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| Photo courtesy of Scott Glovsky |
Want to see your local buildings and landmarks lit up blue, pink and yellow on April 19th? Send them a request! Contact our awareness committee at awareness@cherubs-cdh.org with any questions.
Showing posts with label cdh awareness campaign. Show all posts
Showing posts with label cdh awareness campaign. Show all posts
Thursday, February 26, 2015
The Leonard P. Zakim Bunker Hill Memorial Bridge Raises Congenital Diaphragmatic Hernia Awareness!
The Leonard P. Zakim Bunker Hill Memorial Bridge in Boston, Massachusetts will be raising Congenital Diaphragmatic Hernia Awareness on April 19th, 2015 by lighting up blue, pink and yellow.
Special thanks to our Awareness Committee and everyone at the MassDOT for taking action against Congenital Diaphragmatic Hernia!
Want to see your local buildings and landmarks lit up blue, pink and yellow on April 19th? Send them a request! Contact our awareness committee at awareness@cherubs-cdh.org with any questions.
Want to see your local buildings and landmarks lit up blue, pink and yellow on April 19th? Send them a request! Contact our awareness committee at awareness@cherubs-cdh.org with any questions.
Friday, January 23, 2015
How are you taking ACTION against CDH on April 19th?
Here are some event ideas for Congenital Diaphragmatic Hernia Action Day...
@cherubs-cdh.org.
- Car Wash
- Carnival
- Change for Cherubs
- CDH HOPE Totebag Baby Shower
- Dress Down Day
- Horseback Riding Trail
- Adopt a Hospital Program
- Bake Sale
- Silent Auction
- Ebay Auction
- Raffle
- Candy Sale
- Awareness Bracelet Sale
- Yard Sale/Rummage Sale
- Online Fundraiser
- CDH Walk
- CDH Run/Marathon
- CDH Golf Tournament
- Baseball Tournament
- Bowl-a-Thon
- CDH Blood Drive
- Balloon Release
- Penny Drive
Friday, March 22, 2013
Portland, OR Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Portland, Oregon Parade Parade of Cherubs on April 19th for CDH Awareness
- On Facebook - https://www.facebook.com/events/557033724326265/
- Register on Eventbrite - http://cdhawarenessday-2013portland.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to Legacy Emanuel Hospital for CDH Research
- Contact Shelly or Andrea with any questions about this event at oregon@cherubs-cdh.org
Thursday, March 21, 2013
Seattle, WA Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Seattle, Wa Parade Parade of Cherubs on April 19th for CDH Awareness
- On Facebook - https://www.facebook.com/events/245684502229317/
- Register on Eventbrite - http://cdhawarenessday-2013seattle.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to Seattle Children's Hospital for CDH Research
- Contact Christina with any questions about this event at washington@cherubs-cdh.org
Wednesday, March 20, 2013
Denver, CO Parade of Cherubs on April 19
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Denver, Colorado Parade Parade of Cherubs on April 19th for CDH Awareness
- On Facebook - https://www.facebook.com/events/190447231096098/
- Register on Eventbrite - http://cdhawarenessday-2013denver.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to Denver Children's Hospital for CDH Research
- Contact Nicolle or Jennifer with any questions about this event at colorado@cherubs-cdh.org
Tuesday, March 19, 2013
Phoenix Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Phoenix, Arizona Parade Parade of Cherubs on April 19th for CDH Awareness
- On Facebook - https://www.facebook.com/events/252034254927636/
- Register on Eventbrite - http://cdhawarenessday-2013phoenix.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to Sunrise Hospital for CDH Research
- Contact Somer or Stephanie with any questions about this event at arizona@cherubs-cdh.org
Monday, March 18, 2013
Salt Lake City, UT Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Salt Lake City, UT Parade Parade of Cherubs on April 19th for CDH Awareness
- On Facebook - http://www.facebook.com/events/118290918343460/
- Register on Eventbrite - http://cdhawarenessday-2013slc.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to Primary Children's Hospital for CDH Research
- Contact Josh with any questions about this event at utah@cherubs-cdh.org
Sunday, March 17, 2013
Peoria, IL Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Peoria, IL Parade of Cherubs on April 19th for CDH Awareness
On Facebook - https://www.facebook.com/events/562260840470364/
Register on Eventbrite - http://cdhawarenessday-2013peoria.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to Children's Hospital of Illinois for CDH Research
Contact Kristin with any questions about this event
Saturday, March 16, 2013
Las Vegas 51's Baseball Night for CDH Awareness on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Las Vegas 51's Baseball Night for CDH Awareness
April 19, 2013
On Facebook - https://www.facebook.com/events/417568614987091/
Register on Eventbrite - http://cdhawarenessday-2013lasvegas.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
Purchase game tickets - http://lasvegas.51s.milb.com/index.jsp?sid=t400
Contact Patricia & Jill with any questions about this event at nevada@cherubs-cdh.org
Friday, March 15, 2013
St Louis Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
St Louis Parade
- Parade on April 20th
- On Facebook - https://www.facebook.com/events/342181932557062/
- Register on Eventbrite - http://cdhawarenessday-2013stlouis.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to the St Louis Fetal Care InstitituTe for CDH Research
Gainesville Parade of Cherubs for April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Gainesville, FL Parade
- On Facebook - https://www.facebook.com/events/129625617198348/
- Register on Eventbrite - http://cdhawarenessday-2013shands.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- CDH reunion registration at https://ufandshands.org/events/congenital-diaphragmatic-hernia-cdh-patient-reunion
- 50% of money raised will be donated to the Shands for Children Hospital for CDH Research
- Contact Vanessa, Trish or Rhonda with any questions about this event at florida@cherubs-cdh.org
Thursday, March 14, 2013
Gainesville Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Gainesville, FL Parade
- On Facebook - https://www.facebook.com/events/129625617198348/
- Register on Eventbrite - http://cdhawarenessday-2013shands.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- CDH reunion registration at https://ufandshands.org/events/congenital-diaphragmatic-hernia-cdh-patient-reunion
- 50% of money raised will be donated to the Shands for Children Hospital for CDH Research
- Contact Vanessa, Trish or Rhonda with any questions about this event at florida@cherubs-cdh.org
Tuesday, March 12, 2013
Dallas Parade of Cherubs on April 19th
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Dallas Parade
Parade on April 20th
On Facebook - https://www.facebook.com/events/553054394719908/
Register on Eventbrite - http://cdhawarenessday-2013dallas.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to the Texas Fetal Center at Children's Memorial Hospital for CDH Research
Contact Cassandra with any questions about this event at texas@cherubs-cdh.org
Boston Parade of Cherubs on April 19th!
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Boston Parade
On Facebook - https://www.facebook.com/events/429436317126141/
Register on Eventbrite - http://cdhawarenessday-2013boston.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to the CDH Genetic Study Program at Mass General
Contact Tracy & Marie with any questions about this event at massachusetts@cherubs-cdh.org
Sunday, March 10, 2013
Chicago Parade of Cherubs on April 19th!
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!
Chicago, IL Parade
On Facebook - https://www.facebook.com/events/530087357016093/
Register on Eventbrite - http://cdhawarenessday-2013chicago.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to Lurie Children's Hospital of Chicago (formerly Children's Memorial) for CDH Research
Contact Neil Rubenstein with any questions about this event at illinois@cherubs-cdh.org
Friday, March 8, 2013
New York City Parade of Cherubs on April 19th!
Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness in New York City!!!!
New York, NY Parade
- On Facebook - http://www.facebook.com/events/247637065369030/
- Register on Eventbrite - http://cdhawarenessday-2013nyc.eventbrite.com/
- Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
- 50% of money raised will be donated to DHREAMS for CDH
- Contact Noel Williams or Tara Zoitos with any questions about this event - newyork@cherubs-cdh.org
Thursday, March 7, 2013
UK Jump for CDH Awarenesson April 19th!
Join us for April 19th on raise Congenital Diaphragmatic Hernia Awareness!!!
UK Jump for CHERUBS
- On Facebook - https://www.facebook.com/events/477004332360496/
- Sponsor at http://www.firstgiving.com/fundraiser/ClairMaher/cdhawarenessday2013
- 50% of money raised will be donated to Manchester Children's Hospital for CDH Research
- Contact Clair or Melanie with any questions about this event at uk@cherubs-cdh.org
Friday, April 6, 2012
Help Support The CDH Awareness Fund
Please help us to raise awareness for babies affected by Congenital Diaphragmatic Hernia by donating to sponsor posters, wings, ribbons and more!
http://www.firstgiving.com/fundraiser/cherubs/cdhawareness
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth.
Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.
Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
CHERUBS is working hard to raise Congenital Diaphragmatic Hernia Awareness around the world.
April 19th is the International Day of Congenital Diaphragmatic Hernia Awareness. In honor of this day, CDH families and friends are holding events around the world. CHERUBS is sponsoring 7 parades, including a large one in Washington DC that will end on Capitol Hill and a light up the night event in the UK.
For more information on the events, you can visit http://www.cdhbills.org
We are doing our best to raise awareness of CDH and we need your support to keep doing that!
Learn more about CDH at http://www.cdhsupport.org
CDH Awareness Fund – this fund will help raise awareness of Congenital Diaphragmatic Hernia through balloon releases, giving away free CDH ribbon buttons and brochures and other items. It will also cover advertising costs, billboards, video production and much more.
A donation of $4 will sponsor 1 set of wings
A donation of $7 will sponsor 1 CDH Education Poster
A donation of $20 will sponsor 100 CDH Awareness Ribbon Buttons
A donation of $100 will sponsor a Balloon Release
A donation of $400 will sponsor 5000 CDH Awareness Brochures
A donation of $3000 will sponsor a billboard advertisement
http://www.firstgiving.com/fundraiser/cherubs/cdhawareness
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth.
Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.
Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
CHERUBS is working hard to raise Congenital Diaphragmatic Hernia Awareness around the world.
April 19th is the International Day of Congenital Diaphragmatic Hernia Awareness. In honor of this day, CDH families and friends are holding events around the world. CHERUBS is sponsoring 7 parades, including a large one in Washington DC that will end on Capitol Hill and a light up the night event in the UK.
For more information on the events, you can visit http://www.cdhbills.org
We are doing our best to raise awareness of CDH and we need your support to keep doing that!
Learn more about CDH at http://www.cdhsupport.org
CDH Awareness Fund – this fund will help raise awareness of Congenital Diaphragmatic Hernia through balloon releases, giving away free CDH ribbon buttons and brochures and other items. It will also cover advertising costs, billboards, video production and much more.
A donation of $4 will sponsor 1 set of wings
A donation of $7 will sponsor 1 CDH Education Poster
A donation of $20 will sponsor 100 CDH Awareness Ribbon Buttons
A donation of $100 will sponsor a Balloon Release
A donation of $400 will sponsor 5000 CDH Awareness Brochures
A donation of $3000 will sponsor a billboard advertisement
Wednesday, March 28, 2012
CHERUBS In The Boston Marathon
A HUGE thank you to Bonnie Johnson for representing CHERUBS in the 2012 Boston Marathon in memory of Brielle Santo!
Please go support her! We would love to have a cheering section for her there in Boston! :)
http://www.crowdrise.com/Bostoncherubs
HERE'S THE STORY:
Hi my name is Bonnie! I had recently set a goal to qualify and run in the Boston Marathon. Now that I have qualified & got in, I have decided to run for a cause. One that is very close to my family and heart.
Let me tell you about my great niece Brielle Theresa Santo born June 9th, 2010 to Frank & Carol Santo . She was born with Congenital Diaphragmatic Hernia. Brielle was on this earth for 16 days and we give thanks to God for those 16 days with her family. She will be forever in our hearts. Before Brielles' birth, we have never heard of this condition which has taken so many babies lives. So now I am running not only to raise awareness but to raise funds for research through The Cherubs Organization.
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.
Won't you please join me? No amount is too small!
Please go support her! We would love to have a cheering section for her there in Boston! :)
http://www.crowdrise.com/Bostoncherubs
HERE'S THE STORY:
Hi my name is Bonnie! I had recently set a goal to qualify and run in the Boston Marathon. Now that I have qualified & got in, I have decided to run for a cause. One that is very close to my family and heart.
Let me tell you about my great niece Brielle Theresa Santo born June 9th, 2010 to Frank & Carol Santo . She was born with Congenital Diaphragmatic Hernia. Brielle was on this earth for 16 days and we give thanks to God for those 16 days with her family. She will be forever in our hearts. Before Brielles' birth, we have never heard of this condition which has taken so many babies lives. So now I am running not only to raise awareness but to raise funds for research through The Cherubs Organization.
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.
Won't you please join me? No amount is too small!
Tuesday, February 28, 2012
Google Doodle for CDH
(Letter from Dawn)
Alrighty folks, we have a mission to accomplish!!!! Can we all e-mail Google and get them to do a Doodle for April 19th???
My e-mail to proposals@google.com (write your own. Keep it simple!).... .
Dear Google,
April 19th in the International Celebration of Congenital Diaphragmatic Hernia Awareness Daily. CDH is a severe birth defect that strikes 1 in every 2500 babies = a baby every 10 minutes in the world. 50% of babies born with CDH do not survive. The cause is unknown.
Never heard of CDH? Most haven't, though it's as common as Spina Bifida and Cystic Fibrosis with over 700,000 babies affected since 2000. Here at CHERUBS we've struggled to raise awareness for 17 years. Without awareness there are no research funds.
http://www.cdhsupport.org/
A CDH Doodle would raise awareness on an astronomical level for these babies and get them the attention and help they so desperately need. What better reason to doodle and who can resist cute little cherubs (the symbol for CDH) or the ribbon with the baby colors and clouds on a pretty spring day in April?
Please consider this proposal.
On behalf of over 3800 families of babies born with CDH,
--
Dawn M. Torrence Williamson
President & Founder
mom to Shane (1/28/93-9/11/99), born with CDH
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org/
Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA
Office: 1725 S. Main St, Suite 202, Wake Forest, NC 27587
Alrighty folks, we have a mission to accomplish!!!! Can we all e-mail Google and get them to do a Doodle for April 19th???
My e-mail to proposals@google.com (write your own. Keep it simple!).... .
Dear Google,
April 19th in the International Celebration of Congenital Diaphragmatic Hernia Awareness Daily. CDH is a severe birth defect that strikes 1 in every 2500 babies = a baby every 10 minutes in the world. 50% of babies born with CDH do not survive. The cause is unknown.
Never heard of CDH? Most haven't, though it's as common as Spina Bifida and Cystic Fibrosis with over 700,000 babies affected since 2000. Here at CHERUBS we've struggled to raise awareness for 17 years. Without awareness there are no research funds.
http://www.cdhsupport.org/
A CDH Doodle would raise awareness on an astronomical level for these babies and get them the attention and help they so desperately need. What better reason to doodle and who can resist cute little cherubs (the symbol for CDH) or the ribbon with the baby colors and clouds on a pretty spring day in April?
Please consider this proposal.
On behalf of over 3800 families of babies born with CDH,
--
Dawn M. Torrence Williamson
President & Founder
mom to Shane (1/28/93-9/11/99), born with CDH
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org/
Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA
Office: 1725 S. Main St, Suite 202, Wake Forest, NC 27587
More Doodles
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