2009 International CDH Conference

CHERUBS 2009 International Member Conference for families affected by Congenital Diaphragmatic Hernia begins in just 2 days!

CHERUBS 2009 International Member Conference
San Antonio, TX
July 23-25, 2009

You can download our conference program here - http://www.cherubsconference.org/2009CDHConferenceBrochure.pdf

For information on this year's conference, visit our site at http://www.cdhconference.org


Conference Schedule:


WEDNESDAY, JULY 22nd

3:00 pm - Check in

7:00 pm - CHERUBS Pizza Party Meet & Greet - Join us for introductions! Also the unveiling of the new CDH song by The Jammies!



THURSDAY, JULY 23rd

8:00 am - Welcome Speech by Dawn

8:30 am - 10:00 am – Guest Speaker Daryl Scott, MD (Baylor College of Medicine, Houston, TX) will discuss "Genes for CDH: Arrays, Mice and Humans"

10:30 am -12:00 pm - Guest Speakers Pamela Lally, MD and Kevin Lally, MD (The University of Texas, Houston, TX) will discuss the International CDH Study Group


FRIDAY, JULY 24th

8:00 am - 9:00 am - (Choice of) Round Table Discussions

“Grieving A Lost Dream & Life” (Grieving Parents)
or "Grieving A Lost Dream” (Parents of Survivors)

9:00 am - 10:00 am - (Choice of) Round Table Discussions

“IEPs and School for Cherubs”
or "Dealing With Family and Friends”

10:00 am – 12:00 noon – Guest Speakers Meaghan Russell and Dr. Mauro Longoni (MassGeneral CDH Clinic, Boston, MA) will discuss Genetic Research Into CDH


SATURDAY, JULY 25th

8:00 am - 9:00 am - (Choice of) Round Table Discussions

"Feeing Issues and Other Therapies”

or "Ways To Remember Our Cherubs”

or "Being A CDH Survivor / Sibling” (for kids over age 7)

9:00 am - 10:00 am - (Choice of) Round Table Discussions

"How We Have Changed Who We Are” (Parents of Survivors))

or "How We Have Changed Who We Are” (Grieving Parents)

10:00 am - 11:00 am - (Choice of) Round Table Discussions

“Dealing With Relationship Issues With A Sick Child”

or "Dealing With Siblings”

11:00 am – 12:00 noon – Good-byes


*topics and presenters are subject to change

Above video from our CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia (CDH)

CHERUBS 2008 CDH Conference Guest Speakers - Meaghann Russell, MPH and Mauro Longoni, MD

CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia.

Meaghann Russell, MPH and Mauro Longoni, MD (MassGeneral CDH Clinic, Boston, MA) speech on CDH and Genetics.

This only includes the speech. This does not include questions, comments or dialogue with members (you have to attend our conference to hear and participate in that!).


Part 1



Part 2



Part 3



Part 4



Part 5



Part 6

For information on this year's conference you can visit http://www.cherubsconference.org

For information on CHERUBS and CDH please visit http://www.cdhsupport.org

CHERUBS 2008 CDH Conference Guest Speakers - Priscilla Chiu, MD

CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia.

Dr. Priscilla Chiu's (Sick Childrens, Toronto, Canada) speech on The Surgical Repair of CDH

This only includes the speech. This does not include questions, comments or dialogue with members (you have to attend our conference to hear and participate in that!).


Part 1



Part 2



Part 3



Part 4

For information on this year's conference you can visit http://www.cherubsconference.org

For information on CHERUBS and CDH please visit http://www.cdhsupport.org

CHERUBS 2008 CDH Conference Guest Speaker - Brenda Slavin, RN

CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia.

Brenda Slavin, RN (Children's National Medical Center, Washington DC) speech on "Intensive Care Unit and Nursing Care".

This only includes the speech. This does not include questions, comments or dialogue with members (you have to attend our conference to hear and participate in that!).


Part 1



Part 2



Part 3



Part 4

For information on this year's conference you can visit http://www.cherubsconference.org

For information on CHERUBS and CDH please visit http://www.cdhsupport.org

CHERUBS 2009 International Member Conference

Finally, it is all finalized and we have the hotel information! I will be posting more information (driving directions, etc) soon.

The Holiday Inn Select San Antonio Airport
77 NE Loop 410
San Antonio, TX 78216
210-349-9900

http://www.hisairport.com

CHERUBS Room Rate is $89.00
CHERUBS Room Rate + Breakfast for 2 adults is $97.00

Breakfast is not free with your room! I'm sorry, we tried, but this is the best we can do! Feel free to bring milk, cereal, etc if you want to save money! I think kid's do eat free in the dining room (per their site).

Rooms come with coffee makers, microwaves and mini fridges. There is a pool, restaurant, bar and fitness center. Free internet.

To receive the CHERUBS discount you *MUST* tell them you are CHERUBS members when you book the room and you must book it for July 22-25th or longer. We have to book 25 rooms to get our discounts and freebies so please, please, PLEASE stay at this hotel!!! It's definitely the best value around anyway!!! :)

I was planning on rooming myself with another mom but because we need to book those rooms I'm now booking my own room. I know several of you are rooming but please reconsider if you can afford it (we totally understand if you can't! We just want you to attend either way!).

We worked really hard to find a decent, safe hotel that was inexpensive and we hope we did ok. It's not glamorous but then, we didn't want our members paying $150 a night to stay on the Riverwalk. This hotel is near the airport and includes an airport shuttle and will also go anywhere in a 2 mile radius of the hotel (that's not including the Riverwalk or Sea World, but does include the malls).

They have been very generous to us and are allowing us a FREE suite for the kids during the conference and are only charging us a cleaning for the Meeting Room... that's saving us $1000's!!! So a huge thank you to the Holiday Inn Select!!!

We're working on the conference web site and brochure, as well as locking in our 3 speakers and kid's entertainment.

Tentatively, here's our schedule:

July 22, 2009 - Check In
July 22, 2009 6:00 pm to 9:00 pm - Pizza Party and Introductions
July 23, 2009 8:00 am to 12:00 noon - Conference
July 24, 2009 8:00 am to 12:00 noon - Conference
July 25, 2009 8:00 am to 12:00 noon - Conference
July 25, 2009 - Check Out

That gives everyone the afternoons & evenings to go play.

Our guest speakers will speak on CDH Research, Genetics and Repair - including the head of the CDH Study Group, Dr. Lally. Round table discussions will be held for both parents of survivors and grieving parents.

There will be free babysitting during conference hours for the kids (volunteers needed!) and entertainment for them too (clown, magician, etc).

There is no conference fee, you just have to be a member of CHERUBS to attend!

You are responsible for your own lodging, food and other travel costs.

We are working on discount tickets for the local attractions. I have to say that the San Antonio Tourist Bureau has been AMAZING!!!! They will be sending all of our member info on the conference and San Antonio at no cost to CHERUBS!!! :)

So far it looks like there will be about 150 in attendance!!! We have members coming in from Australia, Mexico, Great Britain, Canada and Italy as well!!! This is truly a CHERUBS INTERNATIONAL Conference!!! :)

We hope to see you all there!!!

CHERUBS 2009 International Conference

The date and location have been set! July 23-25, 2009 in San Antonio, Texas! The hotel location will be posted soon.

Our conference include several CDH experts as guestspeakers, round table discussions for both families of survivors and grieving families, pizza party, entertainment for the kids and more!

This year we are expecting about 100 members with families flying in from as far as Australia! We will have at least 4 countries represented at this conference - hopefully many more.

All members of CHERUBS (including CHERUBS UK and CHERUBS Australia) are welcome to attend! If you're not a member, sign up for free at http://www.cdhsupport.org/members

Miracles Do Exist

This video is from our local NC news channel. It's quite inspirational to everyone, but especially to families who are dealing with medically fragile children such as our children born with Congenital Diaphragmatic Hernia.

http://www.wral.com/news/local/video/4187280/

This is a wonderful example of why our organization is named CHERUBS. For the baby angels that these children are. Miracles can happen with angels and cherubs. So many of our families have witnessed miracles. Miracles do exist.

International Congenital Diaphragmatic Hernia Conferences

The locations of our next 2 International Congenital Diaphragmatic Hernia Conferences have been chosen!

July, 2009 - Texas! Town and exact date not yet decided.

July, 2010 - San Francisco, California! Exact date not yet decided.


More details will be posted in the coming months!

CHERUBS 2008 International Member Conference - Book Rooms Before April 30th Please!

If 15 families books their rooms before April 30th then CHERUBS will save $600 on the conference room.... since we have a shred of a shoestring budget for this conference it would really help us to be able to save this money! For booking information please visit our site at http://cdhsupport.org/events/conference/