Congenital Diaphragmatic Hernia: CHERUBS E-Newsletter Is Out!

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CHERUBS CDH News

Click here to get the new CDH Awareness & Research Facebook Timeline Cover, one of several new free graphics offered by CHERUBS

CHERUBS in the Coastal.com Contest - Contest Ends On February 5th!

Between now and February 5th, CHERUBS is in the Coastal contest at Crowdrise.com, competing against 9 other charities for $5000 for CDH Research! Can you help? http://www.crowdrise.com/coastal2012

The charity who raises the most donations wins $5000. Charities keep all their donations and the first $5000 in donations was matched by Coastal - CHERUBS raised $1800 in matches!

http://www.crowdrise.com/coastal2012

Every donation will bring us closer to winning the additional $5000 for CDH Research!

$50,000,000 CDH Research Bill
We are still working hard on getting members to write to your Congressmen in support of the $50,000,000 Congenital Diaphragmatic Hernia Research Bill! Have you sent your letters in yet? We have sample letters you use at http://www.cdhbills.org Most will write you back but no, you won't get a pretty proclamation with a gold seal... what we will get is photos of these children on their first birthdays because with research more babies will survive CDH!

Also, don't forget to sign the petition and if you're on Facebook, you can use the new CDH Awareness & Research Cover (above, at top) on your timeline!

2012 Parade of Cherubs In Washington DC

We have tentatively planned to hold a Parade of Cherubs in Washington DC on Thursday, April 19th in Observance of the Day of Congenital Diaphragmatic Hernia Awareness Daily Celebration. We work extra hard on this day each year to raise CDH Awareness and promote the need for DAILY awareness because April 19th is the anniversary of the removal of the trademark on "Congenital Diaphragmatic Hernia Awareness". Around the world families hold events, fundraisers, light candles, release balloons and more.

This year on April 19th we are going to promote not only CDH Awareness but CDH Research by marching through the Mall between the Washington Monument and Lincoln Memorial and up to the steps of the Capitol Building with the children (cherubs, survivors, friends, etc) wearing wings. At Capitol Hill we will visit Congressmen to tell them about CDH and the importance of this research a Jim Beau Reinhardt, photo by Samantha Alday

nd hopefully we have a chance to chat with our bill sponsor, Senator Jeff Sessions whose grandson, cherub Jim Beau, is in the photo to the left and part of our Save the Cherubs campaign! So far 30 families have responded who want to attend and we are VERY excited about this event! If you have never been to Washington DC, this is a great reason to go! Visit the FB event page for details at http://www.facebook.com/events/168281803280580/

2012 CDH Conference - Save the Date!

The 2012 International Congenital Diaphragmatic Hernia Conference will take place on July 26 - 29th in San Francisco, California! Our conferences include the best CDH Researchers in the world, parent round-table discussions, a Parade of Cherubs with balloon release, Pizzy Party, CDH Awareness news, fun for the kids and more! We never charge a conference fee, try to make it as safe and affordable as possible and we always learn so much from the researchers and each other! ALL members are welcome to attend! Stay tuned for hotel information as well as the conference schedule at http://www.cdhconference.org

Want To Be In A CDH PSA Video?
CHERUBS has been granted a 3 minute CDH PSA through a local Raleigh videography firm. This video will be used on our sites, social media and submitted to television and radio stations around the country. We are also in the initial planning phases of creating a 30 minute educational video for our CDH HOPE Totebags.

If you would like to participate in these videos, please e-mail Dawn at dawn.williamson@cdhsupport.org You can also view all our past videos at our YouTube channel.

Save The Cherubs Posters

We are working on grant funding to mass produce our "Save the Cherubs" CDH Awareness posters for display across the country but in the meantime you can order posters through our store or download the graphics for free and print them yourself to post around town, at your office, at home or at other locations to raise awareness!

We also need more photos! We especially need seasonal and holiday themed photos for our calendars and events. You can find out more info on the types of photos, how to make it "candid" and where to order wings at http://www.savethecherubs.org

CDH HOPE Totebags - We Need Your Help!

Many thanks to the wonderful families who are donating items to help us fill the CDH HOPE (Helping Other Parents Expecting) Totebags! Right now we are sending out 30 to 40 totebags per month to new and expectant CDH families at about $40 each for shipping, CDH Baby Books and totebags and other items not donated, so these donations are helping us quite a bit as we expect to spend over $16,000 to fund this service in 2012.

We are always in need of items for the totebags; baby hats and booties, baby shirts, blankets, children's books, disposible cameras, handprint kits, soft picture frames, hand sanitizer, hand lotion, chapsticks, baby eye masks, pacifiers and journals. All donations are labeled in honor / memory of the donor's cherub. If you would like to donate items, please mail them to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587.

Grant Funding & Corporate Donations
Jacob Rondeau

CHERUBS is working hard to raise money this year to help with many projects, awareness and research. Ideally, we'd like to raise over $500,000 in 2012 but we need your help! Do you know of a Foundation who may grant funding to our charity or does your place of work donate to charities? If you can help, please contact Ashley at abarry@cherubs-cdh.org

The 2012 CDH Awareness Calendar and 2012 Save the Cherubs calendar are still on sale!!!
www.cdhawarenessshop.org
Our CDH Awareness Calendar for 2012 features over 1050 cherubs! If you have ever sent your child's photo to CHERUBS in the past 16 years, your cherub is included! These calendars make wonderful gifts for family, friends and medical staff.

Donate

Donate to CHERUBS to help children like Andrew fight CDH. Donations are tax-deductible and greatly needed.

www.cdhdonations.org

Join the Angel Club and donate as little as $1 per month to help CDH babies & families.

Calendar of Events:

Now - February 5th - Coastal.com Contest

Now - February 14th - CDH Valetines Fundraiser

Now - February 14th - CDH Valetines Jewelry Sale

March 17th - Eli's Family Fun Run in Wilmington, NC

March 24th - Great Human Race in Durham, NC

April 19th - Parade of Cherubs, Washington DC

June 30th - Mount Snowden Climb in Wales, UK

July 26-29th - 2012 CDH Conference in San Francisco, CA

October 22nd - 2012 Masquerading Angels Ball in Raleigh, NC

CHERUBS:

CHERUBS Web Site

CHERUBS Forums

By E-Mail

On Facebook

On Twitter

On YouTube

On Google+

On Blogger

On LinkedIn

Mailing Address:
3650 Rogers Rd #290
Wake Forest, NC 27587

Office Address:
1725 S. Main St
Suite 202
Wake Forest, NC 27587

Phone: 919-610-0129
Toll-Free: 855-CDH-BABY / 855-234-2229
Fax: 815-425-9155

Valentine's Day Jewelry Fundraiser:

We have several items to offer this year from great people helping us to help babies born with Congenital Diaphragmatic Hernia. Get your order in for Valentine's Day!!!