You can download our conference program here - http://www.cherubsconference.org/2009CDHConferenceBrochure.pdf
For information on this year's conference, visit our site at http://www.cdhconference.org
Conference Schedule:
WEDNESDAY, JULY 22nd
3:00 pm - Check in
7:00 pm - CHERUBS Pizza Party Meet & Greet - Join us for introductions! Also the unveiling of the new CDH song by The Jammies!
THURSDAY, JULY 23rd
8:00 am - Welcome Speech by Dawn
8:30 am - 10:00 am – Guest Speaker Daryl Scott, MD (Baylor College of Medicine, Houston, TX) will discuss "Genes for CDH: Arrays, Mice and Humans"
10:30 am -12:00 pm - Guest Speakers Pamela Lally, MD and Kevin Lally, MD (The University of Texas, Houston, TX) will discuss the International CDH Study Group
FRIDAY, JULY 24th
8:00 am - 9:00 am - (Choice of) Round Table Discussions
“Grieving A Lost Dream & Life” (Grieving Parents)
or "Grieving A Lost Dream” (Parents of Survivors)
9:00 am - 10:00 am - (Choice of) Round Table Discussions
“IEPs and School for Cherubs”
or "Dealing With Family and Friends”
10:00 am – 12:00 noon – Guest Speakers Meaghan Russell and Dr. Mauro Longoni (MassGeneral CDH Clinic, Boston, MA) will discuss Genetic Research Into CDH
SATURDAY, JULY 25th
8:00 am - 9:00 am - (Choice of) Round Table Discussions
"Feeing Issues and Other Therapies”
or "Ways To Remember Our Cherubs”
or "Being A CDH Survivor / Sibling” (for kids over age 7)
9:00 am - 10:00 am - (Choice of) Round Table Discussions
"How We Have Changed Who We Are” (Parents of Survivors))
or "How We Have Changed Who We Are” (Grieving Parents)
10:00 am - 11:00 am - (Choice of) Round Table Discussions
“Dealing With Relationship Issues With A Sick Child”
or "Dealing With Siblings”
11:00 am – 12:00 noon – Good-byes
*topics and presenters are subject to change
Above video from our CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia (CDH)
No comments:
Post a Comment