This video is of the son of CHERUBS President and Founder, Dawn Williamson. Shane Torrence was born on January 28, 1993 with left-sided CDH and multiple other birth defects and complications. He lost his fight at age 6 on September 11, 1999.
This video is the most viewed personal CDH video on YouTube (the most viewed CDH video The Jammies "I'll Never Let You Go" dedicated to our cherubs). Currently, it is just under 9000 views. Our goal is to raise awareness by asking enough people to view it to raise that to 10,000 by April 19th.
Will you help? Please share on your Facebook or Twitter.
Showing posts with label Video. Show all posts
Showing posts with label Video. Show all posts
Tuesday, March 13, 2012
Wednesday, July 29, 2009
Get Out Your Video Cameras - We Need Kids To Help With Book Project!!
As part of new kid's book project, we will have a song and a video. We need videos of kid's explaining what Congenital Diaphragmatic Hernia is in their own terms. The best one will be created into the text of the new kid's book!
Simply video tape your child (cherub or sibling or cousin) explaining the best that they can (in kid's term) what CDH is. Then send us the video to events@cdhsupport.org
Video entry deadline is August 5th - we need to hurry these up so we can vote and get these books done for our CHERUBS HOPE totebags! :)
Simply video tape your child (cherub or sibling or cousin) explaining the best that they can (in kid's term) what CDH is. Then send us the video to events@cdhsupport.org
Video entry deadline is August 5th - we need to hurry these up so we can vote and get these books done for our CHERUBS HOPE totebags! :)
Labels:
baby book,
cdh,
cdh video,
Congenital Diaphragmatic Hernia,
Hope,
kid's book,
tote bag,
totebag,
Video
Monday, January 12, 2009
Monday, March 3, 2008
CDH on YouTube... chosen charity raising lots of awareness!
I have some really great news for us CDH families! YouTube has chosen CHERUBS as one of their chosen charities and they even sent us a brand new Flip video camera to help bring more CDH Awareness to their site! We will be using it at conferences and events and to interview CDH families. We are really excited about this because YouTube is a huge site and this will bring a lot of awareness to a lot of people! :)
Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)
http://www.youtube.com/user/cdhsupport
Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)
http://www.youtube.com/user/cdhsupport
Labels:
birth defect,
cdh,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Awareness,
Video,
videos,
YouTube
Friday, February 29, 2008
CDH on YouTube... chosen charity raising lots of awareness!
I have some really great news for us CDH families! YouTube has chosen CHERUBS as one of their chosen charities and they even sent us a brand new Flip video camera to help bring more CDH Awareness to their site! We will be using it at conferences and events and to interview CDH families. We are really excited about this because YouTube is a huge site and this will bring a lot of awareness to a lot of people! :)
Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)
http://www.youtube.com/user/cdhsupport
Also, we are putting together several videos - including one for parents of newly diagnosed CDH babies that the doctors will be using. We are really excited to be working with the medical community to help expectant parents and to do this job right, we need your help! Please submit any videos that you want included to our YouTube site and our great video volunteers will be using those videos for the CDH Informational Video. The more CDH families that participate, the better, because all of our stories are so different. By the way, these videos will also be going to television stations as well! :)
http://www.youtube.com/user/cdhsupport
Labels:
babies,
cdh,
Charity,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Awareness,
expectant,
Families,
media,
stories,
television,
Video,
videos,
YouTube
Monday, January 14, 2008
CHERUBS & Diaphragmatic Hernia Babies on YouTube
CHERUBS is now on YouTube! We are an official YouTube charity (which isn't easy to do!) and we are trying to set our profile up there. We also are working on a one hour informational and educational Congenital Diaphragmatic Hernia video and would love to feature as many cherubs as possible!
If you have a video or are already on YouTube, please make sure to link to CHERUBS!
http://www.youtube.com/profile?user=cdhsupport
If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!
http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=
Please forward this to any other CDH parent that you may know that would want to participate! :)
If you have a video or are already on YouTube, please make sure to link to CHERUBS!
http://www.youtube.com/profile?user=cdhsupport
If you would like to participate in the video (which will be posted all over the internet and copies sent to every pediatric surgeon in the United States!), please make sure to come on over to our site and pitch in ideas, photos, video, etc!
http://cdhsupport.org/members/viewtopic.php?t=1188&highlight=
Please forward this to any other CDH parent that you may know that would want to participate! :)
Labels:
cdh,
CHERUBS,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Awareness,
educational,
Families,
family,
informational,
Video,
videos,
YouTube
Tuesday, December 18, 2007
On-Line CDH Video!
Courtesy of Children's Hospital of Philadelphia, home of one of our Medical Advisors, our web site now has more information on CDH, incredible anatomy graphics and you can view a wonderful CDH video on-line! Thank you CHOP!
http://cdhsupport.org/cdh/
We have also added a CDH info video narrated by Michael Harrison of UCSF, the founding father of fetal surgery and another one of our Medical Advisors. Thank you, Dr. Harrison for supporting CHERUBS for 12 years and CDH families for 2 decades!!!! :)
http://cdhsupport.org/cdh/
We have also added a CDH info video narrated by Michael Harrison of UCSF, the founding father of fetal surgery and another one of our Medical Advisors. Thank you, Dr. Harrison for supporting CHERUBS for 12 years and CDH families for 2 decades!!!! :)
Labels:
cdh,
CHOPS,
Congenital Diaphragmatic Hernia,
Congenital Diaphragmatic Hernia Research,
Fetal Surgery,
Information,
Research,
UCSF,
Video
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