Sunday, April 27, 2008

Artwork For CHERUBS Charity Auction in Durham on July 26

We are looking for autographed sports items for our silent auction at our CHERUBS Angel Ball on July 26th at Duke Gardens in Durham, NC. More information can be found at

Any original artwork would be appreciated, especially pieces with an angel or cherub theme. If you have items to donate in honor or in memory of someone or know of an artist who would be willing to participate, please let us know! You can reach us at

Autographed Sports Items Needed For Charity Auction

We are looking for autographed sports items for our silent auction at our CHERUBS Golf Tournament on July 28th at Brier Creek Country Club in Raleigh, NC. More information can be found at

We need any autographed sports items. If you have items to donate in honor or in memory of someone or know of a sports celebrity who would be willing to participate, please let us know! You can reach us at

CHERUBS Links & Research Contest - Win a T-shirt & Cookbook!

Do you have a list saved or bookmarked of CDH research sites? A web site or a blog for your cherub?

Please make sure to share them at our Links Library:

We are trying to update our list of research links and we are conducting a contest to see who can add the most links! It's really easy and not only will it be fun to compete to try to win a free CHERUBS t-shirt and cookbook but you will be helping other CDH families by having this information available to them by adding links to our database!

It's really easy, all you do is:

1. Go to our Links page at
2. On the left of this page there is a form to add a site, fill this out (please make sure to add it to the correct category!) and click Submit
3. Do this for any CDH Research Sites and Articles or Personal CDH Web Sites that you know about or can find

It's that easy! :D

Whomever adds the most links by May 15th will win a CHERUBS T-Shirt and Cookbook!!! And you'll be posted on our site and in our newsletter. :)

Happy Link Adding! :)


CHERUBS 2008 International Member Conference - Book Rooms Before April 30th Please!

If 15 families books their rooms before April 30th then CHERUBS will save $600 on the conference room.... since we have a shred of a shoestring budget for this conference it would really help us to be able to save this money! For booking information please visit our site at

Register for International Conference for CDH Families!

2008 CDH Family Conference July 25-26 in Durham NC

******** Please note that our CHERUBS Member Conference is open to members of CHERUBS only. If you would like to attend our events, please register to become a member. ********

Comfort Suites Hotel RTP / RDU
July 25-26, 2008
5219 Page Rd, Durham, NC

Our conference will include at least 2 guest speakers, including Meaghan Russell from Boston Children's Hospital, who is currently conducting the genetic study on CDH.

Conference attendance is free to members, but members must cover their personal costs (travel, lodging, food, etc).

The following is a preliminary conference schedule that is subject to change. A set schedule, itinerary and brochure will be posted by May 1st.

Friday, July 25, 2008
Comfort Suites

8:00 am to 12:00 noon - Conference
12:00 noon - 1:00 pm - Lunch
1:00 pm - 5:00 pm - Conference

Saturday, July 26, 2008
Pullen Park
9:00 am to 12:00 noon - Conference

A pizza party will be Thursday night.

More information can be found at

Please register to attend at

Donate a basket for CHERUBS auction in honor / memory of your cherub!

Hi Everyone,

At our CHERUBS Angel Ball in July we are conducting a silent auction. The auction will include many art pieces by some wonderful artists but also will include baskets donated by businesses and CHERUBS members in honor and memory of loved ones.

We sent this e-mail below to local businesses asking for participation on this auction, but families can participate too! My family will be donating 2 baskets - 1 in memory of my son, Shane (CDH cherub) and 1 in memory of my sister, Debra (lost to cancer). Please consider donating a basket in honor or in memory of someone that you have loved and lost.

You can talk to other CDH families about donating baskets and ideas on what to include in basket on our web site at

Please forward this to family and friends who you think would want to participate! Thank you so much!!!! :)



Dear Sir / Madam,

I am contacting you on behalf of a local charity that I volunteer for, CHERUBS. CHERUBS is hosting a charity Angel Ball at the Sarah P. Duke Gardens on Saturday, July 26, 2008. This will be a beautiful white-tie formal event, with local rock band The Stone Age Romeos playing, 106.1 radio DJ Keith Todd as M.C., a silent auction and much more. Details can be found at

We are looking for sponsors for the silent auction. We are requesting gift certificates, tickets, or products that can be placed in elegant baskets that will be up for auction. For example, one company is donating a gift certificate to their rental property at Hatteras, a dinner for two at a local restaurant, a gas card, sunglasses, beach towels, sunscreen and a map of the Outter Banks. Ideally, we would love a basket already filled with items representing your company. These will be featured on a table along with your business cards or brochures. This will be a wonderful and beautiful way to advertise your company while supporting a good cause.

In exchange for participating, your company will receive public acknowledgement in the Durham Herald-Sun, Raleigh News & Observer, event materials and on our web site which receives over 30,000 hits per month. The clientele for this event will be upper-class Triangle residents and this would be wonderful exposure for you. Donations would be tax-deductible. Baskets would need to be received by July 1st.

CHERUBS is a non-profit 501(c)III organization that was created to help families of children born with Congenital Diaphragmatic Hernia (CDH). CDH is a severe birth defect that affects 1 in every 2500 babies – over 1500 babies a year in the United States alone. CDH occurs when the baby’s diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and prevent lung growth. Correction requires drastic surgery and long hospital stays for these babies. CDH is fatal in 50% of cases. The cause is not yet known. CHERUBS supports families and medical care professionals by offering information, research, support and raising awareness. CHERUBS, which is run solely by volunteers, receives no grant funding and subsists on donations and fundraisers alone.

If you are interesting in participating please fill out the sponsorship form at There is a catering sponsorship deadline of May 15th to be listed on the tickets and printed literature. We will be placing an ad in the Durham Herald-Sun and The Raleigh News & Observer at the end of this month so if you would like to be included in this ad please sign up by April 24th.

Thank you so much for your consideration. If you have any questions, please do not hesitate to contact me.

Dawn M. Torrence
CHERUBS President & Founder
CHERUBS, 270 Coley Rd, Henderson, NC 27537, USA

For CDH Families -Need Stories for CHERUBS newsletter & book

Hi Everyone,

We're ready to start on our next newsletter and we need more stories of families who have dealt with Congenital Diaphragmatic Hernia (survivors and those cherubs in heaven). Stories (and photos) will posted on our web site, in our Silver Lining newsletter and in the next edition of our book "Stories of Cherubs" due out this winter.

If you would like to include your cherub's story please e-mail it to

You can read over 300 stories of families who have been affected by CDH on our web site at


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Tuesday, April 15, 2008

CHERUBS Update - Conference, Events, CDH Video and Representatives

Dear Members,

I hope this e-mail finds you well. This note isn't our quarterly e-mail
but rather an e-mail to let you know about some really exciting things we
have going on that we couldn't wait another month to tell you about!

First, we need videos! We are putting together 2 CDH Videos and we have a
submission deadline coming up. If you would like to include video of your
cherub please contact Tania at or Stephanie at

Second, we need more Representatives! You can see what positions need to
be filled and meet our new State & International Representatives at

Third and very important, we have many events going on:

April 18, 2008 - Rat Patrol ATV Rally, Attica, Indiana,

June 14, 2008 - Michigan Get-Together, Lansing, MI,

June 28, 2008 - CHERUBS UK Conference, Milton Keyes, UK,

July 4, 2008 - Ayda's CDH Awarness Booth, Spirit Lake, ID,

June 6-8, 2008 - Informal Camping Retreat, New Stanton, PA,

July 25-26, 2008 - CHERUBS International Member Conference, Comfort Suites
Conference Hall, RTP / RDU / Durham, NC,

July 26, 2008 - Charity Angel Ball, Sarah P. Duke Gardens, Durham, NC,

July 28, 2008 - Charity Golf Tournament, Brier Creek Country Club, Raleigh,

August 23, 2008 - Ohio Member Picnic, Columbus, OH,

September 21, 2008 - Happy Birthday Jeremiah Car Show, Columbus, OH,

October 18, 2008 - CHERUBS Australia Conference, Australia,

And lastly, please make sure to pop over to our site as we're always busy
and our forums are always buzzing!
Below is a list of recent posts to try to entice you to come on over and
join in the conversations and give support to other CDH families or get a
little support for yourself. If you have any trouble getting onto the
site, please e-mail Amy at

As always, if you have any questions just let us know! I hope to see you
all at our Member Conference in July!

Dawn M. Torrence
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research,
Awareness and Support
270 Coley Rd, Henderson, NC 27537


McKenna Varen's Angelversary.... thinking of you Alysssa!!! -
CDH picture/video DVD -
New Congenital Diaphragmatic Hernia Awareness Ribbon Items! -
Memorial Tattoos -
ATV Ride for CHERUBS -
Introduction - Lori Leclair -
Our Cafepress Store! -
Angel Ball Dress Shopping -
Introduction - Jason and Suzanne Cox -
CHERUBS CDH Awareness Activities & Events! -
morgagni hernia -
Heidi Carlson Mom to Julia Grace -
Hello from MA -
Hello -
New here just joined -
Fight Against Congenital Diaphragmatic Hernia at -
We Have A Music Star In Our Midst -
CHERUBS is given a place in history on Wikipedia! -
2008 CHERUBS International Member Conference & Events! -
All New Members & Lurkers - Please Introduce Yourselves! - -
where do i find the maturnity shirt? - h
CHERUBS on Firstgiving! All members can fundraise on-line! -
Cost effective creative way to use the ribbons -
Prayer Request from Fernanda Arce -
The Dill Family -
HI im new -
Books for siblings -
Jackson McKay -
Parents in illinis -
Bryston Spohr, Born 4/12/05 -
Virginia/Washington doctors -
Problem with hiccups -
Jesse and Prevacid -
Posting a quick hello -
I'm Back! -
Claire -
CDH on the front page of!!!! -
update -
CDH Awareness -
Golf Celebrity Auction -
Bryston Spohr, Born 4/12/05 -
Living a normal life? -
Gift Baskets For the Angel Ball Auction -
Posting a quick hello -
Jeremiah -
Cherubs Australia 2008 Conference -
Memorial Tattoos -
Faith's funeral -
Books for siblings -
CHERUBS Conference Web Site - Register for 2008's conference -
Book Your Hotel Room by April 30th and save $ on Angel Ball! -
Cost effective creative way to use the ribbons -
I remember . . . -
CHERUBS Australia Official Registration -
Today was the funeral -
Birth Announcements after losing a child
Donations -
CHERUBS2008 Charity Golf Tournament Web Site -
Looking for Prayers -
Prayers needed for Jasmine -
Parent Reference Guide - If You Have To Plan A Memorial -
Awareness Events Planned? -
The Twins -
Feeding Coordinator appt -
Question about baby shower this Sunday April 13 -
CDH Awareness Jewelry? -
Requests For CDH Awareness Ribbons... -
Angel Ball Dress Shopping -
Feeding Issues & Reflux -
We have a conference hotel - you can now book your rooms! -
I am so lost on Facebook??? Kara?? -
Please Pray -
Grieving'stuff' -
Trach Changes -
CHERUBS Zoo trip this summer?? -
6 months -
CHERUBS Camping Retreat -
Switching Insurance -
How To Upload A Photo -
Remembering Noah -
Makayla's Smile -
National Bowl-A-Thon~interested? Need Feedback! -
Intimacy issues -
Even Parents of Survivors Grieve -
keep my baby in your prayers please!! -
YouTube& Goodsearch Video Contest to help raise awarene -
Update- Gabriel Athan -
Hi -
Hi everyone -
55 days-feeling overwhelmed -
any more irish visitors? -
HI im new -
Is it wrong? -
Therapy Question -
Antenatal Testing -
Faith Grace Miles -
Night Waking -
Landen follow-up appointments -
Phoenix, AZ local news -
Graham's story.... -
Videos of Cherubs ~ CHERUBS Is Now A YouTube Charity!!! -
pulmonary hypertention...scared -
My Son Dima -
Lily's YouTube Video -
Rotten weather in VIC -
One step at a time -
We need HELP!!!!! If you are a Rep or are interested in bei -
update on Drake -
1 year ago -
New Fundraising & Awareness Ideas? -
Drakes chylothorax surgery -
I dont know what to say -
How/ When To Contact The Media About Your Cherub -
Funny appointment today -
Drakes chylothorax surgery -
Shelby and CHERUBS made our local paper -
Use of Viagra for CDH babies -
Letter to Babytalk magazine -
SPRING SNOW IN NORTHERN IDAHO!!!!! not cool, not cool! -
Might Finally Get Some Answers -
Update on Elijah -
Message from Noah -
Prayer request for Jolene and Saydie -
Happy Birthday Graham -
Shes getting better!!! -
Drakes Pic -
Flying with CDH childred -
Who wants ride?? -
Wagga newspaper article -
Need Pictures of CHERUBS!!!! -
Telling Jack's story. -
Cdh in 6 month old -
Trouble Potty training..maybe not related to CDH..maybe is?? -
Question about leaking mickey -
Hayden is in Heaven now -
Parents in illinis -
Anyone know how I can contact Jennifer Wasik??? -
Anyone from Pennsylvania -
Memories -
My Mom is Video Duh! -
Introduction -
Happy Birthday Cole Campsey!!! -
Aussie Introduction -
Introduction-Monica Clark mother of Sophia Clark -
Welcome to our new Aussie Members -
Media Contacts -
Addison's Story told by her Mom Andrea from PA -
Happy Birthday Kimberly Switzer -
Wicked Local News, Plymouth, MA - Graham is in the news! -

Sunday, April 13, 2008

CHERUBS 2008 Charity Golf Tournament

CHERUBS 2008 Charity Golf Tournament
Brier Creek Country Club, Raleigh, North Carolina
July 28, 2008

http://www. cherubsgolftournament. org

Official CHERUBS Golf Tournament web site is up! Player and sponsor registration, information and more!

CHERUBS 2008 International Member Conference

Our conference site is now up!

http://www. cherubs-cdh. org/events/conference/

You can register on-line to attend. There is no conference fee but you must be a member of CHERUBS to attend.

CHERUBS 2008 International Member Conference

Our conference site is now up!

http://www. cherubs-cdh. org/events/conference/

You can register on-line to attend. There is no conference fee but you must be a member of CHERUBS to attend.

CHERUBS 2008 Charity Angel Ball

CHERUBS 2008 Charity Angel Ball
Duke Gardens, Durham NC
July 26, 2008
Formal White-Tie Ball

Official CHERUBS Angel Ball web site is up! Purchase tickets, register sponsorship and more!

Formal White-Tie event!
Women are encouraged to wear their wedding dresses again
Dancing with awesome local band The Stone Age Romeos
Silent Auction
All at the beautiful Sarah P. Duke Gardens!

Attention Members - those who register your hotel room by April 30th will receive a rebate of $15 per Angel Ball ticket! Conference hotel information found at