MEET OUR VOLUNTEERS - Andrea Martin

Andrea Martin My name is Andrea Martin and I am the mom to Sarah, born in 1999 with a LCDH. She was diagnosed in-utero at about 25 weeks. She was given a 25% chance of survival. Sarah was born in Portland and was quickly put on ECMO after her first repair. She did remarkably well and was in the NICU for about 2 months. She had a second hernia repair done at 10 months old. Sarah had a lot of complications from a brain bleed while on ECMO and has had years of ongoing issues resulting from CDH. She had rods fused to her spine to correct her scoliosis at 8 years old. Sarah is currently almost 14 years old and overall is a pretty typical teenager. She does struggle with her lung function but is a strong willed girl who does not let anything get in her way! I have been a member of CHERUBS for almost 13 years or so. I am a single mom whose first priority is my daughter. I am a child and family counselor and have a Master's in Counseling. Besides my CHERUB I also have a little dog who I spoil as if he was a real baby!I enjoy scrap booking, reading, watching Friends, shopping and decorating.

MEET OUR VOLUNTEERS - Shelly Moore

Shelly Moore

Shelly is mother to 3 adult children & 3 grandchildren, the youngest being her Cherub angel grandson Jayden Gilbert who lost his battle to CDH & kidney failure due to pulmonary hypertension complications at 23 days old on March 14, 2010. She is currently serving as as a CHERUBS Co-Representative for Oregon as well as sharing CHERUBS Hospital Angel duties with her daughter Alicia Gilbert, mother to Jayden. Shelly & Alicia came to CHERUBS just before Jayden was born, and even through the loss of their angel have been an active part of contests and awareness campaigns over the past two years for CHERUBS and have extended support to fellow CDH families all over the globe. She was also co-organizer for the “Portland Parade of Cherubs” on April 19, 2012.

Shelly has a background in computers and has worked primarily as a Windows technical support specialist in the home user market for over 10 years with additional years in customer service after leaving several years employment in the health care industry. She also served as a past president of the former Oregon Chapter of the National Marfan Foundation (NMF) for 7 years & currently supports the NMF as a telephone contact. She & her husband have been married for almost 19 years and they are avid Oregon Ducks & Portland Trailblazers fans.

April 19, 2013 CDH Awareness Day Proclamation - Oregon

Oregon proclaimed April 19, 2013 for CDH Awareness!

Learn how to get a proclamation at http://www.cdhawarenessday.org

*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"