

Enjoy the island atmosphere of RedFrog Rum Bar, or south-of-the-border taco goodness at BlueIguana Cantina. There’s family fun (and games) at Hasbro, The Game Show and ha-ha hilarity at the Punchliner Comedy Club Presented by George Lopez. Let’s not forget Guy's Burger Joint, which features signature, hot-off-the-grill burgers designed by celebrity chef Guy Fieri! There are many fish in the sea, and you'll find a nice selection of them at Bonsai Sushi.

http://secure.carnival.com/cruise-food/?shipCode=BR

Carnival Breeze has the whole family covered — with water, that is — with a 320-foot-long Twister Waterslide at Carnival WaterWorks. Just for the kids there’s supervised youth programs like Camp Carnival and Club O2. And for the bigger people, there’s just-me-time to be had relaxing at Serenity Adult Only Retreat… after you pamper yourself at Cloud 9 Spa, of course. Then for fun after the sun’s done, have a truly moving experience at the multi-dimensional Thrill Theater, dance in your seat at Playlist Productions… or if you prefer to do your dancing on a dance floor, check out Liquid Nightclub.


http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

If you notice a bit of the outdoors inside, don’t adjust your view. Carnival Breeze’s staterooms — and many of the public spaces around the ship — feature a scintillating tropical d├ęcor and contemporary furnishings that’ll transport you straight to warm Caribbean bliss.

http://secure.carnival.com/cruise-ships/carnival-breeze.aspx#


http://secure.carnival.com/cruise-ships/carnival-breeze.aspx

Register here!

Tuesday, July 1, 2014

Capitol Hill

At the 2014 CDH Conference, we not only learned about new CDH research, made friends with other CDH families but were able to thank Sen. Jeff Sessions for his good work with Senate Resolution 414 for "Congenital Diaphragmatic Hernia Awareness Month" and meet with Representatives to discuss a Resolution for CDH in the House.  

The 2014 DC Conference accomplished a ton thanks to so many amazing people;

Senator Jeff Sessions and his incredible staff, Patsy Pease, David Kays, Lori and Ashley from CHOP, Julia from DHREAMS, Jessica from Mass General, Joy Perkins, Josh Hensley, Ciarra Joyner for being "Hope", Dakota Jones and Jaden Jones for helping with the kids room, Pat Jones for helping move items and all the many, many others who work so hard to make our events successful even when they can't attend and for those who help up during the event unofficially. Not to mention ALL the amazing people who help plan like Mary Blanche and other aides on Capitol Hill and the wonderful people who help gather permits for us. 

We are truly, truly thankful for everyone who works so hard with us to help CDH babies. Thank you!!!!

Now, let's do it all again in Dublin!