CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

Join us as we celebrate our charity's 20th year by sailing the seas!  

CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

August 23 - 29, 2015

Sailing from Miami to Cozumel, Jamaica and Grand Cayman

Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!

8/23/15 sailing of the brand new Carnival Breeze!- 6 night sailing arrives back on 8/29/15. Leaves from the port of Miami and visits, Jamaica, Grand Cayman and Cozumel with 3 days at sea.

Register here! 

Make a splash with Carnival cruises to Cozumel, a Caribbean island perched atop a coral reef. Cruises to Cozumel, Mexico, dock at the island’s heart—just minutes from San Miguel’s seafront shops and the white sand beach at Chankanaab National Park. Drift among star corals and sea fans on a Cozumel diving excursion or simply kick back on the beach beneath your own palm palapa as the turquoise waves roll in. Cruise to Cozumel for a scuba diving adventure along the Great Mesoamerican Reef. Enjoy a leisurely day of snorkeling with iridescent fish at Chankanaab National Park. Swim with dolphins at Dolphinaris.

Cruise to Jamaica to discover the historic charms of this former sugar boomtown. The plantation days of Falmouth, Jamaica, are gone, but what remains is the largest collection of intact colonial Georgian architecture in the Caribbean, set on sand-dusted streets and a wind-swept harbor. On Carnival cruises to Falmouth, Jamaica you can kick back on a crescent of white-sand beach and explore the great houses of old sugar plantations. Visit Falmouth’s quaint 18th-century waterfront village. Feel the rush of flowing water in Dunn’s River Falls. Kick back at the ultimate beach bar, Time ‘n’ Place. Swim in the turquoise seas at Jacob Taylor Beach when you cruise to Falmouth. Explore Jamaica’s sugar plantation past at Good Hope Plantation House.

Enjoy laidback British civility in a sun-splashed tropical locale on your Carnival® Grand Cayman cruise. Don’t let the island’s scrubland terrain fool you—a spectacular marine paradise lies just offshore of Grand Cayman, Cayman Islands, where a living undersea wall drops dramatically into the ocean deep. Cruises to Grand Cayman bring you directly to the best scuba diving and snorkeling in the kaleidoscopic Caribbean Sea. Stretch out on the glimmering white sands at Seven Mile Beach. Stroll the shops, cafes, and museums in George Town, Grand Cayman. Swim with gentle stingrays in Stingray City on your Grand Cayman cruise. Dive in the wondrous undersea world along the Cayman Wall. Spot native parrots and lizards in the Queen Elizabeth II Botanic Park.

Pricing:

For 2 people in a cabin; Inside- $1273.06, Balcony- $1773.06
For 3 people in a cabin; Inside- $1619.59, Balcony- $2119.59
For 4 people in a cabin; Inside- $1906.12, Balcony- $2526.12

Pricing includes conference and cruise, all taxes and port charges.  Pricing does not include optional excursions and add-ons.  Insurance is not included and may be purchased at $79.00 per adult and $49 per child. Tips are extra and may be paid on the ship or prepaid if you prefer. Recommended tip is $11.50 per person per day (which is $69 per person for the trip). If you need air, a hotel the night before/after that is additional and I can help you with that. 

There is an initial deposit of $35 per person due to hold each person's berth in the cabin. That is due immediately upon registration to hold the cabin.

Full (non-refundable) deposit of $250 per person is due on 3/27/15 or before. The remaining balance is due on 6/09/2015.   This will go through our event planner, Susie.  Please contact her with any questions about the ship.

Register here!

To make the deposit call Susie Kay, ACC at Piece of Cake Travel at 919-696-3007. I can also be reached at pieceofcaketravel@gmail.com for any additional questions you may have.

Carnival Breeze

Carnival Breeze — Miami’s hottest destination — sails toward islandy hotspots across the Caribbean. Fun-fan favorites like SportSquare and mouth-watering dining spots like Cucina del Capitano are just the beginning of how Carnival Breeze keeps the fun blazing.

Enjoy the island atmosphere of RedFrog Rum Bar, or south-of-the-border taco goodness at BlueIguana Cantina. There’s family fun (and games) at Hasbro, The Game Show and ha-ha hilarity at the Punchliner Comedy Club Presented by George Lopez. Let’s not forget Guy's Burger Joint, which features signature, hot-off-the-grill burgers designed by celebrity chef Guy Fieri! There are many fish in the sea, and you'll find a nice selection of them at Bonsai Sushi.

Carnival Breeze has the whole family covered — with water, that is — with a 320-foot-long Twister Waterslide at Carnival WaterWorks. Just for the kids there’s supervised youth programs like Camp Carnival and Club O2. And for the bigger people, there’s just-me-time to be had relaxing at Serenity Adult Only Retreat… after you pamper yourself at Cloud 9 Spa, of course. Then for fun after the sun’s done, have a truly moving experience at the multi-dimensional Thrill Theater, dance in your seat at Playlist Productions… or if you prefer to do your dancing on a dance floor, check out Liquid Nightclub.

If you notice a bit of the outdoors inside, don’t adjust your view. Carnival Breeze’s staterooms — and many of the public spaces around the ship — feature a scintillating tropical décor and contemporary furnishings that’ll transport you straight to warm Caribbean bliss.

Register here!

President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam

This week CHERUBS President and Founder, Dawn Torrence Williamson, will be speaking to CDH surgeons and researchers at the International CDH Workshop at Sophia Children's Hospital in Rotterdam, Holland.   An event to showcase the latest in Congenital Diaphragmatic Hernia Research and results from the CDH Study Group, this is a wonderful opportunity for the world's largest CDH charity to share our information and services and to learn how we can better work with researchers worldwide.

Research being presented this year includes:


Kevin Lally, Houston, USA      
The CDH registry, 8000 patients included: so what?

Jay Wilson, Boston, USA
CDH; my personal “toy”; why I still do not understand CDH

Annelies de Klein, Rotterdam, the Netherlands
Human molecular genetics; to whose benefit?

Zornita Stark:  Chromosome abnormalities detected by SNP  microarray in a cohort of 28 infants with congenital diaphragmatic hernia

Paul Brady: Exome sequencing identifies inherited pathogenic variants for congenital diaphragmatic hernia

Artem Burov: Family bilateral congenital diaphragmatic hernia

Daryl Scott, Houston, USA
Genetic modulated animal models; does it bring anything relevant?

Richard Keijzer, Winnipeg, Canada
The Nitrofen rat model of CDH; still applied toxicology?

Robbert Rottier, Rotterdam, the Netherlands
Pulmonary vascular development: maximal confusion?

Heleen Kool: Pericytes play a central role in pulmonary hypertension and the origin of CDH

Rory Morty: Giessen, Germany
The extra-cellular matrix; a different organ?

Kim Schilders: An in vivo approach to determine the dynamic Sox2 interactome of the developing lung

Joshua Ochieng: Ectopic Sox2 expression reprograms mature airway epithelial cells

Martin Post, Toronto, Canada
Of mice and men: relevant for injury and repair?

Patricia Pereira Terra: MicroRNA miR-200b rescues abnormal branching morphogenesis of nitrofen-induced hypoplastic lung explants

Albert Sgrò: Role of the autoptic examination in CDH

Jan Deprest, Leuven, Belgium
PLUG the lung: is it ethical justifiable?

Jamila Al-Maary: Fetal tracheal occlusion for pulmonary hypoplasia in severe congenital diaphragmatic hernia: A systematic review and meta-analysis of survival outcome

Claudia Hagelstein: Repetitive MR Measurements of Lung Volume in Fetuses with Congenital Diaphragmatic Hernia: Individual Development of Pulmonary Hypoplasia during Pregnancy with Calculation of Weekly Lung Growth Rates

Noriaki Usui: Relationship between the L/T ration and the O/E LHR in fetuses with congenital diaphragmatic hernia

Philip DeKoninck: The use of speckle tracking in cardiac function assessment in fetuses with congenital diaphragmatic hernia

Inga Sandaite: Relationship between herniated liver-to-thorax ratio and lung volumes measured

Alexandra Benachi: Liver position in left-sides congenitaldiaphragmatic hernia

Philip De Koninck: Cardiac assessment in fetuses with right-sided congenital diaphragmatic hernia: a case-controlled study

Patricia Terra: MicroRNA miR-200b expression changes during FETO in CDH – a pilot study

Anouk Deden: Exploring the use of nanoparticles to deliver microRNAs for prenatal therapies

Irwin Reiss, Rotterdam, the Netherlands
Respiratory management: the VICI trial; the wrong choice?

Paola Giliberti: Effects of different ventilation modalities on near infrared spectroscopy in operated CDH infants

Francesca Londolfo: Effects on functional residual capacity (FRC) and lung clearance index (LCI) of surgical repair and pleural effusion in high risk left congenital diaphragmatic hernia (CDH)

Osamu Kimura: The way to shorten the postoperative intubation period in neonates with congenital diaphragmatic hernia

Ulrike Kraemer, Rotterdam, the Netherlands
Pulmonary hypertension: a classical example of lack of knowledge!

Rose Gaiteiro: Prostaglandin E1 use in congenital diaphragmatic hernia (CDH); A 13 year review of outcomes (2000-2012) in a single tertiary paediatric academic health science centre

8.42 – 8.54 am    Neil Patel:  Right ventricular diastolic function measured by tissue Doppler imaging predicts outcome in congenital diaphragmatic hernia

Neil Patel: Benefits of the intravenous phosphodiesterase inhibitors sildenafil and milrinone in infants with congenital diaphragmatic hernia

Tomohiko Tanaka: Evaluation of diastolic disorder using diastolic wall drain (DWS) before and after radical surgery for congenital diaphragmatic hernia

Ryo Ishii: The impact of intravenous administration of prostacyclin for congenital diaphragmatic hernia

Tadahura Okazaki, Tokyo, Japan’
Clinical strategies: all wisdom comes from the East?!

Irma Capolupo: SNAP-II score correlates with the outcome of infants with congenital diaphragmatic hernia; a single center, prospective study

Mary Brindle: CDH mortality score: a validated clinical prediction rule to stratify patients with congenital diaphragmatic heria (CDH) based on their risk of mortality

Artem Burov: Intensive care of newborns with congenital diaphragmatic hernia in the perinatal center; Russian experience

Kouji Nagata: The current profile and the future perspectives of congenital diaphragmatic hernia – A nationwide survey in Japan

Thomas Schaible, Mannheim, Germany
ECMO: an expensive way to die?

Pietro Bagolan, Rome, Italy
Surgical approaches: an art without evidence?

Paul Losty: A nationwide survey of prosthetic patch utilisation in
newborns with congenital diaphragmatic hernia

Karin Zahn: Single centre results and patients selection criteria for thoracoscopic repair of congenital diaphragmatic hernia in neonates

Tadahura Okazaki: Thoracoscopic repair for congenital diaphragmatic hernia in neonates: a single center study

Paolo De Coppi, London, UK
Tissue engineering; the future of repair?

Luca Urbani: Diaphragm remodeling is promoted by an acellular matrix in a muscle-specific spinal muscular atrophy mouse model

Hanneke IJsselstijn, Rotterdam, the Netherlands  
Structured follow up; does it help the individual patient?

Daphne Mous: Gentle ventilation in congenital diaphragmatic hernia patients: Long-term pulmonary outcome

Laura Valfre: Surgical outcomes in congenital diaphragmatic hernia survivors: Long term-follow up

Laura Valfre: Patching the diaphragm affects orthopaedic outcome: A five years follow-up

Paul Losty: Outcomes following prosthetic patch repair in newborns with congenital diaphragmatic hernia – A single centre experience

Neil Patel: Sildenafil weaning post-discharge in congenital diaphragmatic hernia

Marlous Madderom, Rotterdam, the Netherlands
Congenital diaphragmatic hernia with(out) ECMO: impaired development at 8 years, the disease or therapy to blame?!

Julia Gunn: Two year neurodevelopmental outcome following
neonatal repair of congenital diaphragmatic hernia
Karin Zahn: Long-term results of ECMO therapy in neonates with congenital diaphragmatic hernia

Kirsten Lyons: The effects of a sustained flexed position in supine on a CDH infant displaying reduced spontaneous movements against gravity: a case report

Monique van der Cammen: Motor performance in children with congenital diaphragmatic hernia treated with neonatal extracorporeal membrane oxygenation; a nationwide evaluation

Daphne Mous: Congenital diaphragmatic hernia patients treated with ECMO are at risk for chronic malnutrition into childhood

Beth Haliburton: Energy intake in infants with congenital diaphragmatic hernia (CDH)

Meike Weidner: MR quantitative pulmonary perfusion imaging at 3.0 T of 2-year-old children after congenital diaphragmatic hernia repair

Marjolein Spoel: 3He MRI in young adults with congenital diaphragmatic hernia: alveolar size differences between the IPSI- and contralateral lung
 


Also speaking is Onno Zwart, founder of En Stitching Hernia Diafragmatica, a Netherlands based CDH charity that was also founded in 1995.  Onno and his wife, Sigrid, have lost 3 cherubs to CDH and are long time members of CHERUBS.  In 2000, Onno visited the United States to attend CHERUBS first conference in Orlando (photo below), the first of many other CDH charity leaders we have welcomed to our events.  13 years later, Onno and Sigrid are hosting us for the CDH Workshop in Holland.

We are very grateful for this speaking opportunity and look forward to sharing information with CDH families, as well as our speech, when we return.

 CHERUBS 2000 CDH Conference

 Onno Zwart

  Onno and Dawn at Disney, 2000

(we will get better photo this year)

CDH Leaders in San Antonio, 2009

CHERUBS E-Newsletter Is Out!

To see the full, clearer view of the E-Newsletter, click here.
Subscribe - http://eepurl.com/gtYgH





CHERUBS CDH News

Click here to get the new CDH Awareness & Research Facebook Timeline Cover, one of several new free graphics offered by CHERUBS

CHERUBS in the Coastal.com Contest - Contest Ends On February 5th!

Between now and February 5th, CHERUBS is in the Coastal contest at Crowdrise.com, competing against 9 other charities for $5000 for CDH Research!  Can you help?  http://www.crowdrise.com/coastal2012

The charity who raises the most donations wins $5000. Charities keep all their donations and the first $5000 in donations was matched by Coastal - CHERUBS raised $1800 in matches!

http://www.crowdrise.com/coastal2012

Every donation will bring us closer to winning the additional $5000 for CDH Research!

$50,000,000 CDH Research Bill
We are still working hard on getting members to write to your Congressmen in support of the $50,000,000 Congenital Diaphragmatic Hernia Research Bill!   Have you sent your letters in yet?  We have sample letters you use at http://www.cdhbills.org   Most will write you back but no, you won't get a pretty proclamation with a gold seal... what we will get is photos of these children on their first birthdays because with research more babies will survive CDH!

Also, don't forget to sign the petition and if  you're on Facebook, you can use the new CDH Awareness & Research Cover (above, at top) on your timeline!

2012 Parade of Cherubs In Washington DC

We have tentatively planned to hold a Parade of Cherubs in Washington DC on Thursday, April 19th in Observance of the Day of Congenital Diaphragmatic Hernia Awareness Daily Celebration.  We work extra hard on this day each year to raise CDH Awareness and promote the need for DAILY awareness because April 19th is the anniversary of the removal of the trademark on "Congenital Diaphragmatic Hernia Awareness".  Around the world families hold events, fundraisers, light candles, release balloons and more.

This year on April 19th we are going to promote not only CDH Awareness but CDH Research by marching through the Mall between the Washington Monument and Lincoln Memorial and up to the steps of the Capitol Building with the children (cherubs, survivors, friends, etc) wearing wings. At Capitol Hill we will visit Congressmen to tell them about CDH and the importance of this research and hopefully we have a chance to chat with our bill sponsor, Senator Jeff Sessions whose grandson, cherub Jim Beau, is in the photo to the left and part of our Save the Cherubs campaign!   So far 30 families have responded who want to attend and we are VERY excited about this event!  If you have never been to Washington DC, this is a great reason to go!   Visit the FB event page for details at http://www.facebook.com/events/168281803280580/

2012 CDH Conference - Save the Date!

 

The 2012 International Congenital Diaphragmatic Hernia Conference will take place on July 26 - 29th in San Francisco, California!   Our conferences include the best CDH Researchers in the world, parent round-table discussions, a Parade of Cherubs with balloon release, Pizzy Party, CDH Awareness news, fun for the kids and more!   We never charge a conference fee, try to make it as safe and affordable as possible and we always learn so much from the researchers and each other!  ALL members are welcome to attend!   Stay tuned for hotel information as well as the conference schedule at http://www.cdhconference.org

Want To Be In A CDH PSA Video?
CHERUBS has been granted a 3 minute CDH PSA through a local Raleigh videography firm.  This video will be used on our sites, social media and submitted to television and radio stations around the country.  We are also in the initial planning phases of creating a 30 minute educational video for our CDH HOPE Totebags.

If you would like to participate in these videos, please e-mail Dawn at dawn.williamson@cdhsupport.org  You can also view all our past videos at our YouTube channel.

Save The Cherubs Posters
We are working on grant funding to mass produce our "Save the Cherubs" CDH Awareness posters for display across the country but in the meantime you can order posters through our store or download the graphics for free and print them yourself to post around town, at your office, at home or at other locations to raise awareness!

We also need more photos!   We especially need seasonal and holiday themed photos for our calendars and events.  You can find out more info on the types of photos, how to make it "candid" and where to order wings at http://www.savethecherubs.org

CDH HOPE Totebags - We Need Your Help!

 

Many thanks to the wonderful families who are donating items to help us fill the CDH HOPE (Helping Other Parents Expecting) Totebags!  Right now we are sending out 30 to 40 totebags per month to new and expectant CDH families at about $40 each for shipping, CDH Baby Books and totebags and other items not donated, so these donations are helping us quite a bit as we expect to spend over $16,000 to fund this service in 2012. 

We are always in need of items for the totebags;  baby hats and booties, baby shirts, blankets, children's books, disposible cameras, handprint kits, soft picture frames, hand sanitizer, hand lotion, chapsticks, baby eye masks, pacifiers and journals.  All donations are labeled in honor / memory of the donor's cherub.  If you would like to donate items, please mail them to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587.

Grant Funding & Corporate Donations
CHERUBS is working hard to raise money this year to help with many projects, awareness and research.  Ideally, we'd like to raise over $500,000 in 2012 but we need your help!  Do you know of a Foundation who may grant funding to our charity or does your place of work donate to charities?  If you can help, please contact Ashley at abarry@cherubs-cdh.org

The 2012 CDH Awareness Calendar and 2012 Save the Cherubs calendar are still on sale!!! 
www.cdhawarenessshop.org
Our CDH Awareness Calendar for 2012 features over 1050 cherubs!  If  you have ever sent your child's photo to CHERUBS in the past 16 years, your cherub is included!  These calendars make wonderful gifts for family, friends and medical staff.

Donate

Donate to CHERUBS to help children like Andrew fight CDH.   Donations are tax-deductible and greatly needed.

www.cdhdonations.org
 

Join the Angel Club and donate as little as $1 per month to help CDH babies & families.

Calendar of Events:

Now - February 5th - Coastal.com Contest

Now - February 14th - CDH Valetines Fundraiser

Now - February 14th - CDH Valetines Jewelry Sale

March 17th - Eli's Family Fun Run in Wilmington, NC

March 24th - Great Human Race in Durham, NC

April 19th - Parade of Cherubs, Washington DC

June 30th - Mount Snowden Climb in Wales, UK

July 26-29th - 2012 CDH Conference in San Francisco, CA

October 22nd - 2012 Masquerading Angels Ball in Raleigh, NC



CHERUBS:

CHERUBS Web Site
CHERUBS Forums
  By E-Mail
  On Facebook
  On Twitter
  On YouTube
  On Google+
  On Blogger
  On LinkedIn

Mailing Address:
3650 Rogers Rd #290
Wake Forest, NC 27587

Office Address:
1725 S. Main St
Suite 202
Wake Forest, NC 27587

Phone:  919-610-0129
Toll-Free:  855-CDH-BABY / 855-234-2229
Fax:  815-425-9155



Valentine's Day Jewelry Fundraiser:

We have several items to offer this year from great people helping us to help babies born with Congenital Diaphragmatic Hernia.   Get your order in for Valentine's Day!!!

 

Cherub Charm from PeekabooICU.com fits Journey Bead necklaces and bracelets.  Just $3.00 each.

 

 

 

 CDH Bracelet from Bunky's Bama Blankies N'stuff

 

 

 

  CDH Awareness Bracelet from NTJ Bracelets & Bows

 

 

 

Lots of different CDH & cherub necklaces and bracelets over at Lillybeck Originals!

 

 

 
NEW- CDH Awareness Bracelets
Now offering Yellow Bracelets and sets of 3!

Silicone CDH Awareness Bracelets directly from CHERUBS

 

Tons of CDH Awareness Ribbon jewelry and other items in CHERUBS Cafepress Store

 

 

And for the men...

NEW - CDH Neckties

Cherub Alexandria, finally home after 5 months in the hospital!



Feel free to use our FB profile photo!

CHERUBS 2010 Congenital Diaphragmatic Hernia Conference Lectures

CHERUBS 2010 International Member Conference

May 13 - 16, 2010
Orland, Florida


 
http://www.youtube.com/watch?v=C9a_VNS3rYI 
 

The hotel was wonderful, the cherubs miracles and we learned so much from the researchers and each other.  The weather was great.  We truly could not have asked for a better week!!!

The kids were adorable dressed as cherubs for our Save the Cherubs campaign - we got some AMAZING photos, including photos at Disney, with Mickey and Minnie, at the pool and the first Parade of Cherubs and CDH balloon release.  And they sung the CDH Kids Song for us again this year!

We met so many wonderful families!  The pizza party, introductions and each day was wonderful.  CDH Research Day included slide shows, information and research participation.   CDH Support Day included many round-table discussions on every topic dealing with CDH.  CDH Awareness Day included everyone learning about easy and fun ways to raise awareness.  Everyone left the conference with new friends, lots of new information and excited to go home and start working to help other CDH families!  It was an absolute pleasure to meet so many wonderful parents and cherubs (and grandparents and other family members too!) that we talk to on-line all year round.  Good-byes were definitely hard this year.

This was our 10th anniversary of the first international Congenital Diaphragmatic Hernia Conference, also held in Orlando.   We are so proud of our conferences and guest speakers!  Put together by volunteers and medical professionals with CDH experience and built upon 15 years of working together to offer the most services and information and support for families at our conferences - while keeping them fun and affordable. They aren't just CHERUBS members getting together and hanging out, they aren't conferences about CHERUBS at all - they are truly 100% about Congenital Diaphragmatic Hernia!    They have included so many incredible doctors and researchers.  We've also had representatives from CHERUBS UK, CHERUBS Australia, the Olivia Raine Foundation, Little Lambs, Real Hope for CDH and other great ACDHO organizations attend our conferences!   Not to mention members from all across the U.S. as well as England, Ireland, Australia, Italy, Mexico and Canada!

 

Many families participated in CDH genetic studies by giving blood samples at the conference.  We were fortunate to have 5 researchers participate!  Not only did they speak on their research and share new information with us but they sat in on round-table discussions and learned from parents as well.   We will post more about the researchers and research and how you can participate in the next few days!  :)

CHERUBS also participated in 2 medical conferences and we have quite a bit of CDH research and projects going on that we will post about soon!  It was WONDERFUL to see the surgeons wearing our ribbon and buttons, to hear all the lectures on CDH, to talk to them about CDH and share our own information with them.  So many came up to us to thank us for our work, gather materials for their patients' families, to tell us they signed the petition against the trademark and were rooting for us, to ask us questions about how to deal with CDH families.    One conference even had a member wearing wings during their awards ceremony, escorting award winners to the podium.   This same conference had a speech about CDH and recognized CHERUBS and our work - we were even cited as their reference for a lot of their research information.   We even found a few sponsors along the way.   CHERUBS is the first charity to ever attend these events, we are so honored to be a part of both conferences!

It was a wonderful, productive, supportive and very beneficial week for the CDH Community!  More photos, details and videos coming soon!

We hope to see everyone next year!

 

 

 

2010 CHERUBS Conference Lectures


The quality isn't exactly professional but we try hard to bring you as much information as possible through video! 



Meaghann Russell, MPH and Mauro Longoni, MD
(MassGeneral CDH Clinic, Boston, MA)
CDH and Genetics

Part 1 - http://www.youtube.com/watch?v=07QyNx68uBk

The rest of the videos are available to view at http://www.cherubsconference.org/2010.php

Marc Arkovitz, MD and Julia Wynn
(New York Presbyterian Columbia / DHREAMS)
CDH and Genetics

 

Part 1 - http://www.youtube.com/watch?v=oahzKNYi8Qg

The rest of the videos are available to view at http://www.cherubsconference.org/2010.php

Bella Belleza-Bascon, RN, MHA
(Texas Children's Hospital / Fetal Center, Baylor College of Medicine)
CDH and Genetics

Part 1 - http://www.youtube.com/watch?v=sX5jNEmeKAw

The rest of the videos are available to view at http://www.cherubsconference.org/2010.php

Conference Schedule:

Thursday, May 13, 2010

7:00 - 9:00 pm - Pizza Party and Introductions

Friday, May 14, 2010 - CDH Support

8:00 am - 8:45 am Round Table Discussions Session 1

• For CDH Survivors (choose one)
• Physical and Occupational Therapies
  
• Feeding Issues
  
• For Grieving CDH Families (choose one)
• Faith & Doubts In Grief
  
• Dealing With Anger
  

9:00 am - 9:45 am Round Table Discussions Session 2

• For CDH Survivors (choose one)
• IEPs for School Age Children
• Early Intervention for Infants & Toddlers
• For Grieving CDH Families (choose one)
• Grief and Siblings
• Dealing With Special Days
  

10:00 am - 10:45 am Round Table Discussions Session 3

• For CDH Survivors (choose one)
• Dealing with Family & Friends
• Marriage & Having a Special Needs Child
• For Grieving CDH Families (choose one)
• Dealing with Family & Friends
• Marriage & Grief

11:00 am - 11:45 am Round Table Discussions Session 4

• For CDH Survivors (choose one)
• Pregnancy After CDH
• Helping Other CDH Families
• For Grieving CDH Families (choose one)
• Pregnancy After CDH
• Creating Something Good From Sadness

Saturday, May 15, 2010 - CDH Research

8:00 am - 11:00 am - Guest Speakers On Current CDH Research Studies

8:00 am - 9:00 am  - Meaghan Russell and Mauro Longani from Mass General

9:00 am - 10:00 am  - Speaker Information coming soon!

10:00 am - 11:00 am  - Speaker Information coming soon!

11:00 am - 12:00 pm  View Research Booths, Sign up for CDH Research Studies

Sunday, May 16, 2010 - CDH Awareness

8:00 am - 8:30 am - "Current and future global efforts to raise CDH Awareness" by Dawn Williamson, President & Founder

8:30 am - 9:30 am - Group discussion on how we can raise more CDH Awareness as a community

9:30 am - 10:30 am - Group disccussion on how families can raise CDH Awareness in honor and in memory of individual cherubs.

10:30 am - 11:00 am - Saying Good-byes