CHERUBS CDH Research Awareness & Support

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support. CHERUBS is an international non-profit organization for families and care-givers of children who are born with Congenital Diaphragmatic Hernia (CDH). Founded in 1995 CHERUBS has over 3000 members in 38 countries and all 50 states. We are an IRS recognized 501(III)C Non-Profit Organization.

Sunday, July 5, 2009

"My stomach was in my shoulder!"

http://www.people.co.uk/news/tm_headline=my-stomach-was-in-my-shoulder&method=full&objectid=21459076&siteid=93463-name_page.html

A great article about Morgani CDH diagnosed in an adult, also features CHERUBS UK!

Posted by CHERUBS CDH Non-Profit at 2:27 PM    

Labels: adult, cdh, CHERUBS UK, Congenital Diaphragmatic Hernia, morgani

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CHERUBS State & International Representatives Blogs

  • Ohio CHERUBS
    Ohio Picnic Wrap Up - We had a small group of both new and old members this year. Pictures coming soon!
    5 weeks ago
  • Pennsylvania CHERUBS
    PA GET TOGETHER! - I am proud to announce our get-together plans are finalized! June 6th, 2009 12:00pm – sunset South Park, PA, 15129 www.county.allegheny.pa.us/parks Sunny S...
    6 months ago
  • North Carolina CHERUBS
    North Carolina Get-Together - North Carolina Get-Together May 17, 2009 Pullen Park, Raleigh, NC CHERUBS informal get-together at Pullen Park for families affected by CDH. Pullen Park is...
    7 months ago
  • CHERUBS Canada
    Stop the trademark video! - I am sure most of you know that Breath of Hope Inc. has filed to claim the term “Congenital Diaphragmatic Hernia Awareness” CHERUBS is doing everything to ...
    7 months ago
  • CHERUBS Australia
    STATE Contacts - Victoria Grieving Families: Danielle Kessner danielle.kessner@cdh.org.au or 03 5135 6999 Surviving/Expecting Families: Karen Vella karen.vella@cdh.org....
    11 months ago
  • Washington CHERUBS
    WA Email - *Please feel free to email me @ * *ggebow@cherubs-cdh.org* ** *Georgia*
    11 months ago
  • Minnesota CHERUBS
    - Welcome everyone to the MN Cherubs Blog. I am Melissa Glennie, the MN State Representative for Cherubs. My daughter, Vivian, was born on 7/6/2005 with an L...
    11 months ago
  • Wyoming and Colorado CHERUBS
    Welcome!! - Welcome to the Wyoming and Colorado Cherubs’ Blog! My name is Tracy and I am WY and CO’s State Representative for Cherubs. I am a mom to a 4 year old CDH...
    11 months ago
  • CHERUBS India
    Hello world! - Welcome to Cherubs India. If you are here because you have recently heard of a diagnosis of CDH or Congenital Diaphragmatic Hernia from any doctor here in ...
    1 year ago
  • Michigan CHERUBS
    -

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About CHERUBS

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

CHERUBS was founded in 1995 to help families of children born with CDH. CDH is a severe birth defect that occurs when the diaphragm fails to fully form, allowing organs into the chest cavity and preventing lung growth. CDH occurs in 1 in ever 2500 babies and has a 50% mortality rate. The cause is not known. CDH occurs as often as Spina Bifida and Cystic Fibrosis, affecting 1000's of babies a year in the United States, yet there is little research and virtually no media attention given to this devestating birth defect. Please help CDH to raise public awareness of Congenital Diaphragmatic Hernia.

CHERUBS offers free membership to families and medical care providers of children born with Congenital Diaphragmatic Hernia. As of 2009 our membership includes over 3000 in 38 countries and all 50 states. CHERUBS is 501(c)III organization run strictly by volunteers and subsisting on donations.

For more information on CDH and CHERUBS please visit our web site at http://www.cdhsupport.org

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Your donation funds our services to families affected by CDH, including our extensive site, parent reference guides, newsletters, parent matching, awareness events, support services and more. CHERUBS is run solely by donations and volunteers. We do not receive federal funding, grants or other monetary support. Donations are tax-deductible.

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Blog Archive

  • ▼ 2009 (224)
    • ► November (9)
      • Prayers & Quotes for November 9, 2009
      • New Congenital Diaphragmatic Hernia Awareness Holi...
      • Personalized Official Congenital Diaphragmatic Her...
      • Change for CHERUBS
      • Congenital Diaphragmatic Hernia Awareness Ribbon O...
      • Why Not My Cherub?.... A Letter To Grieving Paren...
      • Prayers & Quotes for November 2, 2009
      • Please change your profile photo today in memory o...
      • CDH Bricks... Building An End To This Horrible Bir...
    • ► October (29)
      • What People Are Saying About CHERUBS - we're reque...
      • Prayers & Quotes for October 28, 2009
      • Prayers & Quotes for October 23, 2009
      • CHERUBS HOPE Totebag Project Delivers 1st Totebag ...
      • Prayers & Quotes for October 20, 2009
      • Get out your video camera - we need help with kids...
      • Vote for Dawn Williamson & CHERUBS to help win $5,...
      • October 15, 2009 - International Baby Loss Day
      • Five UCSF scientists named to Institute of Medicin...
      • 2009 CHERUBS Angel Ball has been Cancelled
      • CDH, Pulmonary Issues, Flu, H1N1, RSV and vaccines...
      • Let's get Dr Oz to do a CDH show
      • DRG Property Services Offers CHERUBS Members disco...
      • CHERUBS Australia Annual Forum - October 16-18, 20...
      • 3rd Annual Jack's Baby Shower in Huntsville, Arkan...
      • Christmas with Kasey Fundraiser and CDH Awareness ...
      • CHERUBS Winter Book Club for Families affected by ...
      • CHERUBS Leads The Way For CDH Information and Supp...
      • Congenital Diapraghmatic Hernia: Outcomes
      • Congenital Diapraghmatic Hernia: State of Current ...
      • CDH In The News - "Renovation for Ronald McDonald ...
      • Goodsearch and Goodshop for CHERUBS - it's a free ...
      • CDH Fundraisers on Firstgiving.com
      • New CDH Awareness Profile Stickers for Facebook!
      • Congenital Diapraghmatic Hernia: What to Expect Wh...
      • Congenital Diapraghmatic Hernia: What Happens Afte...
      • Congenital Diaphragmatic Hernia: Tracheal Occusion...
      • Volunteering at CHERUBS
      • Quote about CHERUBS
    • ► September (8)
      • CDH Research Study - Molecular Genetic Analysis of...
      • News Article - Scotland sets up ECMO expert group
      • Research Article - A Useful Tool in the Prenatal D...
      • News Article - Children's Hospital Boston's Techno...
      • Volunteering at CHERUBS
      • CDH Families around the United States
      • CHERUBS HOPE Totebag Project Blankets
      • New CDH Kid's Song
    • ► August (13)
      • CDH Fundraisers
      • Vote For CDH Awareness in Facebook "Vote for a Cau...
      • CHERUBS New Volunteering Process
      • Press Release: Local CDH Angel Ball Needs A Real-...
    • ▼ July (18)
      • Get Out Your Video Cameras - We Need Kids To Help ...
      • CHERUBS Adopt A Hospital CDH Program - CHOP adopte...
      • CHERUBS Adopt A Hospital CDH Program - Duke Univer...
      • CHERUBS 2009 International Member Congenital Diaph...
      • 2009 International CDH Conference
      • New CDH Song Video - We Need Your Help!
      • CHERUBS New CDH Baby Book - We Need Your Help!
      • CHERUBS New Tote Bag Project Has Been Named
      • Can You Donate Any Of These Items To CDH Families?...
      • CHERUBS 2009 International Member Conference
      • CHERUBS and the American Pediatric Surgical Associ...
      • CHERUBS Impact Upon CDH - Are you working to help ...
      • CHERUBS Adopt A Hospital Program
      • Please take a minute to vote for CHERUBS to win a ...
      • CHERUBS Gift Bag Project
      • CDH Celebrity Spokesperson - Bruno Carneiro
      • CHERUBS Timeline
      • "My stomach was in my shoulder!"
    • ► June (15)
    • ► May (18)
    • ► April (28)
    • ► March (17)
    • ► February (31)
    • ► January (38)
  • ► 2008 (127)
    • ► December (37)
    • ► November (15)
    • ► October (8)
    • ► September (21)
    • ► August (2)
    • ► July (1)
    • ► June (1)
    • ► May (7)
    • ► April (12)
    • ► March (7)
    • ► February (11)
    • ► January (5)
  • ► 2007 (26)
    • ► December (13)
    • ► November (12)
    • ► September (1)

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