http://www.cdhsupport.org/members
Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free.
There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members' privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!
Our Forums (Public ones marked - all others are members only)
CHERUBS News (Public)
Updates on our organization, CHERUBS! Research, web site, newsletters, media, finances, legal, etc. If it's new, you'll find it here!
In The Media
The latest articles and shows involving CDH and/or CHERUBS members
Web Site News, Questions, Issues, Etc
Web site updates, issues, additions and general web site news.
CHERUBS Conferences & Get-Togethers
National & International Member Conferences as well as State and Local Get-Togethers
Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public)
Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!
CHERUBS Member Input
Polls, helping us with printed materials, donation lists, new siblings, etc
Stories of Survivors (Public)
Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.
Stories of Cherubs In Heaven (Public)
Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.
Introductions
EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.
Meet Other Parents Expecting Cherubs
Forum for parents Expecting CDH babies
Meet Other Parents of Surviving Cherubs
Meet the families of other surviving cherubs
Meet Other Grieving Parents
Forum for those who have lost their cherubs
Parents Who Chose To Let Go Early
A judgement-free place for those that chose to terminate a CDH pregnancy
Dad's Place
A place for dad's to talk about CDH or sports or whatever they want.
Grandparent's Gathering
Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.
Kid's Korner
Place for kids 10 and over to talk to other cherubs and siblings.
Expecting Babies After CDH
Having children after having a child with CDH
Trying To Conceive
Trying to have another baby after dealing with CDH (survivors & non-survivors)
Marriage & Relationship Issues
Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .
Inspirational Words
Inspirational stories, quotes and poetry. Please reference authors!
Prayer Requests
Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests
Non-CDH / Miscellaneous
For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.
In Utero Procedures
For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures
CDH & ECMO
Dealing with CDH and Extracorporeal Membrane Oxygenation machines.
Feeding Issues
Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc
Developmental Issues
Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues
Long Term Pulmonary Issues
Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.
CDH & Syndromes
Dealing with CDH and syndromes or chromosomal abnormalities
Multiple Births
CDH within mulitples - twins, triplets, quintuplets, etc
Other Medical Issues
Dealing with chest pectus, scoliosis, allergies or any other medical issue
CDH & Growing Pains
Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.
More Than 1 Cherub
Families dealing with more than 1 CDH baby (2% odds)
Medical Care & Insurance Praises / Comments
Parent opinions on hospitals / doctors / nurses and other medical care providers.
Other Conferences
Medical conferences, grieving parent conferences, etc
Research Studies (Public)
Research Studies actively recruiting CDH patients / families
CHERUBS CDH Research
CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.
Research Links
Links to research papers on CDH
Research Papers
Research papers, articles, and more - also see Research Links!
~ Northeast USA
Forum for all members in the Northeastern United States
Connecticut
Forum for members in Connecticut
Maine
Forum for members in Maine
Massachusetts
Forum for members in Massachusetts
New Hampshire
Forum for members in New Hampshire
New Jersey
Forum for members in New Jersey
New York
Forum for members in New York
Pennsylvania
Forum for members in Pennsylvania
Rhode Island
Forum for members in Rhode Island
Vermont
Forum for members in Vermont
~ South USA
Forum for all members in the Southern United States
Alabama
Forum for members in Alabama
Arkansas
Forum for members in Arkansas
Delaware
Forum for members in Delaware
Florida
Forum for members in Florida
Georgia
Forum for members in Georgia
Kentucky
Forum for members in Kentucky
Louisiana
Forum for members in Louisiana
Maryland
Forum for members in Maryland
Mississippi
Forum for members in Mississippi
North Carolina
Forum for members in North Carolina
Oklahoma
Forum for members in Oklahoma
South Carolina
Forum for members in South Carolina
Tennessee
Forum for members in Tennessee
Texas
Forum for members in Texas
Virginia
Forum for members in Virginia
Washington DC
Forum for members in the District of Columbia
West Virginia
Forum for members in West Virginia
~ Midwest USA
Forum for all members in the Midwestern United States
Illinois
Forum for members in Illinois
Indiana
Forum for members in Indiana
Iowa
Forum for members in Iowa
Kansas
Forum for members in Kansas
Michigan
Forum for members in Michigan
Minnesota
Forum for members in Minnesota
Missouri
Forum for members in Missouri
Nebraska
Forum for members in Nebraska
North Dakota
Forum for members in North Dakota
Ohio
Forum for members in Ohio
South Dakota
Forum for members in South Dakota
Wisconsin
Forum for members in Wisconsin
~ West USA
Forum for all members in the Western United States
Arizona
Forum for members in Arizona
California
Forum for members in California
Colorado
Forum for members in Colorado
Idaho
Forum for members in Idaho
Montana
Forum for members in Montana
Nevada
Forum for members in Nevada
New Mexico
Forum for members in New Mexico
Oregon
Forum for members in Oregon
Utah
Forum for members in Utah
Washington
Forum for members in Washington
Wyoming
Forum for members in Wyoming
Pacific, Military & US Territories
Alaska
Forum for members in Alaska
Hawaii
Forum for members in Hawaii
APO's
Forum for members in the US Armed Forces stationed overseas
American Somoa
Forum for members in American Somoa
Guam
Forum for members in Guam
Northern Mariana Islands
Forum for members in the Northern Mariana Islands
Puerto Rico
Forum for members in Puerto Rico
U.S. Virgin Islands
Forum for members in the Virgin Islands
Canada
Forum for CHERUBS members in Canada
Mexico
Forum for CHERUBS members in Mexico
Belgium
Forum for CHERUBS members in Belgium
Denmark
Forum for CHERUBS members in Denmark
France
Forum for CHERUBS members in France
Germany
Forum for CHERUBS members in Germany
Great Britain
Forum for CHERUBS members in England
Greece
Forum for CHERUBS members in Greece
Ireland
Forum for CHERUBS members in Ireland
Spain
Forum for CHERUBS members in Spain
Italy
Forum for CHERUBS members in Italy
Lithuania
Forum for CHERUBS members in Lithuania
The Netherlands
Forum for CHERUBS members in Holland
Northern Ireland
Forum for CHERUBS members in Northern Ireland
Norway
Forum for CHERUBS members in Norway
Romania
Forum for CHERUBS members in Romania
Scotland
Forum for CHERUBS members in Scotland
Australia
Forum for CHERUBS members in Australia
New Guinea
Forum for CHERUBS members in New Guinea
New Zealand
Forum for CHERUBS members in New Zealand
Hong Kong
Forum for CHERUBS members in Hong Kong
India
Forum for CHERUBS members in India
Japan
Forum for CHERUBS members in Japan
Malta
Forum for CHERUBS members in Malta
Singapore
Forum for CHERUBS members in Singapore
Turkey
Forum for CHERUBS members in Turkey
Brazil
Forum for CHERUBS members in Brazil
Chile
Forum for CHERUBS members in Chile
Columbia
Forum for CHERUBS members in Columbia
Peru
Forum for CHERUBS members in Peru
Venezuela
Forum for CHERUBS members in Venezuela
Egypt
Forum for CHERUBS members in Egypt
South Africa
Forum for CHERUBS members in South Africa
Oman
Forum for CHERUBS members in Oman
United Arab Emirates
Forum for CHERUBS members in the UAE
Israel
Forum for CHERUBS members in Israel
Pakistan
Forum for CHERUBS members in Pakistan
Saudi Arabia
Forum for CHERUBS members in Saudi Arabia
Meet Our Wonderful Volunteers!
Volunteer Comments, Recruitment and Information
Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)
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