Our research site programming starts in August. I am so excited about that, maybe even more excited than I am about the events. I love that so much support and information is at CHERUBS... 13 years of doing that, we're pretty good at it! But no one is really doing the research on CDH that needs to be done. And no one has the database that CHERUBS has. Finally all this data will be used to actually make a real difference in the fight against CDH. We will be doing something proactive against CDH. Raising awareness is wonderful - the end result should be more attention to CDH and in turn, more research. We're going straight to research. Many doctors and hospitals will be working with us, the CDH Study Group and CHERUBS have been working together for years - we're taking it to a whole new level. All CDH families will be able to participate. We can all work together to find the cause and prevention and best treatment of CDH.
This is the first step to the end of CDH. I get goosebumps thinking about that. Even more so typing it out.
This is the first step to the end of CDH.