Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!
CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:
1. Go to http://www.facebook.com/VivintHome and "Like" Vivint
2. Go to http://www.voteforcdh.org/ and click the Vote button
3. Log in through Facebook and Vote!
4. Repeat #2 and #3 daily through August 27, 2011
Contest Update - We are holding steady in 3rd place but need to move up to 1st or 2nd for the money for the babies! Every vote counts!
Contest Voter Tip Of The Day - Send a text message through your phone to all your contacts, asking them to vote.
More Contest Info - visit http://www.voteforcherubs.org/ for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.
Did You Know? - Congenital Diaphragmatic Hernia was highly featured in the media in the 1990's when in utero repair was being done on babies still inside the womb? This procedure is no longer offered but several others are now being practiced or researched to help babies before they are born.
Kylee Freedom Green
Meet Our Cherubs! - From the start, we were resolved to understand what we were facing. We met with surgeons, doctors, genetic therapists and nurses. Despite their prognosis, we took every step to give her the best chance. Like our daughter, we were fighters.Thank you all for your support and your votes to help CDH babies!
None of the hospitals in Austin, Texas were equipped with a Level III-C neonatal intensive care unit (NICU), so we could not deliver near home. Relocating closer to Houston, TX, we stayed with my husband’s parents.
She was born October 4th, 2000 at just 35 weeks via emergency C-section due to massive
Polyhydramnios. Kylee was delivered at Saint Luke’s Episcopal Hospital in Houston, Texas. The team of specialists allowed us the briefest glimpse of her before she was rushed to Texas Children’s NICU. Born with Left-Sided Congenital Diaphragmatic Hernia, Kylee’s stomach (and part of the liver) was forced into the upper chest cavity. Her struggle was further complicated by several high risk conditions: AV canal defect, two-vessel cord, breech presentation, and Trisomy-18. Our sweet pea fought for 14 hours and then went on to be our angel.
We are proud of the life Kylee fought for. She continues to influence our family in all things. Wee proud of ourselves because we didn’t sit idly or passively no matter how inevitable the worst may have been.
Kylee now has a little brother Trey (age 8) and three sisters: Skyla (7), Chloe (5), and Elodie (2).
Over the years I have heard them all tell stories about their “big” sister Kylee. Trey talks about one day building a time machine. He will take all the kids to the past so he can fix Kylee and they can all play. The girls, Skyla and Chloe, call her their special tooth-fairy angel. It all makes me smile.
Kylee taught us how precious life is, no matter how brief. Our volunteer work with CHERUBS re-affirms that lesson every day. For 10 years now, I have been a volunteer for CHERUBS. Through CHERUBS, we have been honored to work with other families and friends across the country.
Thank you to all of my CDH families for all your support. You keep me going with all that you do for CHERUBS and for the special CHERUB in your life.
- Written by Joe & Freedom Green, parents to Kylee
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Vote for CHERUBS at http://www.voteforcdh.org
Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org/
Facebook CDH Voting Group at https://www.facebook.com/home.
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries. Searching for the cause, prevention and best treatments of CDH since 1995.
http://www.cdhsupport.org/
http://www.cdhresearch.org/
http://cdhsupport.blogspot.com/
http://www.cdhconference.org/
Phone - 919-610-0129 E-mail - info@cdhsupport.org
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA
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