Denver, CO Parade of Cherubs on April 19

 Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! 

Denver, Colorado Parade Parade of Cherubs on April 19th for CDH Awareness

•     On Facebook - https://www.facebook.com/events/190447231096098/ 
•     Register on Eventbrite - http://cdhawarenessday-2013denver.eventbrite.com/ 
•     Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013 
•     50% of money raised will be donated to Denver Children's Hospital for CDH Research
•     Contact Nicolle or Jennifer with any questions about this event at colorado@cherubs-cdh.org

 

 

 

MEET OUR VOLUNTEERS - Jennifer Rodi

Jennifer Rodi Jennifer is the mother of Joseph, born August 31, 2011, at 40 weeks and 42 minutes. He was born with a left-sided CDH, diagnosed at 20 weeks gestation. He spent 155 days (5 months) in the NICU at Children’s Hospital Colorado, in Aurora, Colorado. Joseph had his hernia repair at 3 days of life and was on an oscillating ventilator and eventually weaned to a respirator over several weeks. On October 20th a cardiac catheterization revealed that Joseph has a mild coarctation. On November 1 Joseph had his second surgery – a Nissen Fundoplication and G-Tube to address his severe reflux. On December 24, he had what will hopefully be his last surgery, an aortic pexy to address his severe tracheal malacia. Jennifer is a co-representative for the state of Colorado. She is happily married to her best friend, Al.  Jennifer is a senior air safety investigator for the National Transportation Safety Board. She has a BS in Aviation Science, two MS degrees in Aviation Science with specializations in Systems Safety and Human Factors, and is a PhD candidate in Industrial and Organizational Psychology. Jennifer and Al enjoy restoring their home, racing stock cars, operating their vintage motor cars, and spending every waking moment with their miracle Cherub Joseph.

MEET OUR VOLUNTEERS - Nicolle Colvin

Nicolle Colvin Nicolle is the mom of Kasey Colvin 11.16.08-12.19.08. Kasey was born with undiagnosed left sided diaphragmatic hernia. Kasey fought for 33 days, he had severe chylothorax and his lymphatic system wasn’t functioning properly, so he grew his wings on December 19th. Nicolle is the Colorado State Representative for CHERUBS. She is married to her husband Kevin, they are also the proud parents of 2 year old Brooklyn. Nicolle enjoys working out and going to Bronco and Rockies games with her family.

April 19, 2013 CDH Awareness Day Proclamation - Colorado

Chicago, Illinois proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org

Join us to raise CDH Awareness on April 19th! April 19th Parade of Cherubs in Denver, CO Join us in raising CDH Awareness Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate. REGISTER FOR THE DENVER TEAM at https://www.firstgiving.com/10125/cdhawarenessday2013 to walk in the parade and create your own page in honor or in memory of your cherub! Donate or sponsor the Denver Parade of Cherubs team at https://www.firstgiving.com/fundraiser/SomerBall/cdhawarenessday2013 50% of all local sponsorships and t-shirt sales and donations will go towards CDH Research at Denver Children's Hospital Contact People - Nicolle Colvin and Jennifer Rodi at colorado@cherubs-cdh.org   When - Friday, April 19, 2013 from 3:00 to 4:30 pm. 3:30 – Arrive at Sand Creek Park (North side of Fitzsimons, east of Peoria Street) Aurora, Colorado (meet, greet, and distribute balloons, cards, and wings) 4:00 – Read the proclamation from the state of Colorado 4:05 – Moment of silence to remember those CHERUBS who have grown their wings 4:10 – First phase of balloon launch for those CHERUBS lost 4:15 – Second phase of balloon launch for those CHERUBS in attendance 4:20 – Third phase of balloon launch for those CHERUBS yet to arrive 4:25 – Photographs 4:30 – End of event and good-byes Where - Sand Creek Park, Aurora, CO Directions to get to the park: a. (Coming from I-70) – Take the Peoria exit and proceed south to Fitzsimons Parkway. Turn left (to the east) on Fitzsimons Parkway and drive approximately ¼ mile. The park is on the north side of the street. b. (Coming from I-225 northbound) – Take the Colfax exit and proceed west to Fitzsimons Parkway. Turn right (to the north) and follow the parkway along for 1.4 miles. The park is on the north side of the street. http://maps.google.com/maps?q=Sand+Creek+Park+-+Aurora%2C+CO&ll=39.757814%2C-104.840555&spn=0.025403%2C0.054846&oe=UTF-8&hq=Sand+Creek+Park+-+Aurora%2C+CO&t=m&z=14 What - we will release balloons. We ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness. What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness. Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate! What to Wear: Event t-shirts are for sale. 50% of proceeds will go to the local Children's Hospital CDH Research team. The remaining 50% will go to CHERUBS CDH charity. Order via your registration check out here. Shirts must be ordered by March 31st! Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign! Learn more about CDH and CHERUBS at www.cdhsupport.org. 50% of all local sponsorships, t-shirt sales and donations will go towards CDH Research at Denver Childrens Participate or Sponsor a Parade of Cherubs! https://www.firstgiving.com/10125/cdhawarenessday2013 T-shirt order and sponsorship deadline is March 31, 2013 Parade Participation free   Parade Participation + Adult T-Shirt        $20.00   Parade Participation + Child T-Shirt   $15.00   Blue Cloud Sponsorship $5,000.00   Pink Cloud Sponsorship $1,000.00   Yellow Cloud Sponsorship $500.00   White Cloud Sponsorship $100.00     April 19, 2013 CDH Awareness Day Proclamations and Events as of January 31, 2013.  Visit http://www.cdhwarenessday.org for up-to-date information and to learn how you can get a Proclamation or hold an event! Sign and share the petition to light the White House on April 19th for CDH Awareness! http://wh.gov/p7gG Meet our Colorado State Representatives, Nicolle Colvin and Jennifer Rodi, who re in charge of the Denver Parade of Cherubs.  You can reach them at colorado@cherubs-cdh.org with any questions. The Official 2013 Day of CDH Awareness T-Shirt is now on sale! 50% of local sponsorships and proceeds from the sales of t-shirts will go to CDH Research at Denver Children's Hospital and 50% to CHERUBS. Order your 2013 CDH Day before March 31st to receive in time for April 19th events. More April 19th CDH Awareness Parades: Washington DC New York City Dallas Chicago Philadelphia Seattle Phoenix Portland Denver Gainesville Peoria Salt Lake City Las Vegas Boston Virtual Parade of Cherubs More April 19th CDH Awareness Events: UK CDH Awareness Jump London Marathon Fundraiser CHERUBS Tattoo Fundraiser CDH Awareness Bows Hoosiers Pizza & Subs Fundraiser in honor of Jaxon Rogers Charlie's NC Fundraiser (May, 2013) View a more up-to-date list of events at www.cdhawarenessday.org Hold your own CDH Fundraiser or Event in honor/memory of your cherub with the CDH Fundraising Kit!  It includes 2 posters, balloons, brochures, donor info and instructions on how to hold many simple events! Talk to Melissa Larrison, our Fundraising Coordinator, to get started! Facebook Twitter Website Email Pinterest Google Plus Copyright © 2013 CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Suppot, All rights reserved. unsubscribe from this list    update subscription preferences

CDH Awareness - Denver Parade of Cherubs on April 19, 2012

April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

 

Contact Person - Nicolle Colvin at colorado@cherubs-cdh.org

 

Facebook Event Page (more up to date details) - http://www.facebook.com/events/401343953225638/

When - Thursday, April 19, 2012.

 

3:30 – Arrive at Sand Creek Park (North side of Fitzsimons, east of Peoria Street) Aurora, Colorado
(meet, greet, and distribute balloons, cards, and wings)
4:00 – Read the proclamation from the state of Colorado
4:05 – Moment of silence to remember those CHERUBS who have grown their wings
4:10 – First phase of balloon launch for those CHERUBS lost
4:15 – Second phase of balloon launch for those CHERUBS in attendance
4:20 – Third phase of balloon launch for those CHERUBS yet to arrive
4:25 – Photographs
4:30 – End of event and good-byes

Where - a full parade route will be posted soon.

What - we will release balloons.  We ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes! For the White House visit on Friday, please also wear CDH Awareness Gear!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org. Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

 

Learn more about CDH and CHERUBS at www.cdhsupport.org.

 

 

 

CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!

Congential Diaphragmatic Hernia Research Bill

In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.

Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.

1. Look Up Your Congressmen To find his / her mailing address
2. Download Letter to Send To Your Senator / Congressman
3. Include The CDH Research Bill and a photo of your cherub
4. Sign the CDH Research Bill petition and ask others to sign as well!

Change.org|Start an Online Petition »

Upcoming Events at CHERUBS

Upcoming CDH Events & Fundraisers:

Event	Date
USA CDH HOPE Totebag Drive	Now - April 19th
UK CDH HOPE Totebag Drive	Now - April 19th
Racing for Eli in Wilmington, NC	March 17, 2012
Great Human Race in Durham, NC	March 24, 2012
Virginia Fox Hunt Fundraiser	March 31, 2012
CHERUBS in the Boston Marathon	April 16, 2012
International CDH Awareness Daily Celebration	April 19, 2012
Washington DC Parade of Cherubs	April 19, 2012
St. Louis, MO Parade of Cherubs	April 19, 2012
Chicago, IL Parade of Cherubs	April 19, 2012
Denver, CO Parade of Cherubs	April 19, 2012
UK Light Up the Night CDH Awareness Event	April 19, 2012
Virtual Parade of Cherubs	April 19, 2012
(TENTATIVE) Boston, MA Parade of Cherubs	April 19, 2012
(TENTATIVE) Gainesville, FL Parade of Cherubs	April 19, 2012
Peoria, IL Parade of Cherubs	April 22, 2012
Pennsylvania Member Picnic	June, 2012
Mount Snowden Climb	June 30, 2012
2012 International CDH Conference in San Francisco, CA	July 26-29, 2012
Ohio Member Picnic	August, 2012
CDH Car Show in Granite Hills, IL	August 11, 2012
Masquerading Angel Ball in Raleigh, NC	October 20, 2012
The Charley Stanfield-Maher Ball in the UK	October, 2012
Trick or Treat for CHERUBS - global	October 31, 2012
Christmas with Kasey in Aurora, CO	November, 2012
CHERUBS Holiday Vendor Show in Wake Forest, NC	November, 2012
Raleigh Christmas Parade in Raleigh, NC	November, 2012
CHERUBS Holiday Ebay Auction on-line	November 20, 2012
CDH Ornaments Sale	Nov - Dec, 2012
National Children's Memorial Day	December, 2012
Save the Cherubs	2012

E-mail us at events@cdhsupport.org to add your CHERUBS, Hospital or Family CDH event.