Congenital Diaphragmatic Hernia: utah

Showing posts with label utah. Show all posts

Monday, March 18, 2013

Salt Lake City, UT Parade of Cherubs on April 19th

Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!

Salt Lake City, UT Parade Parade of Cherubs on April 19th for CDH Awareness

On Facebook - http://www.facebook.com/events/118290918343460/
Register on Eventbrite - http://cdhawarenessday-2013slc.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to Primary Children's Hospital for CDH Research
Contact Josh with any questions about this event at utah@cherubs-cdh.org

Tuesday, February 26, 2013

MEET OUR VOLUNTEERS - Josh Hensley

Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.

Evie Nanette was born 06/14/2007 with a left-sided CDH at University of Utah hospital and transported to Primary Children's Medical Center. The initial outlook was promising, but Evie's oxygen levels started failing. Unfortunately Evie was not a candidate for ECMO because of a small brain hemmorhage. We said goodbye to Evie, our first child, a short 14 hours after she was born on 06/15/2007.

Allyson Belle was born 02/27/2009 at 33 weeks with a left-sided CDH at University of Utah hospital and transported to Primary Children's Medical Center. Allyson did very well and had her diaphragm repaired 3 days after birth. While still in the NICU, she had to have a second repair. We finally got to take her home after 3 1/2 months. She was on a feeding tube and oxygen almost the entire time. In February 2010 Ally was back in the hospital for another repair. During surgery she had a pulmonary hypertensive crisis and spent a month in the PICU. In June 2010 Ally was discovered unconscious and not breathing in her crib. Her heart had stopped at some point and she suffered severe brain damage. She was taken off life support three days later, 06/11/2010.

Josh is the CHERUBS Utah Representative as well as serving on several other committees. Josh works in Law Enforcement and he and his wife Melanie have one other child, Gracie, and reside in Saratoga Springs, Utah.

Monday, August 16, 2010

New Raffle - Win $1000 by voting for CHERUBS in the APX Gives Back Contest!

Yes, our charity is giving away $1000 THIS week!

Why? Because we need your votes to win $100,000 for CDH Research and Support!!!!!

You can participate from ANY country. You must be 13 or older!

How do you enter the raffle?

Vote for CHERUBS in the Eastern Division in the APX contest at http://www.facebook.com/apxalarm?ref=mf
Go to our contest FB page at http://www.facebook.com/event.php?eid=117557684963297 and click "Attend"
Post Voted! (and only that) on the event wall and you're entered into a drawing to win $1000!

NOW, WE HAVE MORE OPPORTUNITIES FOR YOU TO SUBMIT MORE RAFFLE ENTRIES!!!!! GREATLY INCREASE YOUR CHANCES OF WINNING $1000!!!!!!

1. Repost on Facebook! (good for 1 more submission per day)

* Post: I just voted to help CDH babies and entered a chance to win $1000 by helping @CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support to raise $100,000 for CDH Research and Support! http://tinyurl.com/win1000cdh (tag us in that post)* And then, on the event page instead of posting Voted! Post Reposted!

2. Tweet on Twitter! (good for 1 more submission per day)

* Tweet: @cherubs #voteforcdh I just voted to help CDH babies and entered a chance to win $1000! http://tinyurl.com/win1000cdh* And then, on the event page instead of posting Voted! Post Tweeted!

3. Post on your blog or site. (good for 1 more submission per day)

* Post this attach link and all text on it to your site or blog.* And then, on the event page instead of posting Voted! Post On-Line! with a link to your site or blog

4. Post an FB page or group. (good for up to 10 more submission per day)

* Post - I just voted to help CDH babies and entered a chance to win $1000 by helping @CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support to raise $100,000 for CDH Research and Support! http://tinyurl.com/win1000cdh (tag us in that post, must type and not copy and paste or the tag won't work!)* And then, on the event page instead of posting Voted! Post: CDH Awareness! with a link to the FB page or group* Up to 10 CDH Awareness! entries per day! Must be for 10 different pages or groups!

5. Recruit FB friends to vote. (good for up to 10 more submission per day)

* Get your FB friend to vote and attend on our event page just like a normal vote but have them post "Voted! Recruited by ______________" (your name)* And then, YOU can post another comment on the event page posting "I recruited ________________ today!" (their name).* Up to 10 Recruited by ! entries per day! Must be for 10 different friends and your FB friend can only be recruited once by 1 person!

Yes, we check the authenticity of raffle entries. :)

The APX Gives Back Contest - $100,000 for CDH Research & Support

http://www.facebook.com/apxalarm?ref=mf

FacebookContest sponsored by APX Alarms. CHERUBS is currently battling between1st and 2nd place in this National contest! Money raised will be usedfor Congenital Diaphragmatic Hernia Research and Support services!

Here is how to vote at APX:

Go to http://www.facebook.com/apxalarm?v=app_121215224555298&ref=mf
Then click LIKE.
Next click the "Start nom and voting"
Click on the blue logo for Eastern charities5. Scroll down (load more if necessary) and find CHERUBS and endorse us!

Don't forget that we are in the Pepsi Refresh contest too! http://www.refresheverything.com/search/?q=cherubs

For more on CHERUBS and CDH, visit http://www.voteforcdh.org/

The following charities are supporting us in the APX contest so please let's show them our support too!!!! :)