Showing posts with label pennsylvania. Show all posts
Showing posts with label pennsylvania. Show all posts

Wednesday, January 28, 2015

Pittsburgh, Pennsylvania Proclaims April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day!




This proclamation was requested on behalf of the Cummings family!

Want to take action too? Send a proclamation request to your governor and mayor to proclaim April 19th, 2015 as Congenital Diaphragmatic Hernia Action Day! Click here to download a blank letter.

Saturday, March 9, 2013

Philadelphia Parade of Cherubs on April 19th!



Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! 

Philadelphia, PA Parade






Thursday, February 28, 2013

MEET OUR VOLUNTEERS - Karla Holt

Karla HoltKarla Holt

Karla is the mom of Braden Holt, born March 13, 2008. Shortly after birth he was diagnosed with a right side congenital diaphragmatic hernia. He was transported via helicopter to the Children's Hospital of Philadelphia. Braden's condition remained stable and he was able to have his diaphragm repair surgery the day after his birth. He recovered quickly and was able to come home on his 12th day of life! To date, Braden has had two other minor procedures. At 13 months he required surgery for an undescended testicle (orchiopexy) and had ear tubes placed in
both ears in July 2010. Thanks to a year of in home feeding therapy Braden is now eating us out of house and home! He is a happy and energetic four-year-old who spends his days practicing his ninja moves (karate) and terrorizing his big sister, Brooke (age 8).

Karla lives with her family in Bucks County, Pennsylvania (Fountainville) and is the CHERUBS state representative for Pennsylvania, New Jersey, and Delaware. She teaches high school Spanish in the Abington School District and has studied in Seville, Spain. She also has a Master's degree in ESL. She loves running, swimming, and being outdoors with her family.

Monday, April 5, 2010

CHERUBS Pennsylvania Picnic - April 24, 2010

A CHERUBS member picnic will take place at Memorial Park in Quakertown, Pennsylvania (Bucks County) on Saturday, April 24th, 2010. The park is located at 600 Mill St. Pavilion C has been reserved for the event which will take place rain or shine starting at 11am. 

All members in Pennsylvania, New Jersey, and Delaware have been invited but all members willing to make the trip are welcome to join us! 

The picnic will be hosted by Karla and David Holt, parents of CDH survivor Braden Holt. To date, eleven CDH families will be in attendance! 

We will also be collecting items for the CHERUBS HOPE tote bag project

 A photographer will be on hand to take photos for our Save the Cherubs CDH Awareness Campaign.

If you would like to attend please contact Karla as soon as possible. 

Karla is also the captain of team PA CHERUBS and will be walking in the Bucks County March of Dimes Walk with CHERUBS members on Sunday, April 25th, 2010. Please considering joining the team! Karla can be reached at 267-362-5114 for more information.

http://www.panjdecherubs.blogspot.com/

For more information, please e-mail our Pennsylvania State Representative, Karla Holt, at kholt@cherubs-cdh.org

Thursday, April 16, 2009

CHERUBS Pennsylvania Get-Together - June 6, 2009


Host:
CHERUBS (Kate Crawford, PA State Rep)


Network:
Global
Date:
Saturday, June 6, 2009
Time:
12:00pm - 8:00pm
Location:
South Park Sunny Slope Pavilion
Address:
Sunny Slope

South Park, PA


CHERUBS is hosting the Pennsylvania Get Together. A time to meet other parents from the area and discuss your CDH journey. Have fun and meet new friends! You can reach Kate at kcrawford@cherubs-cdh.org

You *must* be members of CHERUBS to attend CHERUBS events! Membership is free so make sure to fill out a form at http://www.cdhsupport.org/members





Wednesday, December 17, 2008

Pennsylvania Camping Trip

Several of our CDH families met up for a weekend of camping in Pennyslvania! If you are interested in the next camping expedition, contact our PA State Representative, Kate, at kcrawford@cherubs-cdh.org