2013 CDH Conference in Boston, CALL TO ACTION on Congressional Resolutions, New CDH Forums Facebook

Join us to raise CDH Awareness on April 19th!   2013 Congenital Diaphragmatic Hernia Conference Joint Medical and Family CDH Conference Co-Sponsored by CHERUBS, MassGeneral CDH Genetic Study Lab and Boston Children's Hospital July 9-13, 2013 in Boston, MA   Join us in Boston, Massachusetts for the first ever joint Medical and Family conference for CDH! The Inn at Longwood Medical 342 Longwood Avenue Boston, MA 02115   Families already registered from 3 continents.  Doctors submitting research abstracts for presentation.  The first ever joint CDH Medical and Family Conference The first ever CDH Medical Professional Panel assembled to answer family questions.   Participate in CDH Research Walk in the Parade of Cherubs Half-day meetings so you can enjoy the local attractions Meet other families and participate in round-table discussions ALL CDH families and medical professionals are welcome The largest CDH Conference in history! Click here to learn more and to register for this amazing event!  http://www.cdhconference.org Download the Prospectus - http://www.cherubs-cdh.org/conference/2013CDHConference.pdf     CALL TO ACTION Votes need for H Res 114 for Congenital Diaphragmatic Hernia Awareness Month in the United States House of Representatives On March 20, 2013 the United States Senate unanimously passed S. Res. 85 to make April 2013 NATIONAL CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS MONTH. (Click to watch the video) Senator Jefferson Sessions (R-AL) formally introduced the Resolution, co-sponsored by Senator Benjamin Cardin (D-MD). On April 9, 2013 Rep. Martha Roby (R-AL) andRep. George Holding (R-NC) introduced H. Res. 114 to make April 2013 NATIONAL CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS MONTH Please ask your Congressmen to support the companion Resolution H Res 114 in the United States House of Representatives. Go here to track the progress of the House Resolution - http://www.govtrack.us/congress/bills/113/hres144# Download H Res 114 - http://www.govtrack.us/congress/bills/113/hres144/text Senate Res. 85 - http://www.govtrack.us/congress/bills/113/sres85 Look Up Your Congressmen to find his / her mailing address - http://www.house.gov/writerep/ Call and ask to meet with your Congressman or their health aide in Washington DC or your state. Write a letter or e-mail and tell them your story and ask them to vote for H. Res. 114 April 19, 2013 CDH Awareness Day Proclamations and Events View photos of April 19th events around the world!       CDH Family Forums Join our safe, confidential, FREE fa mily forums and talk with over 4300 CDH families!  Now through our site or by Facebook! Join the CDH Family Forums at http://www.cdhboards.org Join the CDH Family Forums via Facebook App at https://apps.facebook.com/cdhcherubs/   Facebook Twitter Website Email Pinterest Google Plus Copyright © 2013 CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Suppot, All rights reserved. unsubscribe from this list    update subscription preferences