Showing posts with label marathon. Show all posts
Showing posts with label marathon. Show all posts

Saturday, April 7, 2012

CHERUBS Dad Running In San Francisco Marathon to Raise CDH Awareness

Cherub Tate Napers featured in the above Save The Cherubs Facebook Timeline Cover


My wife (Karol Napers), kids (Lexie, Jake and Tate) and I will all be attending this year's conference in San Francisco.  When we heard about the conference being in San Francisco, I jokingly said to Karol 'wouldn't it be great if there was a marathon close to San Francisco around then?'  So we searched, and this one is right there in the city on the last day of the conference!  That was about as perfect timing as anything, a little miracle indeed. 
 
Just some history on my running, a couple of years ago I began running and quickly became addicted.  I ran my first marathon in Indianapolis in the fall of 2009.  Since then, I have made it a goal to be part of the '50-State Marathon Club' by running a marathon in each of the 50 states.  I have now completed a marathon in six states (Indiana, Tennessee, Ohio, Florida, Michigan, and New York).  Later this month, I'll be running the Louisville Marathon in Kentucky and then the San Francisco Marathon will be my eighth. 
 
We were introduced to CDH just a few months ago, when our son, Tate, was born.  We found out the day before he was born that he had a left side diaphragmatic hernia.  He was immediately placed on a ventilator after birth, and had a surgical repair when he was 6 days old.  A patch had been placed on his diaphragm.  He has done ver well (he's our little miracle baby!), and was able to come home just shy of a month after birth. 
 
When Tate was born with CDH, I always wanted to find a way to weave my running into helping raise awareness for CDH somehow.  We talked about starting our own race or fundraising in someway.  When I signed up for the San Francisco Marathon, the organizers where partnering with Crowdrise - a volunteer organization that helps with online fundraisers for charity.  I signed up to create a "Run For CHERUBS" fundraiser and tied it to the San Francisco Marathon Charities.  Below is a direct link to the Run For CHERUBS website, where you can find all the info.  This is also where you can go to donate by clicking on the orange "Donate" button.  My goal is to raise $2,500.00 for CHERUBS, and we're nearly a quarter of the way there already!             
 
 
Also, I have included a link below to the overall San Francisco Marathon Crowdrise page.  You can see from there that the Run For CHERUBS fundraiser is among the top so far, in fourth place out of about 40 charity fundraisers.  It's pretty exciting stuff!
 
 
Thank you very much for helping to get the word out about this effort!  It's very appreciated!
 
Thanks!
Dan

Wednesday, March 28, 2012

CHERUBS In The Boston Marathon

A HUGE thank you to Bonnie Johnson for representing CHERUBS in the 2012 Boston Marathon in memory of Brielle Santo!

Please go support her!  We would love to have a cheering section for her there in Boston!  :)


http://www.crowdrise.com/Bostoncherubs



HERE'S THE STORY:


Hi my name is Bonnie! I had recently set a goal to qualify and run in the Boston Marathon. Now that I have qualified & got in,  I have decided to run for a cause. One that is very close to my family and heart.

Let me tell you about my great niece Brielle Theresa Santo born June 9th, 2010 to Frank & Carol Santo .  She was born with Congenital Diaphragmatic Hernia.   Brielle was on this earth for 16 days and  we give  thanks to God for those 16 days with her family. She will be forever in our hearts.   Before Brielles' birth, we have never heard of this condition which has taken so many babies lives. So now I am running not only to raise awareness but to raise funds for research through The Cherubs Organization.


CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.


Won't you please join me? No amount is too small!





Tuesday, August 30, 2011

CHERUBS In The Atlantic City Marathon - October 16, 2011




We are pleased to announce that CHERUBS will be raising Congenital Diaphragmatic Hernia Awareness in the Atlantic City Marathon! Working with the family of Brielle Santo and the Jewish Community Center of Atlantic County, we will be raising funds and awareness through participates and supporters.

To support CDH, use the code CHERUBS when they register for the race on Active.com.



I Walk To Raise CDH Awareness
Walking in the Marathon?  Click here to order CDH Awareness Gear!


I Run To Raise CDH Awareness
Walking in the Marathon?  Click here to order CDH Awareness Gear!





cherub Brielle Santo



We look forward to seeing you there!

Friday, July 8, 2011

CHERUBS in the Altantic City Marathon



We are pleased to announce that CHERUBS will be raising Congenital Diaphragmatic Hernia Awareness in the Atlantic City Marathon! Working with the family of Brielle Santos and the Jewish Community Center of Atlantic County, we will be raising funds and awareness through participates and supporters.

To support CDH, use the code CHERUBS when they register for the race on Active.com.



I Walk To Raise CDH Awareness
Walking in the Marathon?  Click here to order CDH Awareness Gear!


I Run To Raise CDH Awareness
Walking in the Marathon?  Click here to order CDH Awareness Gear!





cherub Brielle Santo



We look forward to seeing you there!

Tuesday, May 11, 2010

Would you like to hold an event or fundraiser for CHERUBS in honor or in memory of your cherub?

Dear Members,

Many of you have been asking what you can do to help CHERUBS and to also do something special in honor or in memory of your own cherubs.   Our Fundraising Committee has been hard at work creating the following information sheets for many different fundraisers and events.  Some are fundraisers, some are awareness events.  Imagine how much we could do for CDH if each one of us did just 1 thing a year?    The list below has some easy fundraisers, some a little more elaborate - but they are all FUN!   Except maybe the blood drives.  ;)

There is also an opportunity for you to create scholarships in honor or in memory of your cherubs.  If you are interested in sponsoring an annual $1000 scholarship for a deserving and hard-working CDH survivor or sibling or even a parent who wants to go back to school, please contact me.  We would like to set up 10 scholarships for the 2010-2011 school year.

We are also in great need of donations for our many services.  http://www.cdhdonations.org  


Congenital Diaphragmatic Hernia Fundraisers & Awareness Events



Congenital Diaphragmatic Hernia Road RallyBelow are detailed brochures on how to hold a CDH Fundraising or Awareness Event for CHERUBS!   Though these brochures are for information on fundraisers that anyone can download and use, we truly hope that you will chose CHERUBS as the beneficiary of your fundraiser.  We have a lot of cherubs to help and we subsist solely on donations and volunteers, offering free services to families in 38 countries with a very small shoe-string budget.

 More will be posted soon!


 CDH & CHERUBS Information for all events






Sincerely,
Dawn M. Torrence Williamson
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Volunteer run 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org
http://www.cherubs-cdh.org
http://cdhsupport.blogspot.com

Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Our Sites:

CDH Research - http://www.cdhresearch.org
CDH Forums - http://www.cdhforums.org
CDH Conference - http://www.cdhconference.org
CDH Awareness Shop - http://www.cdhawarenessshop.org
CDH Awareness Ribbon - http://www.cdhawarenessribbon.org
Save The Cherubs - http://www.savethecherubs.org
Angel Ball - http://www.cherubsangelball.org
Adopt A Hospital - http://www.cdhhospitals.org
CDH HOPE Totebags - http://www.cdhhope.org
CDH Congressional Bills - http://www.cdhbills.org
CDH Fundraisers - http://www.cdhfundraisers.org
CDH Event Calendar - http://www.cdhcalendar.org
CDH News - http://www.cdhnews.org
CDH Newsletters - http://www.cdhnewsletters.org