Monday, July 20, 2009

2009 International CDH Conference

CHERUBS 2009 International Member Conference for families affected by Congenital Diaphragmatic Hernia begins in just 2 days!

CHERUBS 2009 International Member Conference
San Antonio, TX
July 23-25, 2009


You can download our conference program here - http://www.cherubsconference.org/2009CDHConferenceBrochure.pdf

For information on this year's conference, visit our site at http://www.cdhconference.org


Conference Schedule:


WEDNESDAY, JULY 22nd

3:00 pm - Check in

7:00 pm - CHERUBS Pizza Party Meet & Greet - Join us for introductions! Also the unveiling of the new CDH song by The Jammies!



THURSDAY, JULY 23rd

8:00 am - Welcome Speech by Dawn

8:30 am - 10:00 am – Guest Speaker Daryl Scott, MD (Baylor College of Medicine, Houston, TX) will discuss "Genes for CDH: Arrays, Mice and Humans"

10:30 am -12:00 pm - Guest Speakers Pamela Lally, MD and Kevin Lally, MD (The University of Texas, Houston, TX) will discuss the International CDH Study Group


FRIDAY, JULY 24th

8:00 am - 9:00 am - (Choice of) Round Table Discussions

“Grieving A Lost Dream & Life” (Grieving Parents)
or "Grieving A Lost Dream” (Parents of Survivors)

9:00 am - 10:00 am - (Choice of) Round Table Discussions

“IEPs and School for Cherubs”
or "Dealing With Family and Friends”

10:00 am – 12:00 noon – Guest Speakers Meaghan Russell and Dr. Mauro Longoni (MassGeneral CDH Clinic, Boston, MA) will discuss Genetic Research Into CDH


SATURDAY, JULY 25th

8:00 am - 9:00 am - (Choice of) Round Table Discussions

"Feeing Issues and Other Therapies”

or "Ways To Remember Our Cherubs”

or "Being A CDH Survivor / Sibling” (for kids over age 7)

9:00 am - 10:00 am - (Choice of) Round Table Discussions

"How We Have Changed Who We Are” (Parents of Survivors))

or "How We Have Changed Who We Are” (Grieving Parents)

10:00 am - 11:00 am - (Choice of) Round Table Discussions

“Dealing With Relationship Issues With A Sick Child”

or "Dealing With Siblings”

11:00 am – 12:00 noon – Good-byes


*topics and presenters are subject to change











Above video from our CHERUBS 2008 International Member Conference for families affected by Congenital Diaphragmatic Hernia (CDH)

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