Showing posts with label videos. Show all posts
Showing posts with label videos. Show all posts

Friday, February 13, 2009

New CDH Awareness Video - we need your help!

I'd like to put together a video of CDH families to stand up to this Congenital Diaphragmatic Hernia Awareness trademark. I would like *ALL* CDH families to participate! Not only will be this good for standing up to this trademark but for awareness in general.

To participate, send in a video clip just a few seconds long to membership@cherubs-cdh.org Make sure to include your name and your cherub's name!

The video should include you, your cherub or your family just standing / sitting and saying "I own Congenital Diaphragmatic Hernia Awareness". Or "We own Congenital Diaphragmatic Hernia Awareness" if there more than one person in the video.

Young CDH Survivors - Videos of CDH survivors saying this would be great... especially the little ones looking all cute! :)

New Parents - videos of parents saying this in the NICU beside their cherubs would be great. The whole NICU experience and dealing with CDH is what is we're trying to raise awareness about!

Expectant Parents - show off that tummy and say it! :)

Grieving Families - hold a photo of your cherub and say it or stand at the cemetery or whatever you want to do to get the point across that this is a deadly birth defect and awareness is crucial.

You don't have to be professional to take the video. You don't have to be glammed up or in a studio. Just be yourselves!!! Use any video camera at all, it doesn't have to be perfect quality.

The video will include your photos and a few slides about what CDH is. It will also include 1 or 2 slides stating that we are fighting to stop the trademark. CDH families and organizations (those not involved in helping BoH) are invited to participate.

This video will be posted on YouTube, our sites, blogs, Facebook, Myspace, etc. You'll be able to post it yourselves to wherever you'd like as well. This video will also be sent to the Board of Directors at Breath of Hope, Incorporated as a plea to get them to knock off this trademark nonsense.

We'd like to get at least 50 families participating! Deadline to get your video in is February 25th!

Feel free to post this to your blogs, myspaces, facebooks, etc or send it to other CDH families!

Monday, March 3, 2008

CDH on YouTube... chosen charity raising lots of awareness!

I have some really great news for us CDH families! YouTube has chosen CHERUBS as one of their chosen charities and they even sent us a brand new Flip video camera to help bring more CDH Awareness to their site! We will be using it at conferences and events and to interview CDH families. We are really excited about this because YouTube is a huge site and this will bring a lot of awareness to a lot of people! :)

Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)

http://www.youtube.com/user/cdhsupport

Friday, February 29, 2008

CDH on YouTube... chosen charity raising lots of awareness!

I have some really great news for us CDH families! YouTube has chosen CHERUBS as one of their chosen charities and they even sent us a brand new Flip video camera to help bring more CDH Awareness to their site! We will be using it at conferences and events and to interview CDH families. We are really excited about this because YouTube is a huge site and this will bring a lot of awareness to a lot of people! :)

Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)

http://www.youtube.com/user/cdhsupport

Monday, January 14, 2008

CHERUBS & Diaphragmatic Hernia Babies on YouTube

CHERUBS is now on YouTube! We are an official YouTube charity (which isn't easy to do!) and we are trying to set our profile up there. We also are working on a one hour informational and educational Congenital Diaphragmatic Hernia video and would love to feature as many cherubs as possible!

If you have a video or are already on YouTube, please make sure to link to CHERUBS!

http://www.youtube.com/profile?user=cdhsupport

If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!

http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=

Please forward this to any other CDH parent that you may know that would want to participate! :)