2008 Has Been A Busy Year At CHERUBS!

So far in 2008, we've done a lot at CHERUBS:

CDH Awareness Video

2008 International Member Conference was a huge success!

CDH Street Signs Awareness Program begun

CHERUBS On YouTube

CHERUBS Facebook CDH Cause

CHERUBS Facebook CDH Group

CHERUBS Facebook Goodsearch Group

CHERUBS on Change.org

Fight Against Congenital Diaphragmatic Hernia at Change.org

CHERUBS on firstgiving.com

CHERUBS is chosen out of 55,000 charities to be goodsearch.com charity of the day

Customizable CDH Awareness Ribbon is created

Let Me Tell You About CDH Logo is created

Ask Me About CDH Logo is created

CDH Awareness Keychains

Angel Ball was an amazing event

Golf Tournament was so much fun

ATV Rally

CHERUBS on Zazzle.com

CHERUBS Random Acts of Kindness Cards

New CDH Logo For Teenagers

Ohio Member Picnic once again successful!

Michigan Member Get-Together

Congenital Diaphragmatic Hernia Research Site

Congenital Diaphragmatic Hernia Educational Items added to cafepress

Anatomy of CDH graphics freely distrubted

Personalized CDH Awareness Ribbons Items added to cafepress

Opposition to Trademark on "Congenital Diaphragmatic Hernia Awareness"

"CDH Awareness Platform" for Beauty Pageants started

"Take A Stand Against CDH" campaign started

Oklahoma City, OK newspaper "The Oklahoman" article

Raleigh / Durham / Chapel Hill, NC News 14 television interview

Durham, NC "Herald-Sun" newspaper article

Rochester, IN newspaper article

National ATV Magazine article

Carolina News Wire press release

3 more Advisory Committee additions

1 more Volunteer Coordinator

New Volunteer Software Installed

Also coming in 2008:

Stopping Trademark on "Congenital Diaphragmatic Hernia Awareness"

2008 Conference Speech Videos

2008 CDH Research Survery Results

CHERUBS name changed to CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

CHERUBS becoming Incorporated

"Cooking with Cherubs" Cookbook Vol.III

"Stories of Cherubs" Vol. II

2009 Cherubs Calendar

Happy Birthday Jeremiah Car Show

CHERUBS Links & Research Contest - Win a T-shirt & Cookbook!

Do you have a list saved or bookmarked of CDH research sites? A web site or a blog for your cherub?

Please make sure to share them at our Links Library: http://cdhsupport.org/members/links.php

We are trying to update our list of research links and we are conducting a contest to see who can add the most links! It's really easy and not only will it be fun to compete to try to win a free CHERUBS t-shirt and cookbook but you will be helping other CDH families by having this information available to them by adding links to our database!

It's really easy, all you do is:

1. Go to our Links page at http://www.cdhsupport.org/members/links.php
2. On the left of this page there is a form to add a site, fill this out (please make sure to add it to the correct category!) and click Submit
3. Do this for any CDH Research Sites and Articles or Personal CDH Web Sites that you know about or can find

It's that easy! :D

Whomever adds the most links by May 15th will win a CHERUBS T-Shirt and Cookbook!!! And you'll be posted on our site and in our newsletter. :)

Happy Link Adding! :)

Dawn

Register for International Conference for CDH Families!

2008 CDH Family Conference July 25-26 in Durham NC

******** Please note that our CHERUBS Member Conference is open to members of CHERUBS only. If you would like to attend our events, please register to become a member. ********

Comfort Suites Hotel RTP / RDU
July 25-26, 2008
5219 Page Rd, Durham, NC

Our conference will include at least 2 guest speakers, including Meaghan Russell from Boston Children's Hospital, who is currently conducting the genetic study on CDH.

Conference attendance is free to members, but members must cover their personal costs (travel, lodging, food, etc).

The following is a preliminary conference schedule that is subject to change. A set schedule, itinerary and brochure will be posted by May 1st.

Friday, July 25, 2008
Comfort Suites

8:00 am to 12:00 noon - Conference
12:00 noon - 1:00 pm - Lunch
1:00 pm - 5:00 pm - Conference

Saturday, July 26, 2008
Pullen Park
9:00 am to 12:00 noon - Conference

A pizza party will be Thursday night.

More information can be found at http://www.cdhsupport.org/events/conference

Please register to attend at http://cdhsupport.org/events/conference/register.php

For CDH Families -Need Stories for CHERUBS newsletter & book

Hi Everyone,

We're ready to start on our next newsletter and we need more stories of families who have dealt with Congenital Diaphragmatic Hernia (survivors and those cherubs in heaven). Stories (and photos) will posted on our web site, in our Silver Lining newsletter and in the next edition of our book "Stories of Cherubs" due out this winter.

If you would like to include your cherub's story please e-mail it to membership@cherubs-cdh.org.

You can read over 300 stories of families who have been affected by CDH on our web site at http://www.cdhsupport.org/members/index.php?c=44

Dawn

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org

CHERUBS 2008 International Member Conference

Our conference site is now up!

http://www. cherubs-cdh. org/events/conference/

You can register on-line to attend. There is no conference fee but you must be a member of CHERUBS to attend.

CHERUBS Winter 2008 Newsletter Issue is out

Our Winter 2008 issue is out!

http://www.cdhsupport.org/newsletter

Includes information on our events, conferences and get-togethers, CDH awareness activities, stories and photos of children born with Congenital Diaphragmatic Hernia, CDH research studies and much more!

CHERUBS 2008 International Member Conference - Book Rooms!

2008 International Conference for Families of Children born with Congenital Diaphragmatic Hernia.

Now you can book your rooms for the conference!

Details here - http://www.cdhsupport.org/members/viewtopic.php?t=1442&highlight=

July 25 & 26, 2008
Raleigh - Durham, NC

For all CHERUBS members!!! You *must* be a member to attend so make sure that you join!

http://www.cdhsupport.org

CDH on YouTube... chosen charity raising lots of awareness!

I have some really great news for us CDH families! YouTube has chosen CHERUBS as one of their chosen charities and they even sent us a brand new Flip video camera to help bring more CDH Awareness to their site! We will be using it at conferences and events and to interview CDH families. We are really excited about this because YouTube is a huge site and this will bring a lot of awareness to a lot of people! :)

Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)

http://www.youtube.com/user/cdhsupport

International Congenital Diaphragmatic Hernia Conference

There will be conference on July 25-26, 2008 in Raleigh, NC for CHERUBS members. There will be round table discussions, guest speakers, pizza party for the kids and much more. But most importantly, it will be an opportunity for CDH families to come together and support each other person. It will also be tied into several huge awareness events that same weekend so we'll be helping each other and raising public awareness.

http://www.cdhsupport.org/events

CHERUBS & Diaphragmatic Hernia Babies on YouTube

CHERUBS is now on YouTube! We are an official YouTube charity (which isn't easy to do!) and we are trying to set our profile up there. We also are working on a one hour informational and educational Congenital Diaphragmatic Hernia video and would love to feature as many cherubs as possible!

If you have a video or are already on YouTube, please make sure to link to CHERUBS!

http://www.youtube.com/profile?user=cdhsupport

If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!

http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=

Please forward this to any other CDH parent that you may know that would want to participate! :)

CDH on MDJunction.com

MDJunction is a new site that has on-line support groups as well as doctor referrals and comments. CHERUBS is now the official CDH Organization of MDJunction! They have also featured our CDH Awareness Ribbon as the official ribbon of CDH.

http://www.mdjunction.com/congenital-diaphragmatic-hernia

It's just been set up and I have to go in and code it to look like our site a bit, but we're there!