Friday, August 15, 2008

Threats against the use of "Congenital Diaphragamtic Hernia Awareness" have already happened

Many (100's) of people have been forwarding msg's and e-mails about one organization filing to own the trademark of "Congenital Diaphragmatic Hernia Awareness". One such msg is below.

That organization's response is that they wouldn't police how Congenital Diaphragmatic Hernia Awareness is used. That does not make it ok for them to own the rights to awareness to a disease that hurts and kills 1000's of babies around the world every year. And it is a lie. This organization began threatening to sue over the use of Congenital Diaphragmatic Hernia last year, without grounds, without owning the trademark that was applied for on April 1st of this year. This organization still does *not* own the trademark of Congenital Diaphragmatic Hernia Awareness. Below are examples of how little this organization can be trusted with something this important and how no organization / individual / entity should have power over the awareness of a birth defect or disease. THIS harassment and types of threats will happen to every other CDH organization and families if this trademark is granted. Please help us to stop this from happening. 6 CDH organizations, the world's top CDH surgeons, and over 2000 people are standing together against this injustice. Please stand with us.

8/31/08 - An "anonymous" e-mail, the same account used to send the e-mail about the trademark that alerted us, was sent to CHERUBS President with threats of personal blackmail and lawsuits if CHERUBS did not remove this petition and any references to "Congenital Diaphragmatic Hernia Awareness" before September 16th.

8/12/08 - An "anonymous" e-mail was sent to CHERUBS to brag about the trademarking of "Congenital Diaphragmatic Hernia Awareness". 7 organizations immediately went into action to stop this trademark.

1/4/08 - representative calls CHERUBS office about a trademark complaint made by Elizabeth Doyle-Propst, President / CEO of Breath of Hope, Inc., asking that CHERUBS be removed from Yahoo's search engine and CHERUBS yahoo groups be taken down.

12/19/07 - Elizabeth Doyle-Propst, President / CEO of Breath of Hope, Inc. sends a formal complaint to, where CHERUBS hosts an on-line store of fundraising and awareness items.

10/23/07 - Stacy Dinay Everett Harding, Vice-President of Breath of Hope, Inc. sent a letter to CHERUBS lawyer accusing our children's charity of copyright infringement.

10/22/07 - Elizabeth Doyle-Propst, President / CEO of Breath of Hope, Inc. accuses CHERUBS of copyright and trademark infringement again and threatens more legal action.

10/4/07 - Elizabeth Doyle-Propst, President / CEO of Breath of Hope, Inc. accuses CHERUBS of copyright and trademark infringement.

These are only a very, very few of the threats, false charges and other attacks made by this organization to other organizations and CDH families.

The best indicator of future behavior is past behavior.

Tuesday, August 12, 2008

Congenital Diaphragmatic Hernia Awareness threatened! Please help!

An organization has filed to own the phrase "Congenital Diaphragmatic Hernia Awareness".

This means that no one, no CDH family, no other organization would be able to use this phrase to raise awareness or help CDH babies while this organization would be sole owner to use awareness of this birth defect as a marketing tool. No one should own awareness of a birth defect that hurts 1600 babies a year in the U.S. and kills 800 of them. We are petitioning this with the U.S. Patent & Copyright office and need your help. Please sign this petition and forward this to family and friends:

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