Congenital Diaphragmatic Hernia Totebag Drive

http://www.facebook.com/events/325863927448898/

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers. Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia.

Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies. CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. The cause is not known.

50% of babies diagnosed with CDH do not survive. Of those that do survive, sometimes long hospitalizations and other issues occur. It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care. Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family. Our CDH Baby Book is over 200 pages of valuable CDH information and advice.

Over 100 new and expectant CDH parents join CHERUBS each year. This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia.

These bags will ONLY go to families affected by Congenital Diaphragmatic Hernia. They are sent only to expectant moms and those with newborns under 3 months old as these items are meant to be used during neonatal hospitalization.

They will be sent out to families in the United States & the United Kingdom as they join CHERUBS membership. We hope to add more countries soon, as our International Representatives take on this project in their countries.

For more information on CDH and CHERUBS, you can visit our site at http://www.cdhsupport.org/

If you would like to make a tax-deductible donation of items or money, you can mail it to:

CHERUBS
3650 Rogers Rd #290
Wake Forest, NC 27587
USA

CHERUBS
c/o Clair Maher
UK
uk@cherubs-cdh.org

CHERUBS H.O.P.E Totebag Project - ITEMS NEEDED

CHERUBS H.O.P.E Totebag Project

(Helping Other Parents Expecting)

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers. Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia. 

We are running low on the following:

• Baby Blankets
• Booties
• Cloth Baby Eye Masks
• Soft Picture Frames
• CDH Baby Books
• Disposable Cameras
• Children's Books
• Teddy Bears
• Lock of Hair Holders
• Journals
• Preemie Pacifiers
• Newborn Pillows
• Baby Angel Wings
• Pens

 

Click here to learn more and to donate items!

 

CDH HOPE Totebag Project Baby Shower - October 16th in Wilkesboro, NC

Calling all NC family and friends.... the Younce family is hosting a CHERUBS Baby Shower to collect items for our CDH HOPE Totebags - Giving hope to families of babies diagnosed with CDH !!!! There will be games and lots of party fun! Just like a regular baby shower but for a great cause! 

 

Time	Saturday, October 16 · 2:00pm - 5:00pm
Location	The Ruby Pardue Blackburn Adult Health Care Center 1915 West Park Drive Suite 200 North Wilkesboro, NC

Created By	Julie Powell Younce
More Info	Wish List Disposable Cameras Baby Blankets (any material but wool) Button up newborn or preemie shirts Small or preemie pacifiers Travel packs of tissue Chapstick Plaster Handprint and Footprint Kits Baby Booties Baby Hats Small bottles of lotion Small bottles of hand sanitizer Small picture frames ( for the baby's hospital bed) Baby's first haircut holders Gas Cards Restaurant gift cards (national chains please) CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia. Over 100 new and expectant CDH parents join CHERUBS each year. This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia. CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. CHERUBS is the original CDH non-profit organization founded in 1995 to help families and medical care providers of children born with CDH. What is CDH? Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies. CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. The cause is not known. 50% of babies diagnosed with CDH do not survive. Of those that do survive, sometimes long hospitalizations and other issues occur. It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care. Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family. Our CDH Baby Book is over 200 pages of valuable CDH information and advice.See More

 

Win Some CDH Awareness Gear!

Pepsi Contest Within A Contest Prizes

1st place Grand Prize - Masquerading Angels Ball Vacation Package

Includes 1 CDH Awareness Ribbon Flip Camcorder, 2 Angel Ball tickets, 1 night in the Durham Hilton, 2 formal masks, 1 pair of adult angel wings, 2 Angel Ball T-Shirts, $50 gas card and a restaurant gift certificate. http://www.cherubsangelball.org

Valued at over $600.00.

2nd place Prize - CDH Awareness Family Package.

Includes 4 limited edition Sweat-Shirts, 4 hats, 1 Adopt A Hospital Kit (donated to the hospital of your choice), 1 CDH Awareness Kit, 1 CDH Baby Book, "Stories of Cherubs" Vol. I & II, "Cooking with Cherubs" Vol. II, CDH Awareness Poster and 1 Cherubs Calendar. CDH Awareness Kit includes CDH Ribbon Totebag, Car Bumper Magnet, Awareness Bracelets, Parent Reference Guides, CDH Awareness Ribbons and more! http://www.cdhawarenessshop.org

Valued at over $400.00.

3rd place Prize - CDH Awareness Package

4 limited edition T-Shirts, 2 hats, mousepad and CDH Awareness Kit.   CDH Awareness Kit includes CDH Ribbon Totebag, Car Bumper Magnet, Awareness Bracelets, Parent Reference Guides, CDH Awareness Ribbons and more! http://www.cdhawarenessshop.org

Valued at over $200.00.

Limited Edition T-Shirts

Anyone who recruits 1500 votes will get a limited edition t-shirt!   That sounds like a lot but it's only 100 voters submitting 15 submissions per day (5 projects submitted 3 ways each).

How To Play:

Winners are determined by the number of entries into this contest.

You can submit entries in the following ways:

1.  Vote for a project and then post a comment on that project.  

You must comment this exact phrase "Vote entry for _____________ (your name), in honor / memory (choose one) of _____________ (your cherub)"  For example, Dawn would comment "Vote entry for Dawn Williamson, in memory of Shane Torrence".   Entries will be tabulated by computer so it's VERY important to post the comment exactly.

2.  You can vote and post a comment on each of all 5 projects for 5 entries per day!

3.  You can also vote by Facebook application on each of all 5 projects for an additional 5 entries per day!   

You must log in through Pepsi to comment though.

4.  You can also vote by text messages through your cell phone for each of all 5 projects for an additional 5 entries per day!   

You must log in through Pepsi to comment though.

5.  Your family and friends can submit up to 15 entries each for you each day!

15 entries total from 5 projects voted on 3 ways each.   They must log in through Pepsi to comment on the projects and use YOUR comment phrase for you to receive those entries.  You submit an infinite number of entries per day this way.

6.  Post, tweet, blog or otherwise post on-line each project for up to 30 additional entrie per day!

You must comment your comment phrase and then add the URL of your post/tweet/blog for verification.

You can set up sites, blogs, Facebook events or groups to get family and friends to help you in the contest!

You must follow all Pepsi Refresh rules and regulations.

This contest within a contest is sponsored by CHERUBS and participating donors and businesses.

You must be 13 years or older to participate.  You must 21 years or older to attend the Angel Ball. 

Winners will be announced October 25th!

CHERUBS 2010 Newsletter Now On-Line!

Our 2010 Silver Lining newsletter is now available for download.   It has 32 pages full of Congenital Diaphragmatic Hernia information and all of CHERUBS news and other related CDH news!

You can download it at http://www.cdhnewsletter.org

Or click here for this issue - http://www.cdhnewsletter.org/CHERUBS2010Newsletter.pdf

Projects, Webpages, FB and Blogs

We have been BUSY at CHERUBS!  Aren't we always?  :)    We always have tons of projects going on and going in a million directions at once!  But it's all worth it to provide all the services that we do!  :)

To keep everyone updated on what's going on at CHERUBS with various projects, we have several different blogs and FB pages, plus forums on our site as well!   Not to mention web sites too!   We are slowing growing and going through each project or service and updating the web with news.  Bear with us as do this, while also updating our sites.   So far, we have the following up:


CHERUBS - If you haven't seen the new site, you must go check it out.  There are 1000's of pages of Congenital Diaphragmatic Hernia Research, Information, Awareness and SUPPORT!   It's a one-stop shop for all things CDH.

• Site - http://www.cdhsupport.org
• Forums -  http://www.cdhforums.org
• Blog - http://cdhsupport.blogspot.com
• FB Page -  http://www.facebook.com/cdhsupport
• Twitter - http://www.twitter.com/cherubs
• Myspace - http://www.myspace.com/diaphragmatichernia 

International CDH Conference - Our first Congenital Diaphragmatic Hernia Conference happened in 2000 in Orlando.  This year, we're back to Orlando on May 13-15, 2010!   Come meet other CDH families, talk to researchers, learn about Congenital Diaphragmatic Hernia, participate in round table discussions and have FUN!   We have something for all CDH families - survivors and grieving!!!   This year we welcome Mass General, DHREAMS CDH Study and Sick Kids Toronto as guest speakers!   And we happen to be near the happiest place on earth - Disney World!!  :)

• Site - http://www.cherubsconference.org
  
• Forum -  http://www.cdhsupport.org/members/viewforum.php?f=236
• FB Page -  http://www.facebook.com/cdhconference
• FB Event Page -  http://www.facebook.com/event.php?eid=274488979498

Save the Cherubs Campaign - Our new 2010 CDH Awareness Campaign!   We have over 20 models currently taking shoots and plan to have over 100 CDH families participating by the end of the year.  With flyers, posters, billboards and newspaper articles and tv interviews, that's A LOT of awareness!!!!   Our goal is to Save the Cherubs and spread awareness to promote resesearch to save the lives of babies born with CDH!

• Site - http://www.savethecherubs.org
• Forum -  http://www.cdhsupport.org/members/viewforum.php?f=238
• Blog - http://savethecdhcherubs.blogspot.com
• FB Page -  http://www.facebook.com/savethecherubs

CDH HOPE Totebag Project - Congenital Diaphragmatic Hernia H.O.P.E. (Helping Other Parents Expecting) Tote Bag Project.   Our project has reached over 100 CDH families since September!   This national project includes donations from CDH families to CDH families, making it truly a joint effort helping Congenital Diaphragmatic Hernia families.

• Site - http://www.cdhhope.org
  
• Forum -  http://www.cdhsupport.org/members/viewforum.php?f=237
  
• Blog - http://cdhhope.blogspot.com/
• FB Page -  http://www.facebook.com/cdhhope

CHERUBS Angel Ball - October 30, 2010 at the Hilton Durham in Durham, North Carolina.  Celebrity guests, local radio star MC, live band, casino, silent auction and more at this year's "Masquerading Angels" Ball!

• Site - http://www.cherubsconference.org
  
• Forum -  http://www.cdhsupport.org/members/viewtopic.php?p=58277
  
• Blog - http://cdhangelball.blogspot.com/
• FB Page -  http://www.facebook.com/cherubsangelball
• FB Event Page - http://www.facebook.com/event.php?eid=308757910449&ref=ts

Congenital Diaphragmatic Hernia - CDH HOPE Totebag Program - http://www.cdhhope.org

 http://www.cdhhope.org

 CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Delivery of the first CDH HOPE Totebag to the Hobbs family at Duke University Medical Center

CDH HOPE Totebag Project

• CDH HOPE Totebags Homepage
• Project Mission
• Hold A Cherub Shower
  
• Project History
• Participants
• Families Assisted
• How You Can Help
• Wish List
  
• Recent Donors
• Contact Us
• CHERUBS

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers.  Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia.

Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies.   CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.  The cause is not known.  

50% of babies diagnosed with CDH do not survive.   Of those that do survive, sometimes long hospitalizations and other issues occur.  It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care.  Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family.   Our CDH Baby Book is over 200 pages of valuable CDH information and advice.

Over 100 new and expectant CDH parents join CHERUBS each year.   This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia. 

These bags will ONLY go to families affected by Congenital Diaphragmatic Hernia.   They will be sent out  to families in the United States as they join CHERUBS membership.

http://www.cdhhope.org

For more information on CDH and CHERUBS, you can visit our site at http://www.cdhsupport.org

If you would like to make a tax-deductible donation of items or money, you can mail it to:

CHERUBS
3650 Rogers Rd #290
Wake Forest, NC 27587

 

Project Participants:   All CDH families and friends can participate in this project to honor your cherub and to help other CDH famililes.  Each donated item is labeled with the donor's name and the name of the cherub honored.   No member is required to fill entire bags or hold events.  Simply donate what you can, when you can!  

Raising some major CDH Awareness on Facebook!

Congratulations everyone, CHERUBS Facebook Cause now has over 8500 members!!!!

We're setting a goal of 10,000 members by the end of the year!!!!

Whomever recruits the most members by December 31 will win a Congenital Diaphragmatic Hernia Awareness Kit!!!

The CDH Awareness Kit comes with:

1 CDH Awareness Ribbon Totebag - valued at $10.00
20 CDH Awareness Ribbon Buttons - valued at $7.99
10 CDH Awareness Bracelets - valued at $40.00
1 CDH Awareness Ribbon Car Magnet - valued at $7.99
10 CHERUBS Brochures & 1 Parent Reference Guide - priceless. :)

This kit is valued at over $60.00!

You can also order kits (they make great holiday gifts!!!) at

http://www.cdhsupport.org/donate/cdhawarenesskit.php

They are for sale for just $35.00 with FREE shipping!!!

Personalized Official Congenital Diaphragmatic Hernia Awareness Ribbon Items On Cafepress

CHERUBS offers CDH families free personalized graphics of the Official Congenital Diaphragmatic Hernia Awareness Ribbon. We have created over 135 personalized CDH Awareness Ribbon graphics so far and continue to offer this free service to CDH families.

We also post these ribbons on our Cafepress site so that family and friends can purchase items with these ribbons. There are over 75 items with each of these adorable faces on them! All proceeds go to help CDH families through our CHERUBS HOPE Totebag project!!! :)

A HUGE thank you goes to Shana Kelly who made most of these ribbons!!! And also to Fernanda Arce and Barbara Wagner! Thank you ladies!!!!

If you would like a free personalized CDH Awareness Ribbon please e-mail your cherub's photo, name and date(s) to ribbons@cherubs-cdh.org The turnaround time for ribbons to go up on our Cafepress site is 3 week so please make sure to order your ribbon in plenty of time for holiday shopping! :)

Some of the wonderful items available on Cafepress with personalized Congenital Diaphragmatic Hernia Awareness ribbons: