Showing posts with label chicago. Show all posts
Showing posts with label chicago. Show all posts

Tuesday, May 21, 2013

CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative

CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative




CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative
to provide totebag care packages to families either expecting a child with a congenital diaphragmatic hernia (CDH) or currently have a child in the hospital with CDH.
Chicago, IL – Today CHERUBS and Groupon Grassroots (http://grassroots.groupon.com), the philanthropic arm of Groupon, announce the launch of a local campaign to raise much needed funds to support the HOPE Totebag project.
The HOPE Totebag campaign will be available on the Chicago, IL Groupon Grassroots page beginning on 23, May and running through 29, May. Utilizing Groupon Grassroots’ collective action model, Groupon subscribers can pledge support for the Hope Totebag initiative in increments of $10, with each $50 covering the cost of the totebag care package for 1 family.  
“We’re excited to leverage the collective action model of Groupon Grassroots to raise support for the HOPE Totebag project,” said Neil Rubenstein, Illinois Rep for CHERUBS. “We look forward to creating new awareness for CHERUBS as one of the local organizations in Chicago to be featured on Groupon Grassroots.”
One hundred percent of the Groupon Grassroots campaign proceeds will be used to provide much needed funding to keep this project going.  It costs CHERUBS approximately $50 in product and postage to mail each totebag.  Typically, CHERUBS mails about 30 totebags per month.  The totebags contains items such as blankets, disposable camera, gas cards, and other welcome items that parents often don’t think about before a lengthy NICU stay.  CDH babies can be hospitalized in the NICU for 6 months or longer. 
CHERUBS currently has over 4,200 members in all 50 states and in over 60 countries.  1 in every 2500 pregnancies results in a CDH diagnosis.  Unfortunately, there are over 52,000 children diagnosed with CDH every year around the world.  There is only a 50% survival rate for children born with this birth defect.  
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About CHERUBS
CHERUBS is the world's first, oldest, and largest CDH non-profit organization.  CHERUBS is truly a grassroots organization - CDH families creating something out of nothing when there was no other CDH group, information and services in 1995.  CHERUBS was created to make sure that no family endures Congenital Diaphragmatic Hernia without support or accurate information.  For more information on CHERUBS, visit http://www.cherubs-cdh.org
Groupon Grassroots, launched in July 2010 in Chicago as G-Team, features local campaigns nationwide, enabling Groupon followers to do good, have fun, and make a real impact in their communities. Groupon Grassroots uses collective action to gather support for worthwhile causes and produce tangible results for local organizations. To learn more about Groupon Grassroots and how to become a featured organization, visit http://grassroots.groupon.com. To subscribe to Groupon, visit http://www.groupon.com.
Press Contacts:
CHERUBS
Neil Rubenstein
847.530.6070
Groupon
Erin Yeager
312.999.3434


Written by Neil Rubenstein

Wednesday, March 13, 2013

MEET OUR VOLUNTEERS - Neil Rubenstein

Neil RubensteinNeil Rubenstein

Neil Rubenstein has been married since 2003 to his wife, Amy. His CDH survivor (Aidan) was born in June 2010 after being diagnosed at 37 weeks.  Aidan had surgery to repair his hernia when he was 4 days old.  His surgeon discovered at that time that Aidan had no diaphragm at all, all his organs were in his chest (except for his liver), his heart had been pushed to the left side by his stomach, and he had two spleens (apparently not uncommon).  Even with all this, Aidan did not need ECMO and was only in the NICU for 29 days.  Aidan had a follow-up procedure at 13 months old to close up an abdominal hernia that his surgeon created to give his organs room to grow once she moved them all back to their proper location in his abdomen.     
While Amy and Neil were still dating, they started Creative Celebrations, a children party planning and entertainment company.  Neil has over 15 years experience in Integrated Marketing Communications. 

Sunday, March 10, 2013

Chicago Parade of Cherubs on April 19th!



Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! 

Chicago, IL Parade

    On Facebook - https://www.facebook.com/events/530087357016093/
    Register on Eventbrite - http://cdhawarenessday-2013chicago.eventbrite.com/
    Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
    50% of money raised will be donated to Lurie Children's Hospital of Chicago (formerly Children's Memorial) for CDH Research
    Contact Neil Rubenstein with any questions about this event at illinois@cherubs-cdh.org




Sunday, February 24, 2013

April 19, 2013 CDH Awareness Day Proclamation - Georgi

The state of Georgia proclaims April 19, 2013 for CDH Awareness thanks to the efforts of family and friends of cherub Jessica Barry.

Learn how to get a proclamation at http://www.cdhawarenessday.org



*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"

Friday, February 22, 2013

April 19, 2013 CDH Awareness Day Proclamation - Cleveland

Cleveland, Ohio proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org


*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"

April 19, 2013 CDH Awareness Day Proclamation - Illinois

Illinois proclaims April 19, 2013 for CDH Awareness thanks to the efforts of the Rubenstein family!

Learn how to get a proclamation at http://www.cdhawarenessday.org


Monday, February 18, 2013

Friday, February 15, 2013

Great CDH T-Shirt Sale of 2013! Raise CDH Awareness on April 19th



2013 CDH Awareness Shirts ready to order!!!

https://www.firstgiving.com/10125/cdhawarenessday2013

50% of funds raised go to CHERUBS, 50% to CDH Research at hospitals (you pick a hospital by choosing a "Parade Team" on the link above).

Click on JOIN NOW to get started! Shirts are listed at the bottom.



Adult Shirts - $20.00
Child Shirst - $15.00

You can also sponsor a Parade have your company's name / logo or your cherub's photo / name on shirt worn around the world! Check out the Sponsorships available by clicking JOIN NOW.

You can also register for parades here and set up a page in honor/memory of your cherub!


Orders must be received by March 31st to receive by April 19th.


Companies and Families are invited to sponsor our 2013 Parades of Cherubs. 


Blue Sponsorship
Tax-deductible sponsorship includes your large size company logo or 
child's photo on national event literature and shirts
 
$5000.00
Pink Sponsorship
Tax-deductible sponsorship includes your medium size company logo                
or child's photo on national event literature and shirts
 
$1000.00
Yellow Sponsorship
Tax-deductible sponsorship includes your company name or child's
 name on national event literature and shirts
 
$500.00
White Sponsorship
Tax-deductible sponsorship includes your company name or child's 
name on national event literature and shirts in small text.
$100.00

Click on JOIN NOW to get started on a sponsorship.  E-mail us at events@cdhsupport.org with any questions and with your logo.

Back of Shirt
Sponsor Logo / Photo Sizes


Front of Shirt

Shirt designs are subject to change before March 31
CHERUBS reserves the right to refuse inappropriate sponsorships if necessary.

Friday, October 12, 2012

Member Quotes - Neil Rubenstein

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS is an amazing organization that does a tremendous amount with very little. My son was one of the lucky ones to come home after only 1 month. I soon realized that my CHERUBS family were the only ones the truly understood what we went through during our NICU stay. It is very easy for family to forget after the "worst" has passed" - Neil Rubenstein, father of Aidan

http://www.cherubs-cdh.org/






Thursday, October 11, 2012

CHERUBS Kids Carnival this Sunday in Chicago!



CHERUBS Kids Carnival this Sunday.

Date: October 14
Time: 11 am - 2 pm
Location: Recreation Center of Highland Park located at 1207 Park Ave. W, Highland Park, Illinois
Admission: FREE - there is no entrance fee but tickets will be sold to play the games, etc.
Additional Venue information: Plenty of parking is available onsite. This is an indoor event that will take place in one of the basketball courts with food and redemption in a separate room.

What kinds of activities will you have at the carnival? We will have 20+ carnival games, balloon twisting by Aunt Nora, face painting, KidSnips will be doing hair, TAT4u will be offering airbrush tattoos, a bounce house, trivia games by Loren of Fun, Fun, Fun DJ's, and music & dancing games with Mindy from the Rock & Roll Arts Academy.

Are discount tickets available? Until Friday, tickets are being sold on the CHERUBS Illinois blog at a discount when you use coupon code = CHERUBS. Just click the drop down menu on the right hand side of this blog to purchase your discounted tickets. For a very limited time, you can purchase 15 tickets for $10 (with coupon code). Normal price the day-of the carnival will be $10 for 12 tickets.

Any other way to get more Free tickets? Yes, check into the CHERUBS Kids Carnival on foursquare and get 2 more FREE tickets (when you spend at least $10 on tickets). Just show your check-in at the ticket booth to claim your 2 FREE tickets. Only 2 FREE tickets per family.

Is there an unlimited game pass available? Absolutely. For $25, you can purchase an unlimited 2 hour game pass. The pass is valid for 2 hours from time of purchase (or until 1:30 p.m whichever is earlier). The pass is valid for all carnival games and the bounce house. Pass is not valid for face painting, tattoos, food, raffle, etc.

How much does everything "cost"?

  • All carnival games will cost 1 ticket
  • Bounce house will cost 2 tickets
  • Small face paint (arm, cheek, etc.) will cost 1 ticket and a full face paint will cost 3 tickets
  • Airbrush tattoo will cost 1 ticket and so will a balloon animal
  • KidSnips makeovers will cost
    • 1 ticket for temporary hair color and/or faux mohawk
    • 2 tickets for an awesome braid
    • 4 tickets for a braided hair wrap with colored string
  • Trivia games are FREE (and we have some great pizes to give away)
  • Highland Pop popcorn will cost 2 tickets
  • Cotton candy will cost 2 tickets
  • Vienna hot dog lunch (including soda/water, chips and a pickle) will cost 4 tickets
  • Sugar Beez cookies will be 1 ticket and Spunky Dunkers donuts will cost 2 tickets
  • Carnival tickets will also be used to participate in the silent raffle for amazing prizes
What kinds of prizes are available in the silent raffle? Too many to list right now...but great stuff from the Chicago Sky, Bulls, Boomers, Wolves, Lynfred Winery, Wildfire, Creative Celebrations, Rock & Roll Academy, Embraced, Fab Band, Sprinkle with Love, The Hungry Monkey, Panera Bread, Noodles & Co., Sports Clips, The Best Salon, Make-a-Messterpiece, and lots more!!

Anything else? We will also be selling 50/50 Raffle for Research tickets for $20 per ticket. 50% of the sales go towards CDH research and the other 50% of ticket sales go to the winner. The goal is to sell 1,000 tickets so $10,000 can be donated towards research and the winner will receive the remaining $10,000.

What forms of payment will be accepted at the carnival? You can pay for carnival tickets with cash, check (made out to CHERUBS), or credit card. Please note that 50/50 Raffle for Research tickets can only be purchased with cash or check. 
Will donations be accepted? Of course! You can make additional donation checks out to CHERUBS or just tell us to "keep the change" to make an additional donation. You can also make a donation to CHERUBS or to the Carnival Fund right here on the CHERUBS Illinois blog using your credit card.

Contact CHERUBS Illinois State Representative, Neil, for more information at illinois@cherubs-cdh.org

Tuesday, July 17, 2012

MEET OUR VOLUNTEERS - Neil Rubenstein


Neil Rubenstein has been married since 2003 to his wife, Amy. His CDH survivor (Aidan) was born in June 2010 after being diagnosed at 37 weeks.  Aidan had surgery to repair his hernia when he was 4 days old.  His surgeon discovered at that time that Aidan had no diaphragm at all, all his organs were in his chest (except for his liver), his heart had been pushed to the left side by his stomach, and he had two spleens (apparently not uncommon).  Even with all this, Aidan did not need ECMO and was only in the NICU for 29 days.  Aidan had a follow-up procedure at 13 months old to close up an abdominal hernia that his surgeon created to give his organs room to grow once she moved them all back to their proper location in his abdomen.      

While Amy and Neil were still dating, they started Creative Celebrations, a children party planning and entertainment company.  Neil has over 15 years experience in Integrated Marketing Communications.

Friday, April 6, 2012

The Mayor of Chicago Proclaims April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awarenes

Rahm Emmanuel, the mayor of Chicago, Illinois has proclaimed April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awareness! Thank you to the Rubenstein family for requesting this proclamation in honor of their cherub, Aidan Rubenstein.  His father, Neil Rubenstein, is the Illinois State Representative for CHERUBS and is leading the Chicago Parade of Cherubs on April 19th!






What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.   

Every patient diagnosed with CDH is different.  Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available.  There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues. 


CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

CHERUBS is working hard to raise Congenital Diaphragmatic Hernia Awareness around the world.  

Learn more about CDH at http://www.cdhsupport.org

Saturday, March 10, 2012

Upcoming Events at CHERUBS



Upcoming CDH Events & Fundraisers:


Event
Date


USA CDH HOPE Totebag Drive
Now - April 19th
UK CDH HOPE Totebag Drive
Now - April 19th
Racing for Eli in Wilmington, NC
March 17, 2012
Great Human Race in Durham, NC
March 24, 2012
Virginia Fox Hunt Fundraiser
March 31, 2012
CHERUBS in the Boston Marathon
April 16, 2012
International CDH Awareness Daily Celebration
April 19, 2012
Washington DC Parade of Cherubs
April 19, 2012
St. Louis, MO Parade of Cherubs
April 19, 2012
Chicago, IL Parade of Cherubs
April 19, 2012
Denver, CO Parade of Cherubs
April 19, 2012
UK Light Up the Night CDH Awareness Event
April 19, 2012
Virtual Parade of Cherubs
April 19, 2012
(TENTATIVE) Boston, MA Parade of Cherubs
April 19, 2012
(TENTATIVE) Gainesville, FL Parade of Cherubs
April 19, 2012
Peoria, IL Parade of Cherubs April 22, 2012
Pennsylvania Member Picnic
June, 2012
Mount Snowden Climb
June 30, 2012
2012 International CDH Conference in San Francisco, CA July 26-29, 2012
Ohio Member Picnic August, 2012
CDH Car Show in Granite Hills, IL
August 11, 2012
Masquerading Angel Ball in Raleigh, NC
October 20, 2012
The Charley Stanfield-Maher Ball in the UK
October, 2012
Trick or Treat for CHERUBS - global
October 31, 2012
Christmas with Kasey in Aurora, CO
November, 2012
CHERUBS Holiday Vendor Show in Wake Forest, NC
November, 2012
Raleigh Christmas Parade in Raleigh, NC
November, 2012
CHERUBS Holiday Ebay Auction on-line
November 20, 2012
CDH Ornaments Sale
Nov - Dec, 2012
National Children's Memorial Day
December, 2012
Save the Cherubs 2012

E-mail us at events@cdhsupport.org to add your CHERUBS, Hospital or Family CDH event.