Showing posts with label cdh support group. Show all posts
Showing posts with label cdh support group. Show all posts

Friday, December 31, 2010

CHERUBS 2010 Year In Review

What a year at CHERUBS!  Full of highs of accomplishing so much for the CDH community, yet full of lows of losing so many babies.   2010 has been a very eventful year (more links to details coming soon!):

January:
  • Our 2009 Financials show that our operating costs for last year were just 19%!  81% of our funds went to directly helping CDH families!
  • New Social Media CDH Awareness campaign begun
  • First Save the Cherubs Photo Shoot
  • Congenital Diaphragmatic Hernia Baby Books go to print
  • Site redesign begun

February:

March:

April:


May:

June:

July:
  • Work on new CDH Research Database begun
  • The World's First CDH Awareness Billboard
  • Oz Kidd-Ward CDH Scholarship Fund created
  • More Save the Cherubs photo shoots
  • Larrison family CDH Hope Totebag item drive in memory of Hanna Rae Rose Larrison
  • Navy sailors at Norfolk put together 100 handprint kits for CDH Hope Totebags in memory of Hanna Rae Rose Larrison
  • CHERUBS members take "Vote for Cherubs" photos

August:

September:

October:

November:
  • CHERUBS raises CDH Awareness to over half a million people Raleigh Christmas Parade
  • 2nd Annual Christmas With Kasey Fundraiser
  • CHERUBS Holiday Shopping Ebay Fundraiser
  • CHERUBS in Televised Parade Video on 2 TV Stations
  • Angel Ball Committee Chuck E. Cheese Family Get-Together
  • Enamel CDH Awareness Ribbons created
  • Over 200 personalized CDH Awareness Ribbons created

December:

We know we haven't listed everything - please e-mail us your events, photos, etc to membership@cdhsupport.org

It's been a great year for CHERUBS!   Thank you to all of our donors, sponsors, volunteers, members and supporters for helping us to make this the best, most productive year yet!

If you'd like to make a tax-deductible end-of-year donation to CHERUBS, it would be much appreciated and put to very good use.  On-line donations can be given at http://www.cdhdonations.org   Our IRS and financial information can be found at http://www.cherubs-cdh.org/financial.php

Everyone at CHERUBS wishes you a happy, healthy and blessed New Year!!!

    Thursday, September 23, 2010

    Prayers & Quotes for September 23, 2010

    Prayers & Quotes for September 23, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

    Please keep the following in your thoughts and prayers:

    Newborn cherub Elijah V., arrived 7/8. He has had his CDH repair, successfully came off of ECMO and is off his nasal cannulas. He is working on feeds.

    Newborn cherub Finley D. arrived 8/12!! Please pray she continues making progress with her feeds, for that is what is holding her up from going home!

    Newborn cherub Mattiaus D., arrived 8/24 and has had his repair surgery. He is off the vent and now is on CPAP. Please pray for his continued healing.

    Newborn cherub Dante M. arrived 8/28, a little over a month early, along with his twin sister. Dante is having surgery today and has proven to be a fiesty little boy! His twin sister after 3 weeks in the NICU was released to go home. Please keep Dante and his family in your thoughts and prayers.

    Newborn cherub Savannah Q., arrived 8/30. She had her surgery on day 1 and spent 11 days on ECMO. She has been extubated and appears to be a fighter!

    Newborn cherub Airynn E., arrived 8/31. She has had her surgery repair and is on the road to recovering. Please pray for strength for Airynn and her family.

    Newborn cherub Megan H. arrived 9/1. She is struggling with pulmonary hypertension and has not had her repair surgery. Please pray for strength for Megan and her family.

    Newborn cherub Heath F., arrived 9/8! He has had his CDH repair and is breathing room air! Please pray for his recovery and his feeds go very well.

    Newborn cherub Kendall F. arrived 9/14, please pray for strength for her and her family for she is being transported to another hospital this afternoon. CDH surgery scheduled for tomorrow. After CDH surgery tomorrow, they will perform heart surgery Monday. Her family asks that everyone will pray that the transport from one hospital to another will go well for her, and tomorrow's surgery will allow her a chance at life.

    Newborn cherub Whitney M., arrived 7/21 and was welcomed home on 9/15!! Welcome home Whitney!

    Newborn Quinn T. was born 6/22 and was welcomed home on 9/3!! Welcome home Quinn!

    Newborn cherub James B. is so close to going home! Please keep this amazing boy in your thoughts and prayers and hope he gets to go home soon, tentatively set for 10/27!!

    Newborn cherub Micah P. is still in the NICU and will turn 1 on 9/30. Pray for continued strength for Micah and that he may get to go home soon.

    Teenager Cherub Logan W. had his pectus repair surgery on 9/9. Please pray for his pain to subside and for his recovery. He was released from the hospital 9/15 and has a long recovery ahead of him.

    Cherub Sofia C. had her gallbladder removed last week, please pray for her recovery.

    Cherub Alannah has reherniated and her surgery is today! Please pray for her recovery.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.



    Cherubs on Their Way:

    Cherub Aurie B., due 9/17 - have no updates to give
    Cherub "baby boy" G., due 10/11
    Cherub Isaac I., due 10/14
    Cherub Axel C., due 10/27
    Cherub Abel B., due 10/28
    Cherub Boone P., due 11/2
    Cherub Zoe C., due 12/1
    Cherub Hollis Y., due 12/2
    Cherub Flynn L., due 12/10
    Cherub Wyatt M., due 12/19
    Cherub baby girl G., due 1/15
    Cherub Shiloh G., due 1/19

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Please keep the family of newborn cherub Addison R. in your prayers for comfort and strength. Addison was born Sept. 12, 3lbs. 15 oz. and 16 inches long with Trisomy 18 and CDH. She grew her wings on 9/12. Please keep her parents Angie and Ryan and siblings Colby and Karlee in your thoughts and prayers during this difficult time.

    Please keep the family of newborn cherub Skylar M. in your prayers for strength and comfort. Skylar lost her battle with CDH on 9/22.

    Please keep the family of newborn cherub Savannah F. in your prayers for comfort and strength. Savannah was born on 8/23 and grew her wings on 8/31.

    Requests prayers for the family of newborn cherub John, who lost his battle with CDH on Saturday, 9/17.

    Please pray for newborn cherub Hari's family, who grew his wings this month.

    Please pray for newborn cherub Alex's family, who grew his wings this month.

    Please pray for newborn cherub Emily's family, who grew her wings in the early morning of 9/18.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    ‎"Nobody trips over mountains. It is the small pebble that causes you to stumble. Pass all the pebbles in your path and you will find you have crossed the mountain." ~Author Unknown

    "Occasionally in life there are those moments of unutterable fulfillment which cannot be completely explained by those symbols called words. Their meanings can only be articulated by the inaudible language of the heart." ~Martin Luther King, Jr.

    "The capacity for hope is the most significant fact of life. It provides human beings with a sense of destination and the energy to get started." ~Norman Cousins

    "Hope is faith holding out its hand in the dark." ~George Iles

    Friday, August 27, 2010

    Prayers & Quotes for August 27, 2010

    Prayers & Quotes for August 27, 2010
    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.


    Please keep the following in your thoughts and prayers:

    19 yr old cherub Daniella who had surgery this past weekend for reherniation and a bowel obstruction, is now on an oscillator and needs our prayers and thoughts.

    Newborn cherub on his way, Heath F., could arrive any day now, for mom is showing signs that baby's birthday is near!

    Newborn cherub on her way, Savannah Q., is set to arrive by c-section 8/30.

    Newborn cherub on her way, Airynn E., is set to arrive this week.

    Newborn cherub Mattiaus D., due 9/15 arrived 8/24 and is on a jet vent and very stable. Talk of surgery in the next few days is happening! Please pray for a smooth surgery and an easy recovery for Mattiaus.

    Newborn cherub Finley D. arrived 8/12!! Please pray for strength for her and her family. Finley's surgery may take place on 8/30 if she is ready.

    Newborn cherub Whitney M., arrived 7/21 and has endured her repair surgery and ECMO. She came off her nasal cannulas and is working on her feeds. Please keep this beautiful little girl in your thoughts and prayers, for she is so close to going home!

    Newborn Quinn T. was born 6/22 and is getting so close to going home! Please pray for continued progress for beautiful Quinn! Also keep her mom in your prayers, for she has to have surgery very soon due to gallstones.

    Newborn cherub James B. finally got to leave the NICU and is in rehab! Please keep this amazing boy in your thought and prayers and hope he gets to go home soon!

    Newborn cherub Elijah V., arrived 7/8. He has had his CDH repair, successfully came off of ECMO and is off his nasal cannulas. He is working on feeds and needs to make progress in this area or a gtube is being discussed.

    Newborn cherub Micah P. is still in the NICU and just turned 10 months old. He now is on a trach and continues to get stronger. Pray for continued strength for Micah and that he may get to go home soon.

    Newborn cherub Josiah B. arrived 7/1. He had a gtube surgery and was able to go home on 8/15!! Welcome home Josiah!

    Teenager Cherub Logan W. is set to have surgery on 9/3 for a pectus repair. Please pray for an uncomplicated surgery and an easy recovery for him.

    Cherub Isabel H. is having an issue with a lymph node swelling and finding the cause. Please pray doctors can figure out what is happening.

    Cherub Jaxon R. is having tubes put in his ears on 9/8. Please keep him in your thoughts and prayers for a no complication procedure and an easy recovery.

    Mom Alicia G., mom to angel cherub Jayden G. is having serious thyroid complications. Please pray that doctors are able to find the cause and help Alicia feel better soon.

    Cherub Kiyari M. had another cath lab done yesterday. Please pray for good news and that she doesn't have the complications like she had last time.

    Expecting parents to cherub baby girl Addison R., need our prayers for strength and guidance with what lies ahead.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.

    To all our cherubs starting school this week and during the next few weeks...may you have a fun and educational school year!


    Cherubs on Their Way:

    Cherub Heath F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub Airynn E., due 9/12
    Cherub "baby girl" S., due 9/13
    Cherub Aurie B., due 9/17
    Cherub baby boy M., due 9/25
    Cherub Addison R., due 9/25
    Cherub "baby boy" G., due 10/11
    Cherub Isaac I., due 10/14
    Cherub Axel C., due 10/27
    Cherub Abel B., due 10/28
    Cherub Boone P., due 11/2
    Cherub Zoe C., due 12/1
    Cherub Hollis Y., due 12/2
    Cherub Flynn L., due 12/10
    Cherub Wyatt M, due 12/19

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Jonathan M., born 6/11 grew his wings on 8/18 due to a pulmonary hemorrhage and his PH. Please keep his parents, Dewald and Laetitia in your thoughts and prayers that they be surrounded by much love and comfort during this difficult time.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    ‎"Thoughts are things; they have tremendous power. Thoughts of doubt and fear are pathways to failure. When you conquer negative attitudes of doubt and fear you conquer failure. Thoughts crystallize into habit and habit solidifies into circumstances." ~Bryan Adams (borrowed from Brenda S.)

    "Ordinary riches can be stolen, real riches cannot. In your soul are infinitely precious things that cannot be taken from you." ~Oscar Wilde

    "The game of life is the game of boomerangs. Our thoughts, deeds and words return to us sooner or later, with astounding accuracy." ~Florence Shinn

    "You cannot live a perfect day without doing something for someone who will never be able to repay you." ~John Wooden

    Wednesday, August 11, 2010

    Prayers & Quotes for August 11, 2010

    Prayers & Quotes for August 11, 2010
    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

    Please keep the following in your thoughts and prayers:

    Soon to arrive cherub Finley D. is going to be induced this week, 8/12! Please pray for strength for her and her family.

    Newborn cherub Jonathan M., born 6/11 is the NICU and fighting severe pulmonary hypertension, please pray for strength for Jonathan and his family.

    Cherub Justin S. is need of prayers. He has underwent a very tough surgery to fix his reherniation. He is now post op day 7 and struggling with getting back to feeling himself. Please keep Justin and his family in your prayers.

    Newborn cherub Whitney M., arrived 7/21 and has endured her repair surgery and ECMO. She is currently working on coming off the vent and has also received her first cuddles!! She is also working on her feeds. Please keep this beautiful little girl in your thoughts and prayers.

    Newborn Quinn T. was born 6/22 and is getting so close to going home. She is working on her feeds and is almost off her oxygen. Please pray for continued progress for beautiful Quinn!

    Newborn cherub Josiah B. arrived 7/1. He is working on eating and continues to make great progress towards going home. Send Josiah good eating vibes!

    Newborn cherub Elijah V., arrived 7/8. He has had his CDH repair and successfully came off of ECMO. Please pray for strength and continued healing for Elijah, as he is retaining fluid and his oxygen requirements keep going up.

    Newborn cherub Noah A. was born 5/25 and he was released from the NICU on 8/3 and is now HOME!!! Welcome home Noah!! Keep praying this little guy continues eating well and gaining weight!

    Newborn cherub Niklas E., arrived 7/7and got to go home on 8/2! Welcome HOME Niklas! Pray he continues thriving at home!

    Newborn cherub Micah P. is still in the NICU. He now is on a trach and continues to get stronger. Pray for continued strength for Micah and his family.

    Teenager Cherub Logan W. is set to have surgery on 9/3 for a pectus repair.

    Newborn cherub James B. may finally get to leave the hospital and go to rehab! Please keep this amazing boy in your thoughts and prayers and hope he gets a bed soon in the rehab facility.

    Baby cherub "boy" K. is back in the hospital, for his patch is sitting to high and causing respiratory failure.

    Expecting parents to cherub baby girl Addison R., need our prayers for strength and guidance with what lies ahead.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub Finley D., due 8/13
    Cherub Heath F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub baby boy D., due 9/15
    Cherub Airynn E., due 9/12
    Cherub Aurie B., due 9/17
    Cherub baby boy M., due 9/25
    Cherub Addison R., due 9/25
    Cherub Isaac I., due 10/14
    Cherub Abel B., due 10/28
    Cherub Zoe C., due 12/1
    Cherub Coleman H., due 12/3

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Osmund "Oz" K., was born in the morning on 7/21 and earned his wings in the evening of 7/21. Please pray for comfort and strength for this family.

    Newborn cherub Shelbi R., was born in the morning of 7/26 and earned her wings in the late evening of 7/26. Please pray for comfort and strength for this family.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "We are, each of us angels with only one wing; and we can only fly by embracing one another.” ~Luciano de Crescenzo

    "Hope never abandon you; you abandon it." ~George Wineberg

    "Within each of us is a hidden store of energy. Energy we can release to compete in the marathon of life. Within each of us is a hidden store of courage. Courage to give us the strength to face any challenge. Within each of us is a hidden store of determination. Determination to keep us in the race when all seems lost." ~Roger Dawson

    "Anything is possible. You can be told that you have a 90-percent chance or a 50-percent chance or a 1-percent chance, but you have to believe, and you have to fight.” ~Lance Armstrong

    Tuesday, July 20, 2010

    Prayers & Quotes for July 20, 2010

    Prayers & Quotes for July 20, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

    Please keep the following in your thoughts and prayers:

    Newborn cherub James B., born 1/6/10, may finally get to leave the NICU and go to rehab! He has had a rough journey, including ECMO, trach, feeding tubes and setbacks. Please keep this amazing boy in your thought and prayers.

    Newborn cherub Osmund K., is set to arrive this week, 7/22. Please pray for comfort and strength for this family.

    Newborn cherub Whitney M., is set to arrive anytime this week! Please pray for comfort and strength for the family.

    Newborn cherub Elijah V., arrived 7/8. He has had his CDH repair and successfully came off of ECMO. Please pray for strength for Elijah to continue with the progress in the right direction.

    Newborn cherub Noah A. was born 5/25. He is working on nursing and learning to eat, which has been difficult for this little guy! Please pray for continued progress for Noah.

    Newborn cherub Micah P. is still in the NICU. He now is on a trach and continues to get stronger. Pray for continued strength for Micah and his family. His family has decided to relocate to be near Micah and the NICU.

    Newborn cherub Jonathan M., born 6/11 is in the NICU and fighting severe pulmonary hypertension, please pray for strength for Jonathan and his family. He has had his CDH repair.

    Newborn cherub Josiah B. arrived 7/1. He has had his CDH repair, but is struggling to rid his body of the extra fluid accumulating in his chest. Please pray for continued healing for Josiah.

    Newborn cherub Niklas E., arrived 7/7. He has made wonderful progress since his CDH repair surgery and is working on feeds. There are talks he may get to come very soon, pray for strength for baby Niklas.

    Teenager Cherub Logan W. is set to have surgery on 8/19 for a pectus repair. His older brother Shane, is set to leave for basics 3 days before his surgery. Please keep Logan, Shane and the entire family in your thoughts and prayers during this emotional and difficult time.

    Cherub Lewis B. is having a fundo and gtube surgery on 7/21.

    Cherub Justin S. is need of prayers. He has been sprinting off the vent, but now doctors are needing to address his paradoxical breathing to continue progress in the right direction.

    Adult cherub survivor Laura M., became a grandma again on 7/7! Welcome to the world Jimmie!

    Carol S., mom to angel cherub Brielle S., is having difficulties recovering from her EXIT to ECMO procedure, please pray for her continued healing.

    Newborn cherub Aidan R. is home after spending a month in the NICU and beating CDH! Please pray as he makes his transition to being home.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub Alice H., due 7/27
    Cherub Shelbi R ., due 7/30
    Cherub Adalyn T., due 7/31
    Cherub Finley D., due 8/13
    Cherub Heath F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub Airynn E., due 9/12
    Cherub Aurie B., due 9/17
    Cherub baby boy M., due 9/25
    Cherub Addison R., due 9/25
    Cherub Isaac I., due 10/14
    Cherub Abel B., due 10/28
    Cherub Zoe C., due 12/1

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "Count your blessings, not your crosses; count your gains not your losses. Count your joys not your woes; Count your friends not your foes. Count your smiles not your tears; Count your courage not your fears. Count your full years not your lean; Count your kind deeds not your mean. Count your health not your wealth; And love your neighbor as much as yourself." -Author Unknown

    "Love one another and help others to rise to the higher levels, simply by pouring out love. Love is infectious and the greatest healing energy." -Sai Baba

    "Problems are not stop signs, they are guidelines." -Robert Schuller

    "Extraordinary people survive under the most terrible circumstances and they become more extraordinary because of it" -Robertson Davies

    Monday, July 5, 2010

    Prayers & Quotes for July 5, 2010

    Prayers & Quotes for July 5, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.


    Please keep the following in your thoughts and prayers:

    Newborn cherub Noah A. was born 5/25. He is now off the vent and CPAP and onto nasal cannulas. He is working on nursing and learning to eat! Please pray for continued progress for Noah.

    Newborn cherub Micah P. is still in the NICU. He now is on a trach and continues to get stronger. Pray for continued strength for Micah and his family. His family has decided to relocate to be near Micah and the NICU.

    Newborn cherub Josiah B. arrived 7/1. As long as he remains stable, his surgery is set for 7/6 in the afternoon. Josiah's dad is home on a short leave from the military, please pray for strength for Josiah and his family.

    Newborn cherub Niklas E., is set to be induced 7/6 if his lungs look ready for the induction to take place. Pray for strength for baby Niklas.

    Newborn cherub Elijah V., is set to be induced this week. Please pray for strength for Elijah and his family.

    Barbara W., mom to cherub Logan W. has been ill and not feeling well. Please pray doctors can help her feel better soon.

    Cherub Braden H. continues to have ear infections, one after another. Surgery for Braden to get tubes inserted is 7/6. Please send positive energy and thoughts to Braden's family as he undergoes another surgery.

    Expecting parents to cherub Addison R. received difficult news last week. Please pray for strength for this little cherub and her family.

    Newborn cherub James B. had a gtube inserted 6/24 and is on a trach. Please pray for strength and continued healing for this precious little boy.

    Cherub Lewis B. is having a fundo and gtube surgery on 7/21.

    Cherub adult survivor Laura S. is expecting a healthy baby boy to arrive in December! This will be her first child.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub Arwyn J., due 7/7
    Cherub Whitney M, due 7/18
    Cherub Osmund K., due 7/22
    Cherub Alice H., due 7/27
    Cherub Shelbi R ., due 7/30
    Cherub Adalyn T., due 7/31
    Cherub Finley D., due 8/13
    Cherub Heath F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub Airynn E., due 9/12
    Cherub Aurie B., due 9/17
    Cherub baby boy M., due 9/25
    Cherub Addison R., due 9/25
    Cherub Isaac I., due 10/14
    Cherub Abel B., due 10/28
    Cherub Zoe C., due 12/1

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Brielle S. arrived 6/9 and earned her wings on 6/25. Please pray for understanding and peace for Brielle's family.

    Newborn cherub Isabella E. arrived 6/11 and earned her wings 6/17. Please pray for strength and comfort for Isabella's family.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "Wake at dawn with a winged heart and give thanks for another day of loving." -Kahlil Gibran

    "Be faithful in small things because it is in them that your strength lies." -Mother Teresa

    "A man who dares to waste one hour of time has not discovered the value of life." -Charles Darwin

    Sunday, June 27, 2010

    CHERUBS 2010 Congenital Diaphragmatic Hernia Conference Lectures

    CHERUBS 2010 International Member Conference
    May 13 - 16, 2010
    Orland, Florida



     
    http://www.youtube.com/watch?v=C9a_VNS3rYI 
     


    The hotel was wonderful, the cherubs miracles and we learned so much from the researchers and each other.  The weather was great.  We truly could not have asked for a better week!!!

    The kids were adorable dressed as cherubs for our Save the Cherubs campaign - we got some AMAZING photos, including photos at Disney, with Mickey and Minnie, at the pool and the first Parade of Cherubs and CDH balloon release.  And they sung the CDH Kids Song for us again this year!

    We met so many wonderful families!  The pizza party, introductions and each day was wonderful.  CDH Research Day included slide shows, information and research participation.   CDH Support Day included many round-table discussions on every topic dealing with CDH.  CDH Awareness Day included everyone learning about easy and fun ways to raise awareness.  Everyone left the conference with new friends, lots of new information and excited to go home and start working to help other CDH families!  It was an absolute pleasure to meet so many wonderful parents and cherubs (and grandparents and other family members too!) that we talk to on-line all year round.  Good-byes were definitely hard this year.





    This was our 10th anniversary of the first international Congenital Diaphragmatic Hernia Conference, also held in Orlando.   We are so proud of our conferences and guest speakers!  Put together by volunteers and medical professionals with CDH experience and built upon 15 years of working together to offer the most services and information and support for families at our conferences - while keeping them fun and affordable. They aren't just CHERUBS members getting together and hanging out, they aren't conferences about CHERUBS at all - they are truly 100% about Congenital Diaphragmatic Hernia!    They have included so many incredible doctors and researchers.  We've also had representatives from CHERUBS UK, CHERUBS Australia, the Olivia Raine Foundation, Little Lambs, Real Hope for CDH and other great ACDHO organizations attend our conferences!   Not to mention members from all across the U.S. as well as England, Ireland, Australia, Italy, Mexico and Canada!

     
    Many families participated in CDH genetic studies by giving blood samples at the conference.  We were fortunate to have 5 researchers participate!  Not only did they speak on their research and share new information with us but they sat in on round-table discussions and learned from parents as well.   We will post more about the researchers and research and how you can participate in the next few days!  :)

    CHERUBS also participated in 2 medical conferences and we have quite a bit of CDH research and projects going on that we will post about soon!  It was WONDERFUL to see the surgeons wearing our ribbon and buttons, to hear all the lectures on CDH, to talk to them about CDH and share our own information with them.  So many came up to us to thank us for our work, gather materials for their patients' families, to tell us they signed the petition against the trademark and were rooting for us, to ask us questions about how to deal with CDH families.    One conference even had a member wearing wings during their awards ceremony, escorting award winners to the podium.   This same conference had a speech about CDH and recognized CHERUBS and our work - we were even cited as their reference for a lot of their research information.   We even found a few sponsors along the way.   CHERUBS is the first charity to ever attend these events, we are so honored to be a part of both conferences!

    It was a wonderful, productive, supportive and very beneficial week for the CDH Community!  More photos, details and videos coming soon!

    We hope to see everyone next year!












     

     
     













    2010 CHERUBS Conference Lectures


    The quality isn't exactly professional but we try hard to bring you as much information as possible through video! 



    Meaghann Russell, MPH and Mauro Longoni, MD
    (MassGeneral CDH Clinic, Boston, MA)
    CDH and Genetics

    Part 1 - http://www.youtube.com/watch?v=07QyNx68uBk
    The rest of the videos are available to view at http://www.cherubsconference.org/2010.php



    Marc Arkovitz, MD and Julia Wynn
    (New York Presbyterian Columbia / DHREAMS)
    CDH and Genetics

     
    Part 1 - http://www.youtube.com/watch?v=oahzKNYi8Qg
    The rest of the videos are available to view at http://www.cherubsconference.org/2010.php



    Bella Belleza-Bascon, RN, MHA
    (Texas Children's Hospital / Fetal Center, Baylor College of Medicine)
    CDH and Genetics

    Part 1 - http://www.youtube.com/watch?v=sX5jNEmeKAw
    The rest of the videos are available to view at http://www.cherubsconference.org/2010.php



    Conference Schedule:

    Thursday, May 13, 2010


    7:00 - 9:00 pm - Pizza Party and Introductions


    Friday, May 14, 2010 - CDH Support

    8:00 am - 8:45 am Round Table Discussions Session 1

    • For CDH Survivors (choose one)
      • Physical and Occupational Therapies
      • Feeding Issues
    • For Grieving CDH Families (choose one)
      • Faith & Doubts In Grief
      • Dealing With Anger
    9:00 am - 9:45 am Round Table Discussions Session 2

    • For CDH Survivors (choose one)
      • IEPs for School Age Children
      • Early Intervention for Infants & Toddlers
    • For Grieving CDH Families (choose one)
      • Grief and Siblings
      • Dealing With Special Days
    10:00 am - 10:45 am Round Table Discussions Session 3

    • For CDH Survivors (choose one)
      • Dealing with Family & Friends
      • Marriage & Having a Special Needs Child
    • For Grieving CDH Families (choose one)
      • Dealing with Family & Friends
      • Marriage & Grief
    11:00 am - 11:45 am Round Table Discussions Session 4

    • For CDH Survivors (choose one)
      • Pregnancy After CDH
      • Helping Other CDH Families
    • For Grieving CDH Families (choose one)
      • Pregnancy After CDH
      • Creating Something Good From Sadness


    Saturday, May 15, 2010 - CDH Research



    8:00 am - 11:00 am - Guest Speakers On Current CDH Research Studies

    8:00 am - 9:00 am  - Meaghan Russell and Mauro Longani from Mass General

    9:00 am - 10:00 am  - Speaker Information coming soon!

    10:00 am - 11:00 am  - Speaker Information coming soon!
    11:00 am - 12:00 pm  View Research Booths, Sign up for CDH Research Studies


    Sunday, May 16, 2010 - CDH Awareness

    8:00 am - 8:30 am - "Current and future global efforts to raise CDH Awareness" by Dawn Williamson, President & Founder

    8:30 am - 9:30 am - Group discussion on how we can raise more CDH Awareness as a community

    9:30 am - 10:30 am - Group disccussion on how families can raise CDH Awareness in honor and in memory of individual cherubs.

    10:30 am - 11:00 am - Saying Good-byes
     

    Thursday, June 17, 2010

    Prayers & Quotes for June 17, 2010

    Prayers & Quotes for June 17, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org. If you have a quote you would like to share with us, please send it to prayers@cdhsupport.org.


    Please keep the following in your thoughts and prayers:

    Newborn cherub Isabella E. arrived 6/11. She has been put on ECMO to give her body time to rest. She has had a surgery to release some abdominal pressure, but is still very critical. Please pray for strength for Isabella and her family.

    Newborn cherub Brielle S. arrived 6/9 by the EXIT to ECMO procedure and is very critical. Please pray for continued improvement for Brielle and strength for her family during this difficult time.

    Newborn cherub Noah A. was born 5/25. He has had his CDH repair and continues to make small progress in the right direction. Please pray for his continued healing.

    Newborn cherub Micah P. is still in the NICU. Please pray for his healing and continued strength. He recently had a trach put in, but now has developed pneumonia.

    Teenager cherub Logan W., has upcoming pulmonology and cardiology appointments. His physical did not go well and the ped. is concerned with his breathing(retractions) and arrhythmias.

    Cherub Adam H. will be starting OT in August...please say a prayer that therapy will help him in this area. Aaron H., brother to cherub Adam H., has dealt with horrible reflux type pain since he was born. Doctors have not found the reason or a solution to the reflux. Please pray that his mom can find what is causing Aaron's pain and throwing up.

    Cherub Quinn P. was born 4/9 and is now home and doing very well!

    Mom to angel cherub Kasey C., gave birth to a healthy baby girl 6/9! Brooklyn weighed 8lbs.9oz. and was 19 inches long.

    Megan L., mom to cherub John L., is expecting a healthy baby boy!!

    Cherub Braden H. continues to have ear infections, one after another. Please pray his upcoming ENT appointment goes well and he gets some relieve from the ear infections.

    Please pray the nurses at UCSF do not strike. The hospital got a court order to stop it and it is to be reviewed 6/18. Several CDH babies are set to arrive this month there at UCSF.

    Expecting parents to cherub Addison R. will be having further tests done next week on Addison (MRI and an amnio), please pray for strength for this little cherub and her family.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub Anya L., will be induced this month
    Cherub Elijah V., due 7/12
    Cherub Josiah B., due 7/13
    Cherub Niklas E., due 7/18
    Cherub Whitney M, due 7/18
    Cherub Shelbi R ., due 7/30
    Cherub Finley D., due 8/13
    Cherub Christopher F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub Airynn E., due 9/12
    Cherub baby boy M., due 9/25
    Cherub Addison R., due 9/25
    Cherub Isaac I., due 10/14
    Cherub Abel B., due 10/28
    Cherub Adalyn T., due 7/31
    Cherub Osmund K., due 7/22
    Cherub Heath F., due 9/3
    Cherub Kaiya W., due 6/22
    Cherub Abigail W., due 6/23
    Cherub Arwyn J., due 7/7
    Cherub Alice H., due 7/27
    Cherub Adalyn T., due 7/31

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Sam R. arrived 3/16 and earned his wings 3/16. Please keep this family in your prayers during this difficult time.

    Newborn cherub Kadyn B. arrived 4/27 and earned his wings 4/28. Please pray for peace and understanding for this family.

    Newborn cherub Owen G. earned his wings 6/11, after a two month fight against CDH. Please pray for strength and comfort for this family.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "Life is full of beauty. Notice it. Notice the bumble bee, the small child, and the smiling faces. Smell the rain, and feel the wind. Live your life to the fullest potential, and fight for your dreams." -Ashley Smith

    "The only real failure in life is the failure to try." -Author unknown

    "We are all faced with a series of great opportunities brilliantly disguised as impossible situations." -Charles R. Swindoll

    "Learn from yesterday, live for today, hope for tomorrow." -Albert Einstein

    Tuesday, June 1, 2010

    Prayers & Quotes for June 1, 2010

    Prayers & Quotes for June 1, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.


    Please keep the following in your thoughts and prayers:

    Newborn cherub Noah A. was born 5/25. He is on ECMO and fighting! He continues to have strong and stable days and is making progress. Please pray that his brain bleed continues to improve and he is getting stronger and closer to his repair surgery.

    Newborn cherub Noah S. was born 5/26 and is fighting! Please pray for strength for Noah and his family.

    Newborn cherub Micah P. is still in the NICU. Please pray for his healing and continued strength.

    Adult cherub survivor Terry F. is having chest pains and undergoing tests.

    Adult cherub survivor Charlie F. has been in the hospital, having difficulty to breathe.

    Teenager cherub Logan W., has upcoming pulmonology and cardiology appointments. His physical did not go well and the ped. is concerned with his breathing(retractions) and arrhythmias.

    Aaron H., brother to cherub Adam H., has dealt with horrible reflux since he was born. Doctors have not found the reason or a solution to the reflux. Aaron has been in some difficult pain, please keep him in your prayers.

    Shelly M., Grandma to angel cherub Jayden G. is having gallbladder surgery on June 8th.

    Newborn cherub Quinn P. was born 4/9/10 and is still in the hospital.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub baby girl E., due 6/26
    Cherub Brielle S., due 6/29
    Cherub Elijah V., due 7/12
    Cherub Josiah B., due 7/13
    Cherub Niklas E., due 7/18
    Cherub Shelbi R ., due 7/30
    Cherub Finley D., due 8/13
    Cherub Christopher F., due 9/3
    Cherub Savannah Q., due 9/4
    Cherub baby boy M., due 9/25


    Newly Grieving Families:

    Newborn cherub Owen T. arrived 5/24 by the EXIT to ECMO procedure. He had his CDH repair, however earned his wings on 5/30. Please pray for his parents during this difficult time.

    Newborn cherub Julia F. arrived 4/8 and earned her wings on 5/3. Please pray for strength and comfort for Julia's family.

    Newborn cherub Kinley J.(second CDH baby born to this family), was born 4/1 and earned her wings on 4/27. Please pray for strength, comfort and healing for this family.

    Newborn cherub Carlos M. earned his wings this past May, please keep his family in your thoughts and prayers.

    Newborn cherub Baylee M. was born and earned her wings on 2/26. Please keep Baylee's family in your thoughts and prayers.

    Newborn cherub Faith M. arrived 5/25 and earned her wings 5/26. Please keep Faith's family in your thoughts and prayers.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "Love is what we are born with. Fear is what we learn. The spiritual journey is the unlearning of fear and prejudices and the acceptance of love back in our hearts. Love is the essential reality and our purpose on earth. To be consciously aware of it, to experience love in ourselves and others, is the meaning of life. Meaning does not lie in things. Meaning lies in us." - Marianne Williamson

    "A truly rich man is one whose children run into his arms when his hands are empty." -Author Unknown

    "Man can live about forty days without food, about three days without water, about eight minutes without air, but only for one second without hope." -Author Unknown

    "Perhaps they are not stars, but rather openings in heaven where the love of our lost ones pours through and shines down upon us to let us know they are happy." -Eskimo Proverb

    Monday, April 26, 2010

    Prayers & Quotes for April 26, 2010

    Prayers & Quotes for April 26, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

    Please keep the following in your thoughts and prayers:

    Newborn cherub Quinn P. was born 4/9/10. He has had his CDH repair and came off the vent on day 12. He is on oxygen and will be soon working on feeds. He still has a bilateral inguinal hernia surgery to go through.

    Newborn cherub Julia arrived 4/8 and has had her CDH repair. She needs prayers for healing, for doctors have found a blood clot in her tummy.

    Newborn cherub Mekhaai R. is now home!!

    Newborn cherub Kinley J.(second CDH baby born to this family), is off of ECMO, but still very sick (she got a serious infection after her CDH repair surgery). Please pray her liver and kidneys start functioning and she remains stable.

    Newborn cherub Kellan V. is now home!!

    Cherub Owain P. is home from his reherniation surgery that took place on 3/30! He is one strong little boy who has overcome so much.

    Newborn cherub Micah P. is very sick. His heart is very sick. Please pray for his healing.

    Cherub Jacob G. had surgery to put tubes in his ears last week.

    Cherub Clodagh D. had her eventration repair and is recovering.

    Angel cherub Lewis M.'s mom, Ingrid, is expecting a baby!

    Cherub Holly M. is home from the hospital after her Gtube and nissen surgery and is recovering. Doctors found her organs were trying to reherniate again and had to move them back to where they needed to be.


    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub Noah A., due 5/30
    Cherub "baby girl" A. due 5/20
    Cherub Faith M., due 5/28
    Cherub Owen T., due 6/6
    Cherub "baby girl" E., due 6/26
    Cherub Elijah V. due 7/12
    Cherub Adalyn T., due 7/31
    Cherub Niklas E., due 7/18
    Cherub Osmund K., due 7/22
    Cherub Heath F., due 9/3
    Cherub baby C., due ?*
    Cherub Erinn C., due ?*
    Cherub Elliot , due ?*
    Cherub baby F., due ?*
    Cherub baby G., due ?*
    Cherub Gavin W., due ?*
    Cherub baby K., born in 1/2010*
    Cherub baby V., born in 1/2010 *
    Cherub baby R., born in 2/2010 *
    Cherub baby H., born in 2/2010*
    Cherub Baylee M., born in 3/2010*
    Cherub baby A., due 4/20*
    Cherub Jessica F., due 4/3*
    Cherub Allisyn S., due 4/12*
    Cherub baby D., due 4/14*
    Cherub baby K., due 4/16*
    Cherub baby G., due 4/19 *
    Cherub Ary M., due 4/22 *
    Cherub baby K., due 5/12
    Cherub Jesse L., due 5/13
    Cherub baby M., 6/13
    Cherub Kaiya W., due 6/22
    Cherub Abigail W., due 6/23
    Cherub Brielle S., due 6/29
    Cherub Arwyn J., due 7/7
    Cherub Josiah B., due 7/13
    Cherub baby M., due 7/19
    Cherub Alice H., due 7/27
    Cherub Shelbi R., due 7/30
    Cherub Adalyn T., due 7/31
    Cherub Finley D., due 8/13
    Cherub Hailey Q., due 9/4

    *have not received current updates on these precious babies

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Joshua C. arrived 3/36, 10 weeks early and amazed everybody around him with his strength. Joshua earned his wings on 4/11. Please keep this family in your thoughts and prayers for strength and comfort.

    Newborn cherub Joshua E. was born 3/30 and earned his wings 3/31. Please keep this family in your thoughts and prayers.

    Newborn cherub Ian H. was born 4/17 and earned his wings 4/18. Prayers for strength and comfort for this family during this difficult time.

    Newborn cherub Jack D. was born and earned his wings on 4/17. Please keep this family in your thoughts and prayers.

    Newborn cherub Landon D. was born 3/24 at 32 weeks and grew his wings on 3/25. Please keep this family in your thoughts and prayers.

    Newborn cherub Emily G. was born 3/11 and her grew her wings on 3/12. Please pray for strength and comfort for this family.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.

    Newly Grieving Families:
    Newborn cherub Zoe F. (6/3/2009 – 10/22/2009)
    Newborn cherub Nguyen N. (6/8/2009 – 9/24/2009)
    Newborn cherub Michael S. (7/2/2009 – 8/29/2009)
    Newborn cherub Jay E. (8/24/2009 – 11/5/2009)
    Newborn cherub Chloe T. (9/8/2009 – 9/11/2009)
    Newborn cherub Vincent S. (9/16/2009 – 10/2/2009)
    Newborn cherub Emma F. (10/3/2009 – 10/4/2009)
    Newborn cherub Matthew D. (10/9/2009 – 10/9/2009)
    Newborn cherub Nolan R. (10/9/2009 – 10/9/2009)
    Newborn cherub Andrew H. (10/1/2009 – 10/30/2009)
    Newborn cherub Mikayla D. (10/18/2009 – 10/26/2009)
    Newborn cherub Maisie K. (11/2/2009 – 11/24/2009)
    Newborn cherub Noah G. (11/11/2009 – 12/4/2009)
    Newborn cherub Alicia C. (11/19/2009 – 11/25/2009)
    Newborn cherub Toby P. (12/30/2009 – 12/31/2009)
    Newborn cherub Jaden M. (1/5/2010 - 1/20/2010)
    Newborn cherub Matthew P. (1/25/2010 – 2/18/2010)
    Newborn cherub Ruben A. (2/17/2010 - 2/17/2010)
    Newborn cherub Jayden G. (2/19/2010 – 3/14/2010)
    Newborn cherub Kamila C. (2/24/2010 – 2/24/2010)
    Newborn cherub Jocelyn R. (2/28/2010 – 2/28/2010)
    Newborn cherub Mason B. (3/8/2010 – 3/9/2010)
    Newborn cherub Landon D. (3/24/2010 – 3/24/2010)
    Newborn cherub Austin M. (3/24/2010 - 3/26/2010)
    Newborn cherub Gabryan G. (3/26/2010 – 4/2/2010)
    Newborn cherub Enrique A. (? – ?)


    Today’s Quotes:

    “When we become aware that we do not have to escape our pains, but that we can mobilize them into a common search for life, those very pains are transformed from expressions of despair into signs of hope” -Henri Nouwen

    "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle." -Albert Einstein

    "Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies." -Erich Fromm

    "The angels are always near to those who are grieving, to whisper to them that their loved ones are safe in the hands of God." -Quoted in The Angels' Little Instruction Book by Eileen Elias Freeman, 1994

    Monday, April 12, 2010

    Projects, Webpages, FB and Blogs

    We have been BUSY at CHERUBS!  Aren't we always?  :)    We always have tons of projects going on and going in a million directions at once!  But it's all worth it to provide all the services that we do!  :)

    To keep everyone updated on what's going on at CHERUBS with various projects, we have several different blogs and FB pages, plus forums on our site as well!   Not to mention web sites too!   We are slowing growing and going through each project or service and updating the web with news.  Bear with us as do this, while also updating our sites.   So far, we have the following up:


    CHERUBS - If you haven't seen the new site, you must go check it out.  There are 1000's of pages of Congenital Diaphragmatic Hernia Research, Information, Awareness and SUPPORT!   It's a one-stop shop for all things CDH.

    International CDH Conference - Our first Congenital Diaphragmatic Hernia Conference happened in 2000 in Orlando.  This year, we're back to Orlando on May 13-15, 2010!   Come meet other CDH families, talk to researchers, learn about Congenital Diaphragmatic Hernia, participate in round table discussions and have FUN!   We have something for all CDH families - survivors and grieving!!!   This year we welcome Mass General, DHREAMS CDH Study and Sick Kids Toronto as guest speakers!   And we happen to be near the happiest place on earth - Disney World!!  :)


    Save the Cherubs Campaign - Our new 2010 CDH Awareness Campaign!   We have over 20 models currently taking shoots and plan to have over 100 CDH families participating by the end of the year.  With flyers, posters, billboards and newspaper articles and tv interviews, that's A LOT of awareness!!!!   Our goal is to Save the Cherubs and spread awareness to promote resesearch to save the lives of babies born with CDH!


    CDH HOPE Totebag Project - Congenital Diaphragmatic Hernia H.O.P.E. (Helping Other Parents Expecting) Tote Bag Project.   Our project has reached over 100 CDH families since September!   This national project includes donations from CDH families to CDH families, making it truly a joint effort helping Congenital Diaphragmatic Hernia families.

    CHERUBS Angel Ball - October 30, 2010 at the Hilton Durham in Durham, North Carolina.  Celebrity guests, local radio star MC, live band, casino, silent auction and more at this year's "Masquerading Angels" Ball!

    Monday, April 5, 2010

    CHERUBS Pennsylvania Picnic - April 24, 2010

    A CHERUBS member picnic will take place at Memorial Park in Quakertown, Pennsylvania (Bucks County) on Saturday, April 24th, 2010. The park is located at 600 Mill St. Pavilion C has been reserved for the event which will take place rain or shine starting at 11am. 

    All members in Pennsylvania, New Jersey, and Delaware have been invited but all members willing to make the trip are welcome to join us! 

    The picnic will be hosted by Karla and David Holt, parents of CDH survivor Braden Holt. To date, eleven CDH families will be in attendance! 

    We will also be collecting items for the CHERUBS HOPE tote bag project

     A photographer will be on hand to take photos for our Save the Cherubs CDH Awareness Campaign.

    If you would like to attend please contact Karla as soon as possible. 

    Karla is also the captain of team PA CHERUBS and will be walking in the Bucks County March of Dimes Walk with CHERUBS members on Sunday, April 25th, 2010. Please considering joining the team! Karla can be reached at 267-362-5114 for more information.

    http://www.panjdecherubs.blogspot.com/

    For more information, please e-mail our Pennsylvania State Representative, Karla Holt, at kholt@cherubs-cdh.org

    Friday, April 2, 2010

    Prayers & Quotes for April 2, 2010

    Prayers & Quotes for April 2, 2010

    If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

    Please keep the following in your thoughts and prayers:

    Newborn cherub Mekhaai R. arrived 3/17 and is doing wonderful! He has had his CDH repair and his feeds are going great. Discussion of going home for Easter is a big possibility. He is on oxygen and an NG tube, but is taking his feeds almost completely by mouth.

    Newborn cherub Joshua C. arrived 3/26, 10 weeks early. He is fighting for his life and has amazed doctors with his strength. Joshua has an array of medical difficulties and surgeries in front of him. Please pray he continues to get stronger to face his first surgery.

    Newborn cherub Kinley J., second CDH child born into this family, arrived 4/1. She is stable and surgery may be as early as Monday.

    Newborn cherub Kellan V. is only on oxygen and getting closer to going home!

    Cherub Isabel H. is struggling with severe reflux. Pray that doctors and her family find the right direction to help Isabel with her reflux.

    Cherub Owain P. has reherniated for a 3rd time and had his surgery on 3/30. Please pray for his healing and strength as he recovers.

    Newborn cherub Micah P. is very sick and is back on the vent. His heart is very sick.

    Cherub Chandler S., is having fainting spells and fractures on his endplates of his vertebrae T6, T7, and T8.

    Cherub Sofia C. was admitted to the hospital for breathing difficulties and is really sick.

    Cherub Holly M. is having a fundo and gtube surgery on 4/15. She has a cold and hoping she is well enough to have the surgery soon.

    Newborn cherub Mallory G. is still in the hospital, but doing great! She is now off of the vent.

    Cherub Julia G., who is a 14 year old survivor of CDH, was admitted today to the hospital, due to complications from her past CDH surgeries.

    To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


    Cherubs on Their Way:

    Cherub "baby boy" K., due 4/16, will be induced 4/9

    Cherub Julia H., due 4/22.

    Cherub Ian H., due 4/26

    Cherub A. due 4/2, (baby's sex is unknown)

    Cherub Noah A., due 5/30

    Cherub "baby girl" A. due 5/20

    Cherub Elijah V. due 7/12

    Cherub Owen T., due 6/6

    Cherub Adalyn T., due 7/31

    All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


    Newly Grieving Families:

    Newborn cherub Austin "AJ" M. was born on 3/24 and grew his wings on 3/26. Please pray for peace and understanding for this family.

    Newborn cherub Joshua E. was born 3/30 at 29 weeks. He went to heaven on 3/31. Please keep this family in your prayers.

    Newborn cherub Jayden G. arrived 2/19 and grew his wings on 3/14. Please keep his mom Alicia G. and family in your prayers and thoughts. Alicia has been struggling with blood clots and finding the right blood thinner medications to keep her levels normal, please keep her in your thoughts and prayers.

    Tanya & Ruben A. lost their precious cherub Ruben Luis A. on 2/17. Ruben's father passed away suddenly 3/21 from a blood clot and suffered 2 cardiac arrest within minutes. There was nothing the doctors could do. Please pray for comfort and strength for this family.

    To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


    Today’s Quotes:

    "The joyful news that He is risen does not change the contemporary world. Still before us lie work, discipline, sacrifice. But the fact of Easter gives us the spiritual power to do the work, accept the discipline, and make the sacrifice." -Henry Knox Sherrill

    "Easter spells out beauty, the rare beauty of new life." -S.D. Gordon

    "If Easter says anything to us today, it says this: You can put truth in a grave, but it won’t stay there. You can nail it to a cross, wrap it in winding sheets and shut it up in a tomb, but it will rise!" - Clarence W. Hall

    "Let us be grateful to people who make us happy; they are the charming gardeners who make our souls blossom." -Marcel Proust