MEET OUR VOLUNTEERS - Karen Myers

Karen Myers Hello, my name is Karen Myers, and I am the mother to Kaleigh Marie who was born on 30 July 2002. She was born at Wilford Hall Medical Center, in San Antonio TX, after learning at 20 weeks gestation she would be born with a left sided Congenital Diaphragmatic Hernia. She spent 10 days on ECMO and had her CDH repair on her 15th day of life. Unfortunately she passed away when she was 17 days old. I am also the mother to another angel, William Logan, who was stillborn on 26 May 2005, at 27 weeks gestation, due to non-immune hydrops fetalis. After much testing and genetics couseling it was deemed that there was no connection between the CDH and Hydrops. I have 3 other beautiful children. Alec, who is 20 and off at college. Aubrey, who is 9 and going into the 4th grade and Jackson, who will be 4 and starting Pre-K soon. I also have a wonderful husband, Will, who is active duty Army and I am a stay at home mom. We currently reside in Crestview Florida but move when the Military says so. I have been a member of CHERUBS since finding out about Kaleighs CDH and wouldn't be the somewhat sane person I am today with out all of the volunteers love and support over the years as well as all the wonderful parents I have met along the way who journey through this horrible defect together.

MEET OUR VOLUNTEERS - Trish Collins

Trish Collins Teresa Collins (Trish), Co-representative, Florida, has been a member of CHERUBS since 2008. Her daughter Rebecca Dawn was born October 7, 2005 diagnosed at birth with left-sided CDH. Rebecca was placed on ECHMO soon after birth and remained on it for 10 days. She then had her hernia repair surgery, 5 days after that on October 25, 2005 she lost her battle and passed away. Teresa now has a son, Ashton Fenway born in 2007. Teresa has an Associates of Science degree in Medical Billing and is an active member of CHERUBS and Thoroughbred Horse Rescue.

Gainesville Parade of Cherubs for April 19th

 Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!

Gainesville, FL Parade

• On Facebook - https://www.facebook.com/events/129625617198348/
• Register on Eventbrite - http://cdhawarenessday-2013shands.eventbrite.com/
• Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
• CDH reunion registration at https://ufandshands.org/events/congenital-diaphragmatic-hernia-cdh-patient-reunion 
• 50% of money raised will be donated to the Shands for Children Hospital for CDH Research
• Contact Vanessa, Trish or Rhonda with any questions about this event at florida@cherubs-cdh.org