April 19, 2013 CDH Awareness Day Proclamation - Virginia

Virginia proclaims April 19, 2013 for CDH Awareness!

Learn how to get a proclamation at http://www.cdhawarenessday.org

* We have asked the State to change the phrase to the correct "Day of Congenital Diaphragmatic Hernia Awareness"

MEET OUR VOLUNTEERS - Melissa Larrison

My name is Melissa Larrison. I am a mom to 3 beautiful children. Jada who is nine, Kaia who is eight, and Hanna Rae Rose who is our CDH angel. I was diagnosed at nineteen weeks and went to OKC to deliver as it was close to family. Hanna’s defect was relatively small and easy to fix. Unfortunately her little body couldn’t get over other complications with her care and she passed away after twenty one days of fighting.

I joined Cherubs in October of 2008 and the amount of support I have received is immeasurable. Cherubs has become part of my family and I am forever grateful for them. I now hold a board position on the parent board. I am the Fundraising Coordinator and the Virginia state representative. Please feel free to contact me for any of your Cherubs needs.

CHERUBS 2011 Volunteer Ceremony

 

At our 2011 Congenital Diaphragmatic Hernia Conference, we presented awards to our volunteers and fundraisers.  Those not present at the ceremony will be receiving their certificates / awards in the mail.

We would like to congratulate the following (in alphabetical order):


2011 Volunteers of the Year:

• Tara Hall
• Tracy Meats
• Barbara Wagner

Our May, 2010 - April, 2011 Volunteers:

• Sarah Deskins-Baker
• Ashley Barry
• Steph Burton
• Nicolle Colvin
• Erin Fisher
• Kara Gleeson
• Freedom Green
• Rebecca Falkinham
• SanJuanita Fuentes
• Tara Hall
• Joshua Hensley
• Kara Hess
• Karla Holt
• Brenda Johnson
• Jessica Johnston
• Rikke Jul
• Shana Kelly
• Tracy Landers
• Melissa Larrison
• Elizabeth Lopez
• DeAnn McGilberry
• Tracy Meats
• Troy Miller
• Elaine Moats
• Shankari Murali
• Karen Myers
• Heidi Pehrson
• Wendy Petty
• Michelle Rogers 
• Cheryl Sandoval
• Darlene Silverman
• Brenda Slavin
• Jaquetta Taborn
• Jennifer Tenney
• Barbara Wagner
• Chris Weaver

 

2011 Top Fundraisers:

• Aguirre Family
• Nicolle Colvin
• Sarah Anderson
• Gene & Becky Hobbs
• Rebecca Reyes-Falkinham
• Kidd-Ward Family
• Julie Tunnell
• Barbara Wagner

Thank you all for all your hard work and dedication to our charity and to families of babies affected by Congenital Diaphragmatic Hernia!   Without you, CHERUBS and our services to CDH families would  not be possible.  Your determination and compassion have helped 1000's of families devastated by CDH and we are very appreciative for all you have done and continue to do in honor / memory of your own cherubs.  

Would you like to join our wonderful team of volunteers?   Learn more at http://www.cdhvolunteers.org

CDH Awareness In The News - ABC2 News in Maryland

http://www.abc2news.com/news/local/story/Raising-Awareness-For-Rare-Disease/gNWbJ7dZEEui7QRclGlXGg.cspx

Brooke Sroka is a 2 year old CDH survivor in Maryland who participated in our Save the Cherubs campaign with her photographer mom, Mandy Sroka.   The media was alerted to the campaign and they chose to interview the Srokas, who did an AMAZING job in raising Congenital Diaphragmatic Hernia Awareness!!!

WTG Sroka family!!!!!!!! :)