Showing posts with label cdh conference. Show all posts
Showing posts with label cdh conference. Show all posts

Tuesday, October 14, 2014

CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

Join us as we celebrate our charity's 20th year by sailing the seas!  


CHERUBS 20th Anniversary Reunion Cruise & CDH Conference
August 23 - 29, 2015
Sailing from Miami to Cozumel, Jamaica and Grand Cayman

Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!

8/23/15 sailing of the brand new Carnival Breeze!- 6 night sailing arrives back on 8/29/15. Leaves from the port of Miami and visits, Jamaica, Grand Cayman and Cozumel with 3 days at sea.

Register here! 


Make a splash with Carnival cruises to Cozumel, a Caribbean island perched atop a coral reef. Cruises to Cozumel, Mexico, dock at the island’s heart—just minutes from San Miguel’s seafront shops and the white sand beach at Chankanaab National Park. Drift among star corals and sea fans on a Cozumel diving excursion or simply kick back on the beach beneath your own palm palapa as the turquoise waves roll in. Cruise to Cozumel for a scuba diving adventure along the Great Mesoamerican Reef. Enjoy a leisurely day of snorkeling with iridescent fish at Chankanaab National Park. Swim with dolphins at Dolphinaris.
Cruise to Jamaica to discover the historic charms of this former sugar boomtown. The plantation days of Falmouth, Jamaica, are gone, but what remains is the largest collection of intact colonial Georgian architecture in the Caribbean, set on sand-dusted streets and a wind-swept harbor. On Carnival cruises to Falmouth, Jamaica you can kick back on a crescent of white-sand beach and explore the great houses of old sugar plantations. Visit Falmouth’s quaint 18th-century waterfront village. Feel the rush of flowing water in Dunn’s River Falls. Kick back at the ultimate beach bar, Time ‘n’ Place. Swim in the turquoise seas at Jacob Taylor Beach when you cruise to Falmouth. Explore Jamaica’s sugar plantation past at Good Hope Plantation House.

Enjoy laidback British civility in a sun-splashed tropical locale on your Carnival® Grand Cayman cruise. Don’t let the island’s scrubland terrain fool you—a spectacular marine paradise lies just offshore of Grand Cayman, Cayman Islands, where a living undersea wall drops dramatically into the ocean deep. Cruises to Grand Cayman bring you directly to the best scuba diving and snorkeling in the kaleidoscopic Caribbean Sea. Stretch out on the glimmering white sands at Seven Mile Beach. Stroll the shops, cafes, and museums in George Town, Grand Cayman. Swim with gentle stingrays in Stingray City on your Grand Cayman cruise. Dive in the wondrous undersea world along the Cayman Wall. Spot native parrots and lizards in the Queen Elizabeth II Botanic Park.

Pricing:

For 2 people in a cabin; Inside- $1273.06, Balcony- $1773.06
For 3 people in a cabin; Inside- $1619.59, Balcony- $2119.59
For 4 people in a cabin; Inside- $1906.12, Balcony- $2526.12

Pricing includes conference and cruise, all taxes and port charges.  Pricing does not include optional excursions and add-ons.  Insurance is not included and may be purchased at $79.00 per adult and $49 per child. Tips are extra and may be paid on the ship or prepaid if you prefer. Recommended tip is $11.50 per person per day (which is $69 per person for the trip). If you need air, a hotel the night before/after that is additional and I can help you with that. 

There is an initial deposit of $35 per person due to hold each person's berth in the cabin. That is due immediately upon registration to hold the cabin.

Full (non-refundable) deposit of $250 per person is due on 3/27/15 or before. The remaining balance is due on 6/09/2015.   This will go through our event planner, Susie.  Please contact her with any questions about the ship.

Register here!

To make the deposit call Susie Kay, ACC at Piece of Cake Travel at 919-696-3007. I can also be reached at pieceofcaketravel@gmail.com for any additional questions you may have.

Carnival Breeze

Carnival Breeze — Miami’s hottest destination — sails toward islandy hotspots across the Caribbean. Fun-fan favorites like SportSquare and mouth-watering dining spots like Cucina del Capitano are just the beginning of how Carnival Breeze keeps the fun blazing.

Enjoy the island atmosphere of RedFrog Rum Bar, or south-of-the-border taco goodness at BlueIguana Cantina. There’s family fun (and games) at Hasbro, The Game Show and ha-ha hilarity at the Punchliner Comedy Club Presented by George Lopez. Let’s not forget Guy's Burger Joint, which features signature, hot-off-the-grill burgers designed by celebrity chef Guy Fieri! There are many fish in the sea, and you'll find a nice selection of them at Bonsai Sushi.

http://secure.carnival.com/cruise-food/?shipCode=BR

Carnival Breeze has the whole family covered — with water, that is — with a 320-foot-long Twister Waterslide at Carnival WaterWorks. Just for the kids there’s supervised youth programs like Camp Carnival and Club O2. And for the bigger people, there’s just-me-time to be had relaxing at Serenity Adult Only Retreat… after you pamper yourself at Cloud 9 Spa, of course. Then for fun after the sun’s done, have a truly moving experience at the multi-dimensional Thrill Theater, dance in your seat at Playlist Productions… or if you prefer to do your dancing on a dance floor, check out Liquid Nightclub.


http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

http://secure.carnival.com/onboard/view-all-onboard-activities/?shipCode=BR

If you notice a bit of the outdoors inside, don’t adjust your view. Carnival Breeze’s staterooms — and many of the public spaces around the ship — feature a scintillating tropical décor and contemporary furnishings that’ll transport you straight to warm Caribbean bliss.

http://secure.carnival.com/cruise-ships/carnival-breeze.aspx#


http://secure.carnival.com/cruise-ships/carnival-breeze.aspx

Register here!

Sunday, June 9, 2013

Announcing 2014 International CDH Conference in Washington DC


2014 CHERUBS Annual Congenital Diaphragmatic Hernia Conference

 

Medical Conference - June 24-27, 2014
Family Conference – June 26-29, 2014

 
CDH MEDICAL CONFERENCE
 


This conference includes all medical specialties that work with CDH patients including pediatric surgeons, neonatologists, geneticists, dieticians, pediatricians, pulmonologists and others as well as the patients and families affected by CDH to come together to search for the cause, prevention and best treatments of Congenital Diaphragmatic Hernia.
 
All medical professionals are welcome to attend both the CDH Medical and CDH Family Conferences.   There is a $150 conference fee for medical professionals.

Tuesday, June 24th - Research Presentations*

• Poster Presentations & Display (submissions can be sent to research@cdhsupport.org)
• Vendors

Wednesday, June 25th - Round Tables / Panels

• Evening Pizza Party at Parent Conference
• Parade of Cherubs
• CDH Research on Capitol Hill
• Vendors

Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party
Friday, June 27th - Conclusion
• Medical Panel at Parent Conference
• Medical Conference Conclusion
• Vendors

Medical Professionals only allowed on Tuesday, June 24th

POSTER AND PAPER SUBMISSIONS

Abstracts and posters may be submitted to research@cdhsupport.org by June 15th for consideration.  

They will be reviewed jointly by your conference hosts.

PAST PRESENTERS

The following have presented at CDH Family Conferences in past years:

• Jay Wilson, MD - Boston Children's Hospital, Harvard University
• Patricia Donahoe, Massachusetts General Hospital
• Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
• David Kays, MD - University of Florida at Gainesville / SHANDS
• Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
• Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
• Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
• Kevin Lally, MD - CDH Study Group
• Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
• Dr. Edmund Yang, St. Louis Fetal Care Institute
• Ruben Quintero, MD - Fetal Treatment Program
• Priscilla Chiu, MD - Sick Children's, Toronto, Canada
• Brenda Slavin, RN - Children's National Medical Center, Washington DC



CDH FAMILY CONFERENCE

Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party


Friday, June 27th - Research Day

• Medical Speakers
• Medical Q&A Panel
• Free Genetic Testing
• CDH Lab & Clinic Tours 

Saturday, June 28th - Awareness Day

• CDH Research Bill
• April 19th
• Volunteering
• Fundraisers 

Friday, June 29th - Support Day

• Round Table Discussions
• Kids CDH Song Performance
• Family Conference Conclusion




Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend.  This is also to keep our members safe and medical information private.   All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

• 3 half-days so you have time to see local attractions
• Pizza party and parade of cherubs
• World renown guest speakers
• Great round-table discussions for families of survivors and angels
• Participate in CDH Research
• Meet other CDH families
• Kids are always welcome!
• Special needs families often qualify for grants to attend (check with your social worker)
• Our conference makes a wonderful family vacation


About The CDH Family Conference:

• Expect to learn a lot about Congenital Diaphragmatic Hernia!
• Our guestspeakers are always the best in their fields, bringing us new information every year!
• ALL CDH families are welcome to attend!  This includes families of survivors, grieving families and expectant families.
• Our conferences include family introductions, round-table discussions, research guest lectures, Q&A sessions and much more!
• Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH
Support Day.
• CHERUBS conferences are planned to be educational, supportive and affordable!
• Our conference hotels always offer rooms around $100 per night, breakfasts and parking.
• Meet new friends, see old friends and participate in research for various hospitals.
• Our conferences are always half days so that families can enjoy local tourist attractions.
• Children are welcome and babysitting services will be provided during conference hours.
• Our conferences are held near top rated hospitals for safety.
• We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
• Join in our new Parade of Cherubs at every conference!
• Join in our balloon releases at every conference!
• We have a pizza party on the first night of every conference.
• Kid's get a chance to learn the CDH kids song and perform on the last day of the conference.
• CHERUBS does not charge a conference fee.
• For safety and privacy of our members, you MUST be a member of CHERUBS to attend.  You
may register for free at http://www.cherubs-cdh.org/members
• Many families of survivors are eligible for grants to cover travel expenses to medical
conferences.  Ask your child's social worker for more information.


Registration for CDH families is just $5.00 per person for the entirety of the conference and includes pizza party. 


ACCOMODATIONS
Will be posted soon!


SPONSORSHIP & VENDOR OPPORTUNITIES

Breakfast Sponsorship on Tuesday, Wednesday, Friday, or Saturday: $1500 + Cost of
Food after May 30, $1200 + Cost of Food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website.

Breakfast Sponsorship Thursday- A special opportunity to reach medical professionals,
researchers, and parent participants during the only joint session of the conference!  $2000 +
Cost of Food after May 30, $1500 + Cost of food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website. 

Pizza Party-  During this session the medical professionals, researchers, and families will come together for food and fellowship. This is the night prior to the beginning of the Family Conference, and families introduce themselves and share their CDH stories. 

    3 $1000 sponsorships are available.

    1 $2500 sponsorship non-competing sponsorship available (No competing companies will be allowed to sponsor) 

Kids Entertainment room: Entertainment room with babysitters during parent conference only (Thursday-Saturday 8am-12pm).  $2000.

Other Sponsorship Opportunities:

Conference Bags- $2000  Includes sponsor’s logo on one side of bag and CHERUBS logo on
other side of bag. CHERUBS to manage ordering and production of bag, at no additional cost to
sponsor.

Lanyard/ Badge Holder- $1500  Includes sponsor's logo and the CDH awareness
ribbon.  CHERUBS to manage ordering and production of lanyard at no additional cost to
sponsor.

Information/Advertisements in bags- $250

Contact Ashley Barry at abarry@cherubs-cdh.org or 919-624-2883 for more information or
purchase sponsorship on-line at 

http://www.cdhconference.org 


CHERUBS MEDICAL ADVISORY BOARD

• Patricia Donahue, MD – Massachusetts General Hospital
• David Kays, MD – University of Florida at Gainesville
• Henry Rice, MD – Duke University Medical Center
• Edmund Yang, MD – Fetal Treatment Center of St. Louis
• N. Scott Adzick, MD – Children’s Hospital of Philadelphia
• Kevin Lally, MD, MS - University of Texas Medical School at Houston, CDH Study Group
• Wendy Chung, MD - Columbia Presbyterian, DHREAMS
• Doug Miniati, MD - University of California San Francisco
• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven, Belgium
• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK
• Steadman McPeters, NP - Pediatric Surgery Nurse Practioner, Huntsville






CDH Family Conference:

Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend.  This is also to keep our members safe and medical information private.   All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

  * 3 half-days so you have time to see local attractions
* Pizza party and parade of cherubs
* World reknown guest speakers
* Great round-table discussions for families of survivors and angels
* Participate in CDH Research
* Meet other CDH families
* Hotel rooms are always affordable for the area
* Kids are always welcome!
* Special needs families often qualify for grants to attend (check with your social worker)
* Our conference make a wonderful family vacation!!!!





2011 Conference





Our 2011 Conference in Orlando, FL

Location:   Orlando, FL

Guest Speakers: 


Special Events:


  • 2nd Annual CDH Balloon Release
  • 2nd Annual March of the Cherubs
  • CDH Research Day, CDH Awareness Day and CDH Support Day
  • Introduced at the APSNA Conference






2010 Conference







Our 2010 Conference in Orlando, FL

Location:   Orlando, FL

Guest Speakers: 

Special Events:

  • 1st Annual CDH Balloon Release
  • 1st Annual March of the Cherubs
  • CDH Research Day, CDH Awareness Day and CDH Support Day
  • Introduced at the APSNA Conference
Click here to download brochure.
Click here to view lecture videos.




2009 Conference


Our 2009 Conference in San Antonio, TX


Location:   San Antonio, TX

Guest Speakers: 

Special Guests:  

  • Kevin and Brenda Lane - CHERUBS UK
  • Julian and Danielle Kessner - CHERUBS Australia
  • Kimberly Richards - The Olivia Raine Foundation
  • Tim and Michelle Brown - Little Lambs
Special Events:  

  • Unveiling of the CDH Song, "I'll Never Let You Go" by The Jammies
  • 1st Performance of the Kid's CDH Song
Click here to download brochure.
Click here to view lecture videos.




2008 Conference






Our 2008 Conference in Durham, NC


Location:   Durham, NC

Guest Speakers: 

  • Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
  • Priscilla Chiu, MD - Sick Children's, Toronto, Canada
  • Brenda Slavin, RN - Children's National Medical Center, Washington DC
Special Events:  


Click here to download brochure.
Click here to view lecture videos.





More Past Event Speakers


Jay M. Wilson, MD - Harvard University / Boston Children’s Hospital

Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center

David Kays, MD - University of Florida at Gainesville / SHANDS

Ruben Quintero, MD - Fetal Treatment Program




CHERUBS 2000 CDH Conference















Announcing 2014 International European CDH Conference for Families in the United Kingdom


First Ever Annual International European Congenital Diaphragmatic Hernia Conference for Families!
 
Dublin, Ireland

 

All members in good standing from ANY country are welcome to attend!
Questions or information?  Contact our UK CHERUBS Representatives Clair Maher and Melanie Parsons at uk@cherubs-cdh.org


CDH FAMILY CONFERENCE

Thursday, July 31st - Pizza Party/ Dinner

• Family Introductions
• Parade of Cherubs 

Friday, August 1st - Research Day

• Medical Speakers
• Medical Q&A Panel
• Free Genetic Testing
• CDH Lab & Clinic Tours 

Saturday, August 2nd -Awareness Day

• CDH Research Bill
• April 19th
• Volunteering
• Fundraisers 

Sunday, August 3rd Support Day

• Round Table Discussions
• Kids CDH Song Performance
• Family Conference Conclusion

 


Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend.  This is also to keep our members safe and medical information private.   All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

• 3 half-days so you have time to see local attractions
• Pizza party and parade of cherubs
• World renown guest speakers
• Great round-table discussions for families of survivors and angels
• Participate in CDH Research
• Meet other CDH families
• Kids are always welcome!
• Special needs families often qualify for grants to attend (check with your social worker)
• Our conference makes a wonderful family vacation


About The CDH Family Conference:

• Expect to learn a lot about Congenital Diaphragmatic Hernia!
• Our guestspeakers are always the best in their fields, bringing us new information every year!
• ALL CDH families are welcome to attend!  This includes families of survivors, grieving families and expectant families.
• Our conferences include family introductions, round-table discussions, research guest lectures, Q&A sessions and much more!
• Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH
Support Day.
• CHERUBS conferences are planned to be educational, supportive and affordable!
• Our conference hotels always offer rooms around $100 per night, breakfasts and parking.
• Meet new friends, see old friends and participate in research for various hospitals.
• Our conferences are always half days so that families can enjoy local tourist attractions.
• Children are welcome and babysitting services will be provided during conference hours.
• Our conferences are held near top rated hospitals for safety.
• We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
• Join in our new Parade of Cherubs at every conference!
• Join in our balloon releases at every conference!
• We have a pizza party on the first night of every conference.
• Kid's get a chance to learn the CDH kids song and perform on the last day of the conference.
• CHERUBS does not charge a conference fee.
• For safety and privacy of our members, you MUST be a member of CHERUBS to attend.  You
may register for free at http://www.cherubs-cdh.org/members
• Many families of survivors are eligible for grants to cover travel expenses to medical
conferences.  Ask your child's social worker for more information.
 




CDH Family Conference:

Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend.  This is also to keep our members safe and medical information private.   All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

 * 3 half-days so you have time to see local attractions
* Pizza party and parade of cherubs
* World reknown guest speakers
* Great round-table discussions for families of survivors and angels
* Participate in CDH Research
* Meet other CDH families
* Hotel rooms are always affordable for the area
* Kids are always welcome!
* Special needs families often qualify for grants to attend (check with your social worker)
* Our conference make a wonderful family vacation!!!!


CHERUBS MEDICAL ADVISORY BOARD

• Patricia Donahue, MD – Massachusetts General Hospital
• David Kays, MD – University of Florida at Gainesville
• Henry Rice, MD – Duke University Medical Center
• Edmund Yang, MD – Fetal Treatment Center of St. Louis
• N. Scott Adzick, MD – Children’s Hospital of Philadelphia
• Kevin Lally, MD, MS - University of Texas Medical School at Houston, CDH Study Group
• Wendy Chung, MD - Columbia Presbyterian, DHREAMS
• Doug Miniati, MD - University of California San Francisco
• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven, Belgium
• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK
• Steadman McPeters, NP - Pediatric Surgery Nurse Practioner, Huntsville

PAST CHERUBS CONFERENCE PRESENTERS

The following have presented at CDH Family Conferences in past years:

• Jay Wilson, MD - Boston Children's Hospital, Harvard University
• Patricia Donahoe, Massachusetts General Hospital
• Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
• David Kays, MD - University of Florida at Gainesville / SHANDS
• Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
• Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
• Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
• Kevin Lally, MD - CDH Study Group
• Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
• Dr. Edmund Yang, St. Louis Fetal Care Institute
• Ruben Quintero, MD - Fetal Treatment Program
• Priscilla Chiu, MD - Sick Children's, Toronto, Canada
• Brenda Slavin, RN - Children's National Medical Center, Washington DC

Wednesday, May 8, 2013

2013 CDH Conference in Boston, CALL TO ACTION on Congressional Resolutions, New CDH Forums Facebook



Join us to raise CDH Awareness on April 19th!

 

2013 Congenital Diaphragmatic Hernia Conference


Joint Medical and Family CDH Conference Co-Sponsored by CHERUBS, MassGeneral CDH Genetic Study Lab and Boston Children's Hospital

July 9-13, 2013 in Boston, MA
 


Join us in Boston, Massachusetts for the first ever joint Medical and Family conference for CDH!

The Inn at Longwood Medical
342 Longwood Avenue
Boston, MA 02115

 
  • Families already registered from 3 continents. 
  • Doctors submitting research abstracts for presentation. 
  • The first ever joint CDH Medical and Family Conference
  • The first ever CDH Medical Professional Panel assembled to answer family questions.  
  • Participate in CDH Research
  • Walk in the Parade of Cherubs
  • Half-day meetings so you can enjoy the local attractions
  • Meet other families and participate in round-table discussions
  • ALL CDH families and medical professionals are welcome
  • The largest CDH Conference in history!

Click here to learn more and to register for this amazing event!  http://www.cdhconference.org

Download the Prospectus - http://www.cherubs-cdh.org/conference/2013CDHConference.pdf
 
 
CDH Boston Genetic LabCHERUBSBoston Children's Hospital


CALL TO ACTION

Votes need for H Res 114 for Congenital Diaphragmatic Hernia Awareness Month in the United States House of Representatives

On March 20, 2013 the United States Senate unanimously passed S. Res. 85 to make April 2013 NATIONAL CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS MONTH.

Senator Jeff Sessions speaks on S Res 85 and H Res 144 for Congenital Diaphragmatic Hernia Awareness
(Click to watch the video)

Senator Jefferson Sessions (R-AL) formally introduced the Resolution, co-sponsored by Senator Benjamin Cardin (D-MD).

On April 9, 2013 Rep. Martha Roby (R-AL) andRep. George Holding (R-NC) introduced H. Res. 114 to make April 2013 NATIONAL CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS MONTH


Please ask your Congressmen to support the companion Resolution H Res 114 in the United States House of Representatives.

Go here to track the progress of the House Resolution -
http://www.govtrack.us/congress/bills/113/hres144#

Download H Res 114 -
http://www.govtrack.us/congress/bills/113/hres144/text

Senate Res. 85 - http://www.govtrack.us/congress/bills/113/sres85

Look Up Your Congressmen to find his / her mailing address - http://www.house.gov/writerep/

Call and ask to meet with your Congressman or their health aide in Washington DC or your state.

Write a letter or e-mail and tell them your story and ask them to vote for H. Res. 114

April 19, 2013 CDH Awareness Day Proclamations and Events

View photos of April 19th events around the world!
 
 
Congenital Diaphragmatic Hernia Awareness Day


 

CDH Family Forums

Join our safe, confidential, FREE fa
mily forums and talk with over 4300 CDH families!  Now through our site or by Facebook!


Congenital Diaphragmatic Hernia Family Forums

Join the CDH Family Forums at http://www.cdhboards.org


CDH Family Support Group Facebook App


Join the CDH Family Forums via Facebook App at https://apps.facebook.com/cdhcherubs/

 
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