Showing posts with label raleigh. Show all posts
Showing posts with label raleigh. Show all posts

Monday, September 9, 2013

Upcoming Congenital Diaphragmatic Hernia Events

$30,000 CDH Research Fund Drive

Learn how easy it is for you and your family to fundraise in honor or memory of your cherub by selling raffle tickets and/or creating a Firstgiving page.   Read more...  
Read more »
Upcoming Events:

Now:

September:
October:
November:
December:
2014:

Tuesday, February 26, 2013

April 19, 2013 CDH Awareness Day Proclamation - Raleigh, NC

Raleigh, North Carolina proclaims April 19, 2013 for CDH Awareness!

Learn how to get a proclamation at http://www.cdhawarenessday.org



*We have requested a correction to "Day of Congenital Diaphragmatic Hernia Awareness"

Sunday, December 30, 2012

PRESS RELEASE - Local Nonprofit Raises and Awards $20,000 for Research Against Deadly Birth Defect, Congenital Diaphragmatic Hernia




SUMMARY:

Raleigh, NC - CHERUBS, a non-profit organization based in Wake Forest has awarded $20,000 to two Congenital Diaphragmatic Hernia Research facilities based on a contest held this month on their Facebook page and a grant raised by the family of a baby lost to CDH.    

Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth. It affects 1 in every 2,500 babies, representing approximately 1,600 babies in the United States each year, half of which do not survive.

CHERUBS is the world largest organization for CDH and was founded in Creedmoor in 1995.  It serves over 4,200 patients and families in 54 countries.  Even though the charity is 17 years old, it still struggles for funding and is powered by volunteers and donations.  All of CHERUBS services are free to families affected by CDH.  Though small, this determined group of parents have done amazing things for CDH awareness, research and support.
$20,000 makes a great deal of difference in CDH research and support, for a cause where there is very little awareness and even less research funding.  With CDH families rallying 100’s of people to donate and purchase raffle tickets this year to raise $10,000 and 1 family raising $10,000 alone themselves, this money is hard earned for a cause very close to all their hearts.


Local Nonprofit Raises and Awards $20,000 for Research Against Deadly Birth Defect, Congenital Diaphragmatic Hernia

12-30-2012

Raleigh, NC - CHERUBS, a non-profit organization founded to help families of children born with Congenital Diaphragmatic Hernia (CDH) awarded their first $10,000 research grant in 2011 to the CDH Genetic Lab at Massachusetts General Hospital.   They hoped to double that amount in grants in 2012 and  with the help of charity members they reached that goal.

For many months during the summer and early fall, members of the charity raised money by selling 50/50 raffle tickets.  They were able to raise $9,030 for research and a $9,030 raffle prize that was awarded at their annual Masquerade Ball in Raleigh on October 20th to local citizen, Mark Stamper.  Combined with donations the charity had their first $10,000 grant.

“Our Vice-President, Ashley Barry, came up with the genius idea to allow our members to vote on who would receive the grant through a contest on Facebook.  This allowed the families to participate in the decision making and relieved our Board of having to make such a difficult choice between so many wonderful research institutions.  It also helped us to raise a large amount of awareness of Congenital Diaphragmatic Hernia through social media” says CHERUBS President and Founder, Dawn Torrence Williamson.

Raise awareness they did with hospitals competing for votes by posting to 1000’s of their own Facebook fans and sending out e-mails to their mailing lists asking for votes.  CHERUBS Facebook page reached close to 11,000 fans and 2,000 people shared the contest poll.

“Over 8,000 people voted in our little contest” says Williamson.  “It got very heated between 2 hospitals when they started shifting between first and second place over the final 2 days.  E-mails were flying, posters were being hung up all over towns, 1,000’s of Facebook statuses were asking for votes.  Families are very loyal to their children’s surgeons and hospitals and you could see that reflected in the voting.   I think all of us were on pins and needles until the very end”.

In the end, The Center for Fetal Diagnosis and Treatment at CHOP (Children’s Hospital of Philadelphia) won with 3,474 votes to Shands Hospital for Children’s 3,380 votes. 

Also in the contest were St. Louis Fetal Care Institute, UCSF Fetal Treatment Center, the Congenital Diaphragmatic Hernia (CDH) Genetic Research Study at Massachusetts General, DHREAMS Research Study (Congenital Diaphragmatic Hernia) at Columbia University, Baylor University Medical Center at Dallas and Boston Children's Hospital.  All centers world-renowned for their research on Congenital Diaphragmatic Hernia.

The charity added some suspense to the mix with the announcement that another research facility will also win $10,000, making that $20,000 going to CDH Research.

“One of our members, the family of Tatum Ashley Larson, did an extraordinary thing this year.  They raised over $10,000 on their own through donations to our charity in her memory.  They requested that DHREAMS receive a grant and we are honored to be a part of this generous gift to help other babies born with CDH” says Williamson.

Tatum’s family released the following statement;  “After 9 months of excitement and anticipation Tatum Ashley Larsen was born on September 14, 2012. When she was born, she opened her eyes and looked at us but then she didn't cry. Unbeknownst to us, she suffered from Congenital Diaphragmatic Hernia. She was born at 1:14pm and passed at 2:15pm the same day. She weighed 5.9 pounds and was 18 3/4 inches. We have raised over $10,000 in her honor for CHERUBS and are excited to have this money be donated in her name to the DHREAMS research foundation at Columbia, where we hope a cause will be found for this defect. This donation gives her such purpose in this world and helps give us peace.”

The charity hopes to present both facilities with ceremonious large checks during events on the International Day of Congenital Diaphragmatic Hernia Awareness on April 19th, even though the cashable research grant checks will be on their way on December 31st, ending an incredible year for CHERUBS.  

“In 2012 we marched on Capitol Hill and in 7 other large cities on April 19th, we introduced Senate Bill S.3396 with Senators Jeff Sessions (R-AL) and Ben Cardin (D-MD), sent out over 300 care packages to families of newborns with CDH, held an international conference for families in San Francisco and so very, very much more.  We are very blessed with wonderful members and volunteers.   2012 has not been a bad year for our grassroots charity with the nickname ‘the little charity that could’, run on a shoe-string budget and loves of determination.  Never underestimate parents working hard to save the lives of their children” – says Williamson.

The charity will be raising money for many different research centers in 2013 on April 19th with Parades of Cherubs at several hospitals and a national fundraiser.

CHERUBS will gladly accept any donations to help further their work.  Tax-deductible donations can be made on-line at http://www.cdhdonations.org or mailed to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587.



About CHERUBS

CHERUBS is a 501(c)3 organization located in North Carolina. CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH). As of December 2012, CHERUBS has over 4200 members in all 50 states and 54 countries.  Board Members include local business owners, the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.

http://www.facebook.com/cdhsupport
http://www.cdhsupport.org


About The Center for Fetal Diagnosis and Treatment at CHOP (Children’s Hospital of Philadelphia)

Since its start in 1855 as the nation's first hospital devoted exclusively to caring for children, The Children's Hospital of Philadelphia (CHOP) has fostered medical discoveries and innovations that have improved pediatric healthcare and saved the lives of countless children.

Experts from many areas of CHOP are dedicated to providing the very best medical and surgical care for congenital diaphragmatic hernia (CDH),  and perform basic, translational and clinical research to improve the outcomes and lives of those affected by CDH The Center for Fetal Diagnosis and Treatment at CHOP is the world’s largest fetal diagnosis and treatment program and sees families from all 50 states and over 50 countries., The Center has cared for more than 13,000 patients with a prenatally diagnosed birth defect like CDH.

CHOP is home to the Garbose Family Special Delivery Unit, the world’s first birth facility exclusively dedicated to mothers carrying babies with known birth defects like CDH. This Unit is paramount for mothers carrying CDH babies, as it avoids a transport of their baby who are  known to be sensitive to movement and noise. Importantly, the SDU keeps moms and babies together after delivery during this critical time. The SDU provides the highest level of immediate care for the newborn, as well as expert obstetric services for the mother — all within the same pediatric hospital.

Once stabilized, the baby is transported to the Newborn/Infant Intensive Care Unit (N/IICU), where a team dedicated to surgical babies like those with CDH  continue to evaluate and carefully monitor the newborn’s condition. CHOP’s ECMO program, one of the largest in the US has provided ECMO support for nearly 150 babies with CDH since 1991. Babies with severely compromised or fragile lungs may require ECMO (Extracorporeal Membrane Oxygenation).

Many children with CDH are born with pulmonary hypoplasia, a condition characterized by small, underdeveloped lungs that affect not only breathing, but also heart function, ability to feed and overall development. CHOP has created a unique Pulmonary Hypoplasia Program (PHP) that provides comprehensive, interdisciplinary care specifically focused on this challenging condition. The Program follows children from infancy to high school. The Program currently follows more than 350 children and provides coordinated clinical care, education,  and hope not available elsewhere. CHOP is the only institution studying the neurodevelopmental outcomes of CDH patients: their goal is to improve the understanding of pulmonary hypoplasia so that they can continuously improve care. This information is critical for families facing a prenatal diagnosis of CDH.

However, CHOP’s CDH work does not stop there. CDH is a focus for CHOP’s Center for Fetal Diagnosis and Treatment and  Center for Fetal Research, the research arm for the Center and have published over  80 basic, translational and clinical research studies  to provide as much information about CDH and hopefully improve outcomes for future generations.

http://fetalsurgery.chop.edu


Shands Hospital for Children’s*
At UF, the chances of survival for a child born with CDH are dramatically improved because physicians put their faith in a “revolutionary” treatment strategy rather than a traditional method – to treat these babies.
 And, what is the revolutionary strategy?

“Less is more,” said pediatric surgeon David Kays, quoting an oft-used cliché.  
By applying gentle ventilator therapy rather than standard hyperventilation, and delaying corrective surgery, Kays and his colleagues at the UF College of Medicine report a 92-percent survival rate among CDH-affected babies who are delivered and treated at Shands Children’s Hospital at UF compared to the national survival rate of about 50 percent. UF surgeons reported their success rate in a study that was published in the September 1999 issue of the Annals of Surgery.  
Kays, who was recruited to UF in 1992 due to his experience in treating CDH babies, learned the technique from its Columbia University inventors, surgeon Charles Stolar and ventilation specialist Jen Wung, MD, while serving a clinical fellowship there. Kays credits Wung with first challenging the universally accepted hyperventilation method of treating babies with breathing problems.
 “In 1985, Jen Wung told the world that if you don’t hyperventilate the babies, they actually do better,” Kays explained. “And nobody believed him. Now, we’ve done it here, and it makes it believable.
 “If you think about it, it’s very counterintuitive. Here you have a baby whose lungs are too small and don’t have normal gas exchange,” Kays said. “Yet, we’re supposed to turn the ventilator way up and overventilate. No wonder these poor little lungs eventually fail from that much ventilation.”
 When the UF study came out in 1999, the only neonatal centers in the nation reporting results using the novel treatment were Shands, Boston Children’s Hospital and Columbia. The word is spreading and more centers are slowly implementing the therapy, Kays said. But not many.
 “It’s hard to convince people that this will work,” Kays said. “It’s very hard for doctors if they’re not true believers – if they haven’t experienced the therapy before.  It’s hard for them to not escalate the therapy.
“They’re standing there watching the baby get worse, and if they turn the ventilator up, the levels get better and the baby looks better. But it’s short term. In the long term it decreases the baby’s ultimate chance of survival. You have to have a lot of faith.” 
Faith is what it took for the neonatologist in UF’s neonatal intensive care unit to accept Kays’ approach when he first arrived. He came to their unit and, with CDH cases, took over control of the ventilator and just about every aspect of the babies’ care.
 “The neonatologists are credited with the success of the program,” said Max R. Langham Jr., chief of pediatric surgery at the UF College of Medicine who also has pioneered care for babies with diaphragmatic hernias. “They are there to protect the care of their kids on the ventilators. It had to be hard for the NICU doctors to have a surgeon come in and manage the ventilator. That’s just not the way things are done in most places. But, there was minimal amount of resistance, and they allowed David to do his thing. You need supporters of the program. Without it, it’s no more than a good idea.”
*Taken from http://www.realhopeforcdh.com
https://ufandshands.org/diaphragmatic-hernia-repair-congenital


About DHREAMS


DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science) study was created to improve the understanding of the molecular genetic basis of CDH. This National Institute of Health (NIH)-funded research team is composed of health care providers and researchers across the country, coordinated at Columbia University Medical Center. Multiple medical centers are enrolling individuals and families with CDH. The knowledge gained through this research will lead to improved diagnosis, treatment, and quality of life for individuals and families with CDH.
Company Overview

The DHREAMS study is an NIH funded multicenter national research study of congenital diaphragmatic hernia (CDH). The goal of our study is to improve the understanding of the causes of CDH.

http://www.cdhgenetics.com


 Headstone of cherub Tatum Ashley Larsen


CHERUBS' first $10,000 grant to Mass General's CDH Genetic Lab in 2011

Monday, October 1, 2012

2012 Masquerading Angels Ball Master of Ceremonies, Annette Newell

 

Meet our emcee for the 2012 Masquerading Angels Ball, NBC 17 Reporter, Annette Newell!

Annette Newell is an Edward R. Murrow Award winning journalist with more than 10 years of experience reporting in North Carolina.

Annette first began working with CHERUBS this year when she interviewed the charity for a piece on the International Day of Congenital Diaphragmatic Hernia Awareness.

Thursday, September 27, 2012

CHERUBS 2012 Masquerading Angels Ball


CHERUBS 2012 Masquerading Angels Ball


October 20, 2012

6:00 pm - Midnight

Capital City Club
Raleigh, NC

Formal Charity Masquerade Ball




Masquerade Ball















Come join us or a magical night for a good cause. Celebrity guests, enchanting decor, amazing music, a casino, silent auction and beautiful attire will make this a night to remember.
Money raised from this event will go to CHERUBS to fund services to further help families of babies born with Congenital Diaphragmatic Hernia. CHERUBS is a 501(c)III international children's charity.

Attire: Our FORMAL masquerade ball encourages men to wear tuxedos and women to wear floor-length gowns. FORMAL period costumes are welcome. Formal evening gowns are welcome. Formal masquerade masks are highly encouraged. Not acceptible; typical Halloween costumes, short dresses, street clothes and scary masks.

Age Requirement: You must be 21 years old or older to attend. CHERUBS reserves the right to refuse ticket sales when necessary.
Live music by Raleigh based band, The Stone Age Romeos!
Sponsored by:
Esurance Halloween and More
Diamond Sponsor Halloween & More

Fairway Outdoor Advertising Anu Events
2012 Sponsorships now available! - Sponsor or donate auction items in honor/memory of your cherub!

Our Organization:
CHERUBS is a 501(c)III organization located in North Carolina. CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH). As of April 2012, we have over 4000 members in all 50 states and 54countries. Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH. We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

www.cdhsupport.org
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. The cause is not yet known.

Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.

CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.




Tuesday, March 6, 2012

Wake Living Magazine - "One baby’s congenital defect leads to a nationwide support group"

http://www.wakeliving.com/Guardian_angels.aspx

ealth Watch > Guardian angels
 Cherubs
After her son, Shane, was diagnosed with a congenital diaphragmatic hernia, Dawn Williamson formed the charity CHERUBS as a way to offer education and support.
photo: Lynn Cañez, 3rd Floor Studio

Guardian angels

One baby’s congenital defect leads to a nationwide support group

by Kelly Maicon

It was late January in 1993, and just like any new mom-to-be, Dawn Williamson was excited and anxious to meet the baby growing inside of her. But during her pregnancy, Williamson had these haunting nightmares that there was something wrong with her baby.

After almost 10 hours of labor, a baby boy named Shane arrived. But Williamson’s joy immediately shifted to dread as she saw her nightmare become her reality: Upon cutting the umbilical cord, her baby turned blue. Shane was born with a left-sided congenital diaphragmatic hernia (CDH) and multiple other birth defects.

CDH affects approximately one in every 2,500 babies, or about 1,600 babies in the United States each year — and between 35 and 40 annually in North Carolina. To put it into perspective, it occurs about as often as cystic fibrosis and spina bifida.

Sadly, half of all CDH-diagnosed babies do not survive. Some survivors end up suffering through life with lasting health problems such as feeding aversions, gastrointestinal problems, asthma, allergies, scoliosis, pulmonary hypertension or other long-term pulmonary problems.

On a mission
What Williamson expected to be a short hospital stay in the maternity ward turned into relocating to North Carolina from South Boston, Va., to spend 10 months sitting by Shane’s bedside at Duke University Medical Center in Durham. Having never heard of CDH, she immediately searched for a support group online but couldn’t find one that could answer her questions or calm her fears about her son’s diagnosis. After spending hundreds of hours in the hospital’s medical library researching CDH and only finding support from parents she met during Shane’s hospital stay, Williamson believed her mission was to create a CDH support group herself.

In 1995, she formed the charity CHERUBS — her special name for babies with CDH — in Wake Forest. The grassroots nonprofit organization is run by parents of children born with a severe birth defect. Today, it is the world’s first and largest CDH organization, with more than 3,000 members in 38 countries and all 50 states.

“I wanted to create an organization to help parents of children with CDH because I know exactly how it feels to have your dreams of delivering a healthy baby suddenly turn into your worst nightmare,” Williamson says. “I understand the emotional roller coaster that these families experience, so to be able to give them a place to turn for support is very rewarding.”

A common thread
Sadly, Shane passed away in 1999 when he was just six years old. He spent his last weeks in the hospital with a recurrent CDH and a very rare complication called a gastropleural fistula, or an opening between his stomach and his lung that caused pneumonia.

But there are CDH stories with happier outcomes. Survivor Lizz Lopez was born in 1972 in Burlington. Like Williamson, Lopez’s mom had a terrible feeling that something was wrong with her while she was pregnant. She even told her husband that they needed to start saving money for medical bills. Lopez was born blue and not breathing and was immediately rushed to Memorial Hospital at UNC, where X-rays revealed that something was not right. Surgeons weren’t quite sure how bad the situation was until they opened her up. She had her first CDH surgery at four hours old and has been fine ever since.

Modern technology certainly has made in-utero diagnosis more common. However, according to Dr. J. Duncan Phillips, surgeon-in-chief at WakeMed Children’s Hospital in Raleigh, a 2009 CDH study group registry of 65 medical centers throughout the world revealed that roughly 50 percent of parents are unaware that their baby has CDH until after he or she is born.

“If the defect is picked up by ultrasound, then the pregnant mom is usually referred to a perinatologist for high-risk pregnancy and a level 3 ultrasound is conducted,” Phillips says.

In Williamson’s case the traditional ultrasound did not pick up the defect, and Lopez was born in the early 1970s during a time when ultrasounds in physicians’ offices were uncommon.

Living with CDH
Williamson can remember vividly the day her life changed. With that one breath, a huge amount of fear and anxiety flooded in. She remembers Shane being whisked away, and the frustration of not knowing if her baby would survive.

Things change by the minute or the hour with CDH babies. Phillips recommends that parents stay calm and wait for frequent updates from their medical teams. Some babies do well, but ones that are struggling are referred to hospitals that are more equipped to handle the severity of their defects.

“Some patients may even be candidates for treatment in utero prior to delivery,” Phillips says. “There are big fetal centers across the country, including in San Francisco, Philadelphia and Cincinnati.”

To date, there is no known cause for CDH. The Internet provides parents and other concerned family members with an opportunity to do what health care providers and government agencies should be doing but often don’t: come up with support groups for other parents and family members.

Fortunately for parents-to-be or new parents who have been given a CDH diagnosis for their child, they have a place to turn. CHERUBS offers a place to get answers to their questions, talk with other parents of CDH children and learn more about some of the long-term effects from survivors.

“We are really very grateful to parents like Dawn for taking this job upon themselves,” Phillips says.

Kelly Maicon is a freelance writer based in Raleigh.

Monday, March 5, 2012

2012 CHERUBS Masquerading Angels Ball - Save the Date!

2012 CHERUBS Masquerading Angels Ball



October 20, 2012
6:00 pm - Midnight
Hampton Inn & Suites in Brier Creek
Raleigh, NC





We have just begun planning our 2012 event.  Stay tuned for more information!!!!









Formal Charity Masquerade Ball


Masquerade BallCome join us or a magical night for a good cause.  Celebrity guests, enchanting decor, amazing music, a casino, silent auction and beautiful attire will make this a night to remember.

Money raised from this event will go to CHERUBS to fund services to further help families of babues born with Congenital Diaphragmatic Hernia.  CHERUBS is a 501(c)III international children's charity.

Attire:  Our FORMAL  masquerade ball encourages men to wear tuxedos and women to wear floor-length gowns.  FORMAL period costumes are welcome.  Formal evening gowns are welcome.  Formal masquerade masks are highly encouraged.   Not acceptible; typical Halloween costumes, short dresses, street clothes and scary masks.   This event is no longer black & white and all colors of attire are welcome.

Age Requirement:  You must be 21 years old or older to attend.   CHERUBS reserves the right to refuse ticket sales when necessary.





Formal Charity Masquerade Ball




Our Organization:
CHERUBS is a 501(c)III organization located in North Carolina.   CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH).   As of April 2008, we have over 2250 members in all 50 states and 33 countries.  Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.  We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

www.cdhsupport.org


What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.     The cause is not yet known.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues.

CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

Saturday, March 3, 2012

CHERUBS In The Great Human Race on March 24




CHERUBS is thrilled to once again participate in the Great Human Race!!!!

Come join us and raise money and awareness for CDH!

REGISTER HERE - http://www.sportoften.com/events/eventDetails.cfm?pEventId=8026 

Make sure to list CHERUBS as your charity!


Facebook Event Page - https://www.facebook.com/events/310866708948911/





http://www.thevolunteercenter.org/tp42/page.asp?ID=143674

The Volunteer Center of Durham's 17th Annual GREAT HUMAN RACE is a 5k run and community walk that supports area nonprofits. This unique fundraising event supports 100+ nonprofits, schools and faith-based groups

provides an opportunity for any nonprofit agency to raise money for their own organization enables businesses and individuals to support the nonprofit of their choice has raised over $1.6 million since it's inception in 1996
broke fundraising records in 2011, raising $260,000 leading the way, Coalition to Unchain Dogs, raising over $34,000 for their organization expecting 1,000 runners and 2,000 walkers in 2012!


There are plenty of ways to get involved...run, walk, volunteer, donate or raise money for your favorite nonprofit.

The Great Human Race is excited to announce a NEW event venue and course Northgate Mall, in Durham, NC, is our new host. We will be able to expand our Nonprofit Marketplace and continue to offer the popular kids inflatable playground area, exciting local entertainment and refreshments. Parking is plentiful and Northgate Mall is easily accessible from all directions.

The new 5k course will wind through the historic Watts Hospital-Hillandale neighborhood. This gently rolling course will take runners and walkers through one of the loveliest and most active neighborhoods in Durham, a grand urban gesture.

Event Details:
Date: Saturday, March 24, 2012 (Rain or shine)
Location: Northgate Mall (near Sears Automotive) www.northgatemall.com
Day of Race Runner Registration: begins: 7:00am
Run starts: 8:30am
Walk starts: Immediately following runners 
REGISTER HERE - http://www.sportoften.com/events/eventDetails.cfm?pEventId=8026 

Make sure to list CHERUBS as your charity!

 

Wednesday, November 23, 2011

CDH Newsletter - Holiday Shopping Edition

We Need Your Help

2011 CDH Awareness Calendar

We need your vote!

CHERUBS raised CDH Awareness to 70,000 people who attended the Raleigh Christmas Parade on November 19th and over 300,000 people via television.   We are now up for the "People's Choice" award for parade but we need your votes!  You can vote 3 times per browser, per computer or smartphone.   It only takes a minute and it's free to vote.   We are currently in first place but there are 2 other entries who are battling hard and we can't win this for CDH babies without your help!  Please vote, post on your Facebook, Tweet, forward this e-mail and ask your family and friends to vote!  Voting ends this Sunday. http://grma.org/vote

We need your signature!

Have you signed the petition?  If not, click here!  We are 1865 signatures on our way to our goal of 2000 by Thanksgiving.  Please sign and forward to your family and friends.




Holiday Shopping For CDH


Goodshop & Goodsearch for CHERUBS - You already shop and search on-line, right?  Why not do both through Goodshop and Goodsearch, who have all the top stores you already shop at and who will donate to CHERUBS!  It cost you nothing to participate!


CHERUBS Facebook Auction - from now until December 1st bid on amazing items for every one on your holiday shopping list!    From $5.00 to $7000, we have something for every budget.   Gorgeous jewelry, autographed celebrity items, themed baskets, vacations and more!  Bid directly on Facebook at http://www.facebook.com/cdhsupport

2011 CDH Awareness CalendarThe 2012 CDH Awareness Calendar and 2012 Save the Cherubs calendar will be available for purchase by December 1st at www.cdhawarenessshop.org
Our CDH Awareness Calendar for 2012 features over 1050 cherubs!  If  you have ever sent your child's photo to CHERUBS in the past 16 years, your cherub will be included!  These calendars make wonderful holiday gifts for family, friends and medical staff.



Donate

Tate

Donate to CHERUBS
to help babies like Tate fight CDH.   Donations are tax-deductible and greatly needed.

Making a donation to CHERUBS in honor or in memory makes a great holiday gift!


Holiday Ornament & Card Exchange:

Exchange cards and ornaments with other CDH families around the world!  Participate by joining in the discussion on our forums at http://www.cdhboards.org


Holiday Fundraisers:

Personalized Ornaments:

10% goes to CHERUBS!

CHERUBS Facebook Auction - From now until December 1st, bid on auction items from the Angel Ball, Vendor Show and Christmas with Kasey!

CHERUBS Holiday Ebay Auction - November 20-30th on Ebay.  All members are welcome to sell items and raise shopping  money for yourselves while donating a portion to CHERUBS.

Chick-Fil-A Sale -You can purchase these calendars for $8.00, $3.00 goes to CHERUBS, please contact Nicolle Colvin
CDH Awareness Bracelet Jewelry - On sale by NTJ design for $8.00 if you mention CHERUBS!

Lia Sophia Fundraise
r - Buy any Two items at Regular Price (Lowest Priced Items), get UP To FOUR more items at HALF PRICE (Highest Priced Items).Go to: www.liasophia.com/joannvaccariello Click on: "Browse Our Jewelry"  Under "Look Up Hostess", Type in Nicolle Colvin and begin shopping!!!
Scentsy Fundraiser - Portion of the proceeds donated to CHERUBS!

2012 CDH Awareness Calendar - On sale by December 1st

CHERUBS in the Calremont, NC Christmas Parade - December 3rd or 4th.  Contact Katie for info.

Amanda Kubus Memorial Bake Sale - December 22-23rd in Mayfield, PA.


CDH Awareness Shop


New CDH Awareness bracelets, new CDH Awareness ribbons, holiday ornaments, jewelry and more!




Charlie Sheen CDH Cherubs
NEW - Charlie's Cherubs
LIMITED TIME ONLY


Holiday Items
Holiday Items



Congenital Diaphragmatic Hernia Awareness Ribbons
NEW - Enamel CDH Awareness Pins


 Save the Cherubs CDH Awareness Campaign
NEW - Save the Cherubs Campaign Posters
Download graphics for free as well!



CDH Awareness Neck Ties
NEW - CDH Neckties



CDH Superhero Items
NEW - CDH Superhero Items



Kids Winged CDH Awareness Ribbon
NEW - Kids Winged CDH Awareness Ribbon




Congenital Diaphragmatic Hernia Awareness Bracelets
NEW- CDH Awareness Bracelets
Now offering Yellow Braclets and sets of 3!

Congenital Diaphragmatic Hernia Awareness Jewelry
NEW - CDH Jewelry


I'm A CDH Cherub
NEW - I'm A CDH Cherub


Winged CDH Awareness Ribbon
NEW - Winged CDH Awareness Ribbon


Fight Like A Cherub
NEW - Fight Like A Cherub

 
Congenital Diaphragmatic Hernia Awareness Daily
NEW - Congenital Diaphragmatic Hernia Awareness Daily



Vote for CDH
NEW - Vote for CDH


 Congenital Diaphragmatic Hernia Awareness Kit
CDH Awareness Kits


Vote for CDH
NEW - Vote for CDH


Congenital Diaphragmatic Hernia Awareness Ribbon Buttons
CDH Awareness Ribbon Buttons


Congenital Diaphragmatic Hernia Hospital Kit
Adopt A Hospital CDH Kits




Official CDH Awareness Ribbon
Official CDH Awareness Ribbon



CHERUBS CDH Awareness Ribbon Items
CHERUBS CDH Awareness Ribbon Items



Official CDH Awareness Ribbon
Official CDH Awareness Ribbon




CDH Baby Book
CDH Baby Book


Congenital Diaphragmatic Hernia Awareness Bumper Sticker Magnet
CDH Awareness Bumper Sticker Magnets


Ellianna Nevaeh CDH Awareness Ribbon Mousepad
Personalized CDH Awareness Items


Stories of CDH Families
Stories of Cherubs Books





 
CDH Awareness Calendar
CDH Cherubs Calendars



CDH Awareness Totebag
CDH Totebags




I Run To Raise CDH Awareness
I Run To Raise CDH Awareness

 



 
I Dance To Raise CDH Awareness
I Dance To Raise CDH Awareness







I Walk To Raise CDH Awareness
I Walk To Raise CDH Awareness




I Walk To Raise CDH Awareness
I Walk To Raise CDH Awareness



Congenital Diaphragmatic Hernia Educational Items
Congenital Diaphragmatic Hernia Educational Items


I Love C.D.H. Research
I Love C.D.H. Research
 


CDH Logo Items
CDH Logo Items


CDH Wings Logo
CDH Wings Logo


CDH Awareness Flourish Logo
CDH Awareness Flourish Logo

 


CDH Awareness Posters & Journals
CDH Awareness Posters & Journals


For Expectant Moms
For Expectant Moms


"Ask Me About CDH" Text
"Ask Me About CDH"


Anatomy of a Cherub
Anatomy of a Cherub


CHERUBS Logo Items
CHERUBS Logo Items


CHERUBS Conferences & Get-Togethers
CHERUBS Conferences & Get-Togethers


Drawings by Cherubs
Drawings by Cherubs


CDH Awareness Victorian Logo
CDH Awareness Victorian Logo
 


Clothing
Cherub Clothing
 


CHERUBS Pastel Logo
CHERUBS Pastel Logo



CDH Superhero Logos
CDH Superhero Logos


 "I Help CHERUBS" for Medical Professionals
"I Help CHERUBS" for Medical Professionals



CDH Anatomy Lesson
CDH Anatomy Lesson








Some of the wonderful items available on Cafepress with personalized Congenital Diaphragmatic Hernia Awareness ribbons:

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Copyright (C) 2011 CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Suppot All rights reserved.

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