Terminal Tower Raises Congenital Diaphragmatic Hernia Awareness!

The Terminal Tower in Cleveland, Ohio will be raising Congenital Diaphragmatic Hernia Awareness once again on April 19th, 2015 by lighting up blue, pink and yellow.

Special thanks to the McMarlin Family and everyone at the Terminal Tower for taking action against Congenital Diaphragmatic Hernia!

Want to see your local buildings and landmarks lit up blue, pink and yellow on April 19th? Send them a request! Contact our awareness committee at awareness@cherubs-cdh.org with any questions and approvals.

April 19, 2013 CDH Awareness Day Proclamation - Cleveland

Cleveland, Ohio proclaims April 19, 2013 for CDH Awareness.

Learn how to get a proclamation at http://www.cdhawarenessday.org

*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"

MEET OUR VOLUNTEERS - Kara Hess

Kara is mom to Adam, LCDH survivor born August 2006.  Other complications from his CDH include Gastric Volvulus (rare abnormal rotation of the stomach of more than 180° that creates a closed loop obstruction), Dysphagia, Hypospadius, reherniation, bowel obstruction, and malrotation of the intestinal tract.  Adam also has Apraxia, a neurological disorder that is characterized by the loss of ability to carry out learned movements,despite having the desire and physical ability to perform the movements.  

Kara has been a member of CHERUBS since 2007 and has served on the CHERUBS Executive Board of Directors and Conference Planning Committee.  She is wife to Chuck and is a stay at home mother of two busy boys. Prior to motherhood, Kara worked as a Senior Contracts Specialist for a meeting and conference planning company.  She also worked as a Professional Development Assistant for a child care referral agency. Kara received her Associate of Applied Business degree from Stark State College.

She enjoys Thai and Indian dining/cooking, biking, traveling, garage saling, daily coffee time with her mom, and leading a daily women's Bible devotional group.   

MEET OUR VOLUNTEERS - Tara Hall

Tara is the mom to Brandon (7/17/96) born with undiagnosed left side CDH. Brandon was put on ECMO at 8hrs old. During his six weeks in NICU he had two CDH repairs along with a nissen and gtube. He has had a total of six repairs before the age of two, had developmental delays and feeding issues. His feeding tube was removed on his fifth birthday. Currently he is doing well but does have ADHD, some OCD tendencies and still has fine motor issues.

Tara has been a volunteer for CHERUBS for 13 years and has been the Ohio State Representative for 12 years, along with many other volunteer positions.  She has held a Ohio CHERUBS Member Picnic every year since 2001, making it one of the largest annual CDH gatherings in the country.

Tara is learning how to be a single mom to a teenager.

CHERUBS 2011 Volunteer Ceremony

 

At our 2011 Congenital Diaphragmatic Hernia Conference, we presented awards to our volunteers and fundraisers.  Those not present at the ceremony will be receiving their certificates / awards in the mail.

We would like to congratulate the following (in alphabetical order):


2011 Volunteers of the Year:

• Tara Hall
• Tracy Meats
• Barbara Wagner

Our May, 2010 - April, 2011 Volunteers:

• Sarah Deskins-Baker
• Ashley Barry
• Steph Burton
• Nicolle Colvin
• Erin Fisher
• Kara Gleeson
• Freedom Green
• Rebecca Falkinham
• SanJuanita Fuentes
• Tara Hall
• Joshua Hensley
• Kara Hess
• Karla Holt
• Brenda Johnson
• Jessica Johnston
• Rikke Jul
• Shana Kelly
• Tracy Landers
• Melissa Larrison
• Elizabeth Lopez
• DeAnn McGilberry
• Tracy Meats
• Troy Miller
• Elaine Moats
• Shankari Murali
• Karen Myers
• Heidi Pehrson
• Wendy Petty
• Michelle Rogers 
• Cheryl Sandoval
• Darlene Silverman
• Brenda Slavin
• Jaquetta Taborn
• Jennifer Tenney
• Barbara Wagner
• Chris Weaver

 

2011 Top Fundraisers:

• Aguirre Family
• Nicolle Colvin
• Sarah Anderson
• Gene & Becky Hobbs
• Rebecca Reyes-Falkinham
• Kidd-Ward Family
• Julie Tunnell
• Barbara Wagner

Thank you all for all your hard work and dedication to our charity and to families of babies affected by Congenital Diaphragmatic Hernia!   Without you, CHERUBS and our services to CDH families would  not be possible.  Your determination and compassion have helped 1000's of families devastated by CDH and we are very appreciative for all you have done and continue to do in honor / memory of your own cherubs.  

Would you like to join our wonderful team of volunteers?   Learn more at http://www.cdhvolunteers.org

Special Needs Children Conference - May 1, 2010 in Hilliard, OH

From Julie Tunnell, CHERUBS member and CDH mom:

Our church is holding a conference on May 1^st for mother’s with special needs children, “You are not Alone”.  I am a part of the board planning the event, and speaker on a panel of mother’s talking about how illnesses affect siblings.  My daughter, Jessica, is a twin sister right sided CHERUB that is a survivor.  I will donate money from the conference to CHERUBS.

The website link for this conference is:  http://www.nwbible.org/notalone2010               

Please post on your upcoming events wall.

Name of Event:  You are Not Alone

Date:  May 1, 2010 (9 a.m. to 3:30 p.m.)

Registration starts March 7^th

Location:  Northwest Bible Church

6639 Scioto Darby Road
Hilliard, Ohio 43026
(614) 876-7882
info@nwbible.org

Event Benefits: CHERUBS

2008 Ohio Picnic Photographs

Photos from our 2008 CHERUBS Ohio Picnic!

Jeremiah's Car Show

Above are photos from Jeremiah's car show for CDH. Saturday September 20th 2008 in Ashley, Ohio.

We raised $830 total through open donations to register cars and several raffles. The main raffle being a fully restored 1940 pedal car, compliments of Jeremiah's Uncle Bryon and family friend Bud Lemley. The parts to the car were donated to us by Tom and Sindy Kohler of Cardington. We also had birthday cake for Jeremiah and a balloon launch. Proceeds were split between CHERUBS and Nationwide Children's Hospital's J4 NICU.

Sarah Deskins - sdeskins@cherubs-cdh.org
Ohio State Representative & Jeremiah’s Mom