We need your help updating the database THIS WEEK! We are tabulating research results, sending out newsletters, and posting the National Children's Memorial Day tribute and we need your help to make sure the database is up to date.
For All Members:
Instructions on how to add / fix your cherub's listing on the calendar and how to update your profile can be found at: http://www.cdhsupport.org/members/viewtopic.php?p=36192#36192
For Grieving Members:
On Friday we will change our site for National Children's Memorial Day. We will list all cherubs lost on the homepage until December 14th. The list will come from our database. If you do not see your cherub listed on the calendar (shown on every page of our forums), then they will not be included. You must follow the instructions below to add your cherub. Please make sure that their angelversary is also listed in your profile or the database will not recognize that they have passed away.
Please do not send me a message or an e-mail to include your cherub before the 14th. Or a facebook or myspace note. I really can't keep up, I'm sorry. Using our database on our site is the only way we can do this without mass chaos with a list of 1000 cherubs with wings. We really want to include everyone and not leave anyone out. I would feel horrible if a cherub wasn't listed so please, please take a few minutes to double-check to make sure your cherub is included if you are a grieving parent.
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If you're having any trouble logging on to the site, the following are administrators for the site and can help you get logged in:
Stephanie - solivarez@cherubs-cdh.org
Barb - bwagner@cherubs-cdh.org
Danielle - dkessner@cherubs-cdh.org
Corin - cnava@cherubs-cdh.org
Tara - thall@cherubs-cdh.org
Dawn - dawn.williamson@cherubs-cdh.org
Please do try to update the calendar yourself first before you ask for help, as we are completely swamped right now. But know we are here if you need help!
Showing posts with label members. Show all posts
Showing posts with label members. Show all posts
Wednesday, December 3, 2008
Tuesday, March 11, 2008
CHERUBS Winter 2008 Newsletter Issue is out
Our Winter 2008 issue is out!
http://www.cdhsupport.org/newsletter
Includes information on our events, conferences and get-togethers, CDH awareness activities, stories and photos of children born with Congenital Diaphragmatic Hernia, CDH research studies and much more!
http://www.cdhsupport.org/newsletter
Includes information on our events, conferences and get-togethers, CDH awareness activities, stories and photos of children born with Congenital Diaphragmatic Hernia, CDH research studies and much more!
Labels:
babies,
baby,
cdh,
cdh support,
CHERUBS,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Awareness,
Families,
grieving,
media,
members,
newsletter,
parents,
stories,
survivors
Monday, March 3, 2008
CHERUBS 2008 International Member Conference - Book Rooms!
2008 International Conference for Families of Children born with Congenital Diaphragmatic Hernia.
Now you can book your rooms for the conference!
Details here - http://www.cdhsupport.org/members/viewtopic.php?t=1442&highlight=
July 25 & 26, 2008
Raleigh - Durham, NC
For all CHERUBS members!!! You *must* be a member to attend so make sure that you join!
http://www.cdhsupport.org
Now you can book your rooms for the conference!
Details here - http://www.cdhsupport.org/members/viewtopic.php?t=1442&highlight=
July 25 & 26, 2008
Raleigh - Durham, NC
For all CHERUBS members!!! You *must* be a member to attend so make sure that you join!
http://www.cdhsupport.org
Friday, February 29, 2008
International Congenital Diaphragmatic Hernia Conference
There will be conference on July 25-26, 2008 in Raleigh, NC for CHERUBS members. There will be round table discussions, guest speakers, pizza party for the kids and much more. But most importantly, it will be an opportunity for CDH families to come together and support each other person. It will also be tied into several huge awareness events that same weekend so we'll be helping each other and raising public awareness.
http://www.cdhsupport.org/events
http://www.cdhsupport.org/events
Labels:
cdh,
CHERUBS,
Conference,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Support,
Families,
family,
members,
parents
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