Peoria, IL Parade of Cherubs on April 19th

Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! 

Peoria, IL Parade of Cherubs on April 19th for CDH Awareness

    On Facebook - https://www.facebook.com/events/562260840470364/
    Register on Eventbrite - http://cdhawarenessday-2013peoria.eventbrite.com/
    Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
    50% of money raised will be donated to Children's Hospital of Illinois for CDH Research
    Contact Kristin with any questions about this event

MEET OUR VOLUNTEERS - Neil Rubenstein

Neil Rubenstein Neil Rubenstein has been married since 2003 to his wife, Amy. His CDH survivor (Aidan) was born in June 2010 after being diagnosed at 37 weeks.  Aidan had surgery to repair his hernia when he was 4 days old.  His surgeon discovered at that time that Aidan had no diaphragm at all, all his organs were in his chest (except for his liver), his heart had been pushed to the left side by his stomach, and he had two spleens (apparently not uncommon).  Even with all this, Aidan did not need ECMO and was only in the NICU for 29 days.  Aidan had a follow-up procedure at 13 months old to close up an abdominal hernia that his surgeon created to give his organs room to grow once she moved them all back to their proper location in his abdomen.      While Amy and Neil were still dating, they started Creative Celebrations, a children party planning and entertainment company.  Neil has over 15 years experience in Integrated Marketing Communications.

April 19, 2013 CDH Awareness Day Proclamation - Cleveland

Cleveland, Ohio proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org

*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"

April 19, 2013 CDH Awareness Day Proclamation - Illinois

Illinois proclaims April 19, 2013 for CDH Awareness thanks to the efforts of the Rubenstein family!

Learn how to get a proclamation at http://www.cdhawarenessday.org

April 19, 2013 CDH Awareness Day Proclamation - Chicago

Chicago, Illinois proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org

April 19, 2013 CDH Awareness Day Proclamation - Colorado

Chicago, Illinois proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org

Member Quotes - Neil Rubenstein

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS is an amazing organization that does a tremendous amount with very little. My son was one of the lucky ones to come home after only 1 month. I soon realized that my CHERUBS family were the only ones the truly understood what we went through during our NICU stay. It is very easy for family to forget after the "worst" has passed" - Neil Rubenstein, father of Aidan

http://www.cherubs-cdh.org/

CHERUBS Kids Carnival this Sunday in Chicago!

CHERUBS Kids Carnival this Sunday.

Date: October 14
Time: 11 am - 2 pm
Location: Recreation Center of Highland Park located at 1207 Park Ave. W, Highland Park, Illinois
Admission: FREE - there is no entrance fee but tickets will be sold to play the games, etc.
Additional Venue information: Plenty of parking is available onsite. This is an indoor event that will take place in one of the basketball courts with food and redemption in a separate room.

What kinds of activities will you have at the carnival? We will have 20+ carnival games, balloon twisting by Aunt Nora, face painting, KidSnips will be doing hair, TAT4u will be offering airbrush tattoos, a bounce house, trivia games by Loren of Fun, Fun, Fun DJ's, and music & dancing games with Mindy from the Rock & Roll Arts Academy.

Are discount tickets available? Until Friday, tickets are being sold on the CHERUBS Illinois blog at a discount when you use coupon code = CHERUBS. Just click the drop down menu on the right hand side of this blog to purchase your discounted tickets. For a very limited time, you can purchase 15 tickets for $10 (with coupon code). Normal price the day-of the carnival will be $10 for 12 tickets.

Any other way to get more Free tickets? Yes, check into the CHERUBS Kids Carnival on foursquare and get 2 more FREE tickets (when you spend at least $10 on tickets). Just show your check-in at the ticket booth to claim your 2 FREE tickets. Only 2 FREE tickets per family.

Is there an unlimited game pass available? Absolutely. For $25, you can purchase an unlimited 2 hour game pass. The pass is valid for 2 hours from time of purchase (or until 1:30 p.m whichever is earlier). The pass is valid for all carnival games and the bounce house. Pass is not valid for face painting, tattoos, food, raffle, etc.

How much does everything "cost"?

• All carnival games will cost 1 ticket
• Bounce house will cost 2 tickets
• Small face paint (arm, cheek, etc.) will cost 1 ticket and a full face paint will cost 3 tickets
• Airbrush tattoo will cost 1 ticket and so will a balloon animal
• KidSnips makeovers will cost
• 1 ticket for temporary hair color and/or faux mohawk
• 2 tickets for an awesome braid
• 4 tickets for a braided hair wrap with colored string
• Trivia games are FREE (and we have some great pizes to give away)
• Highland Pop popcorn will cost 2 tickets
• Cotton candy will cost 2 tickets
• Vienna hot dog lunch (including soda/water, chips and a pickle) will cost 4 tickets
• Sugar Beez cookies will be 1 ticket and Spunky Dunkers donuts will cost 2 tickets
• Carnival tickets will also be used to participate in the silent raffle for amazing prizes

What kinds of prizes are available in the silent raffle? Too many to list right now...but great stuff from the Chicago Sky, Bulls, Boomers, Wolves, Lynfred Winery, Wildfire, Creative Celebrations, Rock & Roll Academy, Embraced, Fab Band, Sprinkle with Love, The Hungry Monkey, Panera Bread, Noodles & Co., Sports Clips, The Best Salon, Make-a-Messterpiece, and lots more!!

Anything else? We will also be selling 50/50 Raffle for Research tickets for $20 per ticket. 50% of the sales go towards CDH research and the other 50% of ticket sales go to the winner. The goal is to sell 1,000 tickets so $10,000 can be donated towards research and the winner will receive the remaining $10,000.

What forms of payment will be accepted at the carnival? You can pay for carnival tickets with cash, check (made out to CHERUBS), or credit card. Please note that 50/50 Raffle for Research tickets can only be purchased with cash or check. 

Will donations be accepted? Of course! You can make additional donation checks out to CHERUBS or just tell us to "keep the change" to make an additional donation. You can also make a donation to CHERUBS or to the Carnival Fund right here on the CHERUBS Illinois blog using your credit card.

Contact CHERUBS Illinois State Representative, Neil, for more information at illinois@cherubs-cdh.org

MEET OUR VOLUNTEERS - Neil Rubenstein

Neil Rubenstein has been married since 2003 to his wife, Amy. His CDH survivor (Aidan) was born in June 2010 after being diagnosed at 37 weeks.  Aidan had surgery to repair his hernia when he was 4 days old.  His surgeon discovered at that time that Aidan had no diaphragm at all, all his organs were in his chest (except for his liver), his heart had been pushed to the left side by his stomach, and he had two spleens (apparently not uncommon).  Even with all this, Aidan did not need ECMO and was only in the NICU for 29 days.  Aidan had a follow-up procedure at 13 months old to close up an abdominal hernia that his surgeon created to give his organs room to grow once she moved them all back to their proper location in his abdomen.       While Amy and Neil were still dating, they started Creative Celebrations, a children party planning and entertainment company.  Neil has over 15 years experience in Integrated Marketing Communications.

CDH Awareness - Portland Parade of Cherubs on April 19, 2012

April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

 

Contact Person - Shelly Moore at oregon@cherubs-cdh.org

 

Register at http://portland2012paradeofcherubs.eventbrite.com/

 

Facebook Event Page (more up to date details) - http://www.facebook.com/events/290209131051998/

When - Thursday, April 19, 2012 from 1:00 to 3:00 pm.

Where - Legacy Emanuel Hospital and Health Center

 

What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org. Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

 

Learn more about CDH and CHERUBS at www.cdhsupport.org.

 

 

 

CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!

Congential Diaphragmatic Hernia Research Bill

In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.

Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.

1. Look Up Your Congressmen To find his / her mailing address
2. Download Letter to Send To Your Senator / Congressman
3. Include The CDH Research Bill and a photo of your cherub
4. Sign the CDH Research Bill petition and ask others to sign as well!

Change.org|Start an Online Petition »

Free Facebook Cover Banner:

CDH Awareness - St. Louis Parade of Cherubs on April 19, 2012

April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Register at http://stlouis2012paradeofcherubs.eventbrite.com/

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

Facebook Event Page (more up to date details) - https://www.facebook.com/events/181282675316108/

Sponsored by - St. Louis Fetal Care Institute, SSM Cardinal Glennon Children's Medical Center , Alarm Security LLC and CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

When - Thursday, April 19, 2012.

Where - SSM Cardinal Glennon Children's Medical Center

Join the St. Louis Fetal Care Institute and CHERUBS for the first annual Parade of Cherubs to raise awareness about Congenital Diaphragmatic Hernia (CDH) on April 19, 2012.  Families and friends who have been impacted by CDH will come together to build awareness about this birth anomaly that is just about as common as spina bifida and cystic fibrosis, and effects thousands of families every year.

At 6:30 p.m. everyone is encouraged to meet for a cake and punch reception in the lobby of SSM Cardinal Glennon Children's Medical Center (1465 S. Grand Blvd.• Saint Louis, MO 63104) to meet other CDH families. At 7:15 p.m. the Parade of Cherubs will start in the lobby and end at the outdoor verandah of the hospital along Grand Blvd. Following the parade a short candle light ceremony in honor of all those touched by CDH will be held, then a lighted balloon release in memory of all those who have earned their wings will conclude the event.

6:30 p.m.

• Cake and punch reception in the lobby atrium of SSM Cardinal Glennon Children's Medical Center

• Participants will have the opportunity to sign and decorate our CDH Awareness banner

7:00 p.m.

• Candles and wings distributed

7:15 p.m.

• CDH Awareness March from the lobby atrium to the outside verandah of Cardinal Glennon

7:30 p.m

• Participants arrive at verandah of Cardinal Glennon
• LED candles and glow sticks turned on
• Balloons distributed
• Dr. Yang thanks everyone and speaks to the importance of CDH Awareness
• CDH parents will read facts about CDH

7:40 p.m.

• A CDH Mom will say a short poem or prayer
• The children will release the balloons

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org. Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Learn more about CDH and CHERUBS at www.cdhsupport.org.

CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!

Congential Diaphragmatic Hernia Research Bill

In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.

Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.

1. Look Up Your Congressmen To find his / her mailing address
2. Download Letter to Send To Your Senator / Congressman
3. Include The CDH Research Bill and a photo of your cherub
4. Sign the CDH Research Bill petition and ask others to sign as well!

Change.org|Start an Online Petition »

Free Facebook Cover Banner:

CDH Awareness - Peoria, IL Parade of Cherubs on April 19, 2012

April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

Register at http://peoria2012paradeofcherubs.eventbrite.com/

Contact Person - Kristin Aigner

Facebook Event Page (more up to date details) - http://www.facebook.com/events/358270134195891/

When - Sunday, April 22, 2012.

• 2:00 pm- Welcome
• 2:10-2:30 get ready for Parade and take pictures
• 2:30-3 Parade of Cherubs
• 3-3:15 celebrate Cherubs in Heaven
• 3:15-4 play! 4 pm see you soons

Where - Glen Oak Shelter at Glen Oak Park

What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org. Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Learn more about CDH and CHERUBS at www.cdhsupport.org.

The Mayor of Chicago Proclaims April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awarenes

Rahm Emmanuel, the mayor of Chicago, Illinois has proclaimed April 19, 2012 as a Day of Congenital Diaphragmatic Hernia Awareness! Thank you to the Rubenstein family for requesting this proclamation in honor of their cherub, Aidan Rubenstein.  His father, Neil Rubenstein, is the Illinois State Representative for CHERUBS and is leading the Chicago Parade of Cherubs on April 19th!

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.   

Every patient diagnosed with CDH is different.  Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available.  There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues. 


CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

CHERUBS is working hard to raise Congenital Diaphragmatic Hernia Awareness around the world.  

Learn more about CDH at http://www.cdhsupport.org

CDH Awareness - Chicago Parade of Cherubs on April 19, 2012

CDH Awareness - Chicago Parade of Cherubs Thursday, April 19, 2012 from 11:00 AM to 2:00 PM (CT) Chicago, IL

Register For The Parade at http://chicago2012paradeofcherubs.eventbrite.com/

Facebook Event Page - http://www.facebook.com/events/402344086447657/

Event Schedule:

• 11:00 a.m. – Arrive at Oz Park (Northeast end off of Lincoln Ave) – 601 W Webster Ave, Chicago, IL 60614
• 11:15 a.m. – Moment of silence to remember those CHERUBS lost
• 11:20 a.m. – Balloon launch
• 11:30 a.m. – Wrap up pictures and begin march/parade (1.2 miles)
• 12:15 p.m. – Finish march back at Oz Park
• 12:30 p.m. – Walk to Buffalo Wild Wings (about ½ mile from park) for Lunch (http://www.buffalowildwings.com/) –
• 2464 N. Lincoln Ave., Chicago
• 2:00 p.m. – Good-byes

 April 19th Parade of Cherubs

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness as well as support the CDH Research Bill. Everyone is welcome to participate.

Contact Person - Neil Rubenstein at illinois@cherubs-cdh.org

Facebook Event Page (more up to date details) - https://www.facebook.com/events/402344086447657/

When - Thursday, April 19, 2012.

Where - Oz Park (Northeast end off of Lincoln Ave) – 601 W Webster Ave, Chicago, IL 60614

What - we will march to raise awareness Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness.  Please register with us to participate! 

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon.  All children are encouraged to wear wings.  Wings stand out better on bright colored clothes.  Wear comfortable walking shoes! 

What Not to Wear - Anything trademarked or copywritten materials or phrases.  No turquoise please. 

Wings - you can borrow wings on April 19th if you make prior arrangements above or purchase your own wings at http://www.savethecherubs.org.  Wings are also available at many party supply stores.

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Learn more about CDH and CHERUBS at www.cdhsupport.org.

CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!

Congential Diaphragmatic Hernia Research Bill

In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.

Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate.  It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth.   The cause of Congenital Diaphragmatic Hernia is not known.   There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida.   More research funds are desperately needed and we are appealing to the United States government to help these babies.

1. Look Up Your Congressmen To find his / her mailing address
2. Download Letter to Send To Your Senator / Congressman
3. Include The CDH Research Bill and a photo of  your cherub
4. Sign the CDH Research Bill petition and ask others to sign as well!