Showing posts with label forums. Show all posts
Showing posts with label forums. Show all posts

Tuesday, August 30, 2011

Congenital Diaphragmatic Hernia Support Forums

Welcome to our new CDH Forums!   We are still working out a few bugs so bear with us.



To Log In - Use Your Old Username & Password

Forgot Your Password - http://www.cdhboards.org/login.php?do=lostpw

Forgot Your E-mail?  - login@cdhsupport.org (may take several days for a response as we are swamped right now!)

New Member? - Sign up for FREE here - http://www.cdhboards.org/register.php.  You must be a member to sign in with Facebook.

Waiting Approval Moderation?  - All new users must be vetted and approved for the safety and security of our membership.  Make sure your username is FirstnameLastname (nicknames are not allowed), all forms are filled out and dates are in YYYY-MM-DD to speed up approval.

Find A Problem On This New Forums?  - Post problems here please!

Remember, Our Forums Have Rules! - These are support forums and we work hard to keep them supportive, positive, safe and confidential.  We expect all members to follow these common courtesy rules. And remember - all cherubs are different! Do not replace information or advice from others as proper medical care. CHERUBS prohibits the giving of any medical advice.
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Monday, April 12, 2010

Projects, Webpages, FB and Blogs

We have been BUSY at CHERUBS!  Aren't we always?  :)    We always have tons of projects going on and going in a million directions at once!  But it's all worth it to provide all the services that we do!  :)

To keep everyone updated on what's going on at CHERUBS with various projects, we have several different blogs and FB pages, plus forums on our site as well!   Not to mention web sites too!   We are slowing growing and going through each project or service and updating the web with news.  Bear with us as do this, while also updating our sites.   So far, we have the following up:


CHERUBS - If you haven't seen the new site, you must go check it out.  There are 1000's of pages of Congenital Diaphragmatic Hernia Research, Information, Awareness and SUPPORT!   It's a one-stop shop for all things CDH.

International CDH Conference - Our first Congenital Diaphragmatic Hernia Conference happened in 2000 in Orlando.  This year, we're back to Orlando on May 13-15, 2010!   Come meet other CDH families, talk to researchers, learn about Congenital Diaphragmatic Hernia, participate in round table discussions and have FUN!   We have something for all CDH families - survivors and grieving!!!   This year we welcome Mass General, DHREAMS CDH Study and Sick Kids Toronto as guest speakers!   And we happen to be near the happiest place on earth - Disney World!!  :)


Save the Cherubs Campaign - Our new 2010 CDH Awareness Campaign!   We have over 20 models currently taking shoots and plan to have over 100 CDH families participating by the end of the year.  With flyers, posters, billboards and newspaper articles and tv interviews, that's A LOT of awareness!!!!   Our goal is to Save the Cherubs and spread awareness to promote resesearch to save the lives of babies born with CDH!


CDH HOPE Totebag Project - Congenital Diaphragmatic Hernia H.O.P.E. (Helping Other Parents Expecting) Tote Bag Project.   Our project has reached over 100 CDH families since September!   This national project includes donations from CDH families to CDH families, making it truly a joint effort helping Congenital Diaphragmatic Hernia families.

CHERUBS Angel Ball - October 30, 2010 at the Hilton Durham in Durham, North Carolina.  Celebrity guests, local radio star MC, live band, casino, silent auction and more at this year's "Masquerading Angels" Ball!
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Wednesday, March 17, 2010

Congenital Diaphragmatic Hernia Forums - http://www.cdhforums.org



Over 100 different forums.  Over 3100 members.  Over 56,000 posts.




CHERUBS CDH Forums are the place to be for Congenital Diaphragmatic Hernia support and information.    Run by and for families affected by CDH, our forums are a 24 hours a day, 7 days a week source of support and friendship for our members.   Parents can learn what to expect while pregnant or learn about different issues and therapies.   100's of families have made friendships within our membership that will last lifetimes and some have taken friendships and information to forum their own groups and charities.  Nowhere else on earth can you find more compassionate, educated and determined CDH families than at CHERUBS where our only mission is to help those affected by Congenital Diaphragmatic Hernia.

Unlike social networking sites like MySpace and Facebook, our forums are 100% confidential.  You can relax and talk and be yourself and cry and vent - without worrying that family, friends or strangers are viewing.   Unlike listservs like Yahoo and Onelist, our forums are 100% safe.   There is no selling of your information, you will not start receiving spam junk mail. New memberships are indivually scanned and approved to keep drama off of our forums.   We provide a safe, comforting, drama-free environment for all CDH families.


With membership, CDH families also receive free on-line photo albums
and blogs to share their cherubs with the world. 
Join Our Forums  - membership is free!
Registration Agreement - there are a few rules everyone must follow to keep the forums safe
Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free. There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members' privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!


All forums are private unless indicated (Public)



Stories of Cherubs (Public)
  • Stories of Survivors (Public) - Stories of surviving CDH patients already printed in our newsletter,
    "The Silver Lining" and our book, "Stories of Cherubs" Please do not
    post your stories here (we'll post them for you after they are
    published) but please feel free to add updates to your stories or
    comment on other stories by using the Reply button on story post.
  • Stories of Cherubs In Heaven (Public) - Stories of CDH patients lost that are already printed in our
    newsletter, "The Silver Lining" and our book, "Stories of Cherubs".
    Please do not post your stories here (we'll post them for you after
    they are published) but please feel free to add updates to your stories
    or comment on other stories by using the Reply button on story post.

  • Introductions - EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.
  • Meet Other Parents Expecting Cherubs -
    Forum for parents Expecting CDH babies
  • Meet Other Parents of Surviving Cherubs -
    Meet the families of other surviving cherubs
  • Older CDH Survivors - Meet other adult survivors of Congenital Diaphragmatic Hernia
  • Meet Other Grieving Parents -
    Forum for those who have lost their cherubs
  • Parents Who Chose To Let Go Early -
    A judgement-free place for those that chose to terminate a CDH pregnancy
  • Dad's Place -
    A place for dad's to talk about CDH or sports or whatever they want.
  • Grandparent's Gathering -
    Grandparents have a double-dose of worry to deal with; worrying and
    sometimes grieving their cherubs and worrying and want to make it all
    ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.
  • Kid's Korner -
    Place for kids 10 and over to talk to other cherubs and siblings.
  • Expecting Babies After CDH -
    Having children after having a child with CDH
  • Trying To Conceive -
    Trying to have another baby after dealing with CDH (survivors & non-survivors)
  • Marriage & Relationship Issues -
    Having and/or losing a very sick child can wreck havoc on even the
    strongest relationships. Here you can talk without judgement and
    hopefully gain some info and support to help .
  • Inspirational Words -
    Inspirational stories, quotes and poetry. Please reference authors!
  • Prayer Requests -
    Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests
  • Non-CDH / Miscellaneous -
    For discussions other than CDH. Laugh about your kids antics, cry about
    losing a loved one, vent about your boss... just respect the site rules
    and you can write about anything here.


  • In Utero Procedures -
    For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures
  • CDH & ECMO -
    Dealing with CDH and Extracorporeal Membrane Oxygenation machines.
  • Feeding Issues -
    Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc
  • Developmental Issues -
    Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues
  • Long Term Pulmonary Issues -
    Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.
  • CDH & Syndromes -
    Dealing with CDH and syndromes or chromosomal abnormalities
  • Multiple Births -
    CDH within mulitples - twins, triplets, quintuplets, etc
  • Other Medical Issues -
    Dealing with chest pectus, scoliosis, allergies or any other medical issue
  • CDH & Growing Pains -
    Growing up after having CDH is still an uncharted territory. Here you
    can talk to other parents about dealing with puberty, playing sports,
    having children of their own and much more.
  • More Than 1 Cherub -
    Families dealing with more than 1 CDH baby (2% odds)
  • Medical Care & Insurance Praises / Comments -
    Parent opinions on hospitals / doctors / nurses and other medical care providers.
  • Other Conferences -
    Medical conferences, grieving parent conferences, etc




United States- For members in the United States





Southern USA - South United States




  • ~ Midwest USA - forum for all members in the Midwestern United States
  • Illinois - forum for members in Illinois
  • Indiana - forum for members in Indiana
  • Iowa - forum for members in Iowa
  • Kansas - forum for members in Kansas
  • Michigan - forum for members in Michigan
  • Minnesota - forum for members in Minnesota
  • Missouri - forum for members in Missouri
  • Nebraska - forum for members in Nebraska
  • North Dakota - forum for members in North Dakota
  • Ohio - forum for members in Ohio
  • South Dakota - forum for members in South Dakota
  • Wisconsin - forum for members in Wisconsin



  • ~ West USA - forum for all members in the Western United States
  • Arizona - forum for members in Arizona
  • California - forum for members in California
  • Colorado - forum for members in Colorado
  • Idaho - forum for members in Idaho
  • Montana - forum for members in Montana
  • Nevada - forum for members in Nevada
  • New Mexico - forum for members in New Mexico
  • Oregon - forum for members in Oregon
  • Utah - forum for members in Utah
  • Washington - forum for members in Washington
  • Wyoming - forum for members in Wyoming




Canada - forum for CHERUBS members in Canada

Mexico - forum for CHERUBS members in Mexico


  • Belgium
    - forum for CHERUBS members in Belgium
  • Denmark
    - forum for CHERUBS members in Denmark
  • France
    - forum for CHERUBS members in France
  • Germany
    - forum for CHERUBS members in Germany
  • Great Britain
    - forum for CHERUBS members in England
  • Greece
    - forum for CHERUBS members in Greece
  • Ireland
    - forum for CHERUBS members in Ireland
  • Spain
    - forum for CHERUBS members in Spain
  • Italy
    - forum for CHERUBS members in Italy
  • Lithuania
    - forum for CHERUBS members in Lithuania
  • The Netherlands
    - forum for CHERUBS members in Holland
  • Northern Ireland
    - forum for CHERUBS members in Northern Ireland
  • Norway
    - forum for CHERUBS members in Norway
  • Romania
    - forum for CHERUBS members in Romania
  • Scotland
    - forum for CHERUBS members in Scotland
  • Australia
    - forum for CHERUBS members in Australia
  • New Guinea
    - forum for CHERUBS members in New Guinea
  • New Zealand
    - forum for CHERUBS members in New Zealand




  • Hong Kong
    - forum for CHERUBS members in Hong Kong
  • India
    - forum for CHERUBS members in India
  • Japan
    - forum for CHERUBS members in Japan
  • Malta
    - forum for CHERUBS members in Malta
  • Singapore
    - forum for CHERUBS members in Singapore
  • Turkey
    - forum for CHERUBS members in Turkey




  • Brazil
    - forum for CHERUBS members in Brazil
  • Chile
    - forum for CHERUBS members in Chile
  • Columbia
    - forum for CHERUBS members in Columbia
  • Peru
    - forum for CHERUBS members in Peru
  • Venezuela
    - forum for CHERUBS members in Venezuela





  • Israel
    - forum for CHERUBS members in Israel
  • Pakistan
    - forum for CHERUBS members in Pakistan
  • Saudi Arabia
    - forum for CHERUBS members in Saudi Arabia




Meet Our Wonderful Volunteers! - Meet our wonderful volunteers and learn how you too can help at CHERUBS!

Volunteer Comments, Recruitment and Information - Want to praise your state rep or find out who to thank for that holiday
card? Want to see what positions need to be filled? Here is the info! :)
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Monday, January 5, 2009

Congenital Diaphragmatic Hernia Forums

We have dozens of forums at CHERUBS for CDH families and medical care providers. There are over 2600 registered families and medical care providers, 100's of topics and over 39,000 posts! You can't find more CDH information and support than that! :)

http://www.cdhsupport.org/members

Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free.

There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members' privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!


Our Forums (Public ones marked - all others are members only)


CHERUBS FORUM INDEX

News & Events

CHERUBS News (Public)
Updates on our organization, CHERUBS! Research, web site, newsletters, media, finances, legal, etc. If it's new, you'll find it here!

In The Media
The latest articles and shows involving CDH and/or CHERUBS members

Web Site News, Questions, Issues, Etc
Web site updates, issues, additions and general web site news.

CHERUBS Conferences & Get-Togethers
National & International Member Conferences as well as State and Local Get-Togethers

How You Can Help

Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public)
Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

CHERUBS Member Input
Polls, helping us with printed materials, donation lists, new siblings, etc

Meet Our Cherubs

Stories of Cherubs (Public)

Stories of Survivors (Public)
Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.

Stories of Cherubs In Heaven (Public)
Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.

Meet Other Parents

Introductions
EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

Meet Other Parents Expecting Cherubs
Forum for parents Expecting CDH babies

Meet Other Parents of Surviving Cherubs
Meet the families of other surviving cherubs

Meet Other Grieving Parents
Forum for those who have lost their cherubs

Parents Who Chose To Let Go Early
A judgement-free place for those that chose to terminate a CDH pregnancy

Dad's Place
A place for dad's to talk about CDH or sports or whatever they want.

Grandparent's Gathering
Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.

Kid's Korner
Place for kids 10 and over to talk to other cherubs and siblings.

Expecting Babies After CDH
Having children after having a child with CDH

Trying To Conceive
Trying to have another baby after dealing with CDH (survivors & non-survivors)

Marriage & Relationship Issues
Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

Inspirational Words
Inspirational stories, quotes and poetry. Please reference authors!

Prayer Requests
Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

Non-CDH / Miscellaneous
For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.

More Medical Info & Support

In Utero Procedures
For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

CDH & ECMO
Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

Feeding Issues
Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

Developmental Issues
Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

Long Term Pulmonary Issues
Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.

CDH & Syndromes
Dealing with CDH and syndromes or chromosomal abnormalities

Multiple Births
CDH within mulitples - twins, triplets, quintuplets, etc

Other Medical Issues
Dealing with chest pectus, scoliosis, allergies or any other medical issue

CDH & Growing Pains
Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

More Than 1 Cherub
Families dealing with more than 1 CDH baby (2% odds)

Medical Care & Insurance Praises / Comments
Parent opinions on hospitals / doctors / nurses and other medical care providers.

Other Conferences
Medical conferences, grieving parent conferences, etc

CDH Research

Research and info on Congenital Diaphragmatic Hernia

Research Studies (Public)
Research Studies actively recruiting CDH patients / families

CHERUBS CDH Research
CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.

Research Links
Links to research papers on CDH

Research Papers
Research papers, articles, and more - also see Research Links!

States & Countries

United States

For members in the United States

Northeastern USA

~ Northeast USA
Forum for all members in the Northeastern United States

Connecticut
Forum for members in Connecticut

Maine
Forum for members in Maine

Massachusetts
Forum for members in Massachusetts

New Hampshire
Forum for members in New Hampshire

New Jersey
Forum for members in New Jersey

New York
Forum for members in New York

Pennsylvania
Forum for members in Pennsylvania

Rhode Island
Forum for members in Rhode Island

Vermont
Forum for members in Vermont

Southern USA

South United States

~ South USA
Forum for all members in the Southern United States

Alabama
Forum for members in Alabama

Arkansas
Forum for members in Arkansas

Delaware
Forum for members in Delaware

Florida
Forum for members in Florida

Georgia
Forum for members in Georgia

Kentucky
Forum for members in Kentucky

Louisiana
Forum for members in Louisiana

Maryland
Forum for members in Maryland

Mississippi
Forum for members in Mississippi

North Carolina
Forum for members in North Carolina

Oklahoma
Forum for members in Oklahoma

South Carolina
Forum for members in South Carolina

Tennessee
Forum for members in Tennessee

Texas
Forum for members in Texas

Virginia
Forum for members in Virginia

Washington DC
Forum for members in the District of Columbia

West Virginia
Forum for members in West Virginia

Midwestern USA

~ Midwest USA
Forum for all members in the Midwestern United States

Illinois
Forum for members in Illinois

Indiana
Forum for members in Indiana

Iowa
Forum for members in Iowa

Kansas
Forum for members in Kansas

Michigan
Forum for members in Michigan

Minnesota
Forum for members in Minnesota

Missouri
Forum for members in Missouri

Nebraska
Forum for members in Nebraska

North Dakota
Forum for members in North Dakota

Ohio
Forum for members in Ohio

South Dakota
Forum for members in South Dakota

Wisconsin
Forum for members in Wisconsin

Western USA

~ West USA
Forum for all members in the Western United States

Arizona
Forum for members in Arizona

California
Forum for members in California

Colorado
Forum for members in Colorado

Idaho
Forum for members in Idaho

Montana
Forum for members in Montana

Nevada
Forum for members in Nevada

New Mexico
Forum for members in New Mexico

Oregon
Forum for members in Oregon

Utah
Forum for members in Utah

Washington
Forum for members in Washington

Wyoming
Forum for members in Wyoming

Pacific, Military & US Territories

Alaska
Forum for members in Alaska

Hawaii
Forum for members in Hawaii

APO's
Forum for members in the US Armed Forces stationed overseas

American Somoa
Forum for members in American Somoa

Guam
Forum for members in Guam

Northern Mariana Islands
Forum for members in the Northern Mariana Islands

Puerto Rico
Forum for members in Puerto Rico

U.S. Virgin Islands
Forum for members in the Virgin Islands

Canada
Forum for CHERUBS members in Canada

Mexico
Forum for CHERUBS members in Mexico

Europe

Belgium
Forum for CHERUBS members in Belgium

Denmark
Forum for CHERUBS members in Denmark

France
Forum for CHERUBS members in France

Germany
Forum for CHERUBS members in Germany

Great Britain
Forum for CHERUBS members in England

Greece
Forum for CHERUBS members in Greece

Ireland
Forum for CHERUBS members in Ireland

Spain
Forum for CHERUBS members in Spain

Italy
Forum for CHERUBS members in Italy

Lithuania
Forum for CHERUBS members in Lithuania

The Netherlands
Forum for CHERUBS members in Holland

Northern Ireland
Forum for CHERUBS members in Northern Ireland

Norway
Forum for CHERUBS members in Norway

Romania
Forum for CHERUBS members in Romania

Scotland
Forum for CHERUBS members in Scotland

Australia & South Pacific

Australia
Forum for CHERUBS members in Australia

New Guinea
Forum for CHERUBS members in New Guinea

New Zealand
Forum for CHERUBS members in New Zealand

Asia

Hong Kong
Forum for CHERUBS members in Hong Kong

India
Forum for CHERUBS members in India

Japan
Forum for CHERUBS members in Japan

Malta
Forum for CHERUBS members in Malta

Singapore
Forum for CHERUBS members in Singapore

Turkey
Forum for CHERUBS members in Turkey

South America

Brazil
Forum for CHERUBS members in Brazil

Chile
Forum for CHERUBS members in Chile

Columbia
Forum for CHERUBS members in Columbia

Peru
Forum for CHERUBS members in Peru

Venezuela
Forum for CHERUBS members in Venezuela

Africa

Egypt
Forum for CHERUBS members in Egypt

South Africa
Forum for CHERUBS members in South Africa

Oman
Forum for CHERUBS members in Oman

United Arab Emirates
Forum for CHERUBS members in the UAE

Mideast

Israel
Forum for CHERUBS members in Israel

Pakistan
Forum for CHERUBS members in Pakistan

Saudi Arabia
Forum for CHERUBS members in Saudi Arabia

CHERUBS Volunteers

Meet our wonderful volunteers and learn how you too can help at CHERUBS!

Meet Our Wonderful Volunteers!

Volunteer Comments, Recruitment and Information
Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)
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