Showing posts with label day of CDH awareness. Show all posts
Showing posts with label day of CDH awareness. Show all posts

Sunday, February 17, 2013

April 19th Parade of Cherubs in Denver, CO


Join us to raise CDH Awareness on April 19th!

April 19th Parade of Cherubs in Denver, CO

Join us in raising CDH Awareness


Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

REGISTER FOR THE DENVER TEAM at https://www.firstgiving.com/10125/cdhawarenessday2013 to walk in the parade and create your own page in honor or in memory of your cherub!

Donate or sponsor the Denver Parade of Cherubs team at
https://www.firstgiving.com/fundraiser/SomerBall/cdhawarenessday2013 50% of all local sponsorships and t-shirt sales and donations will go towards CDH Research at Denver Children's Hospital
Contact People - Nicolle Colvin and Jennifer Rodi at colorado@cherubs-cdh.org
 
When - Friday, April 19, 2013 from 3:00 to 4:30 pm.


3:30 – Arrive at Sand Creek Park (North side of Fitzsimons, east of Peoria Street) Aurora, Colorado
(meet, greet, and distribute balloons, cards, and wings)
4:00 – Read the proclamation from the state of Colorado
4:05 – Moment of silence to remember those CHERUBS who have grown their wings
4:10 – First phase of balloon launch for those CHERUBS lost
4:15 – Second phase of balloon launch for those CHERUBS in attendance
4:20 – Third phase of balloon launch for those CHERUBS yet to arrive
4:25 – Photographs
4:30 – End of event and good-byes

Where - Sand Creek Park, Aurora, CO

Directions to get to the park:

a. (Coming from I-70) – Take the Peoria exit and proceed south to Fitzsimons Parkway. Turn left (to the east) on Fitzsimons Parkway and drive approximately ¼ mile. The park is on the north side of the street.

b. (Coming from I-225 northbound) – Take the Colfax exit and proceed west to Fitzsimons Parkway. Turn right (to the north) and follow the parkway along for 1.4 miles. The park is on the north side of the street.

http://maps.google.com/maps?q=Sand+Creek+Park+-+Aurora%2C+CO&ll=39.757814%2C-104.840555&spn=0.025403%2C0.054846&oe=UTF-8&hq=Sand+Creek+Park+-+Aurora%2C+CO&t=m&z=14

What - we will release balloons. We ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear:

Event t-shirts are for sale. 50% of proceeds will go to the local Children's Hospital CDH Research team. The remaining 50% will go to CHERUBS CDH charity. Order via your registration check out here. Shirts must be ordered by March 31st!

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Learn more about CDH and CHERUBS at www.cdhsupport.org.

50% of all local sponsorships, t-shirt sales and donations will go towards CDH Research at Denver Childrens

Participate or Sponsor a Parade of Cherubs!
https://www.firstgiving.com/10125/cdhawarenessday2013

T-shirt order and sponsorship deadline is March 31, 2013

Parade Participation free  
Parade Participation + Adult T-Shirt        $20.00  
Parade Participation + Child T-Shirt   $15.00  
Blue Cloud Sponsorship $5,000.00  
Pink Cloud Sponsorship $1,000.00  
Yellow Cloud Sponsorship $500.00  
White Cloud Sponsorship $100.00  
 
April 19, 2013 CDH Awareness Day Proclamations and Events as of January 31, 2013. 

Visit http://www.cdhwarenessday.org for up-to-date information and to learn how you can get a Proclamation or hold an event!
Sign and share the petition to light the White House on April 19th for CDH Awareness!

http://wh.gov/p7gG

Meet our Colorado State Representatives, Nicolle Colvin and Jennifer Rodi, who re in charge of the Denver Parade of Cherubs.  You can reach them at colorado@cherubs-cdh.org with any questions.
The Official 2013 Day of CDH Awareness T-Shirt is now on sale!

50% of local sponsorships and proceeds from the sales of t-shirts will go to CDH Research at Denver Children's Hospital and 50% to CHERUBS.


Order your 2013 CDH Day before March 31st to receive in time for April 19th events.
More April 19th CDH Awareness Parades:


More April 19th CDH Awareness Events:

View a more up-to-date list of events at www.cdhawarenessday.org
Hold your own CDH Fundraiser or Event in honor/memory of your cherub with the CDH Fundraising Kit!  It includes 2 posters, balloons, brochures, donor info and instructions on how to hold many simple events!

Talk to Melissa Larrison, our Fundraising Coordinator, to get started!
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Copyright © 2013 CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Suppot, All rights reserved.
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Friday, April 6, 2012

The Governor of Wisconsin Proclaims April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awarenes

The Governor of Wisconsin has proclaimed April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awareness! 



What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.   

Every patient diagnosed with CDH is different.  Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available.  There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues. 


CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

CHERUBS is working hard to raise Congenital Diaphragmatic Hernia Awareness around the world.  

Learn more about CDH at http://www.cdhsupport.org