Seattle, WA Parade of Cherubs on April 19th

 Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! 

Seattle, Wa Parade Parade of Cherubs on April 19th for CDH Awareness

•     On Facebook - https://www.facebook.com/events/245684502229317/
•      Register on Eventbrite - http://cdhawarenessday-2013seattle.eventbrite.com/
•      Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
•      50% of money raised will be donated to Seattle Children's Hospital for CDH Research
•     Contact Christina with any questions about this event at washington@cherubs-cdh.org
  

MEET OUR VOLUNTEERS - Andrea Martin

Andrea Martin My name is Andrea Martin and I am the mom to Sarah, born in 1999 with a LCDH. She was diagnosed in-utero at about 25 weeks. She was given a 25% chance of survival. Sarah was born in Portland and was quickly put on ECMO after her first repair. She did remarkably well and was in the NICU for about 2 months. She had a second hernia repair done at 10 months old. Sarah had a lot of complications from a brain bleed while on ECMO and has had years of ongoing issues resulting from CDH. She had rods fused to her spine to correct her scoliosis at 8 years old. Sarah is currently almost 14 years old and overall is a pretty typical teenager. She does struggle with her lung function but is a strong willed girl who does not let anything get in her way! I have been a member of CHERUBS for almost 13 years or so. I am a single mom whose first priority is my daughter. I am a child and family counselor and have a Master's in Counseling. Besides my CHERUB I also have a little dog who I spoil as if he was a real baby!I enjoy scrap booking, reading, watching Friends, shopping and decorating.

MEET OUR VOLUNTEERS - Christina Smith-Stembler

Christina Smith-Stembler My name is Christina, I am Mother to 4 children. My 3rd child, Hunter was diagnosed with Left side CDH at 20 weeks gestation. Before the diagnosis, I was full of joy that I was having my first Son, after, I was full of worry. Hunter was born in 2008, full term with less than 10% chance of survival, and survived LCDH(Left Sided Congenital Diaphragmatic Hernia), 10 days on ECMO, Initial replacement of missing diaphragm with synthetic NeoPrene patch, Breathing Machines, pulmonary hypertension, Stroke, No Pericardial Sack, RSV, Repair to diaphragm Patch, Bowel Blockage, Bowel Reconstruction, Months of IV antibiotics, Lovenox Shots to dissolve blood clot in heart, Low Weight and Size, Still being fed by G-Tube, (WEEK OF APRIL 13TH, 2012 HUNTER TOOK HIS FIRST FOOD BY MOUTH) Physical, Occupational and Feeding Therapy Daily and through all of this, he looks at me and brightens every room with his smile, he has remained happy and strong, he has even taught me the meaning of the words miracle, strength and humility. Hunter is my hero and stronger in spirit than anyone I have ever known! He is now 4 years old and attends a preschool with other special needs children. He has come so far and I am so proud to be his Mother. Overall, Hunter spent 45 days in NICU, several other hospital stays and approximately 10 surgeries. He has 2 Big Sisters, Danielle 21 (Dating a CDH Survivor), Codee 17, and a baby Brother, Hayden 2. Hunter's condition, in a weird way, has made us stronger as a family (The Stembler Six Pack) and has taught us lessons we will never forget! He is the reason I became Washington State Rep and Oregon Co-Rep for CHERUBS. I wanted other families to know that there is someone here for them, someone that they can depend on and a little boy that can provide some light in the darkness of CDH.

CDH Awareness - Seattle Parade of Cherubs on April 19, 2012

April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Register at http://seattle2012paradeofcherubs.eventbrite.com/

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

 

Contact Person - Christina Stembler at washington@cherubs-cdh.org

 

Facebook Event Page (more up to date details) - http://www.facebook.com/events/202451286525772/

When - Thursday, April 19, 2012.

Where - parade route below:

 

 

We will be meeting on Pier 62/63 (if standing in front of the aquarium, it is to the right) at 11-11:30 A.M.

At 11:30 A.M. we will begin walking, we will pass Seattle Aquarium and End our Parade at Waterfront Park Where we will release Balloons and say a few words about how CDH has affected each of us.

Pictures and Video will be taken and used on Public Media, Advertisement, etc. I will have Media releases on hand.

ANYONE affected by CDH in the Wa area is invited to this event. I will have Event T-Shirts for everyone to wear.

We will be Joined by The Real Charitable Housewives of Seattle. Let’s make this a GREAT event!

 

 What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes!   If you choose to purchase the T-Shirt at the end of the event the cost is $7.50.

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org. Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

 

Learn more about CDH and CHERUBS at www.cdhsupport.org.

 

 

 

CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!

Congential Diaphragmatic Hernia Research Bill

In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.

Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.

1. Look Up Your Congressmen To find his / her mailing address
2. Download Letter to Send To Your Senator / Congressman
3. Include The CDH Research Bill and a photo of your cherub
4. Sign the CDH Research Bill petition and ask others to sign as well!

Change.org|Start an Online Petition »

Free Facebook Cover Banner:

Upcoming Events at CHERUBS

Upcoming CDH Events & Fundraisers:

Event	Date
USA CDH HOPE Totebag Drive	Now - April 19th
UK CDH HOPE Totebag Drive	Now - April 19th
Racing for Eli in Wilmington, NC	March 17, 2012
Great Human Race in Durham, NC	March 24, 2012
Virginia Fox Hunt Fundraiser	March 31, 2012
CHERUBS in the Boston Marathon	April 16, 2012
International CDH Awareness Daily Celebration	April 19, 2012
Washington DC Parade of Cherubs	April 19, 2012
St. Louis, MO Parade of Cherubs	April 19, 2012
Chicago, IL Parade of Cherubs	April 19, 2012
Denver, CO Parade of Cherubs	April 19, 2012
UK Light Up the Night CDH Awareness Event	April 19, 2012
Virtual Parade of Cherubs	April 19, 2012
(TENTATIVE) Boston, MA Parade of Cherubs	April 19, 2012
(TENTATIVE) Gainesville, FL Parade of Cherubs	April 19, 2012
Peoria, IL Parade of Cherubs	April 22, 2012
Pennsylvania Member Picnic	June, 2012
Mount Snowden Climb	June 30, 2012
2012 International CDH Conference in San Francisco, CA	July 26-29, 2012
Ohio Member Picnic	August, 2012
CDH Car Show in Granite Hills, IL	August 11, 2012
Masquerading Angel Ball in Raleigh, NC	October 20, 2012
The Charley Stanfield-Maher Ball in the UK	October, 2012
Trick or Treat for CHERUBS - global	October 31, 2012
Christmas with Kasey in Aurora, CO	November, 2012
CHERUBS Holiday Vendor Show in Wake Forest, NC	November, 2012
Raleigh Christmas Parade in Raleigh, NC	November, 2012
CHERUBS Holiday Ebay Auction on-line	November 20, 2012
CDH Ornaments Sale	Nov - Dec, 2012
National Children's Memorial Day	December, 2012
Save the Cherubs	2012

E-mail us at events@cdhsupport.org to add your CHERUBS, Hospital or Family CDH event.

CHERUBS E-Newsletter Is Out!

To see the full, clearer view of the E-Newsletter, click here.
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CHERUBS CDH News

Click here to get the new CDH Awareness & Research Facebook Timeline Cover, one of several new free graphics offered by CHERUBS

CHERUBS in the Coastal.com Contest - Contest Ends On February 5th!

Between now and February 5th, CHERUBS is in the Coastal contest at Crowdrise.com, competing against 9 other charities for $5000 for CDH Research!  Can you help?  http://www.crowdrise.com/coastal2012

The charity who raises the most donations wins $5000. Charities keep all their donations and the first $5000 in donations was matched by Coastal - CHERUBS raised $1800 in matches!

http://www.crowdrise.com/coastal2012

Every donation will bring us closer to winning the additional $5000 for CDH Research!

$50,000,000 CDH Research Bill
We are still working hard on getting members to write to your Congressmen in support of the $50,000,000 Congenital Diaphragmatic Hernia Research Bill!   Have you sent your letters in yet?  We have sample letters you use at http://www.cdhbills.org   Most will write you back but no, you won't get a pretty proclamation with a gold seal... what we will get is photos of these children on their first birthdays because with research more babies will survive CDH!

Also, don't forget to sign the petition and if  you're on Facebook, you can use the new CDH Awareness & Research Cover (above, at top) on your timeline!

2012 Parade of Cherubs In Washington DC

We have tentatively planned to hold a Parade of Cherubs in Washington DC on Thursday, April 19th in Observance of the Day of Congenital Diaphragmatic Hernia Awareness Daily Celebration.  We work extra hard on this day each year to raise CDH Awareness and promote the need for DAILY awareness because April 19th is the anniversary of the removal of the trademark on "Congenital Diaphragmatic Hernia Awareness".  Around the world families hold events, fundraisers, light candles, release balloons and more.

This year on April 19th we are going to promote not only CDH Awareness but CDH Research by marching through the Mall between the Washington Monument and Lincoln Memorial and up to the steps of the Capitol Building with the children (cherubs, survivors, friends, etc) wearing wings. At Capitol Hill we will visit Congressmen to tell them about CDH and the importance of this research and hopefully we have a chance to chat with our bill sponsor, Senator Jeff Sessions whose grandson, cherub Jim Beau, is in the photo to the left and part of our Save the Cherubs campaign!   So far 30 families have responded who want to attend and we are VERY excited about this event!  If you have never been to Washington DC, this is a great reason to go!   Visit the FB event page for details at http://www.facebook.com/events/168281803280580/

2012 CDH Conference - Save the Date!

 

The 2012 International Congenital Diaphragmatic Hernia Conference will take place on July 26 - 29th in San Francisco, California!   Our conferences include the best CDH Researchers in the world, parent round-table discussions, a Parade of Cherubs with balloon release, Pizzy Party, CDH Awareness news, fun for the kids and more!   We never charge a conference fee, try to make it as safe and affordable as possible and we always learn so much from the researchers and each other!  ALL members are welcome to attend!   Stay tuned for hotel information as well as the conference schedule at http://www.cdhconference.org

Want To Be In A CDH PSA Video?
CHERUBS has been granted a 3 minute CDH PSA through a local Raleigh videography firm.  This video will be used on our sites, social media and submitted to television and radio stations around the country.  We are also in the initial planning phases of creating a 30 minute educational video for our CDH HOPE Totebags.

If you would like to participate in these videos, please e-mail Dawn at dawn.williamson@cdhsupport.org  You can also view all our past videos at our YouTube channel.

Save The Cherubs Posters
We are working on grant funding to mass produce our "Save the Cherubs" CDH Awareness posters for display across the country but in the meantime you can order posters through our store or download the graphics for free and print them yourself to post around town, at your office, at home or at other locations to raise awareness!

We also need more photos!   We especially need seasonal and holiday themed photos for our calendars and events.  You can find out more info on the types of photos, how to make it "candid" and where to order wings at http://www.savethecherubs.org

CDH HOPE Totebags - We Need Your Help!

 

Many thanks to the wonderful families who are donating items to help us fill the CDH HOPE (Helping Other Parents Expecting) Totebags!  Right now we are sending out 30 to 40 totebags per month to new and expectant CDH families at about $40 each for shipping, CDH Baby Books and totebags and other items not donated, so these donations are helping us quite a bit as we expect to spend over $16,000 to fund this service in 2012. 

We are always in need of items for the totebags;  baby hats and booties, baby shirts, blankets, children's books, disposible cameras, handprint kits, soft picture frames, hand sanitizer, hand lotion, chapsticks, baby eye masks, pacifiers and journals.  All donations are labeled in honor / memory of the donor's cherub.  If you would like to donate items, please mail them to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587.

Grant Funding & Corporate Donations
CHERUBS is working hard to raise money this year to help with many projects, awareness and research.  Ideally, we'd like to raise over $500,000 in 2012 but we need your help!  Do you know of a Foundation who may grant funding to our charity or does your place of work donate to charities?  If you can help, please contact Ashley at abarry@cherubs-cdh.org

The 2012 CDH Awareness Calendar and 2012 Save the Cherubs calendar are still on sale!!! 
www.cdhawarenessshop.org
Our CDH Awareness Calendar for 2012 features over 1050 cherubs!  If  you have ever sent your child's photo to CHERUBS in the past 16 years, your cherub is included!  These calendars make wonderful gifts for family, friends and medical staff.

Donate

Donate to CHERUBS to help children like Andrew fight CDH.   Donations are tax-deductible and greatly needed.

www.cdhdonations.org
 

Join the Angel Club and donate as little as $1 per month to help CDH babies & families.

Calendar of Events:

Now - February 5th - Coastal.com Contest

Now - February 14th - CDH Valetines Fundraiser

Now - February 14th - CDH Valetines Jewelry Sale

March 17th - Eli's Family Fun Run in Wilmington, NC

March 24th - Great Human Race in Durham, NC

April 19th - Parade of Cherubs, Washington DC

June 30th - Mount Snowden Climb in Wales, UK

July 26-29th - 2012 CDH Conference in San Francisco, CA

October 22nd - 2012 Masquerading Angels Ball in Raleigh, NC



CHERUBS:

CHERUBS Web Site
CHERUBS Forums
  By E-Mail
  On Facebook
  On Twitter
  On YouTube
  On Google+
  On Blogger
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Mailing Address:
3650 Rogers Rd #290
Wake Forest, NC 27587

Office Address:
1725 S. Main St
Suite 202
Wake Forest, NC 27587

Phone:  919-610-0129
Toll-Free:  855-CDH-BABY / 855-234-2229
Fax:  815-425-9155



Valentine's Day Jewelry Fundraiser:

We have several items to offer this year from great people helping us to help babies born with Congenital Diaphragmatic Hernia.   Get your order in for Valentine's Day!!!

 

Cherub Charm from PeekabooICU.com fits Journey Bead necklaces and bracelets.  Just $3.00 each.

 

 

 

 CDH Bracelet from Bunky's Bama Blankies N'stuff

 

 

 

  CDH Awareness Bracelet from NTJ Bracelets & Bows

 

 

 

Lots of different CDH & cherub necklaces and bracelets over at Lillybeck Originals!

 

 

 
NEW- CDH Awareness Bracelets
Now offering Yellow Bracelets and sets of 3!

Silicone CDH Awareness Bracelets directly from CHERUBS

 

Tons of CDH Awareness Ribbon jewelry and other items in CHERUBS Cafepress Store

 

 

And for the men...

NEW - CDH Neckties

Cherub Alexandria, finally home after 5 months in the hospital!



Feel free to use our FB profile photo!